Profound Autism Alliance @ProfoundAutism
Inclusive research and collaborative, targeted advocacy for those with profound autism. linktr.ee/profoundautism Joined August 2022-
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Following71
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Crowdsourcing to curb aggression in autism: Q&A with Matthew Goodwin To accelerate the development of real-time behavioral prediction technology, a research team is sharing data and seeking new collaborators. ow.ly/4WJT50RvzN4
Research. Advocacy. Caregiver support. We are working hard at the Profound Autism Alliance to make a meaningful difference for the 26.7% of those with autism who require lifetime, 24/7 care. Learn more at profoundautism.org/about-us/our-i…. #profoundautism #autismresearch #autismadvocacy
"As someone who has a brother with severe autism, I have had the privilege of learning about it through his friends, their aides (people who help kids with special needs perform tasks), and, of course, my own brother." Read the full article here: highschool.latimes.com/newport-harbor…
Research that supports goals tailored to the individual needs and strengths of minimally verbal autistics is critical. Thank you to our Medical and Scientific Advisory Committee member, Helen Tager-Flusberg, for her ongoing leadership in this work. onlinelibrary.wiley.com/doi/10.1002/au…
Did you know that most legislators know very little about #ProfoundAutism? They need to hear from those who do! Please take a moment and sign up for our #AdvocacyAlerts. votervoice.net/ProfoundAutism… #ProfoundAutismAdvocacy #WashingtonWednesdays
The Special Interest Group on Severe, Intense and Dangerous Behaviors is hosting a meeting w/clinicians from @childrensatl to hear about how the @MarcusAutism Center helps families who suffer from #selfinjury & #aggression on May 31st at noon eastern. ow.ly/CsMm50RpeTr
Join us in our mission to advocate for individuals with profound autism through initiatives like Washington Wednesdays and the Profound Autism Advocacy Network. Learn more at profoundautism.org/advocacy/ #ProfoundAutismAdvocacy #WashingtonWednesdays
Are you a sibling of someone with profound autism? The Sibling Action Network provides support, resources, and information to help you navigate this unique experience. Learn more at profoundautism.org/families/sibli… #ProfoundAutismAlliance #SiblingSupport
My Autistic Son Asked to "Call Mom" Personal Perspective: Here's what independence looks like in profound autism. ow.ly/Liys50RmZxF
"Despite federal parity laws, new research shows that behavioral health clinicians are reimbursed at rates 22% lower than medical and surgical clinicians." Note: Since autism is defined in the DSM, mental health parity laws are generally applicable. ow.ly/QFpq50Rl0zm
From the article: Autism exists on a spectrum because it is an inherently diverse condition. It manifests everywhere, paying little mind to culture, gender, race, religion or family income. statnews.com/2024/04/16/aut…
Kate Movius knew it would be challenging when her son Aidan, who experiences profound autism, turned 22. What she didn’t anticipate was the two years she would spend in a fruitless search for an adult program that fit her son. ow.ly/rhCj50RjIBF
"Profound Autism Summit attendees left the event with more than pamphlets and words of wisdom: the caregivers felt an emerging sense of belonging. Some, for the very first time." masslive.com/news/2024/04/p…
Attention innovative researchers! The Simons Pilot Award aims to support exploratory ideas considered higher risk but with the potential for transformative results, particularly those with novel hypotheses about autism. 📅 Deadline is June 13. 🔗ow.ly/fXBf50Reqjz
Our first advocacy training for those who have signed up to be part of our Profound Autism Advocacy Network is next Wednesday. We are thrilled 33 states are represented so far. Please consider joining our efforts.🇺🇸 Learn more at 🔗ow.ly/pw4W50Rekzx
Pets can be some of the most faithful friends for people with profound autism. This # nationalpetday, we celebrate our true companions.
Happy National Siblings Day from the Profound Autism Alliance! Today we celebrate siblings of individuals with profound autism, who often have the longest, closest relationship with them of anyone. Learn more at: 🔗ow.ly/gEs150Rcr5x.
Are you a researcher conducting research that includes people with profound autism? We would love to share your work with our community. Learn more here: 🔗ow.ly/14l350R6M8f
We are building a network of advocacy leaders to create positive change for people with profound autism. We need your help to do so! Learn more: 🔗ow.ly/wuaV50R6MsE
@flcro @ProfoundAutism In some ways there is more acceptance and understanding but we're not there yet as a society. That's why we need representation of those who don't have a voice.
बलिहाङ्.. @DearBalihang
3K Followers 2K Following न मार्क्सबादि न समाजबादी, म मान्छे गुजाराबादी । बलिहाङ्ग लिम्बू।।
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nddpsych @nddpsych
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Sway @sway_tweets
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Julio Ruiz, M.S., BCB.. @JulioR1017
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Jone Dodie @DodieJone19040
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K B @KB_ThatBoi
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10K Followers 1K Following The Autism Community in Action is families living w/autism helping families. Be a hero for the 1 in 36, please donate: https://t.co/zBFDoH67be
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Jeff Snyder @GoDistance3562
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Angela MacDonald-Pré.. @AngelaT_Mac
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AutismMommie 🪻☀�.. @autism_mommie
305 Followers 418 Following Wife, Mom, Autism Warrior, Classic Movie Fan, #Christmas365 Please forgive any tweet typos😊
Leonard Skinner @KevinDu63956002
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chuck @DCRjrBuffalo
2K Followers 3K Following “Sometimes the songs that we hear are just songs of our own” 🌎⚡️ #BillsMafia #LetsGoBuffalo #AMG
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277 Followers 518 Following Gradient descent into madness. Currently @Coupons Previously @EBTHOfficial. You never know, I might do something great one day.
Patrick Emerton @egregiousknave
760 Followers 5K Following Co-Author: Luke 17:2 https://t.co/X5C366a2vH / Consultant:@SpotlightMovie / Moderator:@Luke_172 / Instagram:@patrick_emerton
Susan Senator @LiliaDarkStar
5K Followers 1K Following Mystery writer,#Autism mom/author, blogger@PsychToday. 3 sons ❤️ Obsessed w/Grateful Dead, bellydance, cake. Liberal, Dem for life. https://t.co/Wd9n8fpLvM
Shauna Diffley @DiffleyShauna
283 Followers 622 Following @IrishResearch Postgraduate Scholar. PhD Candidate @uniofgalway. Ed Disadvantage, Precision Teaching, Evidence-Based Practice in Schools. Views are my own.
Will Vanoy, Ph.D. @rwvanoy
898 Followers 2K Following Proud Conservative - Health Freedom Advocate. Microbiology, Immunology, Genetics. - Nutritionist/Homeschool Father.
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Jim Booth @JEBJr1982
654 Followers 2K Following Didn’t take Orange Baal’s clot shot or wear a mask. Anti-political tribalism. Follower of Jesus of Nazareth. NOT a MAGA Occultist. 10th amendment Jeffersonian.
Billy Mann @BillyMann
11K Followers 2K Following Philly-made husband/dad/son/brother/ally/advocate/Grammy-nominated songwriter/producer/entrepreneur/creative exec/nerd/philanthropist/Rocky Balboaian ✊🇺🇸
Scott Anderson @Psychobiotic
19K Followers 12K Following Psychobiotics are probiotics that lift your mood! Read "Psychobiotic Revolution" with @TedDinan and @jfcryan from National Geographic: https://t.co/tnrfRAGsbj
Matoaka Garner @happyspiritwell
35 Followers 224 Following autism mom • certified health coach • frontline wife • we left NY for the free life in GA • Welcome to my musings
CindyLouWho @DoktorZeuzz
1K Followers 3K Following Overmedicated & undernourished: Our kids are not alright • The Emperor has no clothes • https://t.co/LEcTJYBxNc • #Kennedy24
Sportify-GlutenFree F.. @SportifyG
369 Followers 5K Following Working in the space - "Food Thy Medicine" via GFCFSF Innovations
Autism Hub @AutismHubIE
22 Followers 57 Following Ireland’s Autism Information Resource The team behind Autism Hub consists of Chartered Psychologists registered with the Psychological Society of Ireland.
Pathfinders for Autis.. @Path_For_Autism
8K Followers 1K Following Maryland's largest #nonprofit organization dedicated to improving the lives of individuals with #autism & the people who care for them.
Meredith Pecukonis @MGPecukonis
320 Followers 326 Following Incoming post-doc at @mghfc/@harvardmed Lurie Center for Autism. PhD in developmental psychology from @BU_Tweets. 🏳️🌈
ACK Harbormaster @ackharbormaster
5K Followers 94 Following Offical Twitter account for the Nantucket Harbormaster. This account is not monitored 24/7, for emergencies please call 508-228-1212 or dial 911
VaAutismProject @VaAutismProject
476 Followers 180 Following We are a grass roots, non-profit, state-wide coalition of families with children affected by an autism spectrum disorder. https://t.co/KsC6ZEGfCn
Susan Senator @LiliaDarkStar
5K Followers 1K Following Mystery writer,#Autism mom/author, blogger@PsychToday. 3 sons ❤️ Obsessed w/Grateful Dead, bellydance, cake. Liberal, Dem for life. https://t.co/Wd9n8fpLvM
Kate Snow @tvkatesnow
86K Followers 687 Following Anchor NBC News Daily. Correspondent @nbcnightlynews @todayshow. Wife of Chris Bro @chrisbronext Mom of two amazing people. TikTok, FB, Insta: TVKateSnow
Billy Mann @BillyMann
11K Followers 2K Following Philly-made husband/dad/son/brother/ally/advocate/Grammy-nominated songwriter/producer/entrepreneur/creative exec/nerd/philanthropist/Rocky Balboaian ✊🇺🇸
Matoaka Garner @happyspiritwell
35 Followers 224 Following autism mom • certified health coach • frontline wife • we left NY for the free life in GA • Welcome to my musings
HollyRod Foundation @HollyRodFDN
18K Followers 596 Following 501c3 non profit supporting families impacted by #autism and #parkinsonsdisease #RJsPlace #DesignCare #DC25 July 15, 2023
Lori Kay @sdlori1
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Pauline Maes @paulinemaes_
198 Followers 492 Following Postdoc at CARE @BU_Tweets | PhD from @ActeLab @ULBruxelles Interested in language development in autism 🧠💬
Chloe Manesiotis @chloemanesiotis
15 Followers 28 Following special education + behaviour and speech therapy 🦻🏻
Caren Zucker @caren_zucker
677 Followers 108 Following Journalist | Producer @ABC & @PBS | Author of IN A DIFFERENT KEY 2016 w/ @JohnDonvan
John Donvan @JohnDonvan
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Council of Autism Ser.. @CASProviders
510 Followers 320 Following We support our members by cultivating, sharing, and advocating for provider best practices in autism services.
Marcus Autism Center @MarcusAutism
2K Followers 373 Following Treating more than 5,700 children a year, Marcus Autism Center is the largest autism research and treatment center in the nation.
Arthur Westover @ArthurWestover
70 Followers 118 Following MD, MSCS, psychiatry, autism, ID Dir of Adult Autism Services Med Dir UTSW Richardson Clinic Assoc Med Dir Amb Psych Clinic UT Southwestern Medical Center
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Joshua A. Gordon @NIMHDirector
15K Followers 86 Following Official account of @NIMHgov Director Joshua A. Gordon, M.D., Ph.D., part of @NIH. Engagement ≠ endorsement. Privacy Policies: https://t.co/B1qALncrZY
Yanru Chen Ph.D. @yanruchenASD
152 Followers 201 Following Postdoc at CARE @BU_Tweets | PhD from @Columbia | BCBA | Studying executive function, language & social communication in autism
SPARK for Autism @SPARKforAutism
5K Followers 4K Following SPARK is the largest #autism research study ever — working to address the gaps in autism research and transforming the way autism research is done.
The Center for Discov.. @TCFDiscovery
782 Followers 774 Following The Center for Discovery is a residential, educational & research center for people with complex conditions, renowned for exploring innovative models of care.
Katherine Ellison @kathellison
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IACC_Autism @IACC_Autism
12K Followers 17 Following Official Twitter account of Office of National Autism Coordination (part of @NIH), National Autism Coordinator, and Interagency Autism Coordinating Committee
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katie wright @katiewr31413491
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GivingTuesday @GivingTuesday
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Dr. Candice Chi-Hang .. @CandiceCheung12
896 Followers 3K Following Guest researcher with the focus on #Autism Spectrum Disorders and #linguistics @AutismINSAR | @AutismScienceFd | @AutismEurope | @APA | @AAAS
AAAS @aaas
145K Followers 480 Following Updates from AAAS, the American Association for the Advancement of Science. Join us: https://t.co/iUvdZveVpd@flcro @InADifferentKey @AmySFLutz @ProfoundAutism That is precisely the population we are looking at, the use of "until" here is not meant as an expectation.
@flcro @ProfoundAutism In some ways there is more acceptance and understanding but we're not there yet as a society. That's why we need representation of those who don't have a voice.
Here is the album from running the @flutiefdn table at the @ProfoundAutism Summit at the Boston Marriott Burlington in Burlington, MA on Friday April 5th, 2024... …rodiversityselfadvocate.wordpress.com/2024/04/08/dou… @BarcellonaR @SelfAdvocateMV @carsplus_sped @SeekonkPS @ProfJPizzo @DrWilliamLane
#TCFD was thrilled to attend @AutismScienceFd's #DayOfLearning alongside family members, individuals w/#autism, advocates & researchers. The event also honored TCFD’s Exec VP of Development, Marketing & Comms, @MichaelRosen27 for his outstanding work & advocacy in the field.
@tvkatesnow This was such an honor and a pleasure to participate in. Thank you for highlighting April 2nd.
Today is world autism awareness day! Dr Alycia Halladay of the Autism Science Foundation joined us to talk about challenges adult with autism face & how we can support them.
@katiewr31413491 @IACC_Autism @NIH @nimh Agree this is travesty@IACC_Autism Where is the representation? This 30% needs more research and treatments.
Thank you @EmpireStateBldg for celebrating World Autism Month and Autism Speaks with our spectrum of colors. #WorldAutismDay
This is autism awareness month. Wear blue to show support. Our son will turn 26 years old this month and has never said a word. He is what is called non-verbal. He has many of the other classic autism behaviors, like extreme sleep disturbances. #autismawarenessmonth
A travesty. @IACC_Autism severe autism compromises 30% of the spectrum but the focus of 6% of research. @NIH @nimh we R tired of hearing “it’s 2 hard 2 study #ProfoundAutism!” No!!! It’s hard HAVING #ProfoundAutism. Research comm. need 2 stop making excuses.
This World Autism Day, did you know? People living with profound autism are generally excluded from clinical research. In addition to broader research related to ASD, focused research on profound autism is needed. Learn more at profoundautism.org.
TACA Friends are grateful for Judith Ursitti and her dedication to helping our community. This new interview shares updates on #Profound #autism. This interview has important federal initiatives and diagnostic updates. tacanowblog.com/2024/03/29/pro… @ProfoundAutism
3,584 new Autism Workbooks just arrived at the office. They are everywhere!! Here comes the hope!!!! Thank you great on loading team❤️👍👏🏻 #autismactionmonth
And this abusive situation is found in one of the “best” states for autism support. Most states have far less support than California for disabled adults.
A devastating dose of reality from the Los Angeles Times on abuse of those requiring the most intensive supports. latimes.com/california/sto…
It’s time to embrace ‘profound autism’ spectrumnews.org/opinion/viewpo… via @Spectrum
@ProfoundAutism Kicked out of an out of district placement in a private school “serving students with autism” at age 17
@ProfoundAutism My son was kicked out of preschool , but that was 33 years ago. He was also denied admission to the local public school at a time when the public school boasted “full inclusion״
Discover the incredible value of @AutismNavigator! Clinician Rosemary Chakkalakal from @UAlberta sheds light on how this amazing tool is transforming the lives of caregivers and families affected by autism.
I took two calls today from other parents about disability legal issues. We believe in the concept of parents helping parents. #Autism
TODAY!
TOMORROW is the DAY OF GIVING with @jerseymikes! 100% of sales from 3/27 will be donated to the Flutie Foundation. Snap a pic, tag us (@flutiefdn) and Jersey Mike’s (@jerseymikes), and you could win two Celtics tickets to their Autism Acceptance game on April 3rd!
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