IWMF @WMIWMF
Info, support, research grants, and more for lymphoplasmacytic lymphoma/Waldenstrom’s patients, caregivers and specialists. [email protected] | 941.927.4963 iwmf.com Sarasota, FL Joined December 2014-
Tweets1K
-
Followers544
-
Following52
-
Likes78
Now available to the entire Waldenstrom community: a recording of the IWMF North Carolina Support Group's presentation featuring WM specialist Dr. Christopher Dittus, Lymphoma Program Clinical Director @UNCDeptMedicine Watch the recording: ow.ly/8AjE50Z8rq7 #IWMF
In case you need a little hope today, read more about Anita, a Waldenstrom macroglobulinemia patient who made a new life at age 72! Read her inspiring update here: iwmf.com/stories-of-hop… @AbbVie #WaldenstromMacroglobulinemia #WMCommunity #Imbruvica #StoryofHope #IWMF
New long-term data from the phase 2b CLOVER WaM trial showed promising results for iopofosine I-131 (CLR 131) in relapsed/refractory Waldenstrom macroglobulinemia. Read more: ow.ly/JqUx50Z2ie4 @CellectarBio #WaldenstromMacroglobulinemia #IopofosineI131
Today is WM World Awareness Day. Join the IWMF for all the latest updates in research, education, and support for those affected by Waldenstrom! iwmf.com/join-the-iwmf/ We are stronger together. #Waldenstrommacroglobulinemia #strongertogether #IWMF #WMWorldAwarenessDay2026
Dr. Anne-Marie Becking and Dr. Josephine Vos reveal the groundbreaking findings from the WM-VOICE Study. Wednesday, April 15 12:00 – 1:00 PM EDT Live on Zoom Don't miss the results and Q&A session. Register: ow.ly/zi4V50YyUI6 #WMVoiceStudy #IWMF #WMWorldAwareness
Can virtual integrative medicine improve cancer outcomes? It did in this clinical study. The IWMF Integrative Wellness Program offers these same evidence-based approaches for the WM community - virtually. iwmf.com #IntegrativeMedicine #VirtualWellness #IWMF
Have questions about Waldenstrom macroglobulinemia? This is your opportunity to hear directly from some of the world’s leading WM experts. Submit your questions via this link or the QR code: ow.ly/UwHH50Yt6fX #WM #Waldenstrom #IWMF #AsktheDoctors #ConnectinColumbus
This year, the European Educational Forum explores how timing shapes every stage of living with WM. Connect with experts and peers on April 24, 2026 in Athens, Greece. 📅 Register here: ow.ly/biKr50Ypm37 #WM #Waldenstroms #RareDisease #BloodCancer #PatientEducation
Exciting news! Dr. Steven Treon has been named the first Robert F. Tannenhauser Chair for Waldenström’s Research. Established through an anonymous gift, this investment will help power the next generation of discoveries. A cure for WM is within reach. #Waldenstrom #IWMF
"Alone, we can do so little; together, we can do so much." – Helen Keller Community is about connection, shared purpose, and collective strength. Find all that and more at IWMF’s annual Educational Forum in Columbus, OH from May 1-3. Register now: ow.ly/g4mX50YniOA
Australia WMozzies leadership gathered to ensure the continued, dedicated support and advocacy for the Australian WM patient community. Are you a WM patient or caregiver living in Australia? Connect with WMozzies: ow.ly/tXg050Yn4fG #WaldenstromsMacroglobulinemia
What does having a rare disease mean to you or your loved ones? Show your stripes - add your comment below. Visit NORD, one of our patient advocacy partners, at rarediseases.org to find out more about living with a rare disease. @RareDiseases
Join us to strengthen the WM community across Europe and beyond. ⏳ Early-bird registration available until Friday 13 March for the European Educational Forum on Friday 24 April in Athens, Greece. Register: ow.ly/6giJ50YipjR #EuropeanEducationalForum #IWMF #ECWM
Join us for a special 30-minute practice: journey within to celebrate your own precious rarity in honor of Rare Disease Day. Relax to the sound of authentic Himalayan Singing bowls. Register here: ow.ly/liZi50YioAO #RareDiseaseDay2026 #IWMF #Waldenstrom @rarediseaseday
The 2026 U.S. Educational Forum in Columbus will feature leading WM specialists sharing the latest insights in care, research, and living well with WM. See who’s speaking and secure your spot! We can't wait to connect with you. na.eventscloud.com/website/90420/…
Waldenstrom macroglobulinemia (WM) is rare, but you aren’t alone. WM is a manageable journey, and our latest eNews is packed with the tools you need to navigate it. Read and subscribe here: conta.cc/4aLoWWA #IWMF #RareDisease #NewlyDiagnosed #CancerSupport
We’re pleased to invite the global Waldenstrom Macroglobulinemia (WM) community to join us for the 2026 European Educational Forum. 📍 Athens Capital Hotel, Greece 🗓️ Friday, April 24, 2026 ✅ Registration is now open Register here: iwmf.com/iwmf-european-… #Waldenstrom
Registration is officially open! Join us in Columbus, Ohio, for IWMF’s cornerstone educational event at the Hilton Columbus Downtown. 🌟 U.S. Educational Forum | May 1–3, 2026 Register here: ow.ly/Vam350Y8Yx5 #EducationalForum #IWMF2026 #ConnectInColumbus #WMCommunity
Let’s mark February 4th - World Cancer Day - onto our calendars and set aside part of this day for honoring the journey. We are not just another cancer story. We are united by unique. #unitedbyunique #bloodcancer #Waldenstrom #worldcancerday2026
Registration is opening soon! On May 1-3, Join the 2026 IWMF Educational Forum in Columbus, Ohio. Patients, caregivers, healthcare providers, and researchers will come together to learn, connect, and find hope. 🌐 Please check IWMF website for updates: iwmf.com/iwmf-education…
WMUK @WmukInfo
395 Followers 186 Following WMUK is the only charity in the UK focused solely on Waldenstrom’s macroglobulinaemia (WM), a rare type of blood cancer. Donate here: https://t.co/BRLIfqu5KM
Rahul Banerjee, MD, F... @RahulBanerjeeMD
12K Followers 4K Following Asst Professor @UWMedicine @fredhutch. Goals: improve pt experience in myeloma #MMsm: ⬇️ dex, ⬆️ time at home, 📱-based wellness. COI: https://t.co/3Uuojuio6R
BeOne Medicines @BeOneMedicines
5K Followers 337 Following A global oncology company that is discovering and developing innovative treatments for patients worldwide. Cancer has no borders. Neither do we.
VJHemOnc @VJHemOnc
22K Followers 5K Following The Video Journal of Hematology & Hematological Oncology is dedicated to providing up-to-date information & international expertise
Surbhi Sidana, MD @SurbhiSidanaMD
3K Followers 581 Following Associate Professor @StanfordMed | Myeloma | #CART #immunotherapy| Chair, ASH Committee on Communications
Blood Cancer United @BloodCancerUtd
40K Followers 2K Following Doing the most for more people with blood cancer. The Leukemia & Lymphoma Society is now Blood Cancer United.
CLL Society Inc. @CllSociety
3K Followers 735 Following CLL Society is a 501(c)(3) nonprofit meeting the unmet needs of those living with #CLL and #SLL. https://t.co/PMtovq27vV
Fab Frank @LockedFab
4K Followers 5K Following Fabrice from the beach Ex @fabrice_frank Pas gentil, imbécile, cinglé, dingue, dinde. Sans foi ni loi selon l'auteur le plus rétracté de France.
Mona AM @monamanap
1K Followers 753 Following Professional Conference Organiser · Entrepreneur · Marketeer · Birdwatcher · Sarawakian
Blair Helsing @BlairHelsi41354
3 Followers 53 Following Percussionist, Nonprofit Volunteer. Master of Nonprofit Administration from University of San Francisco.
Didi @didikillen
64 Followers 3K Following
Jeramy Chunn @JeramyChunn
5 Followers 102 Following
Timepassenger866 @RDaneS66
74 Followers 210 Following
DEM @DEM0093
0 Followers 87 Following
artcons9💧 @Artcons9
2K Followers 3K Following dark light | BA Fine Art | DRiP https://t.co/hrgwOBeUIA Rodeo https://t.co/fZRTQy21Zd
Sara Snyder @SaraSnyder26943
0 Followers 9 Following
Kevin Sutter @ksut2024
2 Followers 28 Following
Jorge Aquino @Akini07
1 Followers 83 Following
Sofia Pasparaki @SofiaPasparaki
4 Followers 223 Following
cyndi lou @cynpowers
7 Followers 30 Following
Melanie Butts Jett @rdnkwmn
74 Followers 514 Following
Y0ur_Neighb0ur @Y0ur_Neighb0ur
626 Followers 617 Following Very severe #MyalgicEncephalomyelitis in #LongTermCare No More #Gtube. #MGUS. Dad, 🏍 enthusiast, former hobby 🚜, tradesman 🔧 & new GRAMPA!
what is truth? @quiddestveritas
44 Followers 339 Following
Renee Soto @SotocommLLC
75 Followers 460 Following Founding Partner of Reevemark. Not a publicist. Defense wins championships.
Christopher Dittus DO... @cedittus1
20 Followers 72 Following Clin. Director Lymphoma Program | Assoc. Professor | UNC Chapel Hill | Clinical Trials | WM | PCNSL | PTLD | ATLL | @unc_lineberger
Amy Clements @AmyClements5
64 Followers 96 Following
Thomas Moloney @galax500
47 Followers 1K Following
Nicolò Danesin, MD @NicoloDanesin
13 Followers 90 Following Hematology resident at UNIPD. Research fellow at Dana Farber in 2026. FIL, EHA, ECWM member. Fascinated by B cell lymphomas In love with books, art and running!
Chuck Till @ccengct2
0 Followers 55 Following
LouiseZ @LouiseZ07426740
17 Followers 499 Following Supporter of Wisconsin Badgers Women Athletes, former college lacrosse player (50 yrs ago)! 🇺🇦🏳️🌈🇨🇦SHE/HER
Sakditad “Tew” Sa... @SakditadMD
822 Followers 1K Following PGY-4 Heme/Onc fellow @uiowacancer | IM @TTUHSC 🇺🇸 🇹🇭| 2024 @ASCO Annual Meeting Merit Award Recipient | $TSLA investor 🚗⚡️ | Thoracic/H&N/GI onc
pat shriner @patshriner
181 Followers 897 Following
David Cordas dos Sant... @DavidCdSMD
257 Followers 297 Following Clinician-Scientist from Munich | Postdoc at Dana-Farber Cancer Institute
Carol Cressman @agentpa
379 Followers 4K Following Suburban Philadelphia Realtor & scrappy tennis player.
Mustapha Rabiu @Mustaph76603620
35 Followers 522 Following
Rareatives @rareatives
114 Followers 493 Following Share Your Rare | Amplifying Rare Disease Voices 🎙️ 📖 Sharing stories from the 1 in 10 🧬 New patient-led publication #RareDisease #PatientVoicesMatter
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Prof. Prabhat Kumar C... @prabhatkcb
36 Followers 220 Following Professor, Division of Orthodontics and Dentofacial Deformities, CDER, All India Institute of Medical Sciences (AIIMS), New Delhi, India.
Melissa Martin @Melmartin92
42 Followers 112 Following Haematology Clinical Nurse Specialist, St James’s Hospital. CLL and Multiple Myeloma. MSc. Nursing, RCSI.
Lyndsey Young @lyndseyyoungre1
327 Followers 1K Following Journalist. 👻 writer. Bit of this, bit of that, mostly politics, property, money. Antisocial butterfly. Crossword addict.
Louise Rose @lou040169
139 Followers 4K Following
MEH488 @MEH488
1 Followers 231 Following
Together4Cancer @T4Cancer
10K Followers 4K Following We help community oncologists stay ahead of breakthroughs that change care - without drowning in promo noise or info overload | Shruti Agarwal | #OncTwitter
Dawood Findakly, MD, ... @CancerExorcist
1K Followers 2K Following Oncologist/Hematologist | @LSUHS ⚜️ & @CreightonIMPhx Alum 🐦 | @ASCO #IMGoncCoP @ASCOTECAG | 🎸 N.E.M @Metallica 🖤 Dream On ✨ | Views mine
Eric Sundby @LEricSundby
211 Followers 433 Following Exploring endless frontiers. Founder & CEO @TerraSpaceCorp. Isaiah 40:31. 🇺🇸
Sherry Sends 🇺🇲 @SherryWhy1
346 Followers 937 Following 💖 President Trump Is Right About Everything. 🇺🇲👍💕
Alberto Guijosa, MD @alberto_guijosa
1K Followers 990 Following 🔜 PGY-1 @MassGenBrigham @BrighamMedRes | Research Fellow @DanaFarber @harvardmed | Teaching Faculty & MD @UPMexico | Former NCI Mexico research | #IMG 🇲🇽🇺🇸
WMUK @WmukInfo
395 Followers 186 Following WMUK is the only charity in the UK focused solely on Waldenstrom’s macroglobulinaemia (WM), a rare type of blood cancer. Donate here: https://t.co/BRLIfqu5KM
BeOne Medicines @BeOneMedicines
5K Followers 337 Following A global oncology company that is discovering and developing innovative treatments for patients worldwide. Cancer has no borders. Neither do we.
Mike Thompson, MD, Ph... @mtmdphd
23K Followers 4K Following VP Clinical Partnerships @TempusAI #PrecisionMedicine #mmsm #lymsm #MDSsm #leusm #CCC19 @COVID19nCCC @ASCO COI: https://t.co/A6GQmWZ302
ASH @ASH_hematology
73K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
NEJM @NEJM
994K Followers 433 Following The New England Journal of Medicine is the world’s leading medical journal and website.
VJHemOnc @VJHemOnc
22K Followers 5K Following The Video Journal of Hematology & Hematological Oncology is dedicated to providing up-to-date information & international expertise
Blood Cancer United @BloodCancerUtd
40K Followers 2K Following Doing the most for more people with blood cancer. The Leukemia & Lymphoma Society is now Blood Cancer United.
Blood Journals Portfo... @BloodPortfolio
54K Followers 743 Following Portfolio of ASH journals including Blood, Blood Advances, Blood Global Hematology, Blood ICT, Blood Neoplasia, Blood RCI, and Blood VTH.
Fedica @FedicaHQ
361K Followers 2K Following Optimize, Visualize & Strategize With AI: All-in-One Social Media Publishing, Analytics, Listening & Analysis Platform.
Notified @Notified
6K Followers 3K Following Your story goes here. Home of GlobeNewswire and more award-winning communications solutions for PR, IR and marketing pros.
National Cancer Insti... @theNCI
223K Followers 4K Following The U.S. government’s agency for cancer research. Part of @NIH. Engagement ≠ endorsement. Questions about cancer? Reach us here: https://t.co/yQAi9x4Obg
Peter DeNardis @pdenardis
36 Followers 34 Following systems professional, cancer patient advocate, wine maker
Charity Navigator @CharityNav
69K Followers 5K Following Making Impactful Philanthropy Easier For All
OncLive.com @OncLive
50K Followers 2K Following Healthcare publisher of oncology focused articles, videos, panel discussions, and much more that run the gamut of oncology care and management.
Stand Up To Cancer @SU2C
269K Followers 695 Following Our mission: raise awareness and fund research to detect and treat cancers with the aspiration to cure all patients. @SU2Cscience
Oncology Times @OncologyTimes
53K Followers 9K Following Reporting essential clinical news w/ independent analysis for cancer care professionals to optimize patient care & outcomes; oncology/hematology
AACR Foundation @AACRFoundation
25K Followers 698 Following The AACR Foundation supports the American Association for Cancer Research, the first and largest cancer research organization in the world.
UT MD Anderson @UTMDAnderson
142K Followers 4K Following Official account of The University of Texas MD Anderson Cancer Center. Our mission is to #EndCancer through patient care, research, education & prevention.
Cancer Today @CancerTodayMag
4K Followers 457 Following A magazine from the @AACR that educates and empowers cancer patients, survivors and caregivers.
Jessica Valence @JessicaValence
43 Followers 57 Following
David Craig @DavewithGRYT
3K Followers 3K Following Passionate about helping people find their voice after a diagnosis. #cancer #survivor CEO @GrytHealth
Gryt Health @grythealth
1K Followers 2K Following Gryt amplifies voices to improve health outcomes. Gryt Health (‘grit’) is a healthtech company owned by survivors and caregivers. Visit https://t.co/cMC9nILkdd.
Light The Night @LightTheNight
6K Followers 449 Following To stay updated on all things #LightTheNight, follow us on @LLSusa. ✨✨✨
CDC @CDCgov
5.5M Followers 244 Following CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: https://t.co/9LbZmE3Wzg
Rare Disease Day @rarediseaseday
42K Followers 3K Following 28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay
NIH @NIH
1.7M Followers 225 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3gX1M Engagement ≠ endorsement
Skype Support @SkypeSupport
36K Followers 9 Following Official account for Skype Customer Service & Support. We’re available 24/7
Zack Pemberton-Whitel... @ZPWHITELEY
2K Followers 1K Following #PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
Leukemia Research Fou... @LeukemiaRF
4K Followers 497 Following The Leukemia Research Foundation's mission is to cure leukemia by funding innovative research, and to support patients and families.
MDS Foundation @MDSFoundation
3K Followers 2K Following The MDS Foundation is building critical awareness of Myelodysplastic Syndromes (MDS), a rare, often undetected blood cancer. 🔬🩸
Robert Z. Orlowski @Myeloma_Doc
17K Followers 5K Following Deputy Chair of Lymphoma/Myeloma, Vice Chair MM Research @ MD Anderson; Translational researcher who hates myeloma. Tweets are my own. Retweets ≠ endorsements.
Naveen Pemmaraju, MD @doctorpemm
21K Followers 3K Following Professor, Leukemia; Executive Director-Cancer Medicine for MDACC Cancer Network | Director #BPDCN Program | Co-Section Head, MPN #MPNSM ;Tweets:my own opinions
Huntsman Cancer Insti... @huntsmancancer
12K Followers 1K Following The Mountain West’s only NCI-Designated Comprehensive Cancer Center—Delivering a Cancer-Free Frontier™ through innovative research & world-class patient care.
National Library of M... @NLM_NIH
77K Followers 220 Following Official account of the National Library of Medicine at @NIH. Serving scientists & society. More at @MedlinePlus and @NCBI. Privacy: https://t.co/PA0HWREPXC
Larry Anderson,MD,PhD... @ldandersonjr
2K Followers 929 Following Myeloma, Waldenstroms, Amyloidosis, CAR-T and Cellular Therapy Specialist at UT Southwestern Medical Center (tweets are my own)
Constant Contact @ConstantContact
67K Followers 28K Following We deliver for small businesses and nonprofits with the right tools to simplify and amplify your digital marketing and generate powerful results.
DonorPerfect @DonorPerfect
7K Followers 5K Following Pair your passion with a #fundraising growth platform designed to cultivate your most valuable relationships.
Memorial Sloan Ketter... @MSKCancerCenter
104K Followers 2K Following Where you’re treated first, matters. To make an appointment: 877-871-9362
Dana-Farber @DanaFarber
112K Followers 9K Following Dana-Farber Cancer Institute - a leading center for expert, compassionate cancer care and advanced research. Appts: 877-442-3324 | https://t.co/HvCwkLltic
EURORDIS-Rare Disease... @eurordis
31K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Amyloidosis @Amyloidosisfdn
3K Followers 2K Following Supporting #amyloidosis patients and families while promoting research, education and awareness. 248.922.9610 #AmyloidosisAwareness https://t.co/iNU2rqE6yw
CancerDotNet @CancerDotNet
14K Followers 2K Following @AmericanCancer and @ASCO are uniting to educate and empower patients. Visit https://t.co/3k1eTO4Cj4 We can't answer individual medical questions. Retweet ≠Endorsement
Cancer Support Commun... @CancerSupportHQ
18K Followers 2K Following CSC uplifts and strengthens people impacted by cancer by providing support, fostering compassionate communities, and breaking down barriers to care.
CancerCare @CancerCare
21K Followers 2K Following CancerCare is a leading national organization dedicated to providing free support services and financial assistance to anyone affected by cancer. 800-813-HOPE
Leukaemia Foundation @LeukaemiaAus
5K Followers 2K Following The Leukaemia Foundation stands with Australia to help cure & conquer every blood cancer – with care. #bloodcancer #worldsgreatestshave
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
CURE Today @cure_today
25K Followers 2K Following Cancer updates, research and education for patients with cancer, survivors and their caregivers to become empowered advocates in their journey.
RareConnect @RareConnect
18K Followers 5K Following 🌐Connecting #raredisease patients globally at https://t.co/v6rTTK0X6I. 💻Website help at @RareConnectSup.
Lymphoma Coalition @knowyournodes
4K Followers 2K Following Global network of lymphoma patient organisations sharing resources & best practices; acting as a central hub for reliable information.Trends for United States
You might like
