Amy Partridge @Amy_L_Partridge
Intractable pain patient & national pain advocate. she/her/hers Pittsburgh, PA Joined November 2016-
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Register now for “An Afternoon with Sean Mackey, M.D., PhD,” This Wednesday at 1:00 PST/4:00 EST Patients, clinicians, journalists, students, scientists: all are welcome! crowdcast.io/c/an-afternoon….
New Cochrane review reports on Anti-dep meds for chronic pain -Duloxetine moderately efficacious -milnacipran promising tho limited data -All others: low certainty data -No good long‐term efficacy or safety data for any meds 2023 | Cochrane Library cochranelibrary.com/web/cochrane/c…
So with all this debate about Complex Persistent Opioid Dependence as a concept or construct, will we also be considering Opioid Stigmatization Syndrome as a new diagnosis for those set on demonizing opioid therapy? 🤔
“RN of 30 years. Was having spine surgery until the surgeon said they have a strict no-opioid policy. I told him I have a strict no-suffering policy. I walked. Tell your constituents no surgery without pain relief”
Revenge of the gaslit patients: Now they’re Ehlers-Danlos scientists statnews.com/2022/12/12/ehl…
Spinal Cord Stimulation Doesn’t Help With Back Pain - Neuroscience News Color me unsurprised… neurosciencenews.com/spinal-cord-st…
Not sure we could find a more concise document that illustrates the medical community’s feelings about CPPs. Not all medical professionals, but indicative of the climate overall that lacks empathy & a willingness to treat CPPs adequately. Or at all. Cred: TikTok by @AMtoPMPain
Not sure we could find a more concise document that illustrates the medical community’s feelings about CPPs. Not all medical professionals, but indicative of the climate overall that lacks empathy & a willingness to treat CPPs adequately. Or at all. Cred: TikTok by @AMtoPMPain
This is the state of pain care in America. One of thousands of examples I’ve seen. But not everyone shares their experience; many feel like they don’t need them if the doc didn’t Rx & suffer in silence or are afraid of Rx pain meds due to the hysteria in the media.
This is the state of pain care in America. One of thousands of examples I’ve seen. But not everyone shares their experience; many feel like they don’t need them if the doc didn’t Rx & suffer in silence or are afraid of Rx pain meds due to the hysteria in the media.
So great to see EDS getting some much needed attention!
So great to see EDS getting some much needed attention!
Hey @Photoshop - I think you’ve got a bug in your pw reset function. If I used ANY letter from my email address in the pw, it popped an ❌ for using my name or email address in my pw. Think you might need to expand the # of characters that constitute a word to be > 1 😬
Once again, most diverted controlled substances are from health care workers. beckershospitalreview.com/pharmacy/kentu…
Enjoyed appearing on @CMerandi & @ibdgirl76 podcast. Learned a lot, e.g., there are ppl who actually spread the disingenuous & absurd notion that opioids are ineffective pain relievers. WICKED. Please support pain patients’ right to opioids meds. It’s a matter of life & death.
Grrrr, @Ticketmaster you need to find a better way of releasing seats for big show drops!!! My daughter was in line & right when it was her time to buy tix for @taylorswift13 she got booted. 2.5hrs later and this HUGE fan STILL doesn’t have tix but resellers sure do. EPIC FAIL 🤬
#CaliforniaMedicalBoard #CaliforniaPain #CPP 11/9/22 2nd California Medical Board Interested Parties Meeting: Tuesday, November 15th, 2:00-4:00. The purpose of this meeting is to allow public comment on the updated Guidelines for Prescribing Controlled Substances for Pain.
The revised guideline has been released. CDC Clinical Practice Guideline for Prescribing Opioids for Pain — United States, 2022 | MMWR cdc.gov/mmwr/volumes/7…
How is this still happening?!?!
People with pain are being discriminated against because they are women and have a chronic illness as providers have stopped prescribing methotrexate or similar to medications to people who can become pregnant. If this has happened to you, share your story with HHS by 10/3.
People with pain are being discriminated against because they are women and have a chronic illness as providers have stopped prescribing methotrexate or similar to medications to people who can become pregnant. If this has happened to you, share your story with HHS by 10/3.
Extremely time-sensitive information below & a chance to comment if you have been discriminated against in any of the ways listed below.
Extremely time-sensitive information below & a chance to comment if you have been discriminated against in any of the ways listed below.
The CDC was sent the open letter from our community regarding the upcoming revision of the Opioid Prescribing Guideline. @fightpaindaily is in DC this week, explaining the harms and devastation that has hurt people in pain since 2016’s first Guideline. Thank you, everyone!
Bev Schechtman🇮�.. @ibdgirl76
10K Followers 4K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPPThomas Kline MD, PhD @ThomasKlineMD
34K Followers 20K Following 42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6KuAngie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.Anne Fuqua @PainPtFightBack
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15K Followers 9K Following Physician/research in primary care, homelessness, addiction. Professor, UAB https://t.co/9uPspC64H1 nullius in verbaSomeWoundsAreNotVisib.. @PTSDAdvocate
4K Followers 3K Following #Married #ChronicPain #SA #PTSD #Survivor #NotAllWoundsAreVisable #SuicidePrevention #FightForYourLife #YouAreWorthIt #SUPERFAMILY Politics🤷♀️ 🚫DMsLife Is Art Carrie @life_is_art___
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8K Followers 1K Following A Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPPBilkedToTheBrink @Bilked2TheBrink
4K Followers 5K Following ■STOP•WEALTH•HOARDING: MORE Money, in fewer hands than ANY TIME IN HISTORY is à threat to all! Rich $idiots$ need food, h2O, Oxygen, TOO. https://t.co/Ta0925IdHcIllicit fentanyl is k.. @JSG_54
7K Followers 3K Following Advocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.🌵Shelley ﻦ 🇺�.. @shelley_bean60
4K Followers 4K Following Mom & Nana~Conservative Libertarian~Passion 4 historical architecture~archeology~old houses~antiques~art #CPP Advocate #Fibro #ME/CFS #OsteoarthritisKelly L.⭐⭐ @Irishbrat1966
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3K Followers 4K Following Give me Liberty or Give me Death. Patrick Henry...1775. Wowren polymath multi-Cultural. (Intractable Pain Patient) Convert to Catholicism in 2020.🙏Justice 4 Dr. Norris @Justice4Norris
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7K Followers 5K Following National advocate for patients, clinicians, research & scientists… all who are involved in living with, treating, or researching chronic/persistent pain.Jonelle Elgaway @JonelleElgaway
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3K Followers 833 Following HPM physician & pain policy expert; Personal account; all opinions expressed are mine & represent me only. ☦️🇬🇷 John 13:34-35 #BLM 🇺🇦🟧🌈LisaRose @m99fl8KE9xO8w5u
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319 Followers 4K Following in our channel called Motivation Masters we are trying to motive individuals by providing them with what is assumed as the secrets of succesthe_old_goat @Michael89644270
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685 Followers 4K FollowingClaire Wants To Work .. @clairesnotgrim
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10 Followers 185 FollowingStephen Murray, MPH, .. @stephenHRNRP
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88 Followers 722 FollowingDave Wilson @DaveWilson114
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552 Followers 4K Following “if somebody causes you to question whether or not you are worthy of love, then that person does NOT deserve to be loved by YOU.” @BiancaSparacinoLucy @teaulythos90370
63 Followers 2K FollowingTeshon @Teshon236533
231 Followers 4K FollowingJlee36 🎀 @ClaireBunny210
395 Followers 745 Following "With the new day comes new strength and new thoughts." ~Eleanor Roosevelt~ ͡° ͜ʖ ͡°Nancy @mencf425
90 Followers 585 Following ordinary person, mother, wife, sister, friend. I value honesty and empathy. Also have chronic neuropathic pain.AATOD @AATOD1984
1K Followers 1K Following National Nonprofit: Expanding Access to Quality #OpioidUseDisorder Treatment Services Since 1984. #morethanmedicine #OUDTheHypnagØgue222 @TheHypnag0g222
54 Followers 735 Following 🧐🔬🧬⚗🧫 📸 🎨 Biologist, Pain Patient Advocate, ⛓Pain Patients Against Forced Medical T0rłure. ⚠️THE REAL CRISIS⚠️: American Medical 6en0c!de MUST END NOW!🚫Emma @seychelles311
2K Followers 3K Following Uterine Cancer Survivor; Endometriosis; Fibromyalgia; CFS/ME; POTS; MCAS; Ehlers-Danlos Syndrome; Chronic Pain - #HarmReduction Saves Lives - #EndTheDrugWarrihanna is mother, ab.. @xkingkathrynx
287 Followers 888 Following a collection of my rants as a #cpp fighting for comfort in a broken healthcare system, a Rihanna & Abel stan account, & an 'anything else I feel' account, tbh.Howard Will @HowardWill5
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519 Followers 2K Following Proud mom and MiMi, fighting #dermatomyositis,#ILD. #ally 🌈 #dvsurvivor 💜 #flyers🧡🖤#phillies❤️💙Knit/Crochet🧶#thesoundofmusic 🎶 Insta 📸: momluvs4kidzMarvellous Edemi @MarvellousEdemi
39 Followers 349 FollowingBecky @Beckysolar
71 Followers 144 Following Slowly dying from untreated severe craniocervical instability, v damaged and CSF leak. Discriminated against for having Ehler's Danlos by UK health system.Kristen Smith KK acce.. @kristdan
347 Followers 2K Following Im living a fantastic roller coaster life married to my best friend for over 22 years.. I’m fighting for my life again ! only live once ! #painpatientsvoteJessica Dutra (she/he.. @mommacat715
190 Followers 690 Following Mesomelic dwarf (LWD) w/ Madelung’s deformity. FNMTC, Lupus. EDS. NICU Momma. DV SURVIVOR. #CPP. Friend. Momma Bear #GenX 🇮🇱🩷❤️🧡💛💚💙💜🖤🤎🤍Bev Schechtman🇮�.. @ibdgirl76
10K Followers 4K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPPThomas Kline MD, PhD @ThomasKlineMD
34K Followers 20K Following 42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6KuClaudia A. Merandi @CMerandi
10K Followers 512 Following RI HCP/patient advocate. Founder Doctor-Patient Forum/Don't Punish Pain.Angie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.Anne Fuqua @PainPtFightBack
13K Followers 14K Following Patient advocate with nursing background. I'm collecting accounts from pts/family members re: #SuicideDue2Pain & adverse events associated w/ opioid tapering.Laird Law PLLC @DanLairdMD
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6K Followers 3K Following Artist, Harper, and EDS patient w/a focus on pain, personal autonomy, drug legalization, COIs, and exposing #DEACenteredCare. Researcher. *non omnis moriar*Joe Newman @JoeAllenNewman
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7K Followers 3K Following Advocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.🌵Shelley ﻦ 🇺�.. @shelley_bean60
4K Followers 4K Following Mom & Nana~Conservative Libertarian~Passion 4 historical architecture~archeology~old houses~antiques~art #CPP Advocate #Fibro #ME/CFS #OsteoarthritisKelly L.⭐⭐ @Irishbrat1966
6K Followers 5K FollowingRyan Marino, MD @RyanMarino
102K Followers 3K Following Human Doctor • Toxicology • Addiction • Emergency • #WTFentanyl & more often just WTF • drugs are misunderstood but people are misunderstood more • he/himBill Murphy, Patient .. @OldHeadFighta
3K Followers 2K Following Staunch Independent. Once informed of the benefits & risks allow the chronically ill to choose the treatment that works best for them. #NHPoliticsJustice 4 Dr. Norris @Justice4Norris
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7K Followers 5K Following National advocate for patients, clinicians, research & scientists… all who are involved in living with, treating, or researching chronic/persistent pain.Maia Szalavitz @maiasz
33K Followers 3K Following Contributing Opinion Writer, New York Times. OUT NOW IN PAPERBACK: Undoing Drugs. Award winning neuroscience journalist. Quit cocaine & heroin in 1988.Jonelle Elgaway @JonelleElgaway
4K Followers 2K Following Advocate for Doctor/Patient Rts thru EDUCATION & LEGISLATION on #opioids #pain / Executive Director https://t.co/9eHX20NTlL / https://t.co/Yr5zq4BCvZDr. Michael Schatman @headdock
2K Followers 190 Following Editor-in-Chief - Journal of Pain Research, Faculties of Anesthesiology, Perioperative Care & Pain Medicine, and Division of Medical Ethics - NYUChad D. Kollas, MD (h.. @ChadDKollas
3K Followers 833 Following HPM physician & pain policy expert; Personal account; all opinions expressed are mine & represent me only. ☦️🇬🇷 John 13:34-35 #BLM 🇺🇦🟧🌈Jennifer Northcutt @SpellmakerJacey
1K Followers 3K Following I have #Achalasia it is rare, progressive & has no cure. I will die from a disease that has treatments because I can not get proper care in Texas.Matt Rife @mattrife
354K Followers 1K Following Stand Up Comedian/Actor/Person. Insta: MattRife. TOUR DATES👇🏼Secretary Xavier Bece.. @SecBecerra
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6K Followers 2K Following Healthcare Pulse + Thought Leadership Thirsty + Serial Connector + Big Data Geek + Patient Advocate + ENFJ + Extreme New Englander + Green M&M + Own Opinions 👌Justin J. Pearson @Justinjpearson
253K Followers 197 Following TN State Representative District 86 • Founder of Memphis Community Against Pollution #votejustinj #justin4justiceRep. Justin Jones @brotherjones_
309K Followers 172 Following State Representative for District 52. Community Organizer. HBCU grad. On the journey, searching for higher ground. Carrying my ancestors’ prayers.🍉 Nurse Ranger �.. @CoreyRanger
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895 Followers 682 Following Severe CPP since 2003. Advocate for all victims of the CDC, DEA, War on Drugs(=Eugenocide) & everyone's right to choose their own life & death. ✌🏽❣️Taylor Swift @taylorswift13
95.4M Followers 0 Following All’s fair in love and poetry... New album THE TORTURED POETS DEPARTMENT. Out now 🤍Ruth Thomson @pallcaredocDO
51 Followers 66 FollowingThe White House @WhiteHouse
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26K Followers 19K Following President @AmerMedicalAssn; Anesthesiologist; US Navy Combat Veteran; Husband & Dad 🏳️🌈Patients Rising Now @PatientsRiseNow
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18K Followers 129 FollowingKristen Ogden @KristenOgdenVA
97 Followers 104 Following Co-Founder, Families for Intractable Pain Relief (FIPR)Jamie @Jamie_lee1382
220 Followers 124 Following Every noble work is at first impossible!My life IS my argument!! #IPP, #cpp,#Autismawareness, #painwarrior,Mother,Wife,animal lover, artist/writer.Robin Hanson @robinhanson
90K Followers 658 Following Let’s skip witty repartee & discuss fundamental questions. Views are mine, not GMU’s or Virginia’s. Books: https://t.co/hpZgEm5DBI, https://t.co/iFs9C3J2EkStephen Murray, MPH, .. @stephenHRNRP
14K Followers 7K Following Husband/dad / #HarmReduction Program Manager /Paramedic from @ThisAmericanLife Ep809 TheCall /Director Mass Overdose Helpline. he/him. VIEWS MINE!Rachael Horning @RachaelHorning
685 Followers 996 FollowingDora Winterz - Pain M.. @DoraWinterz
3K Followers 2K Following Pain Policy Reform Advocate: We Need Protection for Pain Pts + their Physicians. Demand Safeguards Against Overzealous DEA. End the Suffering #SavingUsToDeathSarah Axelrath MD @DrSarahAxelrath
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3K Followers 2K Following Pediatric anesthesiologist & peds pain physician @SKAnesthesia @SKPainCentre @UofTAnesthesia Board Director & chair of communications for @PedsPainMed🌈 Alana Kinrich, M.. @AlanaKinrich
15K Followers 2K Following “Some entitled little shit ER doc,” home cook, sometimes dancer, cat person, lover of swishy skirts and warm sweaters. She/her. 🏳️🌈 tweets≠employerDr Raina Brands @RainaBrands
3K Followers 618 Following Professor @UCLSoM | #Socialnetwork and #diversity expert | Helping women to de-bias their careers @careerequally | Definitely a morning person | Views my own?????????????? @secondchances09
470 Followers 1K FollowingMegan Jonas @MegzJonas23
362 Followers 919 Following Im a educated lady who is proChoice&Edu. #CPP +chronic Migraines/Back/surgeries/Anxiety/ptsd ext❤️my BF/S.O&Bff&👶!❤️movie/TV&photography EndTheWarAgainstCPPSEric Feigl-Ding @DrEricDing
756K Followers 13K Following Epidemiologist & health economist. Whistleblower. Faculty @NECSI. Fmr 16 years @Harvard. Early warnings: https://t.co/eNp7gjyhC0Ben Howell @howell_ben
2K Followers 3K Following primary care doctor, Asst Prof @SEICHE_Yale @YaleADM @YaleIMed GIM, former @YPC_Chiefs & @NCSP_Yale, fan of harm reduction & decarceration.Dan Arendt Pharm.D., .. @ArendtDr
2K Followers 1K Following Asst. Professor @UofCincy. Pain Steward. Fighting to transform pharmacy, pain treatment, and end the overdose epidemic. Views are mine, not my employersLennon Maclean @LennonMaclean
1K Followers 1K Following New Year, NO Fear! Just call me Leni ✌️Lupus Warrior, MCTD,Ex Rescue worker, 911 disp, SHO, Chronic Pain Pt for Long-term Opioid Rx Medicine, Army Mom + Nana x2Klau 🦓🏳️�.. @ChronicallyKlau
252 Followers 830 Following Proud member of the disability community #hEDS 🦓 #POTS #FND 🧡 #FMS 💜 #CPTSD #MECFS 💚 #Marvel #Cosplay #Music #Gaming 🎮 🏳️🌈 Follow me I'll follow back ✨Steven Dennis @StevenTDennis
170K Followers 16K Following Bloomberg congressional reporter. On thre4ds & Mast4don @steventdennis. Opinions mine. #FridayNightZillow 4 fun. RTs ≠. Tips: [email protected]Seraphim of Snark @SeraphimOfSnark
4K Followers 5K Following Because Someone Had To🕊Love Thy Neighbor🕊🌏🌍🌎Democracy and Church are both Verbs🕊️Be your Brothers Keeper 🕊️Always🕊️NAI @NAI_Tigers
1K Followers 126 Following North Allegheny Intermediate High School (NAI) is a 9-10 high school. Home of the Tigers!! Dedicated to preparing our students for success in a changing world!k~rey @KReynolds70
871 Followers 2K Following #healthlaw #drugpolicy #privacy #humanrights #datanerd || the proud daughter of a Vietnam Vet || ~you can’t talk butterfly language to caterpillar people~Beri.Belle @BeriFight
369 Followers 387 Following writer, body painter, model, find me on Instagram at beri.belle!This is why patients feel betrayed, upset, and abandoned: because they were. Now, this happened due to forces outside most HCP’s control, and the risks have felt too great for many to take. But maybe HCP’s can show empathy to the patients who are struggling now?
Patient’s needs are less relevant now than the HCP’s they see for assistance. The HCP’s needs are primary. Except those same NCP’s are also the gatekeepers of all medications, leaving patients stranded.
Same can be said for pharmacists. I’m not blaming anyone for practicing from fear, it’s an understandable response to a chilling situation. Let’s just be clear whose concerns are the most important now in these interactions: it’s not the person who came in for help.
1/ I’ve heard many reasons that prescribers are unwilling to risk Rx’ing meds to pts who rely upon them for daily function: “I’m not willing to risk my license/job/med board/DEA action for you.” In essence, the provider’s anxieties are the CC, and we’re all treating their fears.
@shdwstar @BlkBettyALBurn @Amy_L_Partridge We did a thread about the multiple layers of scrutiny they fave after each Rx they write. The 🧵 added even more layers we need to include in our chart.
@shdwstar @BlkBettyALBurn I know, and yet, who can really blame them? They are risk-averse, as a profession, and need to be. They are also regulated and every decision they make is inspected by many maters of influence. @Amy_L_Partridge did a great slide about this 1/
Drinking game idea- watch the Grammys pre-show as well as the awards show and take a drink every time the words “icon” or “iconic” are spoken. You’ll get fucked up. And most of what’s being described as such, won’t be.
I’ve said it before and I’ll say it again, Miley has a great voice. Clearly enjoying her Grammy moment.
Before I tweet anything else (is it still called “tweeting?”), let me say I respect anyone who creates music and puts it out there. Also, music is not competition. There are no losers. That said, this old rock-n-roller isn’t afraid to say something sucks, or feels inauthentic.
Luke Combs is authentic. I like him, and his cover of “Fast Car.” He said iconic and icon. Drink up mfers. Tracy Chapman getting this recognition is awesome.
A lot of friends have been asking, and yes, Elmo is doing great. Today is Elmo’s birthday! Yeah, baby! Thank you for checking in. Now let’s have a party! ❤️ #EmotionalWellBeing #HappyBirthdayElmo
Performative attempts to do something ignorant and unhelpful for the third time in under 6 years - when the reasons it failed the last 2 times are easily available and easy to understand - is why we aren’t making meaningful progress on topics like this. Time and resources wasted.
The Trump admin correctly recommended against this when DHS considered it in 2018. It’s easy to understand that fentanyl is just simply not a weapon of mass destruction when you remember that the United States would have used it if it were. Please take some basic science classes.
Today, I reintroduced legislation to classify fentanyl as a weapon of mass destruction. It’s time to do what Joe Biden refuses to do and use the full force of the federal government to combat this deadly drug. Read more about my bill here 👇 boebert.house.gov/FentanylWMDAct
I was hesitant to identify as a person w/chronic pain. I felt it wasn't severe enough to complain. Last week I got a diagnostic nerve block and the pain melted away. As it returns, I am realizing how debilitating the pain has been both physically and emotionally.
Yes, my entire point about the DEA has always been that if you’re not trained in any medical sciences at all you shouldn’t be making medical policy. Law enforcement should not be determining who gets prescription medicines, especially not without input from any medical personnel.
@RyanMarino I really don’t fault the agents that I’ve come in contact with. They are law enforcement, they are not trained in medical issues. I have been saying for some time now that prescription scheduled substances should have their own agency, or at least an off shoot of DEA.
“If the intention is to mitigate the harms of illicit fentanyl and put a dent in the overdose numbers, that hasn’t happened with the class-wide scheduling." Great insights from @DrugPolicyOrg @DPA_OFA Director @MariPerMed in @washingtonpost today on why it's past time to fully…
@atrupar He’s the friggen Vice Chair of the INTEL committee. To know Trump did this with some of our Nations most secret information is appalling. The Men and Woman of the Military who RELY on those secrets to make sure they go home to their families may be in jeopardy. Disgraceful.