Okay a follow up to this tweet: After doing some more research and talking to more ppl with CCI I decided to buy an at home cervical traction device to *VERY safely* see if traction improves any symptoms. Lo and behold IT DID!!!! As soon as I did the traction my POTS symptoms lessened and my HR dropped by almost 30bpm. And you guessed it, as soon as I carefully released the traction, my hr shot right back up. I think this is really big!!! Now to try and compile data to convince my doctor to order the imaging to see if it is CCI.
Okay a follow up to this tweet: After doing some more research and talking to more ppl with CCI I decided to buy an at home cervical traction device to *VERY safely* see if traction improves any symptoms. Lo and behold IT DID!!!! As soon as I did the traction my POTS symptoms lessened and my HR dropped by almost 30bpm. And you guessed it, as soon as I carefully released the traction, my hr shot right back up. I think this is really big!!! Now to try and compile data to convince my doctor to order the imaging to see if it is CCI.
@fcknsyd Just make sure they do the proper imaging on it, apparently it can’t be seen when laying down on MRI, you have to be standing, or x rays of you moving
@ThePOTSPostman Yes! Thank you. I think I need a supine MRI with flexion. But I don't think supine MRIs exist in Canada. So I might have to find someplace in Michigan that does it. Sigh
@fcknsyd I’m still wondering if I have CCI lol my neurosurgeon says I don’t but he only looked at mri of me laying down
@ThePOTSPostman Omg. Obviously I am not a Dr and not giving medical advice, but you should try the at home traction device and see if it improves your pots symptoms. If it does that could be an indication it is CCI. this is the one I got