Jenny Downs @drjennydowns
BAppSci, MSc, PhD, Principal Research Fellow at Telethon Kids Institute. I research child development and disability. Joined November 2019-
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Our SR of early #motorfunction as a transdiagnostic marker of atypical #neurodevelopment is now out in Pediatrics. Delighted to lead this with superstar Dr Lim! Early Motor Function of Children With Autism Spectrum Disorder: A Systematic Review pediatrics.aappublications.org/content/early/…
Well done for this report, untangling pathways for readier access to evidence in treatments!
Well done for this report, untangling pathways for readier access to evidence in treatments!
Beautiful Charlotte and family, we need answers!
Beautiful Charlotte and family, we need answers!
Telethon Kids researchers are calling for a greater focus on creating opportunities for children with disability to participate in the community, after finding a clear link between participation and better quality of life. telethonkids.org.au/news--events/n…
ICCRN has received a NIH U01 grant to clinically validate #biomarkers & #clinical outcome assessment measures appropriate for use in upcoming #clinicaltrials. This is a major milestone for the #CDKL5 community. Thank you to everyone that made this possible cdkl5.com/news-list/nih-…
Very proud to work with the International Foundation for CDKL5 Research who ran their family education and awareness conference online this year! Very honoured to start their conference talking about quality of life and living well at home! @CDKL5USA youtube.com/channel/UCim6I…
This is so weird. Could there be a better example of why we must change how this country operates? A sacred site showing 46,000 years of continual occupation and it's completely legal to blow it up | First Dog on the Moon theguardian.com/commentisfree/…
Proud!!
Didn't know they did that!
Please watch, so gorgeous, so uplifting, so inspiring! Such a joyful ode to what we want back and a reminder to think and act to reform other things that we might to improve - post COVID-19!
Please watch, so gorgeous, so uplifting, so inspiring! Such a joyful ode to what we want back and a reminder to think and act to reform other things that we might to improve - post COVID-19!
So pleased to work with therapist across the globe and with Rettsyndrome.org to support children with complex needs in home participation during social isolation - rettsyndrome.org/home-participa…
We have mobilized our global therapy experts to put together practical enrichment therapy ideas to use at home. Check out all these ideas and let us know what’s working for you. rettsyndrome.org/home-participa…
Well done Jack, great to be working with you and the others these last few years! Jenny
Well done Jack, great to be working with you and the others these last few years! Jenny
The pose at the beginning - w/ arms+web spread out like umbrella while drifting passively - is probably a feeding posture. When arms are spread, the long finger-like cirri ( 1 pair for each sucker along length of all arms inside its web) can be visible (Best glimpse in vid ~:28)
We have just shown that children with severe disability who are given a gastrostomy then have fewer hospitalisations for all causes except chest illnesses, helping them to have stronger lives. authors.elsevier.com/c/1aRmA55CrwISd #intellectualdisability #gastrostomy #qualityoflife
New Raine Study Research: The contributions of fetal growth restriction and gestational age to developmental outcomes at 12 months of age: A cohort study authors.elsevier.com/a/1aOcQ1M28BMZ… @telethonkids
Quality of life researchers enjoying quality of life at the recent ASID 2019 conference in Adelaide #ASID2019
Very excited to be a part of this important work!
Very excited to be a part of this important work!
FamilieSCN2A @FamilieSCN2A
2K Followers 1K Following Our vision is to find effective treatments and a cure for SCN2A disorders.
Nauman Atta @nauman_atta4
199 Followers 4K Following
Sue Tape @SueTape
863 Followers 3K Following Reinforcing an inclusive local community for my family: school, play etc. Views here my own. Work: @CydaAu Play: @TatooineBase @501stcomau she/her
Natasha N. Ludwig, Ph.. @natashanludwig
263 Followers 385 Following Neuropsychologist 🧠 @kennedykrieger Assistant Professor @hopkinsmedicine | Rare neurogenetic conditions, epilepsy, ID, ASD, outcome measures | #ASXL3 sibling
Richard Norman @rich_norman
1K Followers 1K Following Brit in Perth, Australia. Dean of Graduate Studies @CurtinUni. Quality of life and health economics, Swans, Matildas, Parkrun etc He/Him
Rhona Carmichael (mck.. @rrenniem
137 Followers 416 Following Occupational Therapy Team Lead #craighalbert #sccmi passionate about occupation, playfulness and the f words. all views are my own
Bhooma Aravamuthan MD.. @drbhooma
2K Followers 627 Following Translational motor behavioralist, twin + 1 mom. She/her. Focused on #dystonia in #cerebralpalsy. Tweets = me, ≠ medical advice.
Child Health Research.. @qldchildres
707 Followers 2K Following We are a group of dedicated researchers working together to improve the health and wellbeing of Queensland children, youth and families
QCIDD @QCIDD
937 Followers 1K Following Queensland Centre for Intellectual and Developmental Disability at @MaterResearch, @UQMedicine
Yssa DeWoody @YssaDeWoody
281 Followers 493 Following christian, wife, parent, ring14 advocate, mathematician, runner, cook, adventurer. Cofounder of Ring14 USA and Ring14 International, but these views are my own.
Ring14 USA @Ring14USA
312 Followers 372 Following Ring14 Syndrome, Rare disease, Rare epilepsy, nonprofit, support, advocacy, research
GETA @geneticepilepsy
1K Followers 1K Following GETA: GET A Team, GET A Target, GET A Cure for genetic epilepsy
Amy Schneider @AmySchneider02
171 Followers 199 Following Clinical and genetic research at @EpilepsyRC @unimelb
Suzanne Nevin, PhD @suzanne_nevin
255 Followers 398 Following Post-doctoral research fellow @Sydney Children’s Hospital @Behavioural Sciences Unit @UNSWMedicine ☀️✌🏻 nature fanatic ☘️🌊 occasional deep thinker 🧠🔮
Nicole Merrick @nic_merrick
348 Followers 2K Following Physiotherapist and PhD Candidate @ECU @RugbyAU Investigating serious and permanent injuries in Australian sport (Rugby). Qualitative research. She/her.
Tara FitzGerald, PhD @TaraLFitz
308 Followers 246 Following Paediatric Physiotherapist. Lecturer in Physiotherapy (Paediatrics) @UniMelb Researching physical activity in children born preterm @MCRI_for_kids
Amy Renzullo @AmyRenzullo
33 Followers 347 Following Registered Midwife | Registered Nurse | Research Intern
Dr. Olaf @DevPeds
2K Followers 4K Following Olaf Kraus de Camargo, Co-director @CanChild_ca - LinkedIn https://t.co/G522VsybeB 🇨🇦🇩🇪🇧🇷RT are not endorsements @[email protected]
dayna pool @DaynaPool
117 Followers 116 Following Research fellow at Curtin University and clinical lead at The Healthy Strides Foundation
Dr Rachel Toovey 🌈.. @RachelToovey
1K Followers 1K Following I work with communities to create opportunities for young people with disability to get active 🚴♀️🤸🏿♂️👨🏻🦽 Mum, physio, senior lecturer @unimelb
Alesha Southby @AleshaKate
111 Followers 473 Following Trial coordinator @latrobe PRESTO Trial. Physiotherapist (Paediatrics) & MPH student @Sydney_uni (she/her)
ResearchWorks Podcast @ResearchworksP
405 Followers 266 Following A Podcast that brings you the latest evidence from leading researchers in the area of child health
Nicole Rinehart @rinehart_nicole
436 Followers 517 Following Prof & Director, Krongold Clinic & Clinical psychologist @MonashEducation | Director of Research at @MonashUni #KrongoldClinic |
Dr Ifrah Abdullahi @IfrahBayahow
179 Followers 220 Following Research Fellow | Perinatal & Paediatric Epidemiologist | A daughter/sister/wife/mother/woman of faith & woman of science | Views are my own.
APS College of Clinic.. @APS_CCN_PD
344 Followers 90 Following Events & PD Opportunities from the APS College of Clinical Neuropsychologists (CCN) 🧠 Managed by APS CCN Trainee Rep Chandelle | RTs ≠ APS endorsement.
RaineStudy @RaineStudy
576 Followers 851 Following The Raine Study is one of the world's largest and most successful prospective cohorts of pregnancy, childhood, adolescence & now early adulthood. #RaineStudy
Emma Butler @emmabutl3r
399 Followers 1K Following PaedsOT.HRB PhD SPHeRE scholar.Research interests:fetal programming,social determinants,the brain,sensory profiling&infant mental health.mum to 2fabulous girls
Darin cairns @DarinCairns
58 Followers 842 Following
Susan Woolfenden @WoolfendenSusan
193 Followers 168 Following Associate Professor Sue Woolfenden MBBS FRACP MPH PhD (UNSW) Senior NHMRC Research Fellow @popchildhealth School of Women and Children's Health UNSW Sydney
Karen Dimmock @Karendimmock3
437 Followers 909 Following Advocate for children with disability and CEO ACD
Adi Raber @AdiRaber
82 Followers 287 Following PhD Candidate/Master of Clinical Neuropsychology The University of Western Australia
Aspect Research Centr.. @arcap_aus
939 Followers 735 Following We conduct participatory research that is translated into respectful, proven practices to positively impact the lives of autistic ppl, their families & carers.
Journal of Child Psyc.. @TheJCPP
15K Followers 4K Following World-leading CYP #psychology & #psychiatry journal from @acamh. Follow sister journals @TheJCPPadvances & @TheCAMH. RTs not endorsements.
CRE Childhood Adversi.. @Child_Adversity
767 Followers 274 Following Centre for Research Excellence in Childhood Adversity: co-designing a sustainable service approach to improve #kids #mentalhealth through early detection.
Dr Stacey Cleary @staceylcleary
768 Followers 1K Following Postdoc Research Physio, MCRI 👩🏻💻 Passionate about inclusion, participation, healthcare & physical activity, for all 👩🦽🏊🏼♀️ 🚴♀️ Mum 👧🧒 Views mine.
Dr. Bridget Callaghan @Dr_BCallaghan
4K Followers 2K Following Assistant Professor of Psychology @ucla. Director - Brain and Body Lab @BABLab_UCLA. Studying adversity effects on physical + mental health across development
Dr. Emma Glasson @emma_glasson
194 Followers 474 Following Senior Research Fellow @telethonkids Developed Australia's first population-based #Autism Register. Epidemiology of neurodevelopmental disorders. #Siblings
Deirdre Terrins @DeirdreTerrins
107 Followers 1K Following Venture Capital Fund Investor, active in coaching female entrepreneurs and addressing gender inequality in the workplace #balanceforbetter
Natalie White-Wall @nataliegwall
452 Followers 984 Following Associate Lecturer @westernsydneyu | Registered Psychologist | Research interests: autism, digital programs, ed & dev psych. Views my own.
Asha Bowen @AshaBowen
2K Followers 1K Following Clinician Scientist, impetigo, scabies, Aboriginal Health, infectious diseases, Staphylococcus aureus, Strep A
Gail Alvares @gailalvares
462 Followers 642 Following Autism Researcher | @clinikids_au Telethon Kids Institute | she/her
Dr. Iliana Magiati @IMagiati
1K Followers 2K Following Assoc. Prof. @ School of Psychological Science, University of Western Australia; #autism researcher focusing on mental health & well-being; all views my own.
Sicilia Perumalsamy @MsSiciliaP
731 Followers 3K Following PhD Candidate at #Cdiff Reference Lab/RA at Liquim Pty Ltd
CliniKids Autism Rese.. @clinikids_au
623 Followers 188 Following Led by @AJOWhitehouse, our collaborative research and clinical team support children diagnosed on the autism spectrum and their families.
Graham Hall @GrahamHall_lung
822 Followers 421 Following Strategic leader | Lung health advocate | Mentor | Managing Director, Synergy Health Solutions.
CDKL5 Art For HopeLov.. @ArtForHLC
445 Followers 2K Following Marissa, proud board member of @CDKL5_IFCR 💚 Creating art with my son who lives with #CDKL5. Facebook & Instagram @artforhopelovecure 🎨
Yael Perry @yaelperry
1K Followers 2K Following A/Prof. Head, Youth Mental Heath @telethonkids. Research interests: digital, youth, & LGBTQA+ mental health. Dedicated to equity & inclusion. She/her.
EuroQol @EuroQol
982 Followers 70 Following Research foundation committed to the development of the EQ-5D family of instruments. Led by a global network of experts. Tweets by the communications team.
GETA @geneticepilepsy
1K Followers 1K Following GETA: GET A Team, GET A Target, GET A Cure for genetic epilepsy
International Rett Sy.. @Rettsyndrome
3K Followers 690 Following Accelerating full spectrum research to treat and cure Rett syndrome while empowering families with information, knowledge, and connectivity.
Maja Divjak, PhD @maja_divjak
2K Followers 934 Following Biomedical Animator and nerd in general, Peter MacCallum Cancer Centre. Opinions are my own.
Asha Bowen @AshaBowen
2K Followers 1K Following Clinician Scientist, impetigo, scabies, Aboriginal Health, infectious diseases, Staphylococcus aureus, Strep A
CDKL5 - IFCR @CDKL5_IFCR
1K Followers 646 Following 501(c)(3) dedicated to advocacy, research & cures for #CDKL5 Deficiency Disorder - a Developmental & Epileptic Encephalopathy (DEE). Formerly used @CDKL5_USA
Julia Louis-Dreyfus @OfficialJLD
1.3M Followers 621 Following
Tim Minchin @timminchin
1.4M Followers 480 Following Songwriter singer pianist actor writer comedian producer speaker poet wanker reader runner worrier. Blue tick is an Elon freebie.
NOFASD Australia @NOFASDAustralia
2K Followers 492 Following Independent not-for-profit charity. The national peak organisation providing support to & representing the interests of individuals & families living with FASD
ARACY - Every Child T.. @ARACYAustralia
6K Followers 2K Following Bringing people & knowledge together to work for children and young people. Follow ARACY for news & research updates.
Jay Van Bavel, PhD @jayvanbavel
55K Followers 2K Following Psychology Prof @NYUPsych | author of @PowerOfUsBook & newsletter (https://t.co/bG3QVlNURs) | Director of @vanbavellab | On sabbatical
Jen Heemstra @jenheemstra
101K Followers 14K Following Professor and Chair of @WashUChem, proud member of @HeemstraLab. I'm a researcher, but I'm a #MentorFirst. Tweets mine.
Melbourne Health Econ.. @HEU_unimelb
2K Followers 575 Following Melbourne Health Economics, Centre for Health Policy at the Melbourne School of Population and Global Health @unimelb
Susie Dent @susie_dent
1.1M Followers 782 Following That woman in Dictionary Corner. Guide Dogs Ambassador. Podcast: Something Rhymes with Purple.
Lauren Sanders @LaurenSanders81
918 Followers 373 Following Associate Professor & Neurologist (she/her) | Stroke, Headache & Neuromuscular | Clinician Researcher | Medical Educator | Vote Yes
Angela Hewitt @HewittJSB
15K Followers 831 Following Concert Pianist; Artistic Director @TrasimenoMusic, Umbria, Italy; Ambassador for @Orkidstra (Ottawa) 🇨🇦🇬🇧🇮🇪🇮🇹
Cathy Mihalopoulos @cathymihalopou1
397 Followers 223 Following
Lidia Engel @LidiaEngel
1K Followers 1K Following Health Economist @Monash_SPHPM. Interested in measuring and valuing health outcomes, mental health, disability, ageing, dementia, loneliness and informal care.
Prof. Peter Doherty @ProfPCDoherty
116K Followers 807 Following Immunologist, Nobel laureate and author of THE BEGINNERS GUIDE TO WINNING THE NOBEL PRIZE, THE KNOWLEDGE WARS & AN INSIDER'S PLAGUE YEAR
Classic FM @ClassicFM
199K Followers 18K Following The UK’s favourite classical music station. Ask your smart speaker to “play Classic FM” or listen on @GlobalPlayer.
Martin Landray @MartinLandray
12K Followers 249 Following Physician, epidemiologist & clinical trialist: https://t.co/PuSJzZsPC6 @oxford_ndph. Lead, Good Clinical Trials Collaborative https://t.co/Do4H97gzf0. CEO https://t.co/4YkPhZtWPG
CRE Childhood Adversi.. @Child_Adversity
767 Followers 274 Following Centre for Research Excellence in Childhood Adversity: co-designing a sustainable service approach to improve #kids #mentalhealth through early detection.
AusACPDM @AusACPDM
2K Followers 2K Following Committed to advancing understanding & awareness of evidence based practice for children and adults with cerebral palsy and developmental conditions.
Annabel Crabb @annabelcrabb
511K Followers 3K Following ABC political writer and commentator, though views expressed here are mine, not ABC's. New book WELL HELLO out Sept 28, see link
Norman Swan @normanswan
166K Followers 217 Following Co-host of RN’s Health Report and What’s That Rash & reporter on ABC TV’s 730. Pre-order a copy of my forthcoming book: https://t.co/E12jORDqjp.
Dr Zoe Bradfield @ZoeBradfield
1K Followers 886 Following Associate Professor. Midwifery, Sexual, Reproductive, Maternal, Newborn Health.
Laura Tingle @latingle
261K Followers 3K Following Is this thing working? What? Yes of course they are my own opinions, or others that might be interesting or diverting @quarterly_essay:The High Road
Malcolm Turnbull @TurnbullMalcolm
968K Followers 2K Following 29th Prime Minister of Australia - 2015 -2018. Retweets not necessarily an endorsement. https://t.co/6fBLhi6ouo
Charlie Pickering @charliepick
296K Followers 3K Following Comedian. Host of @theweeklytv on ABC and team captain on Would I Lie To You on Ten. Go Bombers. Go Bills.
Natasha Reid @DrNatashaReid
1K Followers 2K Following Senior Research Fellow | Clinical Psychologist @UQMedicine | Child Health Research Centre @qldchildres #FASD #DOHaD #EMCR
Stephen McDonell @StephenMcDonell
103K Followers 1K Following China Correspondent BBC, formerly Australian Broadcasting Corporation. 如果你也曾经穿过那道看不见的界限并且在没有颜色的街道上找不到可以停留的地方请你一定回来告诉我。P.K.14 baffling bozos since the beginning.
Ashleigh Lin @lin_ashleigh
966 Followers 1K Following Professor in youth mental health. Equity in mental health service provision #LGBTQIA+ 🏳️🌈 she/her. Views own.
Jeff Keelan @jeff_keelan
2K Followers 708 Following Head of School of Biomedical Sciences @UWA; science advocate; sci-fi lover; jazz-rock guitarist, father & All Black supporter. Tweets are my own.
Western Australian He.. @WAHTN1
516 Followers 273 Following WA's peak health translation body. We're a multi-site, state-wide network. Working together to provide the highest quality health care for all West Australians.
UWA Research @UWAresearch
8K Followers 2K Following The latest research from The University of Western Australia (UWA).
RaineStudy @RaineStudy
576 Followers 851 Following The Raine Study is one of the world's largest and most successful prospective cohorts of pregnancy, childhood, adolescence & now early adulthood. #RaineStudy
Susan Woolfenden @WoolfendenSusan
193 Followers 168 Following Associate Professor Sue Woolfenden MBBS FRACP MPH PhD (UNSW) Senior NHMRC Research Fellow @popchildhealth School of Women and Children's Health UNSW Sydney
Dr. Bridget Callaghan @Dr_BCallaghan
4K Followers 2K Following Assistant Professor of Psychology @ucla. Director - Brain and Body Lab @BABLab_UCLA. Studying adversity effects on physical + mental health across development
Melissa Licari @mellicTKI
287 Followers 165 Following Senior Research Fellow, Telethon Kids Institute. Research interests: movement difficulties, neurodevelopmental disorders, intervention, physical activity
Dr Diana Tan (she/her.. @dianawtan22
660 Followers 459 Following Macquarie University Research Fellow (MQRF) @AutismMQ @Macquarie_Uni | Views my own
Kandice Jade Varcin @KandiceJade
140 Followers 267 Following Researching development; Griffith University/CliniKids, Telethon Kids Institute
Martyn Symons @Martyn_Symons
65 Followers 161 Following Alcohol and Drug Researcher. Views may well be someone elses but don't blame them for that!
Graham Hall @GrahamHall_lung
822 Followers 421 Following Strategic leader | Lung health advocate | Mentor | Managing Director, Synergy Health Solutions.
Telethon Kids Institu.. @telethonkids
7K Followers 1K Following Headed by Professor @jcarapetis, the Telethon Kids Institute is committed to improving the health and development of all children.
Adam Guastella @Adam_Guastella
1K Followers 1K Following Professor, Clinical Psychologist; Michael Crouch Chair in Child & Youth Mental Health. Brain & Mind Centre, Sydney Children's Hospital Westmead, Uni of Sydney
Gail Alvares @gailalvares
462 Followers 642 Following Autism Researcher | @clinikids_au Telethon Kids Institute | she/her
Associate Professor A.. @amyfinlayjones
2K Followers 4K Following Head, @enmh_team Early Neurodevelopment & Mental Health @telethonkids | she/her | MClinPsych, MHealthEcon, PhD
Cannot continue to be done any other way! "Understanding and conceptualising data collected from Yarning should involve Indigenous ontologies and standpoints to ensure participants stories are correctly and appropriately reported in the research results." equityhealthj.biomedcentral.com/articles/10.11…
Congratulations @chromosome8p @Ring14USA @dup15q to have this Roadmap for #NeurodevelopmentalDisorder #CNV published in @AJHGNews . A large team effort from many patient advocates, researchers, and clinicians. Glad that our lab could provide the resource ndd-cnv-portal.broadinstitute.org.
Had the absolute privilege of speaking at TEDxYouth@KingsPark yesterday. Video of my talk will be available soon, so watch this space 👀 It was an exceptional event - I’m still on a such high! Looking forward to a long nap today though… @tedxkp @telethonkids @ReframeTraining
We're excited to announce the addition of 4 clinics to our Center of Excellence network! They join a prestigious network of 18 clinics in the US dedicated to providing best-in-class clinical care. Learn more about this expansion & find a clinic near you: rettsyndrome.org/coe2022.
.@telethonkids will lead a new project, in partnership with @YouthFocusWA & GP Down South, to provide a ‘safe haven’ for young people experiencing mental health distress in the #Peel region: mandurahmail.com.au/story/7825454/…
We’re proud to partner with @telethonkids and GP Down South to create an innovative, co-designed youth mental health service in the Peel region. mandurahmail.com.au/story/7825454/…
Super looking forward to doing this work with @NicoleTMHill @yaelperry @BepUink @jacintamfreeman @PenelopeStrauss @hayleympassmore @gailalvares and many others from @telethonkids and @YouthFocusWA #SuicidePrevention #youth
We’re proud to partner with @telethonkids and GP Down South to create an innovative, co-designed youth mental health service in the Peel region. mandurahmail.com.au/story/7825454/…
So proud of Youth Mental Health @telethonkids researcher @AlixWoolard for being selected as one of the ABC media residents for science communication.
BREAKING NEWS – A Rett Syndrome First! @AcadiaPharma has submitted a New Drug Application for #Trofinetide to the #FDA. This is a huge advancement in the treatment of #Rettsyndrome and a potentially game-changing milestone for our entire community. rettsyndrome.org/wp-content/upl…
We submitted a new drug application to the @US_FDA for the treatment of #RettSyndrome. We are committed to bringing treatment options to the Rett community, and we look forward to working with the FDA. Learn more: bit.ly/3Pja2tC
Capri was 1 of 200 today, participating in the EEG based research study @BostonChildrens to help establish clinical outcome measures so we can facilitate treatments and therapies faster. Proud of our girl! @CDKL5USA #CDKL5 #signup #need50more
When they're still serving breakfast. #CTNNB1 #RareDisease #PodcastForACause
Inspiring and IMPACTFUL talk from our keynote @mellicTKI . DCD does not end with a diagnosis, it’s just the beginning. The social, emotional, and economic burden on the family and children living with DCD is heartbreaking and needs to change.
Going to start a little challenge for @DCD_14 conference delegates. Let’s see what Canadian delicacies we can find. This evening I am enjoying a ‘Skor’ caramel apple from Rocky Mountain Chocolate. Challenging @bypriscila next!
Join us July 26 at 1p EDT for the 1st RettEd Webinar of our 3-part series on the transition to adulthood. Jessica Nickrand will provide strategies and resources to empower families through the transition from pediatric to adult medical care. Register: buff.ly/3I0nDTR
As #CDKL5 awareness month comes to an end we want to say thank you to our CDKL5 community for their incredible efforts this month. We’ve been watching you spread awareness, share your CDKL5 stories & photos of your beautiful kiddos, and help fundraise. We are so thankful for you!
💚Thank you to all who participated in this important work for our #CDKL5 community! Beautiful collaborative effort!
New publication🗣 Timely after #CDKL5awareness day, our international effort to address the multisystem & holistic needs of people with #CDKL5 deficiency disorder, through Delphi recommendations, is out‼️ Leaded by Amin/Benke🙌 frontiersin.org/articles/10.33…
Congratulations @gailalvares - this is going to be great!
With support from @WAHealth’s Future Health Research and Innovation Fund, @telethonkids & @clinikids_au researcher, Dr @gailalvares is set to develop a digital tool to address anxiety concerns for children on the #autism spectrum: telethonkids.org.au/news--events/n… @uwanews #FHRIF
We are proud to be nominated as “Rare Champions in Advocacy” for our work for #CDKL5 💛 Thank you, Global Genes!
Introducing the nominations for the 2022 Rare Champions of Hope Awards. This year we received 190 incredible nominees! Congratulations everyone! View the full list here go.globalgenes.org/3HihbXZ #COH2022 #COHnominees #RareChampions #CareAboutRare #RareDisease #ChampionsInRare
June is #CDKL5 Awareness Month and our "Move CDKL5 Forward" event is ongoing all month long! Check it out at CDKL5.com/MOVE and get involved! How far will YOU go for CDKL5? ✨Many thanks to our generous event sponsors!
Welcome to the team @billshortenmp We look forward to improving #NDIS for families with rare epilepsies and the broader rare disease community, with you! Time for change. @geneticepilepsy @epilepsy_fdn
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