Emma Lake @EC_Lake
Social Media/Community Manager @CFTrust & tweets for @GariRedhill community pub. Lover of baking & dinosaurs. Owner of rubbish lungs & singing voice. Redhill, South East Joined September 2011-
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It's been a really challenging week since I was discharged from the Brompton. And now I'm having to isolate in my room at the Priory, because of course I would catch COVID in the middle of a heatwave 😅 Please send good thoughts as I try not to totally barmy/die from the heat.
Emma Lake retweeted
👇🏼it absolutely amazes me the gall of some people to need to comment on another’s weight (or any aspect of appearance for that matter). Be kind & mind your own f-ing bees wax #endweightstigma
Anyone sending birthday cards to The Priory, can you please mark them for East Wing and that they are birthday cards. Otherwise I have to open them with staff when they arrive and this way they can hang on to them till Thursday. Thanks!
Think the drs are trying to tell me something by giving me the role of Creon in the play we are working on...? #cysticfibrosis #eatingdisorderrecovery
@wouldrachel Sorry, thought I did (long day!) daals.co.uk/products/compa…
@wouldrachel It is very much like this one. Also stops me cluttering my desk and putting it away at end of day makes it feel like I am leaving the office.
@wouldrachel Rachel I have a pop up desk from a company who makes things for the elderly and it has changed my life. I will google it and send you a link
@wouldrachel My hubby loves licking envelopes. Happy to loan him to anyone for the festive period.
@VixThatRuns Also salted caramel where they have forgotten to add the salt.
When people ask why I'm not dashing back down the pub now sheilding is over 👇#91percent
Appalling facts: up to now 58% of deaths during Covid have been people with disabilities. If you're a disabled woman needing more support, you're 91% more likely to die. GEM and disabled? Much more. @WEPdisability and @WEP_UK are not happy. Are you @JustinTomlinson, @MattHancock?
Emma Lake retweeted
So powerful to hear the experience of PWCF during #COVID19 and the very real physical and psychological effects of shielding & lockdown #PatientExperience #CFVoices @ECFSConference #ECFS2021
Emma Lake retweeted
You are invited to join us and @CentreforMH for the launch of #AskHowIAm, a report and campaign calling for compassionate conversations for all people living with long-term conditions. 📅16 June, 10am To register and for more info: bit.ly/3i904gM
Great question. Tantrums in this house if we run out of Ribena or pickled onions.
@GreatStrides65 @MattHancock @VertexPharma @blakeydark @ChrisMRiches @NHSEngland @cftrust @janedaviescf Best bank holiday weekend ever?
@GreatStrides65 @krug79 @cftrust Oooh, was that the one I spoke at? That rendition of The Trolley Song was 👌👌.
In a month's time it'll be the end of #CFWeek & this jar will be full of jellybeans. Each 🍬 will represent every tablet I swallow between now & then. You lucky lot will have the chance to win entire jar. Here's where we are as of 6pm today, think I might need a bigger jar...
Emma Lake retweeted
I don't usually name and shame but I'm so bloody angry. Have just been emailed by PR company @sanitymarket promoting the story of a man who apparently cured his cancer through an 'alkaline vegan' diet. This kind of fake medicine is hugely dangerous and will endanger lives.
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Vix @VixThatRuns
750 Followers 261 Following Legendary local celebrity. #parkrun forever. Please do say hi! Race pb's (boring bit!): 1/2- 1:58:55 10k-53:39 5m-45:55 5k-25:16
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
UHB CF Dietitians @CF_dietitians
719 Followers 249 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Nick Talbot @CF_vs_Everest
2K Followers 912 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
David Turner (gs65 on... @GreatStrides65
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Cicely @cmathews_psych
353 Followers 423 Following PhD student, exploring the opportunities for digital tech in female sexual reproductive health in cystic fibrosis
CF inpatient unit -Pe... @PearceWardMFT
731 Followers 473 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
Natasha Allan @Happy808
792 Followers 3K Following
ManchesterCFResearch @Manchester_cf
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David Ramsden @DavidRamCFT
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Dr Katie Gathercole @katieguacamole
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Question CF @questionCF
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Angie @AngiecarterUK
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Chris Riches @ChrisMRiches
1K Followers 761 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2019 British Press Awards🏆& 2020 British Journalism Awards Campaign Journalist of the Year 🏆. ❤️Spurs
Mr O. Williams @lymden79
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Craig Harris @Craigbharr74762
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Clare Reilly @clarecmr100
311 Followers 661 Following CS Physio National CF unit SVUH. Therapy lead on the NCPCF. Education officer for @ECFSPhySIG Mum of 2 crazies. DSO Viola player 4 fun. Proud Nordie.
Total Care Websites @total_care_webs
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Charlie Merriman - WO... @CharlieMerriman
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EcoEarlswood 💚 Rac... @EarlswoodEco
481 Followers 363 Following Imperfect activist showing up for my local. Home to the Earlswood Farmers Market. 📍Earlswood, Surrey.
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Allen Thadei Arobaini... @lio_allan
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Dr Thom Daniels DM FR... @twvd73
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Sarah 👩🦼 @WolfydocS
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Christina J. Nicolais... @CJ_Nicolais
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DistillerSR @evidencepartner
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TrIFIC @TrIFIC_F
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Andres Floto @AndresFloto
341 Followers 212 Following VPD HLRI, U of Cambridge. Co-Director CCAIM & CID. Combining ML + genetics to understand bacteria-host interaction and create new antibiotics
flynn @victoriaflynn
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Alison Smith @ali_splat
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CF BDA Specialist Gro... @bda_cf
551 Followers 512 Following British Dietetic Association Cystic Fibrosis Specialist Group, Established over 20 years ago, but launched as an official BDA Specialist Group on 1 March 2019
Andrea Graham @AndreaGraham5
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European Cystic Fibro... @ecfs_ecfng
309 Followers 237 Following European Dietitians working with people with cystic fibrosis to support optimum nutrition and improve clinical outcomes
Elisa & the Night Peo... @elisanightpeopl
38 Followers 268 Following A fresh hit of #Cabaret #Pop #Fusion - BIG VOCALS AND LOUD HORNS - Listen to debut single #NIGHTPEOPLE here... https://t.co/MCCEWzDx7p…
Catherine Pryce @catherine_pryce
100 Followers 245 Following Respiratory Engagement Manager at Teva UK Ltd. Engage with healthcare professionals who are interested in Severe Asthma and Cystic Fibrosis. Opinions my own.
Katherine Cowan @KC_facilitation
2K Followers 880 Following Independent facilitator: health&social care research;priority setting&consensus development;patient & practitioner involvement/engagement; facilitation training
CFPhysio.com Inc @CfphysioInc
178 Followers 91 Following https://t.co/LNQmXVSsy9 Inc is a group of specialist physiotherapists from Aus & NZ. We’ve co-designed online educational resources for people living with & working in CF.
Cilla Clayton @ClaytonCilla
50 Followers 324 Following National Business Development and Diagnostic Portfolio Business Manager at PARI Medical Ltd. Views my own.
Hel Reynolds @HelReynolds
21K Followers 19K Following 🔸 I run @CommsCreatives: online courses and creativity training for #comms pros 🔸Tweeting comms insights & @CommsCartoons 🔸 I 💛 UNcommon sense 🔸 Cat lady
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Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Andrew @Andyassert
576 Followers 176 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
Vix @VixThatRuns
750 Followers 261 Following Legendary local celebrity. #parkrun forever. Please do say hi! Race pb's (boring bit!): 1/2- 1:58:55 10k-53:39 5m-45:55 5k-25:16
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
UHB CF Dietitians @CF_dietitians
719 Followers 249 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Nick Talbot @CF_vs_Everest
2K Followers 912 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Gunnar Esiason @G17Esiason
21K Followers 561 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech / Healthtech | Venture / Startups | Hockey coach 🔬🏒 @BostonCollege @TuckSchool 🦅🌲
David Turner (gs65 on... @GreatStrides65
3K Followers 1K Following Holding my nose in Musk's sewer and hoping for bluer skies Slava Ukraini 🇺🇦
Oli Lewington (he/him... @olilewington
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AMRC @AMRC
12K Followers 1K Following The membership organisation of leading medical and health research charities in the UK. Tweets by our team.
Alan Smyth @AlanRSmyth
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Nicola Rowbotham @nicrowbotham
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Cicely @cmathews_psych
353 Followers 423 Following PhD student, exploring the opportunities for digital tech in female sexual reproductive health in cystic fibrosis
CF inpatient unit -Pe... @PearceWardMFT
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Annabelle💘 @fatallyfibrosed
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eco sister @hiitaylorblake
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EcoEarlswood 💚 Rac... @EarlswoodEco
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Wray Common Fingerpos... @reigate_redhill
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Mitch Benn @MitchBenn
71K Followers 2K Following Still using this place to plug and announce stuff; if you actually want to engage I’ll be at BlueSky x
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Jonathan Davies CBE @JiffyRugby
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Adrian Brown PhD RD @BrownAdey
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Kevin Hall @KevinH_PhD
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flynn @victoriaflynn
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Lucy Copsey @lucycopsey_98
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66 Followers 165 Following
cASPerCF @cASPerCFstudy
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UK Research and Innov... @UKRI_News
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Ronan A. Murphy PhD @Mic_Ro_
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Dr Sarabajaya Kumar @SarabajayaKumar
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ConsciousBeingMagazin... @ConsciousBMag
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@justRMJ💙😷🌻�... @JustRMJ
3K Followers 4K Following Artistic Director @Spare_Tyre inclusive theatre & other arts. Founder member @WEP_UK gardener w #LongCovid #FBLC #ChronicIdealist. Only here when all else fails
Hag Wife 🦇 / Freya... @FreyaVanadiss
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Royal Papworth AHPs @PapworthAHPs
789 Followers 333 Following Former account of Royal Papworth's AHPs. We no longer actively monitor this platform. Follow Royal Papworth Hospital on Facebook, Instagram or LinkedIn instead.
European Cystic Fibro... @ecfs_ecfng
309 Followers 237 Following European Dietitians working with people with cystic fibrosis to support optimum nutrition and improve clinical outcomes
Love Your Lungs @KingsResp
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