NICU Helping Hands @NICUHelpingHand
Texas nonprofit developing hospital & community-based projects that provide education & support to families of premature infants #angelgowns #nicuhelpinghands nicuhelpinghands.org Fort Worth, TX Joined October 2011-
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We all deserve to give ourselves the gift of receiving support. We all deserve to have this life after loss be not simply endurable, but also full of kindness, love, connection, and beauty. loom.ly/QQQUw0g
The grief was overwhelming at times. How did we end up on such a distinct path, away from the regular path of new parents? There were no answers to my questions — my husband and I were shadows of ourselves, lost in pure exhaustion. loom.ly/QiaQyLc
Grief is a natural and normal response to love. It is an expression of love. It is wild and haunting and beautiful and, yes, also uncomfortable and unnerving and scary at times to be with.
In a pandemic, the ability to access that care can be compromised. As COVID-19 cases fill hospitals to capacity and push nurses and doctors to their breaking points, parents fear that the system won't have space for their kids. loom.ly/etpAbCI
We need to allow ourselves the freedom to grieve our children in our own manner, without the weight of guilt or comparison or pressure. We have endured enough as loss parents. Let’s free ourselves from self-doubt. loom.ly/2RZPvA4
Parenting does not come with a playbook. Add multiple children. Add a disability. Add the second guessing: am I doing this right? How can I do this better? Are my children okay? loom.ly/CV23QFM
Here are some unique and safe ways that families are planning to spend time with grandparents, friends and other loved ones during the holidays. loom.ly/fCjkEYk
"I don’t know if my early birth has made a difference to me today but my mam says that I am resilient and stubborn so I guess that those qualities may have helped me." loom.ly/OdsiXy8
loom.ly/NlznsYE As Prematurity Awareness Month draws to a close today, we wanted to share a special story from NICU Helping Hands' Program Facilitator, Emily Bogarin. It is a story of hope and encouragement - it certainly makes us smile every time we hear it.
On Nov. 4, @TCH_adultCHD will open a first-of-its-kind dedicated facility designed by & for adults with CHD. In anticipation of this week’s opening, we’re sharing a Q&A with Drs. Peter Ermis and Ed Hickey, medical & surgical directors of the ACH Program: ow.ly/D5LQ50C9EsF
Driving home from the hospital with no baby. How can this be real.
Rebecca Chilvers 💙 @Neonatalpsych
3K Followers 3K Following Consultant Clinical Psychologist working in neonatal intensive care, occasional writer, photographer and musician. Mother of three boys. Views my own.Prolacta Bioscience @prolacta
2K Followers 3K Following @Prolacta is committed to providing life-saving, 100% human milk diet for the most-fragile #preemie babies in the #NICU #humanmilk4preemiesJennifer Canvasser @jenncanvasser
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847 Followers 1K Following Founder of Saul’s Light: supports, empowers, & advocates for Louisiana’s NICU & bereaved families since 2015.Sue Ludwig @sueludwig
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23 Followers 179 Following ✨Parents as Primary Care Providers✨ Former NICU parent supporting Family-Integration in NICU care across the U.S. & Globally! All views are own.Ewatomilola Feyishayo @Ewatomilol22001
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67 Followers 102 Following Dr. Denette Boyd-King is a clinical psychologist who specializes in early childhood and trauma-informed care.amanda sykes @GMFB974
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156 Followers 635 Following Lecturer, Department of Occupational Therapy,AIIPMR, MumbaiShonda figg @Figglove
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48 Followers 200 Following Safer survival tools for little warriors. Created by nurses for nurses.CareSmartz360 @CareSmartz360
3K Followers 5K Following CareSmartz360 is an advanced cloud-based home care software solution to empower home care businesses.Prolacta Bioscience @prolacta
2K Followers 3K Following @Prolacta is committed to providing life-saving, 100% human milk diet for the most-fragile #preemie babies in the #NICU #humanmilk4preemiesEFCNI @EFCNIwecare
4K Followers 2K Following European Foundation for the Care of Newborn Infants; founder of @GLANCE_network Imprint: https://t.co/zXmFYwkPQn Netiquette: https://t.co/vb6VW7oKfKNEC Society @NECsociety
4K Followers 760 Following We bring together patient-families, clinicians, & researchers to build a world without necrotizing enterocolitis. @PCORI awardee x3 CZI #RareAsOne NetworkSue Ludwig @sueludwig
2K Followers 1K Following President & Founder - National Association of Neonatal Therapists (NANT) @NANTtweets | Author of TINY HUMANS, BIG LESSONS | Sports FanEvidence-Based Neo @EBNEO
14K Followers 2K Following The international society disseminating neonatal clinical research evidence: #ebneoalerts curate, #ebneoreviews appraise, #ebneopolls survey.Lelis @LelisVernon
489 Followers 506 Following Founder of @hispa_NICU Mom of 3 (2 NICU grads), Author, International Speaker. Quality Improvement, Research, Advocacy. Argentina 🇦🇷 S.Q.I.L.Onsite Neonatal Partn.. @OnsiteNeonatal
454 Followers 196 Following Neonatology group with mission to optimize the physical, emotional, and spiritual health of the patients and families we serve. ❤️OurPrematureChildren @PrematureBG
338 Followers 358 Following Фондация "Нашите недоносени деца" се бори за правата на недоносените бебета и техните семейства. Вече можете да ни намерите и в семеен център "Малки чудеса".EFHutton (parody) @EFHutton123
242 Followers 471 FollowingOnce Upon A Preemie @onceapreemie
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630 Followers 86 Following An educational collaborative between National Perinatal Association and NICU Parent Network. We offer online continuing education programs.Neonatal Nurses Assoc.. @NNAUK1
3K Followers 909 Following The national organisation representing, supporting & celebrating neonatal nurses & promoting neonatal nursing for the benefit of newborns & families.Spoons Charity @SpoonsCharity
3K Followers 3K Following Charity supporting families of sick and preterm babies in Greater Manchester. This account is monitored periodically to get in touch email [email protected]Leo’s @LeosNeonatal
2K Followers 1K Following Caring for the mental health of neonatal families in the North East of England. Founders @NICUMHAW. In memory of Leo 🦁 Charity number 1179901BAPM @BAPM_Official
9K Followers 722 Following Join a growing community dedicated to shaping the delivery and improving the standard of perinatal care in the UK. https://t.co/XJfBq7bxy5Ravi Mangal Patel @ravimpatelmd
4K Followers 887 Following Neonatologist, researcher: NEC, transfusion, caffeine, #preemie survival. Passionate about #neoEBM #QI #preventNEC. Advisor @NECSociety, Chair @EBNEO Tweets=ownCheryl Battersby @DrCBattersby
5K Followers 3K Following NIHR Clinician Scientist Imperial College| Neonatologist| Whole Population Data linkage preterm & surgical babies | @neowonder20 | @BAPM_Official Hon SecretaryMe Two Books @me2books
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1K Followers 284 Following Miracle Babies provides perinatal families in need transportation, mental health assistance and supportive services 💕The NICU Foundation @NicuFoundation
2K Followers 347 Following We work in partnership with @swneonatal to support all babies requiring neonatal care and their families across the South West. https://t.co/aRMqU4xPYyThe NICU Dad @DadNicu
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193 Followers 534 Following MyRoo Tube - a seamless tube-top that makes Kangaroo Care easy for mothers! A simple affordable option for preemies & full-term babies.HelpingHands MB @hhmilkbank
651 Followers 1K Following HHMB has 2 compelling goals: collect excess #breastmilk from moms for preemies & support charities based on the amt of milk received. Operated by Prolacta.@sharpbyname8 If I ever become a parent to an LGBT child, I aim to be so unphased by their sexuality that they’re actually a little annoyed it’s not bothering me more
Here's your @NECsociety team! Today we explored how to practice patient-family centered care, #preventNEC & drive innovative #NEC education & research during #COVID19. Join us as we build a 🌎 without this devastating disease NECsociety.org @SamirGadepalli @jenncanvasser
May 3 is International Bereaved Mother's Day. Today and always, we're recognizing and thinking about all of the mothers who hold children in their heart instead of their arms. #preventNEC #RareAsOne @institutopgg @NeoResearch_Net @NeonatalNurses @hmbana4babies @MarchofDimes
Today, Children’s Hospital celebrates the opening of our new, 57,000 sq. ft. Surgery Center, serving patients from across the region in a state-of-the-art environment that combines advanced technology with an unmatched experience for patients. #HereWeGrow youtu.be/QsihVCGp4ns
Heroes honoring heroes. Thank you to the dozens of first responders who lit up @CUAnschutz last week to honor #HealthHeroes and patients. #COVID19Colorado #CUAnschutzTogether
The full-page thank you from @nyphospital in the @ArkansasOnline was awesome and meant so much to our #HealthcareHeroes from @archildrens and @uamshealth. Thank you for your support now, #MoreThanEver.
On #NationalSuperheroDay, we celebrate the heroes who walk the halls of Cook Children's: doctors, nurses, surgeons, specialists, therapists, all healthcare workers & the patients who inspire us. 📸 illustration by the talented Dr. Kara Starnes. bit.ly/3aOKAae
After the Covid-19 has passed and industry and society re-emerge from its cocoon, what do you see emerging and flourishing?
@TheDDNC @IFFGD @jenncanvasser @cziscience @PCORI @ChanZuckerberg @CrohnsColitisFn @GlobalLiver @NIDDKgov @NICU_Advocate, thank you for being our voice!
The @NECsociety cares deeply about families, NICU babies, and research. ❤️ Just a friendly reminder to wash your hands & vote. #preventNEC #RareAsOne
@NECsociety project coordinator, @NICU_Advocate, is in DC for @TheDDNC’s Public Policy Forum. She’s meeting with key stakeholders to ensure NEC research is prioritized so we can #preventNEC & build a 🌎 without this devastating disease #RareAsOne @IFFGD @JohnCornyn @SenatorSinema
Absolutely!
Breastfeeding Tips for the NICU: DYK that a practicing kangaroo care can help increase your milk supply when your baby is in the #NICU? #breastfeedingtips #NICUbaby #BAM2019 #breastfeedingawarenessmonth #WBW2019
@BeanTownCop I’m one of those home care nurses that checks on patients like this here in my community and I know what it took for that patient to call. Thank you for allowing him to maintain his dignity and pride. That right that will have more impact than most of the “sexy” police work.
It’s not always going to be something sexy. Its not always pursuits and fights. Sometimes, something as small as kindness to another makes all the difference in the world. Be better than me.
Monday Roll Call for June 10, 2019: What music inspires you? What music takes you back in time? forum.keepemcookin.com/index.php?topi… #pregnancy #bedrest #cerclage #PPROM #preeclampsia
"Somewhere along the way your new normal sets in." Our NICU Dad Discussions series continues with micro preemie dad Jonathan Hayhurst sharing how he coped in the #NICU and what he wants new NICU dads to know. bit.ly/2K7pYBl #prematurity #micropreemie #fatherhood
Why I Started Therapy: Real Stories from Real NICU and Bereaved Parents bit.ly/2JwFIgS
Thank you @NeoToday for publishing my article on the #SpeakingOfNEC Unplugged conference by @morgansfundorg. #NEC education saves #neonatal lives. Thank you @prolacta and @NICUHandtoHold for sponsoring. Read it on pages 9-11. #Preemie #NICU #Perinatal #NECrotizingEnterocolitis
Listening to Cristal Grogan from @NICUHelpingHand talk about her #NICU experience and life after #NEC. #speakingofnec
Don't miss the #pregnancy #bedrest Live Chat today at 2 pm Eastern/1 pm Central/Noon Mountain/11 am Pacific. Be sure to set an alarm on your phone. Not this phone! See you soon... keepemcookin.com/live-chat/