The Bonnell Foundation @RoadmapToCF
The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls linktr.ee/livingwithcf Royal Oak, Michigan Joined September 2011-
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New podcast out Monday! Dr. Ryan Hadley talks all things transplant. Listen wherever you get your podcasts! Or link in bio!
It was great to meet with state Senator @MalloryMcMorrow today! Thx. I appreciate your time! We talked RDAC, PDAB and CF! She’s a fan of yours @LetsRockCF she’s run a couple of your races as you know! @RoadmapToCF @bhamgov
How did The Bonnell Foundation start? And how do you create a Foundation! Those questions answered in todays podcast! Listen where ever you get your podcasts. Link in bio
Thanks for all you do for CF!! And for The Bonnell Foundation!!!!
Thanks for all you do for CF!! And for The Bonnell Foundation!!!!
At the CF Nutrition and Social Work Consortium in @CityPortland So thankful for this group on the frontlines! #cysticfibrosis #CF @LauraTbonnell @jcahillYCF
We’re in Portland, Maine! It’s the CF Nutrition and social work consortium! The BonnellFoundation Foundation is here as a vendor! It hasn’t started yet, but we’re all set up!
I'm all sorts of, "Oh, look! Shiney!" today. I did manage to update my website & set a #FreeBook promotion starting Sunday, 4/21, and ending on 4/26. I'm pretty excited to do that, so keep an eye open for the announcement when it begins. Til then, happy reading! Love you guys!❤️
Follow us on twitter, and everywhere! Thank you! Education Day is May 11th at Mellie in Ferndale. 9 am until 11am!
Have you listened to Living With Cystic Fibrosis yet? CF and the trans community. So much more with Rabbi Mike Moskowitz. …vingwithcysticfibrosis.simplecast.com/episodes/rabbi…
Rabbi Moskowitz podcast. Out now. …vingwithcysticfibrosis.simplecast.com/episodes/rabbi…
Prepping for Education Day! It’s May 11 th! Shoot us an email if you can attend. It’s free! 9 am to 11 am. Meillie coffee!
Thanks @mecfassoc for organizing. IF YOU'RE SHIPPING DONATED ITEMS PLEASE EMAIL US SO WE CAN TELL COORDINATORS. Email US at: [email protected] CFF in Israel has supplies at this time (fyi they shared/gave medications to Palestines prior to the war).
Thanks @mecfassoc for organizing. IF YOU'RE SHIPPING DONATED ITEMS PLEASE EMAIL US SO WE CAN TELL COORDINATORS. Email US at: [email protected] CFF in Israel has supplies at this time (fyi they shared/gave medications to Palestines prior to the war).
We're working to assist a medical team who is collecting items for the 100 CF Families in Palestine. They need shakes the most. They're the most sustainable. Ship them here: MEDGlobal. Industria company for construction warehouse, 10th of Ramadan City, Al Sharqia, Cairo
He is a light in this world. Rabbi Mike Moskowitz with @CBST which is a spiritual community & a progressive voice w/in Judaism, welcoming LGBTQ, cis gender & families. His synagogue is in Brooklyn, NY. We talk pronouns, CF and so much more. I learned a lot!!! Out Monday!
CF in Brazil, and one outstanding advocate youtu.be/C3jYXePt-Ts?si… via @YouTube
May is officially CF Awareness month! Thanks to @rodowntown city commissioners, and Mayor Mike Fournier for the official proclamation! Thx to the CF families who joined @RoadmapToCF 💜
Thanks @bethdenniss for setting up this fabulous contact and podcast!
Thanks @bethdenniss for setting up this fabulous contact and podcast!
CF in Brazil. A lot to learn from parents and experts around the World. Thanks to Gabriel Johnson for sharing his world and work in Brazil. Today's podcast. …vingwithcysticfibrosis.simplecast.com/episodes/cf-in…
CF Gut pain? Some new and innovative answers in this podcast! @umichmedicine …vingwithcysticfibrosis.simplecast.com/episodes/gut-p…
I encourage you to take part in @AllofUsResearch @AllofUsCEO program that is making sure we're ALL represented when it comes to research. Find out more, and see how what they're doing is advancing women's health in research. Rock Star program! allofus.nih.gov/news-events/an…
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
CF Vests Worldwide @CfVests
763 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Laura Teicher Bonnell.. @LauraTbonnell
2K Followers 2K Following Covered breaking news in Detroit. Founder of the Bonnell Foundation: helps families w/ cystic fibrosis. [email protected]
beth Vanstone @bethdenniss
466 Followers 246 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Jackie Paige @JPaigeWWJ
7K Followers 4K Following Morning Drive Anchor WWJ Newsradio 950. @WWJ950 Listen here: https://t.co/slsfi7jgME Opinions are mine. Murrow Award Winner.
Vickie Thomas @VickiethomasWWJ
8K Followers 7K Following Director of Communications @cityofDetroit. Former @wwj950 reporter, Ex-Reg II Director @NABJ, ex-steward-@SAGAFTRA. MI Journalism Hall of Fame Inductee-2019.
KT ON AIR @TrafficbyKt
765 Followers 1K Following On The Air #Broadcaster #RockandRoll #Traffic #Digital Content Creator Lover of #Logistics #SOUND Engineer #MusicLover
Chris Riches @ChrisMRiches
1K Followers 792 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2020 Society of Editors 🏆& 2020 Press Gazette Campaign Journalist of the Year 🏆. ❤️Spurs. Opinions own.
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
CF News Today @CFNewsToday
5K Followers 2K Following We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.
Partnership to Improv.. @PIPCpatients
4K Followers 2K Following PIPC is a coalition of health care stakeholders promoting comparative effectiveness research and patient engagement to improve health care quality.
Melissa Shiffman @smelis73
1K Followers 3K Following Healthcare advocate for @CF_Foundation. #cysticfibrosis. @GrandStreetDems. Eternal optimist w/a splash of generalized anxiety disorder. Love this guy @ssatlon.
shauna rempel @ShaunaRempel
8K Followers 3K Following @UTM Ed.▪️@TheTillieforCF chair, @cfcanada advocate▪️adjunct @journalismtmu, UofGH▪️@JSchool_CU/@uoftscs/@usask alum▪️Priors: Torstar, @globalnews▪️Saskie
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
CF Ireland @cf_ireland
6K Followers 2K Following Cystic Fibrosis Ireland is a non-profit organisation, supported by fundraising & voluntary contributions & are solely concerned with the well-being of PWCF
Beam for Cystic Fibro.. @Beam_CF
1K Followers 673 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
The Partnership to Fi.. @ThePFID
1K Followers 771 Following PFID is a group of patient, provider, and community orgs, health policy experts & others working to advance awareness & action on #AMR & vaccine confidence.
Ebrima Drammeh @EbrimaEb32225
323 Followers 4K Following
Patrick @Patrick37775077
9 Followers 251 Following
Ruth @DiesisRuth
10 Followers 327 Following Teacher: "I killed a person" convert this sentence into future tense.
Asia Smith @AsiaSMixx
913 Followers 1K Following
egoldbe @esgoldbe
69 Followers 33 Following
Pedersen CRE @phoenixcre_
90 Followers 528 Following Jeffery Pedersen's CRE takes. Sharing insights, thoughts, and questions from an investment sales and brokering perspective. Phoenix advisor main @the_exertian1
Joan @just_joanie
189 Followers 568 Following Retired editor, budding artist. Full-time cystic fibrosis fighter.
rj87ihyp18ffyoxb @153uczjuwm8vg6
5 Followers 319 Following If you want to make friends, you can contact me anytime TG：https://t.co/ed7Pxscclk WS：https://t.co/KJwZ2SIbz3
Cindy Hernandez @CindyH65765
65 Followers 3K Following
Alex Piotrowski-Daspi.. @asap_data
198 Followers 259 Following Partner, Mama^2 • Chemical/Biomedical Engineer • Asst Prof @UMBME + @UM_PCCM #DYNAMEDlab • she/her/hers • #FirstGen 🎓 • Immigrant • 🇺🇸 via 🇫🇮🇩🇪 🇸🇦 🇬🇧
Michelle Hastings @HastingsLab
682 Followers 960 Following RNA biology and therapeutic discovery lab. @UMichMed, @UMPharmacology, @UMichRNA- views are our own
Guizhi (Julian) Zhu @gzzhujoy
874 Followers 1K Following Ara G. Paul Associate Professor at University of Michigan. Immune theranostics; DNA/RNA drug/vaccine; Nanomedicine.
Verónica Loyo Celis @LoyoCelis
24 Followers 107 Following
Sergi El-Dor @SergiDorozhko
75 Followers 436 Following
Jessica Fournier @jessfournier512
118 Followers 417 Following Mom x 3-swim instructor-creator. skiing 🎿, swimming 🏊♀️, tennis 🎾, hiking. Love of sunsets 🌅, the ocean 🌊, and dogs 🐕.
Canadian Rare Disease.. @CanadianRDN
224 Followers 586 Following Pan-Canadian network uniting clinical, scientific and patient experts to improve the health and well-being of individuals affected by rare diseases.
Sunjay R Devarajan, M.. @SunjayMD
1K Followers 733 Following Pulmonary/Critical Care doc @BCMHouston #Bronchiectasis #CysticFibrosis #NTM This is my tweet. There are many like it, but this one is mine.
Josh Denny @AllofUsCEO
3K Followers 400 Following Official account of the @NIH @AllofUsResearch Program CEO Josh Denny. Dad 👨👧👦 | doctor 🩺 | data nerd 📈 Privacy Policy: https://t.co/TEc9JQ8bXR
Barbie for Congress (.. @BarbieHardnHall
3K Followers 3K Following Democratic candidate for U.S. Congress, Florida District 11 Wife, mother, Rare Disease Advocate, MLD mom It's time to give FL-11 its voice back.
Xiaopeng Li @smallairways82
0 Followers 8 Following
Richmond Community Se.. @RichmondCommSvc
109 Followers 512 Following Richmond Community Services (RCS) meets the needs of children & adults with developmental disabilities through residential supports, day programs and respite.
Value of Care Coaliti.. @valueofcare
2 Followers 11 Following
Helio Ribeiro @heliorib
243 Followers 612 Following from Salvador, Bahia, Brasil 📍Toronto, Canada based!
Carolyn @carolyn_torkels
761 Followers 3K Following
Jorge Capisce You @Jorgeaeroestado
37 Followers 137 Following Nadie dijo que vivir fuera fácil, pero intento aprovechar el tiempo día tras día. Esa es la mejor manera de cimentar el futuro.
Dr. W @LetsGoWVPower
548 Followers 656 Following Disabled US Army vet. Physician. 15 yo with cf & ASD "Man is put on Earth destined to die. Time & method of execution to be determined." Mortui vivos docent
Monaghan Medical @MonaghanMedical
544 Followers 2K Following
Tina Whewell @TinaWhewel1888
21 Followers 250 Following
Susan Perri 💜💫 @Perri4health
5K Followers 5K Following Wife, mom, retired SPED IA 📚 Living w/ cancer Cure #cysticfibrosis for my son & others. Affordable & Accessible healthcare for all 🏥 #Demcast 🌊
Susan Perri @SusanPerri63875
0 Followers 1 Following
Janica Leppanen @LeppanenJa54487
24 Followers 278 Following
Nancy Adams @NancyAdams37101
144 Followers 3K Following
MommaBear07 @MommyDean05
58 Followers 125 Following
Mark Workman @mworkman98
90 Followers 839 Following ChristFollower, Husband, Father, Pharma-Viatris, F3SandWedge, GoRuckTough, GS Eagle & Go Braves
Alex Vaillant @Alex_vt2010
15 Followers 396 Following
Upequity @Upequity_Org
153 Followers 522 Following Upequity is a nonprofit organization dedicated to advancing systems and policy change to create equal access to quality, affordable healthcare.
Kenzie Shah @kenzie_sha74236
103 Followers 3K Following
Bridget Morse @BridgetMor50691
132 Followers 3K Following
ClaireW #no1leftbehin.. @claireywilzz
389 Followers 410 Following Cornish maid. Cystic Fibrosis Mummy. Raising awareness of CF & hanging on for a cure. Mum of 3. Endometriosis explains it all. Anything but the Tories. 🇪🇺
CF Warriors @CFwarriorsUK
839 Followers 414 Following CF Warriors is a charity focussed on promoting sport and exercise to help people with cystic fibrosis to be as fit and healthy as possible.
infectious diseases 2.. @Diseases2024
301 Followers 2K Following We are happy to welcome you to the official website of 2nd Global Meet on Infectious congress on March 12, 2024 as a Webinar.
Liz Rooney Prieditis @Lizzy5005
87 Followers 677 Following
HealthWellOrg @HealthWellOrg
2K Followers 2K Following HealthWell Foundation is a national nonprofit providing financial assistance to insured individuals with high out-of-pocket medication expenses.
Gayle Pledger @gayle_pledger
530 Followers 596 Following CF mum fighting for all our CF warriors b/c lifesaving drugs should never cost lives. Founder @VertexSaveUs, ‘Right to Breathe’ campaign, working @JustTreatment
Rare & Ready: A Genet.. @rare_ready
169 Followers 133 Following Supported by BioMarin & Ultragenyx, the Coalition educates state policymakers on the impact of conditions. Social media guidelines https://t.co/6ZYhchAmHS
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
CF Vests Worldwide @CfVests
763 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Laura Teicher Bonnell.. @LauraTbonnell
2K Followers 2K Following Covered breaking news in Detroit. Founder of the Bonnell Foundation: helps families w/ cystic fibrosis. [email protected]
beth Vanstone @bethdenniss
466 Followers 246 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Catherine Meredith @873Meredith
2K Followers 5K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Jackie Paige @JPaigeWWJ
7K Followers 4K Following Morning Drive Anchor WWJ Newsradio 950. @WWJ950 Listen here: https://t.co/slsfi7jgME Opinions are mine. Murrow Award Winner.
Andrew @Andyassert
650 Followers 195 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
Vickie Thomas @VickiethomasWWJ
8K Followers 7K Following Director of Communications @cityofDetroit. Former @wwj950 reporter, Ex-Reg II Director @NABJ, ex-steward-@SAGAFTRA. MI Journalism Hall of Fame Inductee-2019.
KT ON AIR @TrafficbyKt
765 Followers 1K Following On The Air #Broadcaster #RockandRoll #Traffic #Digital Content Creator Lover of #Logistics #SOUND Engineer #MusicLover
Chris Riches @ChrisMRiches
1K Followers 792 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2020 Society of Editors 🏆& 2020 Press Gazette Campaign Journalist of the Year 🏆. ❤️Spurs. Opinions own.
Vertex Pharmaceutical.. @VertexPharma
72K Followers 89 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
CF News Today @CFNewsToday
5K Followers 2K Following We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.
Nicola Johnson @JohnsonMNicola
970 Followers 1K Following Director of People & Culture in a Multi-Academy Trust. School Governor. Mum, Step-mum, and raising awareness of Cystic Fibrosis when possible. #NoOneLeftBehind
Mallory McMorrow @MalloryMcMorrow
248K Followers 5K Following Michigan State Senate Majority Whip | @NotreDame | @raywert's ginger half | Noa's mom
CityofRoyalOak @CityofRoyalOak
4K Followers 307 Following This is the Official Twitter Account for the City of Royal Oak.
CORD @raredisorders
5K Followers 729 Following CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare
Alex Piotrowski-Daspi.. @asap_data
198 Followers 259 Following Partner, Mama^2 • Chemical/Biomedical Engineer • Asst Prof @UMBME + @UM_PCCM #DYNAMEDlab • she/her/hers • #FirstGen 🎓 • Immigrant • 🇺🇸 via 🇫🇮🇩🇪 🇸🇦 🇬🇧
Michelle Hastings @HastingsLab
682 Followers 960 Following RNA biology and therapeutic discovery lab. @UMichMed, @UMPharmacology, @UMichRNA- views are our own
Andrés Muñoz-Rojas @AndresMnzRjs
195 Followers 375 Following Postdoctoral Fellow in Immunology in Mathis & Benoist Lab @HarvardMed | Ph.D. in Biomedical Engineering @Yale | Twin Dad
Zach Randles-Friedman @Zachre
263 Followers 302 Following Digital Communications at Pfizer. Tweets on this account are my own opinion.
Josh Denny @AllofUsCEO
3K Followers 400 Following Official account of the @NIH @AllofUsResearch Program CEO Josh Denny. Dad 👨👧👦 | doctor 🩺 | data nerd 📈 Privacy Policy: https://t.co/TEc9JQ8bXR
Barbie for Congress (.. @BarbieHardnHall
3K Followers 3K Following Democratic candidate for U.S. Congress, Florida District 11 Wife, mother, Rare Disease Advocate, MLD mom It's time to give FL-11 its voice back.
Mark Huizenga @MarkEHuizenga
771 Followers 546 Following
Science Committee Dem.. @sciencedems
25K Followers 2K Following News from the U.S. House of Representatives Committee on Science, Space, and Technology - Democrats. May not represent the views of Members of the Committee.
Lakota Man @LakotaMan1
530K Followers 19K Following Oglala Lakota —Enrolled at Pine Ridge, S.D. — “The earth sings her revolution, she calls brave men and women to her defense.” — The only easy day was yesterday.
Liz Cheney @Liz_Cheney
678K Followers 968 Following Proud rodeo mom, soccer mom, baseball mom, hockey mom, constitutional conservative.
Brook Allen @1BrookAllen
9K Followers 9K Following Author of the ANTONIUS trilogy, First Place in the CIBA CHAUCER DIVISION 2020, SILVER MEDALIST in the READER'S FAVORITE BOOK AWARDS, 2020.
Michigan Department o.. @MiCivilRights
3K Followers 2K Following The Michigan Department of Civil Rights works to prevent discrimination, promote compliance with civil rights laws, and investigate discrimination complaints.
CBST @CBST
2K Followers 299 Following A vibrant spiritual community & a progressive voice w/in Judaism, welcoming LGBTQ & straight folks & families w/ common values. Not currently active here!
Monaghan Medical @MonaghanMedical
544 Followers 2K Following
World Patients Allian.. @WorldPatients
369 Followers 237 Following The World Patients Alliance is an umbrella organization of patients and patients organizations around the globe. Learn more at: https://t.co/JYfn1Rz3MV
Temple Shir Shalom @ShirShalom
216 Followers 252 Following A cutting edge, hip and exciting Reform Jewish congregation in the heart of Oakland County. Not too big, not too small. Just right. Give Shir Shalom a try.
Lisa Rubin @lawofruby
278K Followers 2K Following @msnbc legal correspondent & recovering litigator; former: off-air legal analyst @maddow, @wagnertonight. Don’t let the pearls fool ya.
Queen Kwong @QueenKwong
3K Followers 440 Following ⇥ musician // cat wrangler // raised by wolves ⇤ 🎈 couples only LP out now
Donna Kelce @dkelce1
52K Followers 156 Following
Matt Bomer @MattBomer
528K Followers 1K Following
Jonathan_Bayleaf @J_Bayleaf
3 Followers 4 Following
Thomas L. Friedman @tomfriedman
923K Followers 57 Following NY Times columnist and Pulitzer Prize winning author of Lexus and the Olive Tree and From Beirut to Jerusalem.
NEJM @NEJM
942K Followers 436 Following The New England Journal of Medicine is the world’s leading medical journal and website.
The Lancet @TheLancet
747K Followers 471 Following Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.
STAT @statnews
165K Followers 5K Following Reporting from the frontiers of health & medicine. Sign up for any of our 10 free newsletters here: https://t.co/CBx3GZBv31
Louise Taylor @LouiseHirte
200 Followers 477 Following Nurse Practitioner, retired from Sick Kids. Cystic Fibrosis specialist. Proud wife, mom and Oma.
ClaireW #no1leftbehin.. @claireywilzz
389 Followers 410 Following Cornish maid. Cystic Fibrosis Mummy. Raising awareness of CF & hanging on for a cure. Mum of 3. Endometriosis explains it all. Anything but the Tories. 🇪🇺
Susanna McColley MD (.. @SusannaMcColley
2K Followers 2K Following Professor of Pediatrics @NUFeinbergMed @LurieChildrens, @NUCATSInstitute, Editor-in-Chief, Pediatric Pulmonology. CF, Child Health, Health Equity. Tweets=mine.
Upequity @Upequity_Org
153 Followers 522 Following Upequity is a nonprofit organization dedicated to advancing systems and policy change to create equal access to quality, affordable healthcare.
Seth Rotberg @Srotberg15
2K Followers 1K Following I help infuse the patient voice throughout drug development | #HuntingtonsDisease advocate | @Tedx Speaker | All views are my own
(((noa tishby))) @noatishby
239K Followers 375 Following Former Special Envoy for Combating Antisemitism and Delegitimization of Israel. Mom. Author. Acting. Producing.
Rare Disease Innovati.. @rdii_org
448 Followers 214 Following RDII is a non-profit organization focused on education, engagement and to equip the rare disease community
Rare & Ready: A Genet.. @rare_ready
169 Followers 133 Following Supported by BioMarin & Ultragenyx, the Coalition educates state policymakers on the impact of conditions. Social media guidelines https://t.co/6ZYhchAmHS
Kyle Meyaard-Schaap @kmeyaardschaap
1K Followers 895 Following Author, Following Jesus in a Warming World @ivpress | Public Voices Fellow @YaleClimateComm & @TheOpEdProject | 2022 #Grist50 Fixer
Rachel Jones @RJConsults
2K Followers 2K Following Director of Journalism Initiatives, @NatPress. Now serving young journalists on the OTHER side of the Atlantic. Still in love with #Africa + #globalhealth.
Neil Grubert @NeilGrubert
262 Followers 27 Following Independent pharmaceutical consultant, trainer and writer with a focus on pricing, reimbursement and market access trends around the world
Nicholas Kelly MS, RD.. @NicholasKellyRD
182 Followers 129 Following Dietitian | Motivational Speaker | Artist | CF Advocate Continually striving to showcase Passion through the left and right sides of my brain.
Emily Lyons @msfatale
3K Followers 1K Following
David Ramsden @DavidRamCFT
873 Followers 54 Following Chief Executive of the Cystic Fibrosis Trust. Fighting for Life Unlimited for all! Views are my own.
Jarrod 😷 @ilovetobreathe
518 Followers 367 Following CF, 44 years old. 2 x Nonsense Mutations, 2 kids. Wanting to learn, share and support. Concerned about germs,its my shtick. Love life.
MI House Democrats @MIHouseDems
27K Followers 6K Following In this House, we're #PuttingPeopleFirst and fighting for an equitable, safe and welcoming Michigan for ALL! #MILeg
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Innovate This @InnovateThis_US
252 Followers 223 Following Hot takes on the impact of public policy on US innovation and health, curated by Ginny Buckingham, a fmr. biopharma exec, gov't leader and ed page editorGo Leafs Go!! 💙💙 @TheFordFANatic @MapleLeafs
Happy Saturday from the Kinzingers!
Flowering trees get prettier every day here in Ann Arbor!
New podcast out Monday! Dr. Ryan Hadley talks all things transplant. Listen wherever you get your podcasts! Or link in bio!
Today the European Commission approved the label expansion of the first of our four #CysticFibrosis (CF) medicines. This marks an important step towards our goal of treating all people with CF.
Thanks to all who reposted & got a copy of FALLS THE BREATH during my giveaway. I'm taking a deep dive into a new novel, so I might not be on so much, but I wanted to voice my gratitude & remind you that stories are important. Whether you read or write them, or both, thank you.❤️
What can I say? I really do love DNA. Thank you @AllofUsResearch for making me trendy on #DNADay24! I can’t wait to tell my kids that I’m a meme now. 🧬
Not going to lie, we're pretty into DNA. 😍 71 years ago today, scientists discovered the double helix, and they've been uncovering the role that DNA plays in our health ever since! Happy #DNADay24 to everyone who has shared, studied, and celebrated life's little blueprint. 🧬
The problem with #ebooks is I can't stack them so high they lean to one side, then gaze at them with lust. Well, I can gaze at them with lust but it's not the same. Anyway, LAST DAY to get FALLS THE BREATH #Free on #Amazon. If ya want it, click here: rb.gy/elai86
Two more days! FALLS THE BREATH #Free #Ebooks at #Amazon ends Thursday, 4/25! Three ghosts intertwine with the family living in their house. A child is born ill. All must unite to keep him alive. The synopsis is skimpy. The book is juicy. Get a copy here: rb.gy/elai86
🌟In honor of National Infertility Awareness Week join @G17Esiason of BEF and Dr. Pietro Bortoletto of @BostonIVF tomorrow Thursday, April 25th at 6PM EST for an IG Live. 🌟
EXCITING TRANSIT NEWS: Big local bus funding increases reported out of MI House & Senate transportation subcommittees! 🚌 The House passed a $32.5 million increase & the Senate passed a $40 million increase above the executive recommendation! #transit #publictransit #Mileg
It was great to meet with state Senator @MalloryMcMorrow today! Thx. I appreciate your time! We talked RDAC, PDAB and CF! She’s a fan of yours @LetsRockCF she’s run a couple of your races as you know! @RoadmapToCF @bhamgov
How did The Bonnell Foundation start? And how do you create a Foundation! Those questions answered in todays podcast! Listen where ever you get your podcasts. Link in bio
Thanks for all you do for CF!! And for The Bonnell Foundation!!!!
Spring has sprung! Soon it'll be too damn hot so kick back in the AC with an #ebook. FALLS THE BREATH is #free on #Amazon 4/21-25. Three ghosts intertwine with the family living in their house. A child is born ill. All must unite to keep him alive. rb.gy/elai86
Spring has sprung! Soon it'll be too damn hot so kick back in the AC with an #ebook. FALLS THE BREATH is #free on #Amazon 4/21-25. Three ghosts intertwine with the family living in their house. A child is born ill. All must unite to keep him alive. rb.gy/elai86
He misses too many votes, he doesn’t work hard enough for his constituents, he’s barely seen out in the community, and he’s only managed to get one piece of insignificant legislation passed in nearly 14 years in Congress. He was the least effective member of Congress in 2023.…
Researchers at the University of Liverpool have been investigating the use of ‘phages’ to treat bacterial infections, such as serious, hard-to-treat lung infections caused by Pseudomonas aeruginosa. Read the article to learn more. #CFNews ➡️ ow.ly/o4P050Rh1tc
Thank you to our classroom volunteer speakers for your time, dedication & passion! Because of you, so far this school year, we've visited 39 schools & spoken to over 4,000 students in Oregon & SW Washington! Interested in become a DLNW Educator? Visit donatelifenw.org/content/donate…
#CFFutures Spotlight💡: #BEFAmbassador Michael Caruso Davis. Watch to learn more about Michael’s career in heavy highway construction, what he enjoys most about his job, and how he manages his CF care in this field of work. 👷♂️🚧🏗️
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