STAND_Trial @stand_trial
'Sativex® for the Treatment of AgitatioN in #Dementia' in #carehomes @KingsIoPPN/@MaudsleyNHS. Funded by @AlzResearchUK 🍊. Tweets by @sim_neuro/@_ChrisAlbertyn facebook.com/standtrialkcl/ Joined July 2021-
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@stand_trial *finally* given the green light to lock the database (ie fully audited etc). So excited to get my hands on unblinded data soon! 😊 🙌 #CelebrateTheSmallWins @ARUKscientist @KingsIoPPN @dem_researcher "Do you know what I wanna do?!...#strut!": youtube.com/watch?v=aJ3VXV…
Really helpful, informative, & practical guide for anyone caring for someone experiencing serious #agitation as a result of #dementia 👇 🫂 🙏 ❤️ @DementiaFriends @DementiaUK @alzheimerssoc @rcpsychOldAge @CareEngland @CarersUK @DemCarersCount everydayhealth.com/alzheimers-dis…
Sign of a decent recruitment push when you're still getting email enquiries from potential participants ~yr after close? I'm getting ~2 per week...and it's heartbreaking tbh...@stand_trial was public/patient inspired, and it continues that way! ❤️ @HRA_Latest @PFMDwithPatient
@AlzResearchUK funded @stand_trial protocol published. Thank you to all @dem_researcher partners for your hard work & guidance! Special mention to #DrIskanderJohar (RIP ❤️), without whom, this would never have happened🙏! ➡️ healthopenresearch.org/articles/5-18/… @KCL_OAP @KingsIoPPN @ARK_KCL
Breaking news: @EliLillyandCo Phase 3 trial of Donanemab is positive, showing significant slowing on cognitive and functional outcomes. Now we have two positive trials showing effects of amyloid clearance in Alzheimer's disease-- hugely exciting times! investor.lilly.com/news-releases/…
When did I start thinking about @stand_trial? Almost 6 yrs ago! It defo has been a 'long & winding road' as Sir Paul would say 😜. Shout out to Dr @AmirEnglund for being one of my first consults 😍!! Lots of errors corrected in this 1st email exchange (got my phases mixed up 😅)
This makes me so sad 😢. It's a @stand_trial participant. Either the care home didn't have capacity to do any non pharma interventions...or the residents symptoms were so severe that they weren't feasible. Either way, my heart breaks for this person ❤️ @Patient_Data @patientsco
@stand_trial #DataEntry day @KCL_OAP @KingsIoPPN - let's do this 💪 🙌! (Coffee count: 1...will see what we're at this evening 😜) #AcademicTwitter @ARUKscientist @KCLCTU @UKCTUNetwork
Where do trialists register their RCTs? @HRA_Latest/@DHSCgovuk recommend @ISRCTN (hra.nhs.uk/planning-and-i…)...but this meant @stand_trial was left out of this annual review which used clinicaltrials.gov ☹️(alz-journals.onlinelibrary.wiley.com/doi/10.1002/tr… - one of my fav's 😍!!). Any advice?
🧠 We're pleased to be working with brain health clinics across the UK as part of our efforts to enhance the set-up and delivery of dementia studies and trials. Contact us at [email protected] if you'd like to know more or become part of the network.
5) So much best practice out there in the UK. Struck by the work of emerging brain health clinics in particular as initiatives which are grappling with issues around improving diagnosis, supporting research and preparing for new treatments @SusanAlzUK @IsoldeRadford
It's great to see the progress @AlzResearchUK researcher @_ChrisAlbertyn and the @stand_trial team are making. They're looking at whether a cannabis-derived medicine can help agitation in people with Alzheimer’s disease 🧠 #ResearchWillWin (1/4)
Apologies to all collaborators who are waiting on my input for grants/events/papers...so sorry, but @stand_trial's absorbing alot of my time right now. A particularly pleasing graph to share w my PI 😜 📈 @KingsIoPPN @NIHRMaudsleyBRC @MaudsleyNHS @ARUKscientist
Well done, Chris! @_ChrisAlbertyn #ThankYou again for involving MALADY Grp (inc. me) in your trial design & production. So important to decrease the need for #antipsychotics & improve #qualityoflife ppl #LivingWithDementia! @stand_trial #cannabinoids #MakeBreakthroughsPossible🍊
It's great to see the progress @AlzResearchUK researcher @_ChrisAlbertyn and the @stand_trial team are making. They're looking at whether a cannabis-derived medicine can help agitation in people with Alzheimer’s disease 🧠 #ResearchWillWin (1/4)
The @stand_trial at @KingsCollegeLon getting the recognition it deserves in today's @Daily_Express 👇 A nice piece from @hannagsslr who talked to @_ChrisAlbertyn whose leading the @AlzResearchUK funded trial of Sativex, for use in Alzheimer's patients! express.co.uk/life-style/hea…
A pleasant surprise today to find myself in today's @Daily_Express re our @stand_trial @KingsIoPPN 😊. Proud to be associated w the ineffable @AlzResearchUK, who have such BRILLIANT @dem_researcher's & staff that #dementia really doesn't stand a chance! 💪 😍 🤩 🍊 @beatdementia
We are pleased to hear Prime Minister Boris Johnson has announced a new ‘national dementia mission’ in honour of the late Dame Barbara Windsor. This mission gives further commitment to tackle one of the greatest health challenges facing the UK. [1/5]
Sadly, today is @sim_neuro's last day on @AlzResearchUK's @stand_trial @KCL_OAP, @KingsIoPPN ☹️. Sim has been an invaluable team member...innovative, dedicated, intuitive & delightful - future employers should snap her up quick! Wishing you all the best for your next step Sim! 😊
There's nothing like a primary endpoint visit for a #trial...there's a 'buzz in the air'...crucial data about to be collected! And something so comforting for me being in a #carehome 🥰...it's where I started 7yrs ago...and where I think SO much good can be done! @dem_researcher
@AlzResearchUK funded & @KingsIoPPN/@MaudsleyNHS run @stand_trial update: May - we hit double our projected recruitment rate 🙌 June - we tripled it. 💪 Boom! "How you like them apples?" 😜 @dem_researcher @ARUKscientist @UKDRI @ARK_KCL #AcademicTwitter
Another #carehome engaging in #research because they care deeply about better outcomes for their residents, LOVE IT! This time it's for @AlzResearchUK's @stand_trial @KingsIoPPN/@MaudsleyNHS. Thx for the warm welcome Baycroft! 🥰 🤩 @dem_researcher @beatdementia @NIHRinvolvement
Never gets old. 😍 🤩 🏙️ Another #carehome visit for @stand_trial today...for 7yrs @TheShardLondon has been my beacon guiding me home. If I can see the Shard, I can get back to base. ☺️ ☀️ @TfL @LondonWaterloo @cityoflondon @KingsCollegeLon
Cannabidiol for Parki... @CANPDP_trial
99 Followers 212 Following Clinical trial to examine safety and tolerability of CBD in #Parkinson #psychosis | led by @docsagnik | funded by @ParkinsonsUK | @KingsIoPPN
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Dr Laura Cole @AdalineCole
626 Followers 800 Following Senior lecturer. Researcher. Psychologist. Passionate about improving quality of life for people living with dementia and carers. All views my own.
Maria Brin (Bocharova... @mariiabocharova
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Jonathan Rogers @drjprogers
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ISRCTN: the UK's Clin... @ISRCTN
4K Followers 5K Following A primary registry recognised by the @WHO and ICMJE, tweets from the editorial team at @BioMedCentral: https://t.co/rQC57PEXXw
Laura Winchester @Winchy_l
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193 Followers 585 Following Post-doc at UK Dementia Research Institute (King’s college London / Imperial College London)
Anita Davies @AnitaDavies1
2K Followers 5K Following recently retired from my role as Research Nurse (dementia) at GMMH. Looking forward to more sailing, walking, motorbike trips, and time with family 💗
Joanne lockley @JoanneLockley
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King’s jobs @KingsJobs
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UK Dementia Research ... @UKDRI
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Edward Pinches @Ed_Pinches
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@thredCiC @thredcic
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wilton @wilton65727575
4K Followers 6K Following Empresário Determinado Bolsonarista lutando para um Brasil melhor
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134 Followers 838 Following Universitário,casado,pai,avô,,seja nós, seja inclusão,,igualdade social de todos,,""'aqui amamos amar o próximo,,,,,
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116 Followers 246 Following Old Age Psychiatry Researcher at the IOPPN King's College London and Director of 60 UP CIC | Interests: D&I and mental health research & innovation
Vascular Dementia @RubyWil62947536
573 Followers 4K Following 13th International Conference on Vascular Dementia 2021. #Neurology #Dementia #Neuroscience Date-Oct. 06-07,2021.(Online Webinar) WhatsApp no - +44 7588 755836
The Health Policy Par... @HealthPolicyPtp
819 Followers 474 Following The Health Policy Partnership (HPP) is a research organisation working to drive policy and system changes in healthcare.
Ellen @El_McIntosh
245 Followers 484 Following Comms and Engagement Officer at Health Policy Partnership, MSC Integrative Neuroscience University of Edinburgh 🔬views my own
Alzheimer's Society F... @AlzSocResearch
3K Followers 1K Following Alzheimer’s Society for dementia researchers. Inclusive research funder. Leader in public involvement. Championing dementia research leaders of today & tomorrow
Rory Stewart @RoryStewartUK
592K Followers 1K Following Author The Middleland https://t.co/MPlyEWbdCD, PlacesinBetween, Jackson/Yale. PoliticsOnTheEdge. @Restispolitics podcast w Alastair Campbell.
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933 Followers 1K Following Husband, father to two, @LymeRegisRNLI Lifeboat Crew. SUP or swim in the Lyme Bay when not walking my dogs
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2K Followers 3K Following Sharing 55+ lifestyle and wellness inspiration. The next phase of life is a gift, and we seek to make that experience one beyond measure.
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193 Followers 585 Following Post-doc at UK Dementia Research Institute (King’s college London / Imperial College London)
Anita Davies @AnitaDavies1
2K Followers 5K Following recently retired from my role as Research Nurse (dementia) at GMMH. Looking forward to more sailing, walking, motorbike trips, and time with family 💗
Old Age Psychiatry �... @rcpsychOldAge
3K Followers 1K Following The Faculty of Old Age Psychiatry at The Royal College of Psychiatrists (@rcpsych) #lifelongMH #choosepsychiatry
King’s jobs @KingsJobs
6K Followers 926 Following Discover a role at @KingsCollegeLon that fits your skills, experience and ambitions. Our team is here to support you. Contact us at [email protected]
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927 Followers 1K Following NIHR Clinical Lecturer @KingsIoPPN @MaudsleyNHS | MRCPsych PhD | Consultant Old Age Psychiatrist | Dementia | Brain Health | Neuroimaging | Machine Learning
María Jimenez-Sanche... @majimsa
575 Followers 471 Following Senior Lecturer in Cellular and Molecular Neurodegeneration at King’s College London #neurodegeneration #glia #proteostasis
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Care Roadshows @careroadshows
8K Followers 1K Following Leading exhibitions and conferences empowering positive action across the care sector. Join the care community today.
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10K Followers 5K Following Leading title for the adult social care sector including group and independent nursing & residential care homes. Published weekly digital & bi-monthly in print
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9K Followers 946 Following The largest provider of specialist housing and care for people in later life in England. Contact us on 0800 731 2020
Jess Sayer @JessSayer
992 Followers 1K Following Head of Supporter Engagement at @EACH_hospices. Adores books, comedy, cats, plants, stationery + toast - all at once is a bonus. Views my own.
ignite @igniteftdapp
725 Followers 3K Following Ignite is an iPad-based cognitive assessment tool designed to assess early cognitive change. Developed by the @FTDTalk team. Part of @EDoFTD study.
Willy Gilder @WillyGilder
4K Followers 3K Following Living with Alzheimer's 🐛podcast https://t.co/ZkWoTs6JoZ 🐛Shout out and shout up! 🐛please support dementia research 🐛be a funky caterpillar 🐛
Dr Rachel Daly 💙 @dementiaventure
2K Followers 3K Following Proud Academy Lead Admiral Nurse @DementiaUK. Passionate about relationships in dementia, research and care in care homes and beyond. Views are my own.
Claire Priestwood �... @ClaireAlzUK
568 Followers 1K Following Regional Fundraising Officer in Yorkshire & the North East for @AlzResearchUK Big love for family, friends, my Cairn Terrier Bramble and the great outdoors!
Bex...🐧☂🐧☂�... @fluffybex
1K Followers 302 Following Lover of #Books📚 #Penguins🐧 #DavidAttenborough #Documentaries #DoctorWho Supports #Alzheimers 💜💜💜 Charles Gray is my header picture. 😊
Fisher Center for Alz... @FisherCenter
36K Followers 3K Following The Fisher Center for Alzheimer’s Research Foundation is an organization that provides millions of dollars for novel Alzheimer’s research.
Monica Leverton 🟧 @MonicaLeverton
836 Followers 666 Following Qual researcher @hscwru @policyatkings | Dementia | Homecare | Ethnography & visual methods | @UCL PhD | Views my own | Inspired by my Nana
Dementia 1st @Dementia1st
336 Followers 451 Following Charity providing day care services in East Surrey, solely for people with a diagnosis of dementia, plus an info. & support service for carers & family members
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11K Followers 12K Following Lifelong #UnpaidCarer. Historian. Environmental Archaeologist. Beekeeper. SciComms. Charity Fundraiser. Co-App't @brains4dementia. Former Trustee @alzheimerssoc
Jodie Lord @DrJodieLord
342 Followers 203 Following Senior Product Manager (Researcher Experience) @ukfuturehealth • Biostatistics & Health Informatics PhD • @KCLBHI @KingsIoPPN alumni • HealthTech •
Petra Proitsi @petrouliet
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World Dementia Counci... @WorldDementia
6K Followers 2K Following International council stimulating innovation and pursuing opportunities for global collaboration against dementia.
ConceiçãoBettencour... @saobettencourt
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Peter Kelham @PeterAlzUK
163 Followers 65 Following Volunteer Manager at @AlzResearchUK where volunteers are vital to our work in #dementia research. We stand #ForACure. Own these views.
Shibley @dr_shibley
27K Followers 20K Following #physician #dementia #delirium #disabled Honorary Visiting Professor, School of Law and Social Justice NHS practitioner health Personal views only
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Harriet Demnitz-King @hdemnitzking
429 Followers 473 Following Research Fellow @DeNPRU_QM | Programme Manager @APPLE_TreeStudy
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2K Followers 3K Following thred CiC - no barriers, no borders and making connections for those with #Dementia & #Carers - Tommy Dunne BEM, Paul Hitchmough, Pat Broster & Louise Langham
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573 Followers 4K Following 13th International Conference on Vascular Dementia 2021. #Neurology #Dementia #Neuroscience Date-Oct. 06-07,2021.(Online Webinar) WhatsApp no - +44 7588 755836
CareProviderAlliance @CPA_SocialCare
3K Followers 3K Following Bringing together the 10 main national associations which represent independent & voluntary adult social care providers in England. RTs are not endorsements.
Gavin Sathianathan @gavinho
3K Followers 5K Following Tweets on life sciences, health, research, tech. Dad, husband, junglist, Gooner. Acts 4:20
The Mental Elf @Mental_Elf
96K Followers 24K Following Follow me to keep up-to-date with reliable #MentalHealth research.
National Elf Service @NatElfService
2K Followers 15 Following The Elves will help you keep up to date with reliable health research, policy and guidance. No bias, no misinformation, no spin. Just what you need!
The Social Care Elf @SocialCareElf
4K Followers 831 Following I will help you keep up to date with reliable social care research. No bias, no misinformation, no spin. Just what you need! @NatElfService
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88K Followers 161 Following https://t.co/VZR0edbuiR, https://t.co/jBwWKHBxtt, @thedrakefdn, @futuremedicine_, @of_lost_time, @drakecalleja
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11 Followers 183 Following Artificial Intelligence in healthcare passionate
Riccardo Manca @NeuroRik
254 Followers 550 Following #MSCA Postdoctoral Fellow @unipr #dementia #neuropsychology #mri diverse older adults (my own views) 🧠🏳️🌈🇪🇺 He/Him
Bronte Heath @heath_bronte
584 Followers 925 Following Driving evidence-informed thinking at @alzheimerssoc in the Research Evidence team. Dementia MSc UCL.
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