Julie Flygare @RemRunner
President & CEO @Project_Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #MedX Scholar, #TEDx Speaker, @BrownUniversity @BCLaw Alum. julieflygare.com Los Angeles, CA Joined January 2010-
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This is such an exciting time for #narcolepsy, w/ #orexin agonists moving through clinical trials, yet KEY aspects of narcolepsy research remain underdeveloped and ready for students, #sleep specialists or social scientists to join us. 2026 wishlist: linkedin.com/pulse/narcolep…
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✨BEYOND honored that "Wide Awake and Dreaming: A Memoir of #Narcolepsy" is Stanford SASI's Summer 2026 Book Club pick! San Fran friends, join for this special event next Thurs. 7/2 at Stanford Medical School from 5-7pm PT: evite.me/Y8f5mmcg5n
@lyft I want to keep using your service but for people with sensitivities to smells like air fresheners and smoke, are there any settings or tips possible to help avoid rides with smells? A smokey or air freshener car is a full day headache for me. Anyone else?
Julie Flygare retweeted
🎸 Wow, JACK BLACK @jackblack is rocking #sleepapnea awareness by joining our #sleepapneaLetsFaceIt campaign today! Thank you, Jack Black for elevating our efforts to new heights! Learn more and join us in flipping the script on sleep apnea stigma: project-sleep.com/sleep-apnea-le…
@project_sleep @jackblack This is awesome!!! 🤩 omg, what a surreal pinch me moment for all of us at @project_sleep!! Huge huge thanks @jackblack!!!
Julie Flygare retweeted
@RemRunner Ooof. It’s like they mated hypersomnia and narcolepsy to make a Hollywood stigma baby.
👀Hyper narcolepsy’ isn’t real. But narcolepsy is—and it’s far more complex than TV usually explains. 🎬 So when The Pitt, known for medical accuracy, drops a line like this, it’s odd. 💡An accurate portrayal of a doctor or patient with #narcolepsy would be innovative.
@flyLAXairport waiting over 20 minutes for an economy lot shuttle…. Have watched 5 lax-it shuttles, 4 employee parking shuttles, 3 metro connectors. I feel like you’re holding us hostage with no way to get to our cars in your lot. This is terrible.
Did you know there’s a Sleep Helpline to help people navigate sleep issues and #sleep disorders? Thank you Spectrum News for covering my journey and why I wish @project_sleep had existed when I was diagnosed with #narcolepsy many moons ago. spectrumnews1.com/ca/southern-ca…
Julie Flygare retweeted
WATCH: Day 2 of #AxiosHouse at SXSW is live! Tune in to hear conversations looking at the role of media in shaping society's approach to health and wellness. x.com/i/broadcasts/1…
Julie Flygare retweeted
Can inaccurate TV portrayals actually delay diagnosis? Our community’s story just hit national news. @FastCompany published a major piece on @nbc's portrayal of #narcolepsy in #Stumble: fastcompany.com/91446176/stumb…
Can we reach 2000 signers? With 1 in 2,000 people living with narcolepsy, it would be SO meaningful, especially since the majority of people living with narcolepsy are UNDIAGNOSED so unaware of what they are up against. c.org/P64B9D55H6
What does #narcolepsy look like? Spoiler alert: not like this! @nbc’s new show #Stumble repeats a tired Hollywood trick — the plank fall + thud. Please share my analysis and sign our petition: c.org/P64B9D55H6
Can we reach 1000 signers in 48 hours? Please sign this petition to show Hollywood that the #narcolepsy community is strong and deeply concerned about inaccurate portrayals of this serious neurological condition. Thank you for your support. SIGN AND SHARE: c.org/P64B9D55H6
Dear Hollywood: We are tired of the tired trope. Please sign and share this -- as #narcolepsy is a fascinating, complex condition, and NBC now has the opportunity to educate millions and dismantle long-held misunderstanding and stigma through responsible, informed storytelling!
Mockumentary mocks disability community? Last night, #Stumble premiered on NBC & Peacock with a prominent, inaccurate portrayal of #narcolepsy. URGENT: please sign our petition asking NBC to reduce misunderstanding instead of reinforcing tired stereotypes: c.org/P64B9D55H6
We're live!! Join us to hear Maha Awad's #Narcolepsy Story Sharing Event! youtube.com/live/bdHkZNpJz… via @YouTube
Julie Flygare retweeted
September 22, 2025, marks the 7th annual #WorldNarcolepsyDay, a day dedicated to raising awareness about narcolepsy on a global scale. 🏅 Today, we honor the incredible #narcolepsy community. Learn more: project-sleep.com/world-narcolep…
Julie Flygare retweeted
Happy #WorldNarcolepsyDay today 9/22! We are so grateful for an amazing community of people living with #narcolepsy, supporters, scientists, doctors, and industry partners—we can break down barriers together! Get involved: project-sleep.com/world-narcolep…
Julie Flygare retweeted
@jaketapper Build jobs, not ballrooms.
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