PeaceLove ☮️💙 @PeaceLoveStones

☮️💙 Peace, not war. Love, not hate. Fight & vote for what you want v. against what you fear. Feed the energy you wish to grow. Joined June 2016

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PeaceLove ☮️💙 @PeaceLoveStones

4 months ago

@CMerandi @joerogan I know of patients who recently suffered the same fate. Their dr is in PA. Some of them have such horrific, debilitating conditions. It would be awesome if @joerogan would address this. He has approached other nuanced issues thoughtfully. This is a tragedy.

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PeaceLove ☮️💙 @PeaceLoveStones

6 months ago

@SecKennedy We need to remove the financial incentive for insurance companies. They are making billions while individuals and companies suffer. Please find a way to incentivize not-for-profit insurance cooperatives. This is a win/win for patients and businesses.

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PeaceLove ☮️💙 @PeaceLoveStones

6 months ago

@JoshShapiroPA You need to take responsibility for & take action to reverse the harm you have caused to patients with painful chronic conditions, as well as & those undergoing surgery w/ your anti-pain med insanity. @CMerandi painnewsnetwork.org/stories/2019/1… #Pain #opioidhysteria

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PeaceLove ☮️💙 @PeaceLoveStones

9 months ago

@SenTomCotton It is healthier for kids to be able to play outside AFTER school. You should address the real problem; school start times are unhealthy. Not too long ago, the Sunshine Protection Act, which allowed for permanent DST UNANIMOUSLY passed in the Senate. What has changed?

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PeaceLove ☮️💙 @PeaceLoveStones

9 months ago

@SkySportsF1 Absolutely not! Let them race.

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Bev Schechtman🇮🇱 @ibdgirl76

10 months ago

We need an investigation. Who benefits from cutting off pain patients from daily opioids and shuffling them into addiction treatment? Follow the 💰: Pharma & addiction orgs funded by companies like Indivior KOLs & “experts” making millions as witnesses & advisors Gov-affiliated nonprofits (CDC Foundation, FNIH) Legislators pushing bills to slash Rx opioids while taking law firm $$ (Wyden, McCaskill, etc.) Media darlings like Humphreys, who sits on Indivior’s board pulling 6-figures while shaping drug policy Meanwhile, our inbox is flooded, especially with elderly patients cut off and abandoned. Patients lose. The addiction industry wins. Time to trace the $$$. #PainPatients #OpioidPolicy #Accountability

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PeaceLove ☮️💙 @PeaceLoveStones

10 months ago

@ibdgirl76 @Bowen_Health Bev- I just attempted to add a community note re: a credible study, but I wasn’t able to do so. painnewsnetwork.org/stories/2019/1…

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PeaceLove ☮️💙 @PeaceLoveStones

10 months ago

@Bowen_Health painnewsnetwork.org/stories/2019/1…

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PeaceLove ☮️💙 @PeaceLoveStones

10 months ago

@DrMakaryFDA They also deserve access to pain medications if they are living w/ chronic, painful conditions. You are doing some wonderful work at the FDA. I encourage you to connect w/ expert @DanLairdMD to learn more about how you can expand #MedicalFreedom #MAHA & help #pain #ChronicPain

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Sassy Devil Dog 🔥 @VinoNStrosGal

11 months ago

The Addiction Myth: Why dependency isn’t the same as addiction. They’ve blurred the lines on purpose — and pain patients are paying the price. 🧵

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Sassy Devil Dog 🔥 @VinoNStrosGal

11 months ago

If we stopped erasing the line between dependency and addiction, we could: ✅ Treat addiction as the compulsive brain disorder it is. ✅ Treat pain as the complex medical problem it is. ✅ Stop punishing patients just trying to live.

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Stefan Kertesz, MD, MSc @StefanKertesz

11 months ago

Anyone who steps forward knows that patients with long term pain, who happen to be receiving prescribed opioids- appropriately- are *being abandoned, *losing docs with no one willing to step forward to help them *facing extraordinary suffering, up to and including death from medical deterioration, pain, suicide (We learn these stories routinely in our suicide study CSI:Opioids) What @ibdgirl76 bears witness too is a disaster brought on by more than one cause: -a fight against pills that ignored the **people with pain** -countless paid experts for the opioid litigation who have argued - fallaciously- that every dependence is an addiction, and who routinely use their social media to make light of the risks faced by patients with pain -countless storytellers, journalists and politicians who have been taught to embrace people with addiction (or at least pretend to) while shunning folks with pain or dependence on a medication . -a medical establishment that, having chosen to embrace prescribing excessively before 2011, made a fetish of “opioid stewardship” (as if our first duty was to guard the opioids and not the patients) and “deprescribing” (as if our first duty was to a implement procedural change in care and not to the patient who is our equal, in human terms) Luckily: many of my colleagues and even the CDC’s 2022 Guideline have begun to understand. But unluckily, people with pain and disability don’t have sufficient political power to cause journalists to ask better questions or to change national policy But if you are a doctor or doctor in training, please understand just because opioids were once overprescribed in the past, that doesn’t make it right to abandon people who might need them, or are dependent on them. There are experts who could help us learn how to take the best possible care of patients. And it is not rocket science. Every time someone simply says “I don’t prescribe those pills,” realize they are shutting their door on patients who are at high risk. They can learn to be smart and careful with this responsibility, and save lives. But it has to start with a spark of conscience that says “the patient is a real human being just like me. And I might be vulnerable to someday. And just as I would want someone to help take care of me, now it’s my turn as a prescriber or as a doctor to not abandon patients.”

Bev Schechtman🇮🇱 @ibdgirl76

11 months ago

Woke up to 100 messages from pain patients. Two are from pts whose doctors abandoned their practices leaving all pts without meds, and the rest are pts whose docs said they can no longer rx opioids, so deal with it. @US_FDA have you considered actually addressing this crisis of

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PeaceLove ☮️💙 @PeaceLoveStones

11 months ago

@DrMakaryFDA painnewsnetwork.org/stories/2019/1…

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PeaceLove ☮️💙 @PeaceLoveStones

11 months ago

@DrMakaryFDA Prescription opioids are necessary for some people with chronic, painful issues. Most of these patients have tried so many alternative therapies prior to pain meds. We must not harm those with #ChronicPain. People w/ sickle cell & EDS (dislocating ribs, hips, shoulders) & more.

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PeaceLove ☮️💙 @PeaceLoveStones

11 months ago

@DrAndreaPhD @DrMakaryFDA Most addicting start elsewhere- drinking, illicit drugs. Those prescribed have an extremely low incidence of addiction. painnewsnetwork.org/stories/2019/1…

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Gavin Preston, M.D. @GavinPrestonMD

a year ago

The only appropriate role for a health insurance company is to pay bills, not to "manage" care. The only appropriate decision-makers in health care are patients and their doctors.

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PeaceLove ☮️💙 @PeaceLoveStones

a year ago

@DrMakaryFDA @smuckers it is great to see this. Please do the same with partially hydrogenated oils.

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PeaceLove ☮️💙 @PeaceLoveStones

a year ago

@CMerandi Claudia, check out the Cymbalta Hurts and Cymbalta survivors groups on FB. It is so terribly sad. I know someone who took Cymbalta prescribed for pain. It was a horror show, did not help him with pain, but did dramatically set him back medically.

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American as it gets! @robertw8569

a year ago

I would like to emphasize the need for greater understanding and empathy towards those who endure chronic pain on a daily basis. The struggle to obtain necessary pain management medications, such as opioids, can be both challenging and inhumane..

Bev Schechtman🇮🇱 @ibdgirl76

a year ago

🗣️ “Chronic pain only exists in America because we prescribed opioids.” According to them, if we just stop all opioids and never start anyone new, poof, no more chronic pain. These people are absolute clowns with a microphone. 🤡🎤 And the worst part? They’re still influencing

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PeaceLove ☮️💙 @PeaceLoveStones

a year ago

#TreatPain

JaymetheRN @JaymetheRN

a year ago

Remember that time your wife, husband, Grandma/pa, kid, friend, sis, bro had surgery? What likely assisted their pain was an opioid. Fentanyl, morphine/other. Are they a junkie now? #treatpain