Vestibular Disorders' Community UK @VestibularUK
Welcome, I’m Doron. Supporting those with #pppd and trying to create awareness on this condition. I made a full recovery and so can you! London, England Joined April 2018-
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The moon doesn’t ask the sun to rise, it just happens every morning #deep #beautiful #meditation
Development and validation of a persistent postural-perceptual dizziness screening questionnaire - goo.gl/scholar/JaxhjK
Comparison of the Degree of Handicap Between Different Types of Vestibular Disorders | Indian Journal of Otolaryngology and Head & Neck Surgery link.springer.com/article/10.100…
Neuroplasticity and its implications for vestibular rehabilitation: A narrative review - goo.gl/scholar/kutFXJ
Visual and vestibular motion perception in persistent postural-perceptual dizziness (PPPD) | Journal of Neurology link.springer.com/article/10.100…
BPPV without dizziness is common in people presenting to falls clinics Dizziness is common in BPPV though 26% or 1 in 4 people testing positive were not dizzy and would be missed without mandatory testing tandfonline.com/doi/full/10.10…
This is pleasing for the community of #Lanarkshire and promising from #NHSLanarkshire we need this UK wide! Surely can’t be too difficult? #PPPD nhslanarkshire.scot.nhs.uk/services/physi…
Some awareness for #GP’s and wider community on #PPPD below: #VEDA vestibular.org/article/diagno…
#PPPD is now defined as a vestibular disorder, it was not obvious to get diagnosed and very specialised with highly trained vestibular professionals. What are/were your symptoms?
@VestibularUK I found the article - to help #GPs make an accurate diagnosis. Please share as much as you can! #vestibular bjgp.org/content/67/665…
Patients with #vestibular symptoms can wait years before getting a proper diagnosis, this should not be happening in 2024 and it needs to be taken far more seriously, I was one of the lucky ones.
It should be mandatory for every single #GP surgery to have a crash course in Vestibular education and training.
What is being done to educate GP’s on the signs and symptoms of a Vestibular/Balance disorder? Panicky patients need reassurance ASAP that their condition is real and not in their heads.
Thank you Professor Luxon (and all my consultants) it struck me that without your clinic I doubt I would ever get diagnosed or hear the magical words #vestibular
With #pppd when your symptoms are crying, rest! when mild go out! it took time but you will notice big improvements when your brave! test yourself and be kind in the process.
Persistent Postural-Perceptual Dizziness (PPPD) causes dizziness without vertigo and unsteadiness that is increased by a person’s own motion, exposure to environments with a complex stimuli, and performance of tasks that required precise visual focus. vestibular.org/PPPD
Did you know that hearing loss can impact not only one’s ability to understand sound but one’s spatial awareness and sense of balance? #NAAM #VestibularWarrior
Dean Metz @thefallguyUK
1K Followers 413 Following Vestibular specialist physiotherapist with particular interest in older adults and falls. Regional Coordinator ACPIVR. views my own. 🏴🇺🇸🏳️🌈Lisa Burrows @LisBteamdizzy
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94 Followers 2K Following moglie,madre, nonna, sorella, nuora, suocera , zia , cognata, cugina ,sopratutto curiosa e informata dove posso.Dean Metz @thefallguyUK
1K Followers 413 Following Vestibular specialist physiotherapist with particular interest in older adults and falls. Regional Coordinator ACPIVR. views my own. 🏴🇺🇸🏳️🌈Lisa Burrows @LisBteamdizzy
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593 Followers 166 Following Consultant Physician in Audiovestibular Medicine - medical specialty of hearing, vertigo/dizziness & tinnitus | Hon Sec British Assoc Audiovestibular PhysiciansMeniere's Society @MenieresSociety
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@VestibularUK I wrote a piece for BJGP a few years back - I’ll see if I can find it online now. #GPs #vestibular #dizzy
I’m at @UniversityLeeds today for all things #PhysiologyWeek. Students have displayed posters with their favourite aspect of physiology. I’d personally find it impossible to choose! #FacesOfPhysiology! ‘Today a reader; tomorrow a leader’. Bumped into this guy also! @ThePhySoc
CONFIRMED: April 20% Energy Price Guarantee bill rise postponed. Briefing on what this means in practice, the new unit charge & standing rate, what this means for fixes….
This Newcastle fan is grafting for Wembley tickets, with the support of “Rio Ferdinand”. Ronan Kemp demonstrates his brilliant impressions on tonight’s brand new episode of Fantasy Football League on Sky Max, Sky Showcase and NOW TV at 10PM
We must never forget. In memory of Rakhel Sajo died 1944. Year of birth unknown #HolocaustMemorialDay
I remember my onset clearly. Travelling home on the train and feeling #faint a bit #disorientated #lightheaded and felt like I was staggering from side to side when I came off. But I never fainted. #vestibulardisorder #MenieresHelp Vestibular Disorders’ @VestibularUK
Well this is wonderful Friday news. Congratulations to all of my co-authors and facilitators for the hard work performed on this study 🚀 @DLR_de @DLR_en @MMU_LifeScience @ManMetUni @NASA @EJAP_official
@VestibularUK This is everything! This robbed me of so much. I won’t let it win.
Omg went to @HamleysToys, felt anxious when I got in, seeing the crowds, lights («why are you doing that to yourself»). I was floating, which I didn’t feel for a while. Then I saw @DisneyFrozen merchandise and thought only about what I should get for my nieces #vestibularmigraine
@sharpe_margie @Hearing_balance Possible factors 1)#MedEd+emphasis:med students, junior (&therefore senior) Drs get limited ENT training & #VestibularDisorders may just be a term 2)symptoms in multiple domains inc balance, vision & cognition, increasing risk of misdiagnosis if Dr can’t take a vestibular history
@VestibularUK I agree! I saw a second neurologist (neurotologist?) today and the diagnosis was confirmed. Although massive difference in treatments!
#usopen2019 #usta Its that time of year in NY ! #tennis #september
Try my Mango & Coconut Rum Daiquiri at home! 👍🏾🍹#ainsleyscaribbeankitchen ainsley-harriott.com/recipe/mango-c…
@VestibularUK “You look really well” is one of the most frustrating lines I’ve heard since being diagnosed and that’s the problem with something that fluctuates. How do I you even begin to explain it?
@VestibularUK Not sure what the UK laws are?? Here, they have to make reasonable accommodations by law. If they let you go, you can take them to court for discrimination.
@VestibularUK You may find this information on @MenieresSociety website useful: menieres.org.uk/information-an…
@VestibularUK Hold on!! You can with this!! We understand you! 😉
@VestibularUK Sorry you're suffering at work, I hope it gets easier for you. Me? Well I've had better days, then again I've had a lot worse so I can't complain. Thanks for asking 😎
@VestibularUK You have my total sympathy, as I have been struggling for weeks, with 2 weeks of daily 'unable to stand/walk and vomiting' vertigo attacks. Followed by a week of poor balance. Hopefully on road to recovery now. All the best and I hope you get over this attack quickly.