Search results for #marfan
Explain Marfan syndrome to your friends and family by using our resources: buff.ly/3GJLE1o #Marfan #MarfanSyndrome #MedTwitter
Help your patients gather their family health history with our tools: buff.ly/3O4tdc4 #Marfan #MarfanSyndrome #MedTwitter
Thrilled to be at #AATS2024 in Toronto to support the launch of #THINKAORTA Canada by our partner @AorticDisorders, with my good friend and fellow #Marfan patient @duchesslinz, President of GADA Canada, leading the campaign. ❤️
Thrilled to be at #AATS2024 in Toronto to support the launch of #THINKAORTA Canada by our partner @AorticDisorders, with my good friend and fellow #Marfan patient @duchesslinz, President of GADA Canada, leading the campaign. ❤️
Is your child facing a major medical moment? Give them some additional comfort by requesting a care package from the Sydney Lerman Hospitality Program: buff.ly/41GenOA #Marfan #MarfanSyndrome
Thinking of participating in a research study? Check out these current studies: buff.ly/487BVOC #Marfan #MarfanSyndrome
💚Muchísimas gracias a FEDER por esta bonita campaña.💜 youtu.be/6kifOBrbJ_w?si… #SíndromeDeMarfan #SindromedeMarfan #SIMA #Marfan #LoeysDietz #Beals #FEDER #EnfermedadesRaras #DíaMundialDeLasPersonasSinDiagnóstico
Want to start a Marfan clinic? Take a look at our suggested criteria: buff.ly/41E2cSp #Marfan #MarfanSyndrome #MedTwitter
Do you know the signs of Marfan syndrome? buff.ly/3TpISGc #Marfan #MarfanSyndrome #RareDisease
Für ein Projekt zu reproduktiven Entscheidungen von Menschen mit seltenen genetischen Erkrankungen suche ich Menschen mit #Marfan Syndrom, die sich mit mir über ihre Perspektive auf Familiengründung, Schwangerschaft, genetische Tests und Elternschaft unterhalten möchten.
Find out what you need to know about pregnancy and Marfan syndrome: buff.ly/3vr7IMd #Marfan #MarfanSyndrome #RareDisease
Want to make a difference for our community? Learn how you can get involved: buff.ly/3GWhQ1G #Marfan #MarfanSyndrome
Learn about ocular management in Marfan syndrome: buff.ly/3NPhvSC #Marfan #MarfanSyndrome #MedTwitter
Are you bringing some fun from a galaxy far, far away to the Northern California Walk for Victory on May the Fourth? Join us to gather with our community and help us make a difference by registering now: buff.ly/3Ue3dNt #MyWalkSavesLives #Marfan #MarfanSyndrome
How do people with rare genetic diseases view prenatal testing for their own condition? Today, our new paper on the views of people with #cysticfibrosis and #marfan syndrome was published in @NewGenSoc tandfonline.com/doi/full/10.10…
Want to connect with other young adults living with Marfan syndrome and related conditions? Join us on May 1 for our next support group: buff.ly/3U1OjbQ #Marfan #MarfanSyndrome
Is your teen trying to figure out what their Marfan diagnosis means? We have resources to help them: buff.ly/47cNdzM #Marfan #MarfanSyndrome
Emerging from her interview with @jimalkhalili for BBC Radio 4’s #TheLifeScientific, to be broadcast in July. Dr Anne Child, Medical Director of the #Marfan Trust, discussed her uniquely fascinating life and career! We will remind you nearer the time!
Not sure how to talk to your child about their Marfan diagnosis? We can help: buff.ly/46WJ0jO #Marfan #MarfanSyndrome
Are you studying Marfan syndrome or a related condition? Did you know we can inform our community of your research study? buff.ly/3Nv8XjB #Marfan #MarfanSyndrome #MedTwitter