James Downs @jamesldowns
Mental health writer, researcher, expert by experience. Professionally & pathologically flexible. Creative arts. Practicing courage, creativity, compassion. jamesdowns.co.uk Cardiff, Wales Joined August 2009-
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Only in psychiatry are the most complex excluded from services (explicitly) because of their complexity. Imagine being turned away from the ED after an RTA because your injuries were too complex
Only in psychiatry are the most complex excluded from services (explicitly) because of their complexity. Imagine being turned away from the ED after an RTA because your injuries were too complex
@jamesldowns @HopeVirgo Thank you for all standing up for people with ED and the lack of services and state of some services x
Such a poignant amazing speech James! I agree and feel very strongly the same, mainly literary dumping the scales, my experience has found this to be shaming and an obstacle in my therapy. Telling us we’re too complex is a way of blaming us. 👏👏💜
Gastroenterologist: “you will need to be on a liquid diet for life” Eating disorders service: “there is no reason for you to see a dietician” Make it make sense!
Qualities worthy of aspiration
@scousepie @jamesldowns We need to change the language. 🙏🏻 We are dealing with a potentially life threatening condition, that predominantly affects young people or people of working age. Many stories confirmed yesterday that the wish to die is temporary and people are grateful for support to recover.
Really helpful analogy. We have had decades of incremental measures to improve road safety. It includes speed limits, car designs, legislation, etc. This has saved many lives. The same principles can be applied for improving patient safety in eating disorders.
Really helpful analogy. We have had decades of incremental measures to improve road safety. It includes speed limits, car designs, legislation, etc. This has saved many lives. The same principles can be applied for improving patient safety in eating disorders.
Working in psychology/psychiatry should include a critical and compassionate reflexive awareness of one’s own defence mechanisms, apparently…
Working in psychology/psychiatry should include a critical and compassionate reflexive awareness of one’s own defence mechanisms, apparently…
If there's another march, I hope to be well enough to be there. Sharing because these photos show a glimpse into what folks with eating disorders and those who care about us, deal with so often, esp when seeking treatment. It is a matter of life & death and things must change
If there's another march, I hope to be well enough to be there. Sharing because these photos show a glimpse into what folks with eating disorders and those who care about us, deal with so often, esp when seeking treatment. It is a matter of life & death and things must change
@jamesldowns @AgnesAyton True of many things. Nobody should die on the roads, and that focusses minds on road safety. However people will always die on the roads, just as people will always come to serious harm from all sorts of totally preventable things. Our job is to look at the reasons and change
@VickyVella2 @jamesldowns We need all hands on deck for real change! Thank you for coming and wonderful to see your daughter thriving.
"Those in power really need to look at the socially determined causes of ill health and early death." It’s the government’s job to tackle the wider causes of ill health, says @HelenRSalisbury bmj.com/content/385/bm…
@jamesldowns Widespread implementation of the Medical Emergencies in Eating Disorders Guidelines by the @rcpsych would significantly improve patient safety and reduce avoidable deaths. That is why both of us spent about 2 years working on this in the middle of the pandemic.
Cara Lisette @CaraLisette
45K Followers 678 Following professional over sharer | eating disorder & mental health campaigner | writer | speaker | feminist | pro cats | anti tory | she/her
Adam Fare 🖤🤍�.. @adamfare1996
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Dr Jay Watts @Shrink_at_Large
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Hope Virgo @HopeVirgo
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𝙙𝙧 𝙘𝙝𝙪.. @drchuks_
4K Followers 274 Following † | race + equity | clinical lead @themotscharity | editor of eating disorders don't discriminate @jkpbooks | co-founder @clubmajority
Dr Chloe Beale 🏳�.. @DrChloeBeale
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Fluctuating levels of.. @TraumaPhDandMe
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Agnes Ayton 💙 @AgnesAyton
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Kelsey Hagan, Ph.D. @hagan_ke
2K Followers 950 Following Assistant Professor & NIH BIRCWH K12 Faculty Scholar @VCUPsychiatry • clinical psychologist • #eatingdisorders • formerly @kucarelab @EDresearch @ColumbiaEDOne more time for those in the back: ‘Having capacity is not a bar to being compulsorily detained’
When (not) to rely upon capacity?: mentalcapacitylawandpolicy.org.uk/when-not-to-re…
😳
Dulce et decorum est pro patria mori
Only in psychiatry are the most complex excluded from services (explicitly) because of their complexity. Imagine being turned away from the ED after an RTA because your injuries were too complex
👇👇👇 I worked in an area where dbt was only available for those in primary care. By the time I left there was no specialist intervention for those with a "personality disorder" diagnosis in secondary care.
@jamesldowns As I said once, "Perhaps I should see a veterinarian?"
@jamesldowns Ultimately their training is totally different. Take gastroenterology advice
@jamesldowns Yep having to explain every single time that you'd love to eat more but your stomach isn't having it gets terribly boring. 'eat smaller meals' they say. Any smaller they'd be nonexistent. And losing 10% of an already small body weight apparently is fine too
@jamesldowns Or everyone: you're fine. Gastroparesis yeah whatever. Throwing up blood and having to have 4litres of saline on a monthly basis to rehydrate is totally normal. No further treatment required
Thread ⬇️
About yesterday. Yesterday, our #DumpTheScales movement, led by @HopeVirgo💚saw so many people turn up to march together for eating disorders. We were all there for different reasons - we might’ve been angry, fearful, determined, optimistic, grieving, exhausted.. 1/6🧵
@jamesldowns @HopeVirgo Thank you for all standing up for people with ED and the lack of services and state of some services x
@jamesldowns @ian_rodd @AgnesAyton It shouldn’t be. My only thought is that those who criticise don’t have the expectation that people will recover under their care. In which case, they shouldn’t be in ED care (imho).
@jamesldowns EDs can be and are sometimes a fatal illness sadly, but I believe as a group psychiatrists quite often miss the point on purpose. We don't think anyone should die due to resource shortages. Not because we think they maybe untreatable. Sadly some psychiatrists do think this.
Such a poignant amazing speech James! I agree and feel very strongly the same, mainly literary dumping the scales, my experience has found this to be shaming and an obstacle in my therapy. Telling us we’re too complex is a way of blaming us. 👏👏💜
I've just written up a fuller version of my speech from the amazing #DumpTheScales march today in London, which you can now read on my blog! Do please add any comments or feedback and share for those who weren't able to be there! Thank you so much. jamesdowns.co.uk/post/marching-…
Agree, yea a few will die frm eating disorders, but professionals shudnt give up on patients. Most are def capable of recovering. 💜🙏
Reflecting on this photo from #DumpTheScales I’ve been in many meetings where psychiatrists have complained about this very quote They say it’s unrealistic, unhelpful It’s true that people will and do die. But is the bar so low that we’re not even allowed to aspire for better?
@AgnesAyton @jamesldowns I agree entirely-I just think sadly in a very few cases the best treatment won’t be enough, which is an argument for developing new and alternative treatments
Qualities worthy of aspiration
Indebted to the wonderful @AgnesAyton as an example of a clinician who is able to hold compassion with courage, expertise with humility, ambition for excellence with pragmatism… and so much more. Thank you for everything you do as a true advocate for patients. #DumpTheScales
@scousepie @jamesldowns We need to change the language. 🙏🏻 We are dealing with a potentially life threatening condition, that predominantly affects young people or people of working age. Many stories confirmed yesterday that the wish to die is temporary and people are grateful for support to recover.
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