The PSP Association @PSPAssociation
Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA 🧠 pspassociation.org.uk/news/wear-eds-… United Kingdom Joined January 2011-
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On 27 March, PSPA held a 30th Anniversary party to launch the new 30 for 30 challenge. A party isn’t a party without a cake, OR TWO! Find out more about our 30 for 30 challenge: pspassociation.org.uk/30-for-30/ #PSPA30 #AnniversaryCake #PSPA30Anniversary #30for30
🔬An update on the Orion clinical trial 🔬 @AmylyxPharma has confirmed the Medicines and Healthcare products Regulatory Agency (MHRA) has not accepted their application. As such, the UK study of AMX0035 is unable to proceed at this time. Read more at: pspassociation.org.uk/news/an-update…
A big thank you goes out to @RaynorWinn and Moth. The couple walked 120miles along the Thames Path to raise awareness of PSP & CBD. Raynor then completed the London Marathon with her son. Together they have raised an amazing £12,000 for PSPA. justgiving.com/page/moth-and-…
Are you a patient, empathetic listener? Do you have experience of working in health, social care or the helpline sector? If you ✅✅✅ these boxes, we'd love to hear from you! ☎️Learn more about our Helpline Care Navigator role and how to apply ☎️: pspassociation.org.uk/about-us/work-…
PSPA is partnering with Rareminds to offer a free Confidential Counselling Service for family members affected by PSP & CBD. Learn More: pspassociation.org.uk/pspa-counselli… Contact our Helpline on 0300 0110 122 or email: [email protected] #PSPASupport #Rareminds
🤩 PSPA Family and Friends Day 15 June in Leeds 🤩 Thoughtfully designed for people with PSP & CBD, family members of all ages, carers, and friends. Register for the event at Village Hotel Leeds South here eventbrite.co.uk/e/pspa-family-… #FriendsAndFamilyDay #PSPASupport #PSP #CBD
A big congratulations to Ed my parliamentary staffer who ran the @LondonMarathon in 3:44:00 hrs. 🥇 He has raised money for @PSPAssociation. And it is not too late to donate! here ➡️ 2024tcslondonmarathon.enthuse.com/pf/edward-toml…
Today’s #MondayMotivation is PSPA Trustee, Maria who ran the London Marathon yesterday for PSPA and has raised over £2800. She ran for her Mum, Linda who has advanced CBD. Click here to sponsor Maria:justgiving.com/page/maria-ten…. #LondonMarathon #TeamPSPA #CorticobasalDegeneration
We had an amazing day at the London Marathon yesterday! We want to send a MASSIVE thank you to all of our #TeamPSPA runners who did themselves and PSPA proud. Together they have raised almost £170,000 for PSPA! Thank you! Support our team, here: justgiving.com/campaign/teamp…
Managed 3hrs 31mins yesterday for my first ever Marathon. I am very happy to have represented @PSPAssociation. Thank you to everyone who has supported me and my sister. #londonmarathon2024
26.2 ❤️ A year ago I signed up to run the @LondonMarathon after seeing the Saturday set up. I got a place to run for the @PSPAssociation and have raised nearly £2400 💜 my legs are in agony, but it was so worth it!
PSPA wish all our @londonmarathon runners the best of luck tomorrow. We will be cheering you on all the way! See you at the finish line 🏁 #LondonMarathon #CharityFundraising #TeamPSPA #SupportPSPA #MarathonRun
A big HIGH FIVE 🙌 and good luck to one of our younger fundraisers - Izzy! Izzy is running the mini marathon for PSPA on Saturday for her Nana who is living with PSP. So far, Izzy is raised more than £4,000 for PSPA which is amazing! Thank you! justgiving.com/page/clare-jac…
The ‘All About Me’ leaflet is a useful document designed for people receiving professional care at home, in a hospital, in respite care, in a nursing home, or in a care home. Download your copy: pspassociation.org.uk/wp-content/upl… #AllAboutMe #HelpfulDownload #CaringNeeds #PSPCare #CBDCare
A huge London Marathon shout-out to siblings, Michelle and Steven, who are running in memory of their father, Chris, who died from PSP. They have raised £1,700 for PSPA. Thank you! Sponsor them: 2024tcslondonmarathon.enthuse.com/pf/michelle-ma… or 2024tcslondonmarathon.enthuse.com/pf/steve-maull #LondonMarathon #TeamPSPA
Looking forward to 2 days of science and seeing people at the @DementiasUK #Translation2024 - come to @robdurcan's and my posters to have a chat about noradrenaline and inflammation!
The Wessex APS Network training session for PD nurses & PD practitioners this morning. This 2 year project ,funded by the PSPA to support education and training for professionals working with those who have PSP and CBD. @CentreWessex @UHSFT @UHSimprove @pspa
Join Moth and Raynor Winn today on the last leg of their #ThamesPath walk, leaving Putney Bridge 10.30am and walking to Westminster Bridge fund-raising for @PSPAssociation They're so close to reaching their target! 👉 justgiving.com/page/moth-and-… @Ramblers_London @gojauntly
Raynor and Moth talking about their Thames Path awareness walk for PSPA and CBD on @thismorning today. The walk started in Oxford on Monday and will end on Thursday with a cuppa and a flightless seabird. @MichaelJBooks @raynor_winn @PSPAssociation
Andrew Lees @ajlees
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Richard Cave 🇺🇦 @speedoftrust27
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Stephanie Callaghan M.. @TeamStephyMSP
378 Followers 454 Following Twitter managed by Office | Tweets from Stephanie @StephySNP | constituents email - [email protected]
@JanetDaby @LondonMarathon @PSPAssociation Well done Ed 👏👏👏
@JanetDaby @LondonMarathon @PSPAssociation Congratulations Ed!
@PSPAssociation Amazing! Well done all 👏👏👏
@PSPAssociation Amazing!! Well done @raynor_winn and Moth!! You are truly inspirational!!
A big thank you goes out to @RaynorWinn and Moth. The couple walked 120miles along the Thames Path to raise awareness of PSP & CBD. Raynor then completed the London Marathon with her son. Together they have raised an amazing £12,000 for PSPA. justgiving.com/page/moth-and-…
You are all amazing and it was a real pleasure supporting you on Tower Bridge, it was electric and wonderful to see so many PSPA runners. Each and everyone of you made it very special, well done. 💜
We had an amazing day at the London Marathon yesterday! We want to send a MASSIVE thank you to all of our #TeamPSPA runners who did themselves and PSPA proud. Together they have raised almost £170,000 for PSPA! Thank you! Support our team, here: justgiving.com/campaign/teamp…
A big congratulations to Ed my parliamentary staffer who ran the @LondonMarathon in 3:44:00 hrs. 🥇 He has raised money for @PSPAssociation. And it is not too late to donate! here ➡️ 2024tcslondonmarathon.enthuse.com/pf/edward-toml…
@megs_palmer @LondonMarathon @PSPAssociation Congratulations Megan 🎉🎉🎉
@PSPAssociation Fantastic achievement to everyone involved.
I was one of the one million spectators cheering on the thousands of incredible people running the #londonmarathon2024 today. A special well done to my two cousins who raised over £4k for @PSPAssociation in memory of my auntie. 🙏🏼
Managed 3hrs 31mins yesterday for my first ever Marathon. I am very happy to have represented @PSPAssociation. Thank you to everyone who has supported me and my sister. #londonmarathon2024
26.2 ❤️ A year ago I signed up to run the @LondonMarathon after seeing the Saturday set up. I got a place to run for the @PSPAssociation and have raised nearly £2400 💜 my legs are in agony, but it was so worth it!
Looking forward to 2 days of science and seeing people at the @DementiasUK #Translation2024 - come to @robdurcan's and my posters to have a chat about noradrenaline and inflammation!
The Wessex APS Network training session for PD nurses & PD practitioners this morning. This 2 year project ,funded by the PSPA to support education and training for professionals working with those who have PSP and CBD. @CentreWessex @UHSFT @UHSimprove @pspa
Join Moth and Raynor Winn today on the last leg of their #ThamesPath walk, leaving Putney Bridge 10.30am and walking to Westminster Bridge fund-raising for @PSPAssociation They're so close to reaching their target! 👉 justgiving.com/page/moth-and-… @Ramblers_London @gojauntly
@ThamesPathNT @PSPAssociation @Ramblers_London @gojauntly We are in Putney just having coffee. See you in a while!
Raynor and Moth talking about their Thames Path awareness walk for PSPA and CBD on @thismorning today. The walk started in Oxford on Monday and will end on Thursday with a cuppa and a flightless seabird. @MichaelJBooks @raynor_winn @PSPAssociation
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