Vertex Save Us @VertexSaveUs
Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live vertexsaveus.org Joined October 2020-
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Our latest blog on 'How cystic fibrosis families took on Big Pharma company Vertex, in Hollywood'...and won! Once again we’ve seen that patient action works✊. Read the full story⬇️: righttobreathe.net/post/how-cysti… #RightToBreathe @VertexSaveUs
Inspiring to see the #CysticFibrosis community coming together with advocates & allies in Hollywood to make a stand & demand that global access to breakthrough treatments is always a priority 💊🌍 Read the full story ⬇️: righttobreathe.net/post/how-cysti… #RightToBreathe @JustTreatment
@VertexPharma THOUSANDS around the world with #CysticFibrosis waiting for Kaftrio!!!
@VertexPharma THOUSANDS around the world with #CysticFibrosis waiting for Kaftrio!!!
Breakthrough Awards - US actress Glenn Close has a message for @VertexPharma “we hope that soon people all over the world will have access to breakthrough treatments”. It’s time for Vertex to start putting #CysticFibrosis patients before profit. 💊🌍 #Trikafta4All #CFWontWait
📢 A new agreement between SACFA & @VertexPharma offers Trikafta to some insured #cysticfibrosis patients at no cost to them. While this is good news & a step forward for some, we have concerns around transparency & access. Read our full statement ⬇️
Vertex got an award tonight for a breakthrough innovation to treat Cystic Fibrosis. But with a $326K per patient per year price tag, is it a breakthrough for patients all over the world, or just a privileged few?
Brilliant to see @uaem supporting our calls for global access to @VertexPharma’s lifesaving #CysticFibrosis drugs. Lifesaving drugs should never be a luxury for the few. 💊🌍 #RightToBreathe #Trikafta4All
Huge thanks to students from @uaem tonight for standing in solidarity with us & #cysticfibrosis patients around the world that are dying without access to lifesaving @VertexPharma drugs. 💊🌍 #RightToBreathe #NoOneLeftBehind @JustTreatment
29 doctors & scientists from the US and at least eight other countries have signed a letter protesting the outrageous cost of recently approved CF medicine, Trikafta. @VertexPharma drop your prices and prioritize patients now. @JustTreatment @VertexSaveUs bostonglobe.com/2024/04/11/bus…
@brkthroughprize @KimKardashian @RobertDowneyJr @brielarson there are THOUSANDS of people dying & deteriorating whilst @VertexPharma make OBSCENE profits. They charge 326,000 dollars per pt/per year for a drug that cost less than 6,000 dollars to make!! #CysticFibrosis #Greed
@brkthroughprize @KimKardashian @RobertDowneyJr @brielarson there are THOUSANDS of people dying & deteriorating whilst @VertexPharma make OBSCENE profits. They charge 326,000 dollars per pt/per year for a drug that cost less than 6,000 dollars to make!! #CysticFibrosis #Greed
We stand with every #CysticFibrosis patient without access to lifesaving drugs. #NoOneLeftBehind
In response to our campaign for global access to #cysticfibrosis meds, we are pleased to update you on discussions with @brkthroughprize ⬇️ Their commitment aids our fight against @VertexPharma's monopoly, aiming to secure CF drugs for all. #CFWontWait💊 righttobreathe.net/no-awards-with…
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it. Withhold Vertex’s @brkthroughprize until CF drugs are accessible to all! Janco, South Africa & Vihaan, India need #trikafta NOW
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it. Withhold Vertex’s @brkthroughprize until CF drugs are accessible to all! Janco, South Africa & Vihaan, India need #trikafta NOW https://t.co/hyggGuurA2
We are shocked & saddened that the @brkthroughprize is giving @VertexPharma an award whilst their exorbitant drug pricing means that many #CysticFibrosis patients are left to suffer and die without access. There can be no celebrations without access for all. 💊🌍 #CFCantWait
Rose Keller, a 22 year old P4ADNOW patient advocate living with cystic fibrosis, shared her experience with high prescription drug prices as she introduced President Biden today in New Hampshire.
Cheri Nel has a blunt message for the multibillion-dollar pharmaceutical company @VertexPharma : “Any person that dies from today – that’s on you.” #CysticFibrosis patients & families are fighting back. 💊🌍 #RightToBreathe #NoOneLeftBehind @katlay theguardian.com/global-develop…
A shout out to all women in our amazing #CysticFibrosis community on #InternationalWomensDay, whether patient, family member or advocate. Together we are strong, resilient & determined - we will not give up until ALL our loved-ones have access to the medicines they need. 💊🌍
🌍A historic legal battle is underway in South Africa. #CysticFibrosis patients are challenging @VertexPharma's monopoly in court, to access to the lifesaving drug Trikafta - currently priced at $326k. Read our blog to find out more: righttobreathe.net/post/south-afr… #RightToBreathe
Listen in to CapeTalk radio today as Dr Marco Zampoli and Tim Ball from Webber Wentzel discuss the legal case between South African CF patients and Vertex. ‘Legal Talk’: 14:10 - 14:30 (SA time). Livestream: primediaplus.com/station/capeta… #CysticFibrosisSA #RightToBreathe
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405 Followers 366 Following Assistant professor, Department of Medical Ethics and Health Policy, UPenn
Stichting Farma ter V.. @StichtingFTV
560 Followers 857 Following Farma ter Verantwoording (the Pharmaceutical Accountability Foundation) uses legal procedures to lower excessive prices and enable better access to medicines.
Chris Longley @chrislongley103
198 Followers 780 FollowingOur latest blog on 'How cystic fibrosis families took on Big Pharma company Vertex, in Hollywood'...and won! Once again we’ve seen that patient action works✊. Read the full story⬇️: righttobreathe.net/post/how-cysti… #RightToBreathe @VertexSaveUs
@VertexPharma THOUSANDS around the world with #CysticFibrosis waiting for Kaftrio!!!
Breakthrough Awards - US actress Glenn Close has a message for @VertexPharma “we hope that soon people all over the world will have access to breakthrough treatments”. It’s time for Vertex to start putting #CysticFibrosis patients before profit. 💊🌍 #Trikafta4All #CFWontWait
We need to get rid of Louis DeJoy. Since that is taking far too long, absolutely do a legislative workaround to protect our postal processing centers so he doesn't continue delaying mail across the US. #NHPolitics #LetTheMailGetThrough #NeitherSnowNorRainNorHeatNorGloomOfNight
.@USPS’s terrible decision to leave New Hampshire without a processing and distribution center (P&DC) threatens the reliability of service and local jobs. I’ve introduced a bipartisan bill to prohibit closures or consolidations of a state’s only P&DC. ➡️bit.ly/4aA0LYG
El medicamento vital para sobrevivir a la fibrosis quística cuesta $ 326.000 al año. Pacientes de todo el mundo lanzan una campaña para conseguir una licencia obligatoria y versiones genéricas. Publica @VertexSaveUs @JustTreatment Recoge @AjmRevista👉 accesojustomedicamento.org/los-pacientes-…
Vertex got an award tonight for a breakthrough innovation to treat Cystic Fibrosis. But with a $326K per patient per year price tag, is it a breakthrough for patients all over the world, or just a privileged few?
29 doctors & scientists from the US and at least eight other countries have signed a letter protesting the outrageous cost of recently approved CF medicine, Trikafta. @VertexPharma drop your prices and prioritize patients now. @JustTreatment @VertexSaveUs bostonglobe.com/2024/04/11/bus…
@brkthroughprize @KimKardashian @RobertDowneyJr @brielarson there are THOUSANDS of people dying & deteriorating whilst @VertexPharma make OBSCENE profits. They charge 326,000 dollars per pt/per year for a drug that cost less than 6,000 dollars to make!! #CysticFibrosis #Greed
The @brkthroughprize will see celebs like @KimKardashian & @RobertDowneyJr. But amidst the glamour, @VertexPharma will be celebrated for a drug that's making them billions, but many #cysticfibrosis patients can't afford💔💊 #NoAwardsWithoutAccess ⬇️ x.com/justtreatment/…
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
"Medics tortured and executed, operations without anaesthetic, patients dying from starvation" - Gaza's medical workers share devastating accounts of Israel's destruction of the healthcare system. Healthcare is a right, not a target. tribunemag.co.uk/2024/03/its-a-…
Big Pharma spent more on stock buybacks and dividends than they did on research and development in 2023, even as nearly three in ten Americans struggle to afford their medications because of cost. Big Pharma can afford Medicare negotiation. 💯
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
Everyday, @VertexPharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it - withhold Vertex’s @brkthroughprize until CF drugs are accessible to all!
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