National Palliative and End of Life Care Programme @PallCareCymru
The National Palliative and End of Life care Programme provides national leadership & acts as a forum to drive forward change Retweets don't endorse opinions. executive.nhs.wales/networks/progr… NHS Executive Joined April 2021-
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👀👀👀 - NEW Investigation into Welsh and English traditions relating to end of life care, bereavement & grief. Ymchwiliad i'r traddodiadau'r Cymry a phobl Saesneg sy’n ymwneud ȃ gofal diwedd oes, profedigaeth a galar. Bilingual information sheet: scanmail.trustwave.com/?c=261&d=85md5…
Very well done all great achievement
Very well done all great achievement
Haven’t posted in a while, but I’ll be at @DiabetesUK Professional Conference next week if anyone wants to network re Transitional/Young Adult/Age Appropriate Care. Also grateful for the opportunity to share this session on the Thursday. #DPC #DUKPC24
📢 Welsh Government has announced £4m to support hospice services, providing much-needed support to help hospices tackle rising costs. With demand escalating, it's a crucial step towards ensuring hospices can continue their invaluable work. hospiceuk.org/latest-from-ho…
media.service.gov.wales/news/vital-fun… As a PEoLC Programme we are really pleased to see this announcement, lots of hard work here, the funding is part of phase 3 of the Welsh Government’s end-of-life care review; £4m is provided to support hospices in 2023-24. Lots more to do😀
There is no doubt that religious practices and beliefs play a big part in death, dying and #eolc #bereavement It's been a great experience and an education working with @AneurinBevanUHB Chaplains and @muslimdoccymru on improving certification of death where speed is of essence
@chrisdunn_22 highlights that Cultural Competency is a journey not a tick box. “Hard to reach is a myth”@DiverseCymru @PallCareCymru @AneurinBevanUHB
@WelshTreasury @RebeccaEvansMS @WelshGovernment @cbukhelp @tyhafan @HHTGhospices @SandsUK @WelshLGA @CBNtweets @2wishcymru @goodgrieftrust An important gesture at a time when families have so much to think about. It will never be enough but good to see the bereaved & the many struggles that accompany grief are being recognised. Diolch. If you’re struggling after the sudden death of a child please contact @2wishcymru
Totally agree it was incredibly thought provoking 😊
Totally agree it was incredibly thought provoking 😊
Great presentations so far @CliffJonesGP really interesting presentation re #ACP #letstalkdeath
Thank you for attending 😊
Thank you for attending 😊
So glad you could make it 😊
Thank you to everyone who left a message on our #DayofReflection Wall 💛
Thank you to everyone who left a message on our #DayofReflection Wall 💛 https://t.co/vAfGr8LN12
Thank you for attending 😊
What a productive day, good to see so many people who care about PEoLC in Wales all in one place. Great discussions and lots to take away and digest. Dr Idris Baker summing up all of the great discussion.Thank you 😊#dyingmatters #PEoLC #Wales
Marianne Cobham @CobhamMarianne1
0 Followers 5 Following
BMJ SPCare @BMJ_SPCare
4K Followers 463 Following An International peer-reviewed journal for Supportive & Palliative Care clinicians & researchers. Blog/Opinion article pitches to @ProfMarkTaubert
Sophie Louise 🩷 @sophie_instone
14 Followers 77 Following
John MacArtney @johnmacartney
745 Followers 575 Following Marie Curie Associate Professor Sociologist of dying, palliative and end-of-life care, and bereavement. https://t.co/6HVncqIsc4
Rachel Ali-Evans @RachelAliEV1978
9 Followers 63 Following Community Palliative Care Nurse wife, mother and all round animal lover! All views are my own!
Dr Ben Bowers RN QN @Ben_Bowers__
3K Followers 2K Following Wellcome Post-Doctoral Fellow @Cambridge_Uni @PELi_Cam @JesusCollegeCam Nurse Consultant Pall Care @CPFT_NHS Research Consultant @TheQNI Hon. Associate Prof.
Claire Chapman @ClaireChap15347
2 Followers 13 Following
Joe Hawkins @JoeHawk75825077
824 Followers 1K Following Palliative Medicine Doc, occasional writer and prolific reader when my children allow me to, with a passion for heart failure and good care. all views my own.
Meinir Jones @welshcake39
2K Followers 2K Following GP&MSK Doc.Mum & Mountain runner. National Clin Dir Planned Care NHS Wales, CCIO Hywel Dda University Health Board,Pg Dir MSc Exped&Wilderness Med. 💜Vit N & 🌊
Emily Wooster @emilyjwooster
611 Followers 907 Following Policy and Public Affairs @BHFCymru. Formerly @mentalhealth, @mind. Passionate about social change, public health, Cymru. Views mine.
Lisa-marie Hassall @hassall_lisa
451 Followers 485 Following RNLD since 2019 💕 who loves to exercise 🏋💪🙄 all views are my own
Alison Docherty @AlisonDocherty3
298 Followers 556 Following Palliative Care Occupational Therapist Wife, mother and Scout
Anna Sutherland @annasutherlan15
1K Followers 1K Following Palliative Medicine Consultant, Strathcarron. Professional Lead SPCGs. Views my own. RTs not endorsement. Not medical advice. CrieffConnexions trustee. Gaelic.
Fin - Exploring Endin.. @ExploreEndings
12 Followers 137 Following Death, dying and bereavement training, staff support grief circles and advance planning tools. Empowering individuals and care providers. Founded by EoL doulas.
Kate Kempson @xkate0x
469 Followers 562 Following Kate, A Mummy, A Wife and palliative care Nurse. 🤍✨ All views are my own 🌟
Dr Annie Hendry @akhendry
450 Followers 1K Following Researcher in North Wales Medical School, NWCPCR and NWORTH CTU, Bangor University. Qualitative research and process evaluation.
Rebecca Mcdonald @Rebeccamc130681
82 Followers 179 Following Clinical Nurse Specialist Paediatric Palliative Care Hywel Dda UHB Msc Palliative Medicine
Jo Hook @_Hookie_
1K Followers 2K Following Senior Nurse - Patient Experience & Involvement Team 👩🏼⚕️ @AneurinBevanUHB All views my own.
The Good Grief Trust @goodgrieftrust
34K Followers 27K Following The UK’s leading network of bereavement services under one umbrella Help & Hope from day one. Secretariat APPG on Bereavement Support.
The Digital Legacy As.. @DigitalLegacyCo
2K Followers 3K Following International NFP Association dedicated in raising awareness, standards and developing best practice in digital assets planning and digital legacy safeguarding.
Clare_Cancer_AOS @SewalesA
260 Followers 310 Following opinions are my own- ABUHB Cancer Services Programme Manager, previously part of SE Wales Acute Oncology and NHSBT organ donation register and donation teams.
rebecca Torrance @rebeccaTorran10
12 Followers 69 Following
Sara Crowley (Type1Hu.. @Type1Hurdles
4K Followers 4K Following My greatest achievement is being Mami to my b/g twins. 33+ yrs living with T1D, learning to accept that. 🏳️🌈 Sara(h)
Francesca Wilson @francescawOT
163 Followers 196 Following Specialist Palliative Occupational Therapist in Wales • Acute oncology and acute stroke experience • All views are my own•
ccss @ivscomps
16 Followers 911 Following
KAVS (West Glamorgan) @KAVSWestGlam
12 Followers 11 Following
uatuama @UaTuama
111 Followers 524 Following
Counselling Hub - Uga.. @counselinghub1
560 Followers 1K Following Prioritizing Mental Health through providing professional psychological interventions to individuals, families,schools and organizations.0762346751,0705154351
Elinor Evans @eldosian
206 Followers 372 Following Specialist Palliative Care SLT in South Wales, all views are my own. Mam to Violet, wife to Ev 💜
sarah price @sarahphillo5
59 Followers 436 Following
Niki Turner @niki_turner
813 Followers 1K Following Physiotherapist. National AHP Lead for Stroke in Wales. Stroke Service Manager for @CV_UHB. All views are my own.
Dr Mike Brady (PhD) @DrMikeBrady1
973 Followers 2K Following Consultant Paramedic (PhD). Digital Health. Telehealth Triage. Remote Care & Assessment. Academic. 999 & 111. Views are my own. RTs are not endorsements.
Jo Wilkes @jowilkesz
85 Followers 455 Following Love the seaside in any weather. Owned by a crazy dog. Proud to be working for our NHS, helping to improve services for Patients across Wales.
Covid-19 Bereaved Fam.. @cymru_inquiry
2K Followers 1K Following As families bereaved by decisions taken by the Welsh Government during the pandemic, we are calling for Wales to be fully scrutinised in a public inquiry.
Tim Pickles @PicklesTim
1K Followers 2K Following Research Fellow in Statistics @CTRCardiffUni; @researchwales Next Steps Awardee; Rasch measurement theory, psychometrics, PROMs and Rheumatoid Arthritis
Stephen Mason @Dr_Maceo
1K Followers 1K Following R&D Lead for the Palliative Care Unit @ the University of Liverpool. Also son, brother, husband, father, and paternal optimist...
Donna @nursedonwalker
344 Followers 488 Following Bereavement Clinical Lead. A & E Staff Nurse 👩🏻⚕️ , USW graduate, CPR & Defib trainer & Dachshund mum ❤️ views are completely mine x
Tŷ Hafan @tyhafan
15K Followers 4K Following Together, we can ensure that no family faces the unimaginable loss of a child without the care and support they need, in life, death and beyond.
Mala Mann MCLIP @SysReviews
3K Followers 4K Following Information Specialist/Systematic Reviewer, #systematicreview #rapidreview #evidencesynthesis #teaching #researchmethodology. Views expressed are my own.
Emily Holmes @EAFHolmes
463 Followers 482 Following Health Economist. Interests: preference elicitation, AMR, medication adherence, palliative care, medical devices, health psychology. Own views.
Christian Newman @Chris_Newman_1
1K Followers 2K Following Paramedic, National Allied Health Professions Advisor for Value Based Health Care @Valuein_Health, Deputy Head of Value Based Health Care @HywelDdaHB #AHP #VBHC
Trelai (Cardiff) 5kYo.. @trelai5kyourway
110 Followers 511 Following Encouraging those living with or beyond cancer, their families & friends to walk, run, cheer or volunteer @Trelaiparkrun monthly. #cardiff @MOVEcharity
Catherine White @cswhite100
1K Followers 540 Following Founder #ICURehabDay. Chair NICE Guideline 204. Blog Editor, EAPC. Co-chair NIHR Impact Advisory Board.
Shelley Elgin (she/he.. @shelwales
148 Followers 688 Following Thoughts and opinions are my own. Director @mscymru 🏴& raising awareness Addison's disease @Addisonsuk and Multiple Sclerosis @mssocietyuk.
MS Society Cymru @mscymru
3K Followers 5K Following We represent people living with and affected by multiple sclerosis in Wales. Our vision is a world free from the effects of MS; join us
Julia Russell @juliajcs40
514 Followers 2K Following Hospice UK and interested in all things QI and patient safety. All views are my own.
Dr Ben Bowers RN QN @Ben_Bowers__
3K Followers 2K Following Wellcome Post-Doctoral Fellow @Cambridge_Uni @PELi_Cam @JesusCollegeCam Nurse Consultant Pall Care @CPFT_NHS Research Consultant @TheQNI Hon. Associate Prof.
Meinir Jones @welshcake39
2K Followers 2K Following GP&MSK Doc.Mum & Mountain runner. National Clin Dir Planned Care NHS Wales, CCIO Hywel Dda University Health Board,Pg Dir MSc Exped&Wilderness Med. 💜Vit N & 🌊
Emily Wooster @emilyjwooster
611 Followers 907 Following Policy and Public Affairs @BHFCymru. Formerly @mentalhealth, @mind. Passionate about social change, public health, Cymru. Views mine.
Emma Saysell @EmmaSaysell
48 Followers 89 Following
Rebecca Mcdonald @Rebeccamc130681
82 Followers 179 Following Clinical Nurse Specialist Paediatric Palliative Care Hywel Dda UHB Msc Palliative Medicine
Dr Annie Hendry @akhendry
450 Followers 1K Following Researcher in North Wales Medical School, NWCPCR and NWORTH CTU, Bangor University. Qualitative research and process evaluation.
The Digital Legacy As.. @DigitalLegacyCo
2K Followers 3K Following International NFP Association dedicated in raising awareness, standards and developing best practice in digital assets planning and digital legacy safeguarding.
rebecca Torrance @rebeccaTorran10
12 Followers 69 Following
Clare_Cancer_AOS @SewalesA
260 Followers 310 Following opinions are my own- ABUHB Cancer Services Programme Manager, previously part of SE Wales Acute Oncology and NHSBT organ donation register and donation teams.
Sara Crowley (Type1Hu.. @Type1Hurdles
4K Followers 4K Following My greatest achievement is being Mami to my b/g twins. 33+ yrs living with T1D, learning to accept that. 🏳️🌈 Sara(h)
Francesca Wilson @francescawOT
163 Followers 196 Following Specialist Palliative Occupational Therapist in Wales • Acute oncology and acute stroke experience • All views are my own•
KAVS (West Glamorgan) @KAVSWestGlam
12 Followers 11 Following
sarah price @sarahphillo5
59 Followers 436 Following
Elinor Evans @eldosian
206 Followers 372 Following Specialist Palliative Care SLT in South Wales, all views are my own. Mam to Violet, wife to Ev 💜
Eleri Lloyd Ash @EleriAsh
80 Followers 310 Following Wife & Mam. Specialist Palliative Care CNS, Swansea Bay NHS. Loves to procrastinate Views are my own 😁
Mala Mann MCLIP @SysReviews
3K Followers 4K Following Information Specialist/Systematic Reviewer, #systematicreview #rapidreview #evidencesynthesis #teaching #researchmethodology. Views expressed are my own.
Donna @nursedonwalker
344 Followers 488 Following Bereavement Clinical Lead. A & E Staff Nurse 👩🏻⚕️ , USW graduate, CPR & Defib trainer & Dachshund mum ❤️ views are completely mine x
Dr Mike Brady (PhD) @DrMikeBrady1
973 Followers 2K Following Consultant Paramedic (PhD). Digital Health. Telehealth Triage. Remote Care & Assessment. Academic. 999 & 111. Views are my own. RTs are not endorsements.
Emily Holmes @EAFHolmes
463 Followers 482 Following Health Economist. Interests: preference elicitation, AMR, medication adherence, palliative care, medical devices, health psychology. Own views.
Tim Pickles @PicklesTim
1K Followers 2K Following Research Fellow in Statistics @CTRCardiffUni; @researchwales Next Steps Awardee; Rasch measurement theory, psychometrics, PROMs and Rheumatoid Arthritis
Covid-19 Bereaved Fam.. @cymru_inquiry
2K Followers 1K Following As families bereaved by decisions taken by the Welsh Government during the pandemic, we are calling for Wales to be fully scrutinised in a public inquiry.
Stephen Mason @Dr_Maceo
1K Followers 1K Following R&D Lead for the Palliative Care Unit @ the University of Liverpool. Also son, brother, husband, father, and paternal optimist...
Sarah Puntoni @SarahPuntoni
2K Followers 4K Following NHS Wales Value Based Healthcare Programme Manager. Passionate about person centred care, people empowerment and health literacy. 🇮🇹🏴
Pam Penman @PamelaPenman
313 Followers 785 Following Independent Sector and Community Adviser, RCN Wales. All views are my own.
Tog4ShortLivesPolicy @Tog4Policy
1K Followers 3K Following Tweeting about UK policy and politics affecting children and young people who are expected to have short lives and all those who support, love and care for them
Hilary Williams @HilaryWMedic
561 Followers 649 Following Vice President for RCP Wales. Cancer specialist . Worries about health inequality. Loves drawing & swimming & Welsh hills. My views are all my own.
ChildhoodBereavement @CBNtweets
7K Followers 2K Following The Childhood Bereavement Network (CBN): the UK hub for people working with bereaved children & their families. Hosted by @ncbtweets See http://t.co/h2nUSKAutK
Clare Churcher 💛 @ChurcherClare
839 Followers 655 Following Follow your dreams....I'm just an ordinary person who wants to make a difference. All views my own #lovebeinganurse #nurselectureratUSW #nursevaccinatoratCVUHB
Libby Sallnow @libby_sallnow
3K Followers 483 Following Associate Professor at Marie Curie Palliative Care Research Department, UCL. Lead author of The Lancet Commission on the Value of Death. All views my own.
Lynne Hoffin @LHoffin81
79 Followers 192 Following A wife and mum to 2 amazing boys. Clinical Manager. All opinions are my own
Bethan Williams @RTBeth18
170 Followers 330 Following Lead Head&Neck Therapeutic Radiographer based in South Wales🏴 Interested in patient care and service improvement. UWE alumni. Views are my own.☢️
Maria Horton @MariaHSense
817 Followers 764 Following National Group Director of Operational Services at Sense. For everyone living with complex disability. For everyone who is Deafblind @sensecharity views my own
Ceridwen Hughes @Ceridwen_Hughes
1K Followers 1K Following I love capturing the moment through photography. Photographer and founder of Same but Different cic @SBDRareProject
SamebutDifferent @SBDRareProject
2K Followers 3K Following Same but Different create thought-provoking exhibitions that stimulate conversation, change attitudes and empower individuals.
Sarah Glover @Sarah_GloverSCL
254 Followers 714 Following Passionate about bringing innovation to the field of community engagement. Director @SCLagency @podcast_CCS - tweeting personally
Dympna G @dympna19
131 Followers 487 Following Neuro Research nurse. ☘️ Tyrone girl 🇮🇪 living in Wales 🏴 @CAV_Epilepsy
Laura Mathias @LauraMa36269204
74 Followers 254 Following Sept 2021-YR3-Adult Nursing @UniSouthWales Mum of 2 🙎♂️🙍🏼♀️
Palliative & End of L.. @Pall_Awards
117 Followers 274 Following Celebrating excellence in palliative & end of life care, best practice, innovation & dedication in enabling people to live & die well #PalliativeCareAwards
Charlotte 🌻 @BlodynDwt
158 Followers 597 Following Community Staff Nurse @cwmtafmorgannwg ☺️🚙 #CommunityHealthStudies @unisouthwales 👩🎓📚 full time cat mam & part time house renovator 😻🏠 @nhshydr8 💛💧
Emma McLorie @EmmaMclorie
381 Followers 792 Following PhD Student at Bangor Uni. Research Assistant at Leeds Uni working on First 1,000 days project. All opinions are my own.
Louise West @LouiseWestSLT
78 Followers 216 Following SLT with @CV_UHB privileged to be providing SLT for inpatients with Mental Health Services for Older People
Jenny Hadley @JenMHadley
136 Followers 263 Following Clinical Nurse Specialist / Lecturer in Palliative & End of Life Care / Advanced Communication Skills Facilitator / Fitness Instructor / All views my own.
Laura Banci @LauraBanci3288
39 Followers 109 Following Mamma, moglie and proud AHP. Remember you're never fully dressed without a smile!
Natalie Elliott @DrNElliott
670 Followers 666 Following National Consultant AHP lead for dementia 🏴 #withAHPuCAN #AHPQIConnector
Barbara Gomes @B_Gomes_
2K Followers 710 Following Researcher in Palliative Care @UnivdeCoimbra Tweets are my own #hpm #palliative #pallonc
All Ireland Institute.. @AIIHPC
3K Followers 934 Following Working with partners across the Island of Ireland to promote excellence in palliative care https://t.co/fkzaQWofI0 https://t.co/e21Rj6hKS9
Louise Jones @JonesJ88014045
369 Followers 1K Following Honoured clinical Lead Nurse for Bereavement ABUHB, my opinions & views are my own family is https://t.co/LQFlznXXu2 Husband is my hero♥️
Lucie Jones @Lucielocket30
438 Followers 851 Following Head of Patient Safety & Concerns, all views are my own and not linked to my Trust in any way
@BakerIdris @PallCareCymru I think we need whole chains of them. M4 corridor, up the A470, the valleys and facing the sea, in so many nice places.
👏👏👏 Interesting and important reflections on language. What terms might we use to label those who are close or important to us, or to our patients, or to those around us? @PallCareCymru @BywNawr
Do you use the term "loved ones" as a general term? Ever wondered what it means or how it might be understood? @KateWoodyBath and I did: endoflifestudies.academicblogs.co.uk/is-everyone-a-… Tl:dr Emphasising "love" misses the diversity of reasons people care for each other @EndofLifeStudy
👀👀👀 - NEW Investigation into Welsh and English traditions relating to end of life care, bereavement & grief. Ymchwiliad i'r traddodiadau'r Cymry a phobl Saesneg sy’n ymwneud ȃ gofal diwedd oes, profedigaeth a galar. Bilingual information sheet: scanmail.trustwave.com/?c=261&d=85md5…
@JoeHawk75825077 @doctor_oxford @drkathrynmannix @brookmanknight @drol007 Thanks Joe. Such important questions and I won't offer any trite or easy answers, but I do think we can pull together as a system to find the way forward. @PallCareCymru
@JoeHawk75825077 @doctor_oxford @drkathrynmannix @brookmanknight @drol007 @PallCareCymru Well, there are probably strengths and weaknesses in each country's approach and bits we can learn from each other - we certainly don't have everything right yet.
The Welsh government has announced a £4m package for hospices bbc.in/3UhpTN9
Great news for hospices and funding well done to everyone for making this happen @PallCareCymru
media.service.gov.wales/news/vital-fun… As a PEoLC Programme we are really pleased to see this announcement, lots of hard work here, the funding is part of phase 3 of the Welsh Government’s end-of-life care review; £4m is provided to support hospices in 2023-24. Lots more to do😀
Very well done all great achievement
Very proud to be with the @CARiAD_research team at the @stdavidawards this evening. Good luck to all the candidates
Haven’t posted in a while, but I’ll be at @DiabetesUK Professional Conference next week if anyone wants to network re Transitional/Young Adult/Age Appropriate Care. Also grateful for the opportunity to share this session on the Thursday. #DPC #DUKPC24
📢 Welsh Government has announced £4m to support hospice services, providing much-needed support to help hospices tackle rising costs. With demand escalating, it's a crucial step towards ensuring hospices can continue their invaluable work. hospiceuk.org/latest-from-ho…
Very proud to be with the @CARiAD_research team at the @stdavidawards this evening. Good luck to all the candidates
*Very* welcome news. All credit to those who have helped make the case for this funding, and to those who have listened & responded. Much more work to do to make sustainable person centred value based palliative and end of life care available to everyone in Wales who needs it.
media.service.gov.wales/news/vital-fun… As a PEoLC Programme we are really pleased to see this announcement, lots of hard work here, the funding is part of phase 3 of the Welsh Government’s end-of-life care review; £4m is provided to support hospices in 2023-24. Lots more to do😀
Please could you share this opportunity to take part in research that aims to make UK bereavement support more equitable? Thank you 🙏 @JeffreyAmber @BlackInMH @NDodzro @ubeleinitiative @CovidMemorialUK @BAMEMentalHS @cahn_uk @GoodGriefFest
1/ People from the Black Caribbean community are under-represented in our recruitment. It's important that their experiences are included in our research so that bereavement services are developed to meet their needs too.
Do you provide #palliativecare in the UK? Are you involved in initiatives working alongside people from minoritised ethnic communities? We would love to hear from you for a study we are planning. #hpm #hapc #Minorities #ethnicity
Join us on 27th March for our CSI Open Seminar delivered by Dr Barbara Gomes @B_Gomes_ - sign up for FREE here: buytickets.at/facultyofnursi…
A truly wonderful event where everyone’s voices were heard , emotive on times but will help shape the new model of bereavement #bigconversation
We began with opening addresses from our Executive Director of Nursing, Jenny Winslade, and @CEOabuhb Nicola Prygodzicz, who discussed the value of talking about bereavement and feeling listened to so that we can improve the quality of our end-of-life care #BigConversation
There is no doubt that religious practices and beliefs play a big part in death, dying and #eolc #bereavement It's been a great experience and an education working with @AneurinBevanUHB Chaplains and @muslimdoccymru on improving certification of death where speed is of essence
Looking forward to an informative day at @AneurinBevanUHB #bigconversation
@chrisdunn_22 highlights that Cultural Competency is a journey not a tick box. “Hard to reach is a myth”@DiverseCymru @PallCareCymru @AneurinBevanUHB
Today we’re holding #TheBigConversation event around Bereavement, where we’re joined by patients, carers, staff, partners and our wider communities to discuss how we can improve bereavement services in Gwent.
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