Bildrum @bildrum
Joined October 2014-
Tweets209
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Followers15
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Following151
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Likes7K
Speak carefully and avoid hurting anyone. Respect life and all living things around you. Stay calm enough to face any storm. Find beauty in the smallest true details.
Just one day left to respond to Govt. consultation about disasterous proposed changes to Work Capability Assessment. We are very concerned about the proposed changes and the impact they will have on many of our disabled users. Read more and respond -advicenow.org.uk/lawforlife/new…
#SUDEPActionDay2023 SUDEP it’s not known enough and it’s definitely not fun. Neither is Ring20. Knowledge is key and we need the numbers to find solutions, support and cures. Share: anywhere, anybody, anytime. Please give what you can 👇 justgiving.com/page/sebastian…
It is with a heavy 💜we share the sad news that another of our small r(20) community has passed over to the angels. That’s 2 losses to uncontrollable #seizures in 6 months; total 3 in 🇬🇧 (10% of known cases). We need to change the narrative…NOW! bit.ly/R20sebb #epilepsy
#epilepsy misunderstood by the UK govnmt and the general public. A life limiting and often lifelong condition with >30% of those affected remain without effective tx and live with seizures+. More consideration should be given to costs: to the NHS, social care & individuals/family
The UK government has left #epilepsy out of its strategy for major health conditions. Check out our new video as we discuss what this news means for people with epilepsy. Help us improve this situation-write to your local MP by using our letter template epilepsy.org.uk/epilepsy-ignor…
@GoingMedieval Cracking up at "emotional support clergy"! 😂
The Retained EU Law Bill in its current form gives power to change laws with almost no scrutiny By giving ministers such sweeping powers the door is open for environmental destruction🥀 Peers must stop these plans or risk us losing protection for rivers, wildlife & more🌱
Genetic 🧬 test results are the key to unlocking information for better outcomes for patients, either in terms of effective treatment or even cure, or for signposting to practical support to be able to cope with symptoms in daily life. Make #raredisease #diagnosis a priority
NHS patients wait over a year for test results in IT backlog – @thetimes ‘people affected by rare genetic conditions ... will only benefit if the UK also invests in NHS clinical genetics services so test results can be shared with families without delay’ thetimes.co.uk/article/3d56dd…
Share if you love Earth. 💚 #EarthDay
Ahead of Sunday's National Emergency Alert Test, Women's Aid has created both Apple and Android guides detailing how Survivors of domestic abuse can opt out and silence the alert scheduled for 3pm 👇
📢 The #EmergencyAlerts test is taking place this Sunday at 3pm. We understand you may be keeping your phone hidden from an abuser. We’ve created an #Apple guide so you can opt out of alerts to keep your device from being detected. 🔄Share this post. 👉 womensaid.org.uk/uk-emergency-a…
Thou nedest nat have wealthe To be my love Thou nedest nat be cool To rule above Ther nys no especial signe Ich have affinitee wyth Ich nede naught but thyne extra tyme and thy [lute riff] kysse
#rarediseaseday2023 is on 28th Feb. Did you know rare diseases affect over 3.5 million people in the UK & on average it takes 5 years to get a diagnosis? @M4RareDiseases are raising awareness by asking you to #showyourstripes - as I’m doing with help from my dog (not my zebra)
If you manage the care and treatment of people with #epilepsy, child or adult, you need to check out this event which aims to improve knowledge of ‘the epilepsies’. If you haven’t a patient with a rare epilepsy diagnosed today, you may 2moro. #BePrepared
Join us at The Rare Epilepsies Conference on 9 March 2023, 9.30am to 4pm. This year's conference aims to build a greater understanding of rare epilepsies. Register today: …erstandingepilepsies.eventbrite.co.uk #Epilepsy #EpilepsyResearch #RareEpilepsies @DravetUK @Glut1UK @matthewsfriends
I recently completed a report for the Economics Network which look at recent trends in Economics Education in the UK, focusing on A-level numbers and performance and university applications and acceptances. The findings can be found from the link below: economicsnetwork.ac.uk/research/trend…
Regardless of whether #seizures are controlled, people living with epilepsy face stigma in many parts of the world. Today we ask you to take a moment to think about the difficult to treat #epilepsies #r20 #support #treatment International #EpilepsyDay
🚨 We need you again @twitter According to the Human Rights News agency HRANA 4 PROTESTERS will be executed today Mon 2nd Jan. Do spread these names #MohammadMehdiKarami (Karate champ - AGAIN) #RezaAria #MohammadHosseini #HosseinMohammadi and #StopExecutionInIran
Please nominate us for the 12 days of giving draws. With your help, we can win £1,000. The first draw will be on December 1st so don't wait and NOMINATE US! 12daysofgiving #ring20 #movimentforgood #support #R20 #health movementforgood.com/index.php?cn=1…
🚨IT'S BLACK FRIDAY🚨What are you waiting for? Shop with #smileamazon and choose to support Ring20 Research and Support as your chosen charity. A donation is made every time you shop with NO EXTRA costs to you. visit smile.amazon.co.uk/?ref_=smi_se_d… #ring20 #research #R20 #BlackFriday
Allison Watson @alliswat
22 Followers 33 Following Mum, wife, patient advocate & CEO/Trustee for the Ring20 Research and Support UK (& everything else in-between!)
Bella @Bella4236164270
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192 Followers 4K Following my name is lamin I'm living with my little siblings and my mother. I'm from the Gambia 🇬🇲 smiling coast of west Africa please 🙏 donate me on my gofundme pageJenny Trahan @jtrahanracefan
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Best for Britain @BestForBritain
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ESA's Juice mission @ESA_JUICE
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Catholic Church @catholicEW
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Orion Spacecraft @NASA_Orion
988K Followers 162 Following This account is now archived. The safest spacecraft designed by NASA, Orion is carrying humanity to the Moon and beyond.
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Chaucer Doth Tweet @LeVostreGC
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Mortimer & Whitehouse... @MWGoneFishing
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8.1M Followers 1K Following Once kicked a ball about. Now talk about kicking a ball about. The Rest Is Football @restisfootball @Goalhangerpods ..Instagram . Retweets are not endorsements


















