Zack Pemberton-Whiteley (he/him) @ZPWHITELEY
#PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement linkedin.com/in/zpwhiteley/ United Kingdom Joined June 2016-
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If you donate to charity, why saying yes to Gift Aid means they get more & you may get more too. Feel free to share, charities miss out on hundreds of millions of unclaimed Gift Aid each year.
@RoryStewartUK Very insightful Rory… @campbellclaret would approve
Why does cancer evoke so much talk of conflict? Ruby was a lover not a fighter. A dyed in the wool pacifist who avoided all forms of conflict. She was the child in the kindergarten playground trying to broker a peace-deal between friends who had fallen out. 🧵1/n
Let's talk through the @LifeKitchen x @holland_barrett collection. The WORLDS FIRST taste-enhancing food range for people living with taste loss whether that be from cancer, covid, old age or anything else! Can we share to get it to the people who may need it?
Wedding day - 29.12.23
What a lovely surprise I had just now... instead of a ‘1:1 catch up call’, a chance to connect and say au revoir (but not goodbye) to #PatientAdvocacy colleagues. Thank you to everyone who joined or sent a Kudo message, and to @SamanthaNier for organising ❤️
End of an era… Zack out (🎤 drop)
👩🔬@Torr_Bethany, Scientific Programme Manager in the ICR's Translational Genetics Team, discusses the #BRCA-DIRECT study at #ESMO23, showing how a digital service for genetic testing in #BreastCancer is as effective as traditional methods⬇️📹 @VJOncology vjoncology.com/video/oydxupsh…
Šarūnas Narbutas closing the last session for #CMLHZ23 talking about QOL survey - patient generated evidence!
Panel discussion in progress! #CMLHZ23
The 2023 Global Leukemia Experience Survey is available in various languages! It only takes few minutes to share your experience and let your voice be heard! START NOW: picker.fra1.qualtrics.com/jfe/form/SV_3l… #BeLeukemiaAware #PatientSurvey
I am honoured that my friend Elo from @HENZOKENYA has very kindly brought me a blanket at CML Horizons #CMLHZ23 @cmlnet all the way from Kenya 🇰🇪
Packed room at #CMLHZ @cmlnet for @NScully_’s talk on using digital tools (including social media and AI) in #PatientAdvocacy
A great example of policy work from @scicommchar - talking about how to balance priorities, internally and externally. And how many different ‘policy makers’ there can be to talk to. Work out who, how and why? #CMLHZ23 @cmlnet
Hochhaus reminds us that only 40% are eligible for TFR, and 50% relapse. So only 20% are ‘cured’ (he says we can argue the semantics of if it’s cured). And calls for work to improve. And @SharfGiora reminds us that’s only in the western world, and not the global reality #CMLHZ23
🌟 To finish off day 1 at #CMLHZ23, Andreas Hochhaus, Menon Hari and Gerald Clements will be debating on What can we realistically hope for as advocates? and How much development is happening in CML in the future? Let's hear!
Our Network Director @SamanthaNier is leading a Chair Yoga session at #CMLHZ23 @cmlnet Keeping everyone refreshed and concentrating for all the sessions!
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