Question CF @questionCF
2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again. questioncf.org UK Joined March 2016-
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Great to see the James Lind Alliance refresh for Cystic Fibrosis getting a shout out from @paula_sommer at #CFGI24. Research priorities for CF jointly agreed by people with CF and clinicians. @CFAware @questionCF @cftrust @CF_Foundation
Calling parents, children and young people who have been seen in a hospital emergency department. The James Lind group for children's emergency medicine want to know your research priorities. Take the survey! @questionCF @RCPCHPresident redcap.liverpool.ac.uk/surveys/?s=9RD…
Thanks to Belinda Cupid for a great article on the use of apps in cystic fibrosis care including CF Tummy Tracker! cysticfibrosis.org.uk/news/using-app… cftummytracker.org @questionCF
Great plenary talk from Luke Hoffman at #NACFC2023 emphasising the importance of better antibiotic therapy to patients with cystic fibrosis. @cftrust @CF_Foundation @questionCF @CFAware
Brilliant day facilitating the @cftrust research conference. So many talented researchers working in true partnership with the CF community. Also great to see how the @LindAlliance @questionCF refreshed priorities are shaping the research agenda #ukcfc
Start tracking your tummy symptoms now to help the #CF community with gastrointestinal issues! Only 15 spots left, so go to Cftummytracker.org to register on our app @CFAware @questionCF Thank you to all participants and @cftrust @CFAustralia @CF_Foundation
@questionCF I'd love to see more research into the mental health issues in families of children with cf. How can we help parents and siblings? Because as a daddy of a CFer, it's freaking hard!
Said "au revoir" to Nottingham colleagues this week after 27 years in the city. Thanks to the best research group in the world for the kind gifts (including crocheted lungs) and the aeroplane cake! @ebChildHealth @CFAware @questionCF @ThoraxBMJ
1. Addressing tummy symptoms that matter to YOU! Cystic fibrosis (CF) is not just about the lungs! Tummy symptoms are increasingly recognised as having a big impact on people with CF. tandfonline.com/doi/full/10.10… @questionCF @CFAware
Hi everyone, recruitment is still open. If you are an adult with CF and cannot benefit from Kaftrio/Trikafta due to genetic factors, please consider participating. For further information, please contact me via email ([email protected]) or DM. @DrCatherine_OL @cftrust
A big thank you to the CF Trust for supporting the GRAMPUS-CF Strategic Research Centre! @CFAware @questionCF @ebChildHealth @cftrust @CF_Foundation cysticfibrosis.org.uk/news/this-is-s…
Great to see this systematic review of gut symptoms in cystic fibrosis published open access today. Flatulence, bloating and fatty stool are the major culprits! tandfonline.com/doi/full/10.10… @ebChildHealth @questionCF @CFAware
Not the meds? Dr Helen Love warms up her audience with a programme of stretches prior to her giving a great talk at #ECFS2023! @questionCF @CFAware @ebChildHealth
Kudos to Florence Lockwood, medical student at UoN, for a beautiful explanation of faster orocaecal transit time in cystic fibrosis during ETI treatment @ECFS2023 Part of the GIFT-CF 3 study. @ebChildHealth @CFAware @questionCF
Great talk on multisystem MRI scanning by Alex Yule from the University of Nottingham at #ECFS2023 @questionCF @cftrust @ebChildHealth @CFAware
Just in case anyone missed the link 😉 A refresh of the top 10 research priorities in cystic fibrosis thorax.bmj.com/content/early/…
Thanks @AlanRSmyth for presenting the @questionCF priority refresh poster & adding many links to the newly published poster! I’m so sad to be missing #ECFS2023 in #Vienna but enjoying reading everyone’s Twitter posts. Poster 089 if anyone wants to visit.
Hot off the press:A refresh of the top10 research priorities in #cysticfibrosis thorax.bmj.com/content/early/… Great work from @questionCF @cftrust @UoNresearch @LindAlliance @nicrowbotham highlighting patients', carers' &clinicians' CF priorities 5 years after their 1st prioritisation
Published this week! Our refresh of the JLA top 10 research priorities in cystic fibrosis. Thanks to everyone who took part! @questionCF @cftrust @ebChildHealth @CFAware @ThoraxBMJ #ECFS2023 thorax.bmj.com/content/early/…
Very interesting report on what the 2023 priorities for CF are. From a diagnostic lab, I was interested to see #2 "What's the best way to diagnose lung infection when there is no sputum?" In a Trikafta era, we see many more CF cultures from oropharyngeal swabs.
Very interesting report on what the 2023 priorities for CF are. From a diagnostic lab, I was interested to see #2 "What's the best way to diagnose lung infection when there is no sputum?" In a Trikafta era, we see many more CF cultures from oropharyngeal swabs.
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Alan Smyth @AlanRSmyth
627 Followers 181 Following Paediatrician, Clinical Researcher, Cyclist and Pilot. The views expressed are my own
British Thoracic Soci.. @BTSrespiratory
24K Followers 455 Following The British Thoracic Society is the largest respiratory membership body in the UK. We work towards better lung health for all. Our tweets are not endorsements.
Gemma Stanford (PhD) @GemStanf
619 Followers 388 Following Head of AHP Research for the HLCC clinical group of GSTT, YOGA-CF co-PI, specialist CF physiotherapist. Current chair of the ECFS PhySIIG. All views my own.
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
CF Vests Worldwide @CfVests
763 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
UHB CF Dietitians @CF_dietitians
742 Followers 246 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Tracey Daniels @thecfphysio
2K Followers 3K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
CF News Today @CFNewsToday
5K Followers 2K Following We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.
Nicola Rowbotham @nicrowbotham
379 Followers 280 Following Mum, Paediatrician, Researcher, Baker, Gardener, Taster of Wine. Views are my own
CFHealthHub @cfhealthhub
787 Followers 804 Following Digital behaviour change & learning health system to support people with #cysticfibrosis to build habits for treatment-taking. Views of the authors only.
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
Vertex Save Us @VertexSaveUs
849 Followers 697 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Ali Gates @AliGates8
387 Followers 376 Following Physiotherapist, Oxford Adult Cystic Fibrosis Centre and non-CF bronchiectasis. Interested in ACT, NIV, inhaled therapies and all things that come in a glass.
Dr Sophie Dawson @sophie_doph
1K Followers 2K Following Health Psychologist. National Quality Improvement Programme Manager & Local Behaviour Change/ QI Lead working in cystic fibrosis @nottmhospitals. Views my own.
abi halstead @abihalstead
607 Followers 913 Following Mum of 3 locked in mortal combat with the laundry bin. Happen to have CF. Also a governor @royalpapworth
Laura Charman @Laura_CPPE
144 Followers 240 Following •CPPE Education Supervisor North West 🙋♀️💭🌻 •Advanced Clinical Pharmacist- Mental Health 👩🔬🧠 •Independent Prescriber✍ •Dog Lover 🐾🐶
Reevah Gaudette @gaude_ree
70 Followers 5K Following
Amic Hotm @AmicHotm
81 Followers 374 Following I'm new to Twitter, just showing up to see what the fuss is all about. What about you?
Riley Gainor @ril_gaino
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Islay Tupick @ITupick97818
42 Followers 5K Following
AMS-Composites @AMSCompositeC
674 Followers 2K Following AMS supply state of the art lightweight gas cylinders: in healthcare for oxygen therapy, emergency services for breathing air and also for emergency escape.
PATHWAYS @PATHWAYS_PWCF
3 Followers 23 Following Pathways is a HRCI/HRB funded research project aiming to support young people with Cystic Fibrosis. We invite young adults with #CF to join us as co-researchers
RenéeFahrner @renee_fahrner
14 Followers 51 Following CF, Dbl lung 🫁 txp, kidney txp. Pittsford Sutherland ‘93, Arieyl Rockstar, Beauty Society Advisor, helping people achieve Beauty, Mental & Physical wellness
Dan Beever @Dan_Beever
276 Followers 349 Following Research Fellow @MedicineUoN & PhD student @magnifysrc • @sheffielduni🎓 & @ActionPFcharity💜 alumni • Passionate about public involvement • Living with CF🫁
Children’s Health a.. @CHERC_UoE
1K Followers 474 Following The Children's Health & Exercise Research Centre (CHERC) at the University of Exeter is a World Leading Centre for Paediatric Exercise Science.
Janica Leppanen @LeppanenJa54487
24 Followers 278 Following
Lori-Lynn Anita 🇨�.. @LoriLynnAnita
443 Followers 520 Following CF mom, avid reader and animal lover.
Billy O Toole @billycfie
472 Followers 1K Following You might have to fight a battle more than once to win it.
michelle dinger @mich069
13 Followers 51 Following
Helio Ribeiro @heliorib
243 Followers 612 Following from Salvador, Bahia, Brasil 📍Toronto, Canada based!
Steve McCabe @McCabeconfident
192 Followers 354 Following Unlock your full potential & move from self-doubt to an authentic, confident you. Message me without expectation via https://t.co/WqgSKjOsug
Make money easily @0Nvfm03avIYZ5L
6 Followers 608 Following MEXC focuses on financial management, stocks, cryptocurrencies, digital assets and investments. Currently, new users can get free dollars when they sign up.
CFMedicine @cf_medicine
350 Followers 34 Following Daniel Peckham, Professor of Respiratory Medicine - Leeds Institute of Medical Research, School of Medicine. Leeds Regional Adult CF Centre
Doreen MacEachen @DoreenMaceachen
181 Followers 329 Following Charge Nurse, Critical Care. Interests in EOL and bereavement care.
Ali Pratt / Impa @Ocelotalison
58 Followers 601 Following 🌺🗾🇯🇵🧘🏼♀️proud owner of the magic #cysticfibrosis gene 💊🧬
Lena Group Respirator.. @Lena_Group4Resp
812 Followers 2K Following 🫁 Welcome to the account of #Respiratory Projects & Events of Lena Group. We support research & education in #RespiratoryDiseases #Bronchiectasis #RareDiseases
Carlon lab @CarlonMarianne
81 Followers 151 Following KU Leuven, BREATHE lab, Center for Molecular Medicine. Research focus: cystic fibrosis, lung disease 🫁, organoid models, gene editing ✂️, precision medicine
Sarah @s_ar_ah_0
473 Followers 3K Following MSc Psych Conversion || Oxford & Cambridge MSt BA English Lit Grad || Gymnerd || Trapeze Athlete || UK Trauma Council || National Neurodiversity Youth Council
Mark C 🇺🇦 @short_bloke
57 Followers 1K Following
Diane Sivyer @DianeSivyer
4 Followers 18 Following
Johan Wikstrom @tolka_ai
24 Followers 20 Following
Nikesh Gudka @Nikesh1980
42 Followers 171 Following
Sarah S. Nasr, M.Sc.,.. @SarahSamir5
340 Followers 2K Following Lecturer of Pharmaceutics @AlexU_Edu_Eg| PhD alum @Helmholtz_HIPS|Nanocarriers for nucleic acid vaccines| @CRS_YSC Member|Oil paints
Adventures_in_Avenrie @Adv_in_Avenrie
17 Followers 26 Following Welcome to Adventures in Avenrie, where the magic of storytelling meets the power of resilience. 📚✨ Learn more at our website:
Alison Orth @OrthAlison
276 Followers 1K Following mother || curious soul || travel love || family || public health || clinical trials II patient engagement
Make mine a treble @trebletime23
231 Followers 671 Following We never win at home and we never win away......
Yue Su @YueSu37611129
14 Followers 83 Following A resident at the department of respiratory medicine in Shanghai pulmonary hospital
Piotr Gierlich @piotrgierlich
319 Followers 852 Following Postdoctoral researcher in the Pediatric Infection and Immunity group at the @ErasmusMC 🧫 PhD (@tcddublin x @UnivdeCoimbra) 🧪 M.Pharm (@PUMS_tweets) 👨🏻🔬
CF STORM @cfstormstudy
245 Followers 67 Following Working with the CF community to find out if we can reduce long term nebulised treatments once people with cystic fibrosis are established on triple therapy.
Connie Takawira @Concon9313
109 Followers 419 Following Pharmacist, Partnership manager @CFAMRSyndicate @MedDiscCat. Views my own
Birmingham Childrens .. @BWCCFTeam
567 Followers 727 Following We are Ambitious, Brave & Compassionate in providing care for our paediatric Cystic Fibrosis population in the West Midlands.
Emily Ballard @EmilyBallardNHS
27 Followers 109 Following Lead Physio Adult CF and Bronchiectasis @NHSBartsHealth 🩷 for ventilation & airway clearance: Non medical Prescriber. Mum. Cyclist. All views are my own.
annaailisaa @annaailisaa
69K Followers 665 Following Vienna 🇦🇹 23 ❤️ Want to know my little secret? 🤐 👇
Pediatrics Directory @PedsDirectory
63 Followers 362 Following The Pediatrics Directory is the information crossroads for the various professionals who care for children, and their families as well.
Samantha 💫 @SamGeromichalos
154 Followers 464 Following Unapologetically Conservative 🇺🇸 Living my best life gifted through organ donation ♻️🫁
Jamie @Jamie96996322
1 Followers 35 Following
Dr. W @LetsGoWVPower
548 Followers 656 Following Disabled US Army vet. Physician. 15 yo with cf & ASD "Man is put on Earth destined to die. Time & method of execution to be determined." Mortui vivos docent
Dr Zoe Saynor (she/he.. @Zoe_Saynor
2K Followers 3K Following Associate Prof Clinical Exercise Physiology @UoPSportScience @CHaRT_UoP Lead 🏉@theRPA Women’s Welfare Chair / Retired @Harlequins🃏& @EnglandRugby🌹#184🏳️🌈
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Alan Smyth @AlanRSmyth
627 Followers 181 Following Paediatrician, Clinical Researcher, Cyclist and Pilot. The views expressed are my own
British Thoracic Soci.. @BTSrespiratory
24K Followers 455 Following The British Thoracic Society is the largest respiratory membership body in the UK. We work towards better lung health for all. Our tweets are not endorsements.
Gemma Stanford (PhD) @GemStanf
619 Followers 388 Following Head of AHP Research for the HLCC clinical group of GSTT, YOGA-CF co-PI, specialist CF physiotherapist. Current chair of the ECFS PhySIIG. All views my own.
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
CF Vests Worldwide @CfVests
763 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
UHB CF Dietitians @CF_dietitians
742 Followers 246 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Tracey Daniels @thecfphysio
2K Followers 3K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
CF News Today @CFNewsToday
5K Followers 2K Following We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.
Nicola Rowbotham @nicrowbotham
379 Followers 280 Following Mum, Paediatrician, Researcher, Baker, Gardener, Taster of Wine. Views are my own
CFHealthHub @cfhealthhub
787 Followers 804 Following Digital behaviour change & learning health system to support people with #cysticfibrosis to build habits for treatment-taking. Views of the authors only.
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
Vertex Save Us @VertexSaveUs
849 Followers 697 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Ali Gates @AliGates8
387 Followers 376 Following Physiotherapist, Oxford Adult Cystic Fibrosis Centre and non-CF bronchiectasis. Interested in ACT, NIV, inhaled therapies and all things that come in a glass.
Dr Sophie Dawson @sophie_doph
1K Followers 2K Following Health Psychologist. National Quality Improvement Programme Manager & Local Behaviour Change/ QI Lead working in cystic fibrosis @nottmhospitals. Views my own.
Shakeel mahmud_365 @Shakeel_mahmud_
29 Followers 177 Following You will be happy with him That's to get you waiting, Not to him Whom you to get wait
CFMedicine @cf_medicine
350 Followers 34 Following Daniel Peckham, Professor of Respiratory Medicine - Leeds Institute of Medical Research, School of Medicine. Leeds Regional Adult CF Centre
Mark C 🇺🇦 @short_bloke
57 Followers 1K Following
Diane Sivyer @DianeSivyer
4 Followers 18 Following
Sarah S. Nasr, M.Sc.,.. @SarahSamir5
340 Followers 2K Following Lecturer of Pharmaceutics @AlexU_Edu_Eg| PhD alum @Helmholtz_HIPS|Nanocarriers for nucleic acid vaccines| @CRS_YSC Member|Oil paints
Elpis Hatziagorou @hatziagorou
20 Followers 952 Following
Allyson Bowers @AllysonRzepecki
47 Followers 297 Following
Abdul Samad @ASamadw89
298 Followers 5K Following Public Health & Management Professional |MS- Public Health, MS- Business Administration, MS- Sociology, FETP-Graduate| Tweets and views are my own.
Almudena @almudena_felipe
9 Followers 546 Following #pneumology #cysticfibrosis #bronchiectasis #lungcancer
Melissa Coish @MelissaCoish
36 Followers 262 Following Momma bear to 2 girls. Health leader by day, soccer mom by night. Passionate about Primary Health Care reform, health equity and empowering female leaders.
Richmond Community Se.. @RichmondCommSvc
109 Followers 512 Following Richmond Community Services (RCS) meets the needs of children & adults with developmental disabilities through residential supports, day programs and respite.
The Charity CRM @CrmCharity
270 Followers 2K Following Providing CRM solutions that enable charities to simplify and enhance fund raising activities.
MedSystems @MedSytems
161 Followers 305 Following Med Systems Inc. is a medical device manufacturer providing excellent respiratory care solutions since 1976. Reach us at (800) 345-9061
Lalasssss @Lalasssss2
36 Followers 35 Following
الطريق الى �.. @a4eDM0QGZk2pTV3
31 Followers 783 Following
Kyle Kresina @KyleKresina22
8 Followers 75 Following
Lillian @madsillylilly
402 Followers 540 Following
Morgan Garcia @momo8881
281 Followers 284 Following ⚽️@BerberCityFc Head of Operations & Co-Owner 🫁Fighter of Cystic Fibrosis 😻Lover of cats
Alice Midwinter @alice_palace86
144 Followers 301 Following Respiratory Physiotherapist. Cystic Fibrosis. Bronchiectasis. Oxford. CPD. Networking.
Regina Ní hAilpín @regnih92
52 Followers 209 Following Biscuit dunking enthusiast🍪 Physiotherapist https://t.co/3QUj0PAy94 & https://t.co/sq9uU8duQs
Verity Yarwood @VerityYarwood
147 Followers 111 Following Specialist CF Physiotherapist at the Manchester Adult CF Centre All views posted are my own 👩⚕️
Louise Warnock @warnock_loopy67
104 Followers 118 Following Respiratory Physio interested in all things CF and Bronchiectasis. Proud to be part of @cfhealthhub. Adult CF Service behaviour change and QI lead at OUH.
Chloe Worger @ChloeWorger
244 Followers 367 Following Cardiorespiratory Paediatric Physiotherapist @RBandH. Spend my spare time doing: 🎾 🎸 🎤 not at the same time 😏 (she/her) LGBT+ 🏳️🌈
Md.Masum Billa @MdMasum91331786
51 Followers 636 Following Health News Sports General News Business & Finance Business & Finance World News Science
Inamo Restaurant @InamoRestaurant
4K Followers 2K Following London's interactive oriental fusion restaurants & bars in Covent Garden & Soho. Find us on Facebook https://t.co/0MLHxJ1kGt
Alibana @Alibana08965048
1 Followers 3 Following
SGE Migo @JackboyMigo
1K Followers 5K Following MGMT:@big_worm_promotions Go Follow Me On Spotify!! $hersey00 #ROCKSTARR$
Tamara Thornton @tamara_hatton
5 Followers 44 Following Respiratory Physiotherapist. Director-Beyond Breathing Physiotherapy
Accelsiors Cystic Fib.. @AccCysticFibro
25 Followers 148 Following We are on a mission to promote and support the development of future therapies to combat Cystic Fibrosis. #cysticfibrosis
Mark Tremblay @tremblay_mark
33 Followers 159 Following Director of Celebrate Recovery, follower of Jesus Christ. For when I am weak, then I am strong. 2 Corinthians 12:10
Nelson Sophy Jay illu.. @nelson_sophy
595 Followers 2K Following Yo!! I do cool great art work designs, Logos, Mixtape/album covers,Animated video,cartoon pictures..And others types of Design..bet you gonna like it💯..So whi
catalyst @KINGSTONASH
145 Followers 1K Following
Kirsteen @lamkirst
81 Followers 49 Following
Edward Rosoman @edrosoman
75 Followers 571 Following
Daniel Evans @DanielE08491925
166 Followers 269 Following Clinical Exercise Physiologist at Liverpool Heart and Chest Hospital. Cardiac and pulmonary rehab, post-surgical, prehab, Cystic Fibrosis, ACHD, BPD...
[email protected] @akdhaif
6 Followers 135 Following
Nazma Hak @nhakv
2 Followers 8 Following
Mart Smith @DrMartSmith
31 Followers 127 Following Learner. Punctuator. Yeti detractor. All views are my own. I come from nothing and will return to nothing.
Albert Alexander @AlbertA90148645
10 Followers 101 Following I am cause in the matter of YOU building your path to finding your purpose through your 3 identities & you Restructuring Mental Model Descendants Slaves (RMMDS)
Dariusz @lysyd0007
3 Followers 106 Following
Amelia @Millie_Elson
36 Followers 52 Following
Holly ratcliffe @Hollyratcliffe
6 Followers 25 Following mum of two, one with cystic fibrosis. I hope to join twitter to learn more and spread more awareness where possible about the condition ❤️
CFComfortFundBristol @cfcf_bristol
30 Followers 74 Following The new Official Twitter page for The Cystic Fibrosis Comfort Fund - Bristol, Supporting and raising awareness for people with Cystic Fibrosis 💜
@AlanRSmyth @CFAware @ebChildHealth @questionCF Think i have all those symptoms within a day. Gotta love the CF gut. 😂
@AlanRSmyth @ebChildHealth @questionCF @CFAware My life 😂
@AlanRSmyth @ebChildHealth @questionCF @CFAware Interesting paper and very patient focussed in its intent and future research goals Excellent read
Thrilled to be a guest at the King’s garden party at Buckingham Palace today! Many thanks to @cftrust for the recommendation! @ebChildHealth @questionCF @CFAware @cochranecfgd @IPFdoc @NickHartGSTT
@VickyPetto @AlanRSmyth @_nataliejohanna @questionCF @CFAware @ebChildHealth @paulwoodward69 I’m one of those super lucky and rare people with cf who doesn’t suffer from any stomach related issues as long as I take my enzymes I never have any problems so not sure this is worth me doing as there is no symptoms to track!
@AlanRSmyth @_nataliejohanna @questionCF @CFAware @ebChildHealth Downloaded - was easy to follow and register, my tummy tracker journey starts today, will be interesting to see a 2 week pattern and see what it shows.
Great talk by Elke DE WACHTER @UZBrussel focusing on medical issues in #cysticfibrosis ageing population and news concerning CFTR modulators to introduce the session on clinical issues co-chaired with Mirjam STAHL @ChariteBerlin #TopPriorities @questionCF #clinicalresearch
Fantastic to see the top 10 priorities in CF research in 2022 - well done @questionCF and everyone that contributed to this important work
@AlanRSmyth @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust Such important work to help us focus future research efforts - well done @AlanRSmyth and team! 👏👏
New research priorities out today!! Thanks to the @questionCF team
Great to see the James Lind Alliance #CysticFibrosis research priorities refreshed. @acpcf @acpcfR @TheACPRC
@AlanRSmyth @questionCF @CFAware @ebChildHealth The big question on my mind is did you manage to try a Philly cheese steak?
Thank you @questionCF team for your continued hard work.
A huge thank you to the 1,500 + people who told us their research priorities for #cysticfibrosis the researchers are now even busier than normal! We shall be back…
Really important to get as many people as possible giving us their thoughts on what the research priorities in cf are now! What matters to you?? Make your voice heard and help shape future research/trials!
We’ve had a fantastic response to the ranking survey so far, particularly from the patient/carer community who have provided 80% of the responses. However, we need to hear from more of you, please share fare and wide surveymonkey.co.uk/r/qCFsurvey2
@cf_care @CFAware @questionCF @CF_Foundation @cftrust #cysticfibrosis
I wish there were more services to support adults with Cystic Fibrosis. There are loads for Children With Cystic Fibrosis. Cystic fibrosis does not go away once adulthood has begun. #cysticfibrosis #disabledpersons
Survey 2 is now LIVE! surveymonkey.co.uk/r/qCFsurvey2 the researchers have done their bit and we present to you the 71 questions that we would like you to go through, select your favourites and then rank your Top10. Please share far and wide
Survey 2 is now LIVE! surveymonkey.co.uk/r/qCFsurvey2 the researchers have done their bit and we present to you the 71 questions that we would like you to go through, select your favourites and then rank your Top10. Please share far and wide
Survey 2 is now LIVE! surveymonkey.co.uk/r/qCFsurvey2 the researchers have done their bit and we present to you the 71 questions that we would like you to go through, select your favourites and then rank your Top10. Please share far and wide
@nicrowbotham @questionCF @LindAlliance What an absolute pleasure to follow you @nicrowbotham 🙌great discussions and exciting to see the evolving properties of the #cysticfibrosis community
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