Nicola Griffiths @NicolaGriff15
Support Networks Manager at Action for Pulmonary Fibrosis actionpf.org Peterborough Joined August 2019-
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🎉Come join our team! We're #recruiting for a Finance and Payroll Officer. The role will be office based in #Peterborough. Find out more on our website: actionpf.org/about/jobs #charityjob #pulmonaryfibrosis
The 3rd European #PulmonaryFibrosis Patient Summit is getting closer! If you still have any questions, visit eu-pff.org/pfsummit24/ or contact our team at [email protected]! We look forward to seeing you - whether on site in Castelldefels or virtually via Swapcard!
If you would like to run for APF in the London Marathon 2025, register your details today – the General Ballot is now open for a limited time! The ballot closes on Friday 26 April, so apply early to secure your place 🏃♂️Apply here: bit.ly/3QcOm4S
Interested in improving services for people with pulmonary fibrosis? Please take a look at @ActionPFcharity new Integrated Care Pathway launched today #OneVoiceILD
Interested in improving services for people with pulmonary fibrosis? Please take a look at @ActionPFcharity new Integrated Care Pathway launched today #OneVoiceILD
🌼 Friendly Reminder! 🌼 Join us at the Seniors Spring Fair on April 17th, Cledara Abbey Stadium, Cambridge. Explore info, advice, and FREE refreshments while connecting with us and other providers. Discover how we can support you! See you there! #SeniorsSpringFair
Looking forward to seeing how we can improve services for people with pulmonary fibrosis or lung scarring together #pulmonaryfibrosis #OneVoiceILD
Looking forward to seeing how we can improve services for people with pulmonary fibrosis or lung scarring together #pulmonaryfibrosis #OneVoiceILD
Are you an undergraduate basic science or medical student with an interest in #respiratory research? Together with @BALRcommunity, @PFNI_NIRELAND & @Breathingmatter we're supporting summer studentships!🎉 📅Deadline: 10 May ⏰Ending soon-don't miss out! actionpf.org/news/apply-for…
The NHS is undergoing transformational change with the introduction of the 42 Integrated Care Boards in England. UK #ILD services are part of these changes. Want to know how you can influence changes for your service? Join our webinar to find out: us06web.zoom.us/webinar/regist…
🔬Could you share your lived experience with scientists to help shape future #PF research? Or work with us to decide what research we fund? We're looking for people to become volunteer members of our: - Research Review Panel - Research Advisory Panel actionpf.org/get-involved/v…
📢If you’re a health or social care professional, refer your patient to APF. We’ll send them our free information pack which will help them: - Learn about #pulmonaryfibrosis - Get the most from appointments - Feel like part of a community actionpf.org/resources/rece…
APF is happy to announce the investment in 2 research fellows! Dr @KevinBinLiu1 from @imperialcollege & Dr @Jennydickens41 from @Cambridge_Uni have been awarded £600k to further unravel the genetics of PF, which'll help to identify new & better treatments: bit.ly/3PKLKuP
📣Are you a Specialist ILD Nurse looking for a change? Join our team! We're recruiting for a Specialist ILD Nurse who will provide practical support and guidance to our support line, information, education and influencing work. Find out more and apply: actionpf.org/about/jobs
Three exciting new roles have just been advertised at @ActionPFcharity , do take a look if you are looking for a Trustee role (x2) and a Specialist Nurse position. More information here actionpf.org/about/jobs #pulmonaryfibrosis #charityjobs #trustee #specialistnurse
Do you belong to a charity or community group? It would be amazing if you could fill in the #SupportCambs Annual Survey. We need your help so we can best represent the charity sector - thanks so much!🙂 Please find the survey here: surveymonkey.com/r/GKFR8TS @CambridgeCVS @CambsCC
Are you a student or early career #researcher presenting your work at #ATS2024 or other conference? Applications for the APF Conference Awards close soon - apply now for a grant! ⏰ 12pm 📅4th March Don’t miss out!👇 actionpf.org/research-info/… #respiratory #pulmonaryfibrosis
1 week to go until #RareDiseaseDay 2024, which raises awareness for the 300 million + people living with a rare condition. This is an opportunity to shine a light on the stories behind the statistics, and make a real difference to the future of rare diseases. #ShareYourColours
If you want to have a say in what could be in a National Carers Strategy, participate in the APPG for Carers survey. Click on the following link: surveymonkey.com/r/5SX9K7K #Carers #NationalCarersStrategy
Are you affected by PF? We're running an online discussion group to hear your views on research. Research has to meet the needs of those affected by PF and building a network is a vital part of that. To take part, email: [email protected] 📅11/03/24 ⏰10.30am-12:30pm
Paul Walbyoff 🏴�.. @P_JWally
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Bradley Price @BradleyJPrice
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Special Needs Jungle @SpcialNdsJungle
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Katie Clarke @KatieTraining
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IFSBH @ifsbh
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Ruth Madeley @ruth_madeley
25K Followers 713 Following Curtis Brown (Rep), Tapestry London (PR). @BAFTA Breakthrough. Cappuccino lover, Converse wearer, bourbon drinker.
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Healthwatch in Cambs .. @HW_CambsPboro
4K Followers 4K Following We are your local health and social care champion. We make sure NHS leaders and other decision makers hear your voice and use your feedback to improve care.
Hydrocephalus Assoc. @HydroAssoc
6K Followers 2K Following Our mission is to find a cure for #hydrocephalus & improve the lives of those impacted by the condition.
Richard Kramer 🇺�.. @RichardKSense
15K Followers 8K Following Proud Chief Executive of brilliant @sensecharity @senseinternatl and Trustee of @CareTechFdn & @en4ei Based in Birmingham and London. Views my own.
Caroline Brogan @CBrogan_MedLaw
2K Followers 2K Following Solicitor @irwinmitchell | West Mids Irish Business Ctte | Winner #EDI Award #GlobalIrishAwards 2023 | Rep’d @My_Mums_Voice | Former Trustee @brumirish #Gaeilge
Helen Allen @HelenAllen17
246 Followers 395 Following National Programmes Manager @Shineukcharity #spinabifida #hydrocephalus. Cancer Survivor. @bloodcancerUK Ambassador. @tenovus Sing with Us Choir Leader 🎵 😃
Dan White : Disabilit.. @Danwhite1972
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Provide @Provide_CIC
2K Followers 573 Following Social Enterprise delivering a broad range of health and social care services in the community across Essex, Cambridgeshire Suffolk, Norfolk and Waltham Forrest
Pilar Rivera-Ortega @PilarRiveraOrt1
3K Followers 5K Following Respiratory Consultant, subspecialty in Interstitial Lung Diseases #ILD🫁🧬Manchester University NHS Foundation Trust. Tweets=my own🇵🇪🇪🇸🇬🇧 #DEI #RWE #RCTs
Kim Hetherington @1kmhmarketing
290 Followers 491 Following Mum. Wife. Marketer. Support @LibDems. History researcher. Studied history @OpenUniversity & @Cambridge_Uni. LIVING with Idiopathic Pulmonary Fibrosis #IPF
Matter of Focus @matter_of_focus
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Cruse Bereavement Sup.. @CruseSupport
20K Followers 3K Following We're the UK's leading bereavement charity. 💜 Bereavement support, information and campaigning. 📞 Helpline: 0808 8081677 🕑 Twitter monitored Mon-Fri 9am-5pm
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Anne Robson Trust @AnneRobsonTrust
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2K Followers 588 Following Our Hospice provides end of life care to those living with a life-shortening illness. We also support their carers and provide bereavement support.
The UCL Institute of .. @UCL_IHI
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Pulmonary Fibrosis Fo.. @PFFORG
7K Followers 1K Following We imagine a world without pulmonary fibrosis. https://t.co/e5cmq67fNV
The 3rd European Pulmonary Fibrosis Patient Summit is over! Great event bringing together patients, carers, clinicians, researchers and pharma companies. Watch recordings of the main sessions on-line soon. Watch this space. #PFSUMMIT24 #StopPF
Our 6th Anniversary yesterday of starting TPFSG. Members came to the get-together to celebrate how far we've come, and to remember the 50 people we have lost over the 6 years.💔 Thanks to everyone who came, especially those who travelled some distance.
👋Meet Anitha. Anitha is a medical student at @imperialcollege and as part of her degree she's investigating the impact of air-flight experiences for people with #pulmonaryfibrosis.✈️ She's also interviewing doctors who specialise in #PF. actionpf.org/news/meet-the-… #research
We would like to say a big thank you to all those running in the London Marathon for APF and raising vital funds for our research and support services. Thank you all so much for your support 💜
Excellent initiative @OneVoiceILD 👏👏 🚨Take a look at this document released today: #Interstitial #Lung #Disease #Care #Pathway🚨 It has been a pleasure to work alongside a great team at the Pathway mapping steering group since November 2022. Many thanks @ActionPFcharity 🇬🇧
#Pulmonaryfibrosis treatments and care have seen huge improvements in recent years, but the healthcare system hasn't kept pace. 📢We've launched a new vision reimagining the future of #PF healthcare, and we can’t do it without you. Find out more here: actionpf.org/get-involved/i…
#Pulmonaryfibrosis treatments and care have seen huge improvements in recent years, but the healthcare system hasn't kept pace. 📢We've launched a new vision reimagining the future of #PF healthcare, and we can’t do it without you. Find out more here: actionpf.org/get-involved/i…
🌼 Friendly Reminder! 🌼 Join us at the Seniors Spring Fair on April 17th, Cledara Abbey Stadium, Cambridge. Explore info, advice, and FREE refreshments while connecting with us and other providers. Discover how we can support you! See you there! #SeniorsSpringFair
⏰1 week to go, make sure you book your space! us06web.zoom.us/webinar/regist… @BradleyJPrice
The NHS is undergoing transformational change with the introduction of the 42 Integrated Care Boards in England. UK #ILD services are part of these changes. Want to know how you can influence changes for your service? Join our webinar to find out: us06web.zoom.us/webinar/regist…
Are you an undergraduate basic science or medical student with an interest in #respiratory research? Together with @BALRcommunity, @PFNI_NIRELAND & @Breathingmatter we're supporting summer studentships!🎉 📅Deadline: 10 May ⏰Ending soon-don't miss out! actionpf.org/news/apply-for…
The NHS is undergoing transformational change with the introduction of the 42 Integrated Care Boards in England. UK #ILD services are part of these changes. Want to know how you can influence changes for your service? Join our webinar to find out: us06web.zoom.us/webinar/regist…
🔬Could you share your lived experience with scientists to help shape future #PF research? Or work with us to decide what research we fund? We're looking for people to become volunteer members of our: - Research Review Panel - Research Advisory Panel actionpf.org/get-involved/v…
We cannot thank the lovely John Henshaw enough, for getting these photos of the wonderful @PhilMealey and Susan Cookson with our poster, to raise awareness of Pulmonary Fibrosis, a little known incurable lung disease. Are we chuffed? You bet! 😊 Thank you to you both! 💜
📢If you’re a health or social care professional, refer your patient to APF. We’ll send them our free information pack which will help them: - Learn about #pulmonaryfibrosis - Get the most from appointments - Feel like part of a community actionpf.org/resources/rece…
APF is happy to announce the investment in 2 research fellows! Dr @KevinBinLiu1 from @imperialcollege & Dr @Jennydickens41 from @Cambridge_Uni have been awarded £600k to further unravel the genetics of PF, which'll help to identify new & better treatments: bit.ly/3PKLKuP
To make your #PFSUMMIT24 experience as pleasant, smooth and enjoyable as possible, we have put together a brief guide with all the information you need! It's available in EN, ESP, FR and IT here: eu-pff.org/pfsummit24/
You've heard of Charlie's Angels, well these are Greenies Groupies 💜 These wonderful people are our volunteers at TPFSG. They came today to cheer up Clive as he's been feeling quite unwell, especially after having a bad fall last week. A special Friendship 😊💜
🫁 @ActionPFcharity Charity of the Year 2024. Andy Bright joined Brian Welsh recently on @BlocktalkUK Podcast to share his story. Donate to our Office-to-Office challenge: ow.ly/Pbma50QG7x5 #APF | #COTY2024
Action for Pulmonary Fibrosis (APF) are running a small discussion group to hear your views so that they can build a network which ensures that research meets the needs of everyone affected by pulmonary fibrosis. If you're interested, please contact [email protected].
1 week to go until #RareDiseaseDay 2024, which raises awareness for the 300 million + people living with a rare condition. This is an opportunity to shine a light on the stories behind the statistics, and make a real difference to the future of rare diseases. #ShareYourColours
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