Imelda Níg Uidhir @mellovescake
all views are my own. all my thoughts are about cake. #actuallyautistic ☘️🇮🇪 Joined October 2011-
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Important thread! Prolonged masking for me causes increase in infections, inflammation which triggers asthma attacks, accidental injuries, high blood pressure, gastric issues, extreme fatigue & back pain.
Important thread! Prolonged masking for me causes increase in infections, inflammation which triggers asthma attacks, accidental injuries, high blood pressure, gastric issues, extreme fatigue & back pain.
The little one was an absolute terror today by not sleeping & being mega over tired. But despite being part grisly bear the other part was a super smiley cooing baby that charmed everyone he met in outpatients today. I might be exhausted but I certainly know how blessed I am
New high is baby hitting a milestone while at the NICU graduate group. The group cheers are so much more meaningful there 💕 Proud of my boy.
I moved more than 2 inches from my newborn & he immediately woke from his deep sleep and spent an hour crying no matter what I done to console him. All in the name of taking my inhaler before I lay down beside him for my own name 😬
Lexi is only gone 2 days & my asthma is already unstable because I didn’t have her to nudge me in to action to take my ventolin. 😬
Exclusive: Nurses are being forced into lower pay bands by NHS employers who refuse to accommodate flexible hours. Thanks to @alisonleary1 for flagging this to me rcni.com/nursing-standa…
It’s very difficult to remain distraught when your 7 week old is awake at 6am & full of smiles and demanding play time. His big furry sister will be smiling down from heaven with pride at him for taking over her role as chief disrupter of my attempts to have a lie in.
Went to sleep one last time this afternoon with a mouth full of treats and a life well lived. Thank you for the amazing life and endless love my sweet kind angel xxx
My beautiful girl is having a McDonald’s this evening and then in the morning we are meeting her best friend for one final walk. She’s given me an amazing 12yrs & kept me going through many an awful time. My absolute soulmate and sweetest girl ever 💔
An all too familiar story of recrimination after exposing wrong doing. Like many other whistleblowers, Cristina Balan had an exemplary career before she raised safety concerns about Tesla brakes. In fact, she was so highly regarded that her initials were engraved in the…
If my boy gains the normal amount of weight in the next week he will finally be big enough to go in his baby sling. He will also then be the size of the average newborn! So c’mon my wee boy!
As much as I absolutely love sleeping at night, I really struggle to put my boy down for sleep as these snuggles are the complete best thing in life to experience. But, alas, it’s a busy week for us & we have the NICU group tomorrow morning, so off to sleep I go.
Absolutely scandalous!
Have been looking forward to finally getting to breast feeding group & now I have a fast asleep colicky baby lying on me & I’m terrified to move 😬 & I have to go as my teeny 0.4th percentile boy needs another weight check.
Life tip: if you need to call 111 about your baby don’t wait until they are settled & asleep as they make you wake them up 😭😭😭
Winning at life as I’ve managed a proper walk today and baby stayed asleep all walk.
Described as “Unmanageable” [impossible to manage, manipulate or control] by The Post Office, Alan Bates was & is a speaker of truth to power. Let’s celebrate 🙌 all the “UNMANAGEABLES” in our teams. They can hold a mirror up to public & private organisations & help them improve.
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Children Should Not Be Diagnosed With a Personality Disorder in the UK If you have any skin in the MH game in the UK please add your name to the 600 MH professionals, bereaved parents and those affected by the dx who have signed👇 Please share openletter.earth/children-shoul…
If someone isn’t able to work because they have depression or anxiety, I don’t think their depression or anxiety is ‘mild’, Rishi Sunak.
@LordOrk How about they give MPs vouchers instead of expenses, they can buy tesco meal deals for their lunches, target the rich instead.
friendly reminder that they don’t just hand out PIP to anyone that fancies it!!! i am multiply disabled and have been too scared to ever apply for it because every single person i know that receives PIP has been subject to a lengthy and traumatic assessment process
Neuronormative culture places a high value on status. When a higher status person asks you to do something, that's supposed to be motivation enough. But autistic culture values internal motivation. We want to know WHY that is the right thing to do. What it will accomplish.
@Amy_The_Runner For 16 years I was misdxd with BPD & didn’t meet criteria. Autism dx @ 35 & had to do that privately cos NHS refused to ax. That was nothing to do with ‘pathetic borderlines’, it was misogynistic, misinformed, underskilled, stigma perpetuating professionals. NOT ppl with BPD dx.
Can autistic people be empathetic? Believe it or not, the word "empathy" doesn't show up once in the autism spectrum disorder section of the DSM. So why do so many people think that autistic people lack empathy? Well, for a few reasons...
THIS
It boils my piss that that people eligible for primary care Talking Therapies services (IAPT) can access therapies like EMDR and couples therapy whereas people who are too high risk/complex/unwell are left to broken CMHT’s where the vast majority of pts have no access to >
@mellovescake Fantastic to hear ND sensitivity 💕
Go to my local club. Bouncers wave me through, say the party don’t start til I walk in. Immediately request songs from the Shrek soundtrack 😎
Part of my frustration with some work meetings is how a culture of being positive & 'professional' can silence expression of what we are really thinking & feeling. To me, it's only when we start speaking in truthful terms that we get anywhere.
I love the symbiosis in relationships where one is ADHD and the other is Autistic. The former being the only reason the family ever does anything and the latter being the only reason they survive what they do
@PerinatalBirder It's strange when you happen to be both of those people 🫠
This week has been too peopley. And I have a meeting and a whole day of work to get through 😬
@mellovescake I’m already waiting on rheumatology for the hypermobility/somewhat relevant and can’t handle more than 1 new thing/doctor at once but that investigation is probably next 😅🫠
Some weeks ago I showed my little one all her birthday cards and said "look how many people care about you". Today she showed her mum the cards and said "look how many people care about me". Kids really internalise what we tell them.
Why do whistleblowers fight on against their employer even when they have little chance of winning? Fantasies of David overcoming Goliath are rarely fulfilled. They are the rare exceptions. But many who speak up will make huge sacrifices in the hope of exacting justice. Often…
@AutisticDoctor @PerinatalBirder I hope to cause autism one day 🤞 but I will love any kids I have even if they are born neurotypical
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