My Alzheimer's Story @MyAlzStory
Passionate dementia care advocate, blogger, trainer, care partner to late mom who lived w Alzheimer myalzheimersstory.com Canada Joined February 2014-
Tweets33K
-
Followers4K
-
Following1K
-
Likes4K
I wrote this in 2017 @alzheimerssoc We need to help people suffer less by shifting what is a devastating mindset, not re-enforcing it myalzheimersstory.com/2017/04/05/don… @phillyhare @KateSwaffer @WorldDementia @SteveMilton1 @neilmcrowther @Hazel__Haworth @diana4hereford
Someone asked me once ‘How is your burden?’ It was like a punch in the gut & it took me a second or two to realise they were talking about my Mum. There were many loses along the way but her life had meaning until the day she died. And she only died once. Language matters.
Thread 11/11 What will it take for you to admit you have made a mistake and pull this ad?
Thread 10/11 Why are you still promoting your own support services when you have said that everyone with a diagnosis of dementia is effectively already dead?
Thread 9/11 Did you ever consider how offensive this ad might be to people? How many people are you happy to upset in pursuance of this goal?
Thread 8/11 Who briefed the production company? Who signed off the ad?
Thread 7/11 How much did the ad and its media slots cost you? Where did this money come from?
Thread 6/11 Is there any requirement on your staff or your media partners to adhere to your own guidelines on acceptable language and portrayal of people with dementia in the media?
Thread 5/11 Have you ever read Tom Kitwood? Have you ever heard of social death? Malignant social psychology? Personhood?
Thread 3/11 What would you count as success from this ad – (i.e. what were you trying to achieve?)
Thread 2/11 Who was your target audience?
Thread: 1/11 10 Questions for @alzheimerssoc @KateLeeCEO and all AS Trustees in relation to its recent terrible ad:
@alzheimerssoc @KateLeeCEO hoping that all the “fuss” will die down and the guilt money will roll in? I feel strongly enough about their one dimensional dehumanisation of people living with dementia that I will do my best not to allow that. If you feel the same please share this
Just complained to the ASA @Asa_official about the terrible @alzheimerssoc ad. In my view this breaches many aspects of Code 4 "Harm and Offence" It was very simple - go to asa.org.uk/make-a-complai… The more of us who do this, the more likely it is that the ad will be pulled.
Canadians, All of us need to help NOW. Each person who avoids getting infected or infecting someone else TODAY prevents more than 100 people getting infected in the next 3 weeks. Preventing 100 infections prevents 1 hospitalization. Whenever you have a choice, think of this.
how many more steps cld u take if u cldn't take any more? dld.bz/gxKPg #Alzheimer #dementia #care #love #courage #ferocity
what matters most dld.bz/d98eF #Alz #dementia #care quote
example of how arguing escalates conflict with PLWD and how to fix it dld.bz/fWMhX #Alz #dementia #care #tips
undeniable even in death dld.bz/egcQ4 Alz dementia #care #poetry
How do you discuss #housing with your #aging loved one? dld.bz/fYBhm #Alz #dementia #mindingourelders
Ian Kremer @LEAD_Coalition
67K Followers 47K Following Working to end #Alzheimers/#dementia. @WUSTL @UMichLaw https://t.co/GJkJVm4vF2 https://t.co/dd0eOpRj6V https://t.co/1ARWoHKsQu
Denise Brown @DeniseMBrown3
2K Followers 1K Following I support those who care. Current work: @CareYrsAcademy. Launched one of the first online caregiving communities in 1996, sold in 2020. #carelist on Thursdays.
Kate Swaffer she/her .. @KateSwaffer
9K Followers 1K Following PhD Candidate, UniSA. Campaigner for the Civil Rights of everyone. Optimist. Retweets are not endorsements. #IVotedYES 💚 #KaurnaCountry
Innovations in Dement.. @Innov_Dementia
15K Followers 6K Following Rachael, Steve & Damian tweeting about #DEEP #DementiaEnquirers #DementiaDiaries #GettingAlong #rights #accessibility #voices #belonging #recoverydiscovery
Alzheimer Europe @AlzheimerEurope
14K Followers 5K Following Non-profit NGO, making #dementia a European priority. Newsletter: https://t.co/iaeUoVUg0r Conference #34AEC
AlzAuthors @AlzAuthors
6K Followers 4K Following The global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others #AlzAuthors, Amazon Affiliate
Jean Lee @JeanLee18
5K Followers 4K Following Author of Alzheimer's Daughter, memoir, loss of both parents. Cofounder https://t.co/4uFsgjE1Yv, a 501(c)3 nonprofit https://t.co/3liKwNYe8P Amazon Associate.
the DAWN Method @theDAWNmethod
7K Followers 6K Following Online #dementia care training for families and their caregivers as well as dementia certification for agencies, care facilities, and professionals.
Caroline @journeyofcareM
800 Followers 767 Following journeyofcareM: M is for mother, memory and moments. And me, her caregiving daughter.
Caregiver Warrior @CaregiveWarrior
6K Followers 2K Following Caregiver Wisdom from the inside. How to survive the caregiving journey with grace and empowerment. Author | Speaker | Caregiver Advocate #caregiverwarrior
Alasdair MacLullich @A_MacLullich
14K Followers 8K Following Physician & Professor of Geriatric Medicine @EdinburghUni. Chair, Scottish Hip Fracture Audit. Delirium, hip fracture. Blog: https://t.co/VVtdvBqzfr
Julie Hayden (she/her.. @JulieHa59928392
2K Followers 1K Following Live Halifax, West Yorkshire, founder of Young Onset Dementia & Alzheimer's (YODA), steering group of 3NDWG, Board Member Deepness Radio
ADI @AlzDisInt
18K Followers 952 Following Alzheimer's Disease International (ADI) is the global voice on dementia. We raise awareness by supporting Alzheimer associations and individuals worldwide.
radical optimism @dr_shibley
29K Followers 22K Following #dementia #delirium #disability #neurodiversity primrose hill hon visiting prof @LivUni hon res fellow @ucl #cats #books pro #EU #ageing persl views
Carmel Geoghegan @CarmelGeoghegan
2K Followers 4K Following Founder/Lead person @DementiaIreland promoting awareness of Dementia & End of Life Support. Giving communities a voice. Loves dogs, Connemara ponies & life!
Ann Campanella @authorAnnC
4K Followers 3K Following Author of Motherhood: Lost and Found, a #memoir of #Alzheimers, #horses, #infertility & Author of Celiac Mom #AlzAuthors Manager & Director https://t.co/8b3J0s6dHN
Pippa Kelly @piponthecommons
8K Followers 6K Following Host of Well I Know Now dementia podcast #Well_IKnowNow, award-winning dementia campaigner, blogger & public speaker, author of Invisible Ink.
Daniel C. Potts, MD, .. @DanielCPotts
5K Followers 5K Following #AANFellow #Neurologist #ArchitectsofChange #AlzAuthors #Poet #Photographer #Speaker #Alzheimers #Dementia #Aging #Husband #Father #Founder @CogDynamics
tommy dunne BEM 💙 @TommyTommytee18
11K Followers 10K Following Living with dementia (Alzheimers) not suffering with it. I may not have enough time left to see a world without Dementia but I hope to see one that accepts it.
Dementia Who! @Dementiawho
4K Followers 3K Following 🔸 Alzheimer's caregiver 🔸 Unpaidcarer 🔸 Blogger: https://t.co/o4rT6NSQNb 🔸 Caring for mum with Alzheimer's 10yrs 💜
LinearaHandmade @LinearaH
2K Followers 5K Following Hi my dear friends! I'm Irina from Ukraine, I sew fidget blankets for dementia patients and make busy sensory boards. You can find our products in our etsy shop
NeuroBME @NeuroBME
14 Followers 391 Following Guide notes for starting research in biomedical engineering, cognitive science, and neuroscience. #research #neuroscience #cognitive #cognition #biomedical #bme
Dr Andrew Woodhead (A.. @WoodheadAndy
2K Followers 5K Following Hate all Prejudice, Kindness is a Must, Campaigner for Dementia, Mental Heath, AHP, Cancer, Palliative Care, CRPS, & Coproduction. All views are my own
Dookielu @dookieloopyloo
777 Followers 2K Following parent to only one small angry version of myself now. lost without being a dementia/palliative carer. mostly a nice person but in grief rant mode for a while.
Andrew White @Andrew_S_White_
92 Followers 246 Following
C @SocialJustice4A
883 Followers 5K Following Substance abuse counselor. 12 steps/ recovery program Faith, the arts, healthy eating, advocating, reading, walking. Donald Trump sucks.
Vital Reaction® @h2vitalreaction
784 Followers 5K Following Full Body Rejuvenation! Vital Reaction® is a #health and #wellness company specializing in molecular #hydrogen. #LongCovid #MECFS #CKD #Fatigue #millionsmissing
BioVie Inc @BioVie_Pharma
155 Followers 180 Following At BioVie we believe that every person deserves to live free from the limitations of aging and disease.
#DucksforDementia @ducks4dementia
534 Followers 4K Following Ducks4Dementia was started in 2023 by a 5th grader to raise awareness about Dementia by donating toy ducks to Nursing Homes and $ for the Alzheimer's Foundation
Boston University ADR.. @bu_clintrials
50 Followers 76 Following We are the Clinical Trials Team of the Boston University Alzheimer’s Disease Research Center. Click the link below to get involved in our research:
Jordi @Jorditgn40
4K Followers 3K Following Pare,Català🏴, afiliat a @CatalunyaAC, número 4 a les llistes per Tarragona. M'encanta la meva terra i estimo la seva gent. #SalvemCatalunya
Cuidando de Memórias @Alzheimerleigos
13 Followers 99 Following
Goldfarb & Luu, PC @GoldfarbLuu
662 Followers 2K Following At Goldfarb & Luu, we make estate planning & elder law simple, accessible, & enjoyable. Call (818) 483-4166 for a complimentary evaluation!
yagna swarup @yagna_swarup
33 Followers 2K Following Exploring the Healthcare industry | MBA | Pharmacist | Healthcare|Pharma Marketing | Market Research
Dopey @itsafabulouslif
1 Followers 1K Following
Scottish Brain Scienc.. @Scot_Brain_Sci
1K Followers 2K Following We are a brain sciences research organisation striving to change how quickly and effectively we detect and treat Alzheimer's and other brain diseases.
Wendy Norcross @wendy_ENDALZ
1K Followers 2K Following Paddling & Purpose💜MN girl with MI ties ❤️Steaming lattes 🫐scones & 🐶!! ALZ Advocate 👀on science. RT ≠ endorsement
Dr. Regina C. Louis @DrReginaLouis
86 Followers 277 Following Researcher with PhD in neuroscience, caregiver to father with vascular dementia
Pinar @elifpinarca
91 Followers 221 Following Curious mitochondriac, cognitive neurologist and upcoming clinical trialist, on the path of discovering cure for memory impairment.
Mary Strnad @BeztheBeast
358 Followers 1K Following Not an athlete unless wishing makes it so. Love my family. Dislike greed, lying, disrespect. Opinions my own.
Eileen Mahr @emahr
0 Followers 193 Following
Johanne Boucher @JohannBoucher
934 Followers 944 Following Tea and podcast addict. Montréalaise en exil. WTA/ITF Tennis/Figure skating fan. She/her. Also on Bluesky.
Sharon Daltrey @DaltreyTimeless
44 Followers 366 Following Inspired by personal experience we make affordable gifts designed especially for those in the later stages of dementia.
Dementia Chats @DemChats
2K Followers 2K Following Dementia Chats is a FREE webinar series where experts living with the various forms of Dementia share their sights.
(Ho-dee-ay) @hodeeaycards
37 Followers 153 Following (ho-dee-ay) is a simple photo card game without rules for people living with dementia & those who love & care for them. Posts by Deb Emerson & Emily Rinkema.
Lori Saddler @sinygal
387 Followers 2K Following Native New Yawker, reaching, improving, learning, expanding.
National Center for E.. @NationalECE
2K Followers 5K Following The National Center for Equitable Care for Elders at HSDM provides innovative training and technical assistance to promote #equitable #care for #OlderAdults
Kimberly Best @kimberly_a_best
247 Followers 390 Following Collaborative Problem-Solving ✴ Mediation ✴ Conflict Management ✴ Author of "How to Live Forever: A Guide to Writing the Final Chapter of Your Life Story"
Credit For Caring �.. @creditforcaring
2K Followers 5K Following Social worker and Health Info Tech Founder Certified Women Owned business 👩🏫 Caregiver tax credit Social Determinants of Health 24/7 online access 🌝🌔
Amy K. Williams @AmyK_Williams
160 Followers 490 Following I help new family caregivers achieve confidence, peace of mind & balance in their elder care journeys through knowledge, practical tools & compassionate support
The Rest I Make Up @RestIMakeUpFilm
744 Followers 1K Following Meet María Irene Fornés—a visionary Cuban-American playwright who was losing her memories, but not her creativity, to dementia. Here the lens becomes her pen.
Enhanced Care & Suppo.. @EnhancedCareRBH
801 Followers 1K Following Enhanced Care and Support Team (ECaST) at Royal Bolton Hospital🌈✨
Michael Reich @mwreich
950 Followers 610 Following Chief Marketing Officer, @alzassociation. Advocate, @alzimpact. My opinions only, not those of my employer nor my wife.
Medoris Care @medoriscareuk
150 Followers 811 Following #dementia #incontinence #pressurecare #occupationaltherapist #carehomesuk #nursinghomesuk #elderlysupport #wheelchairusers #stopthepressure
Callie Weitzel @WeitzelCallie
575 Followers 378 Following Director of Product Development Connectivities Dementia Engagement Subscription Boxes
Laurette Klier @klier_laurette
24 Followers 350 Following
Roger M. Hughes @Roger_M_Hughes
17 Followers 156 Following Husband, Father, Author-“That Which Cannot be Denied.” Lover of literature, critical thinking, exploration, and laughter.
a2 Collective | a2Pil.. @a2_collective
321 Followers 616 Following Empowering innovation in #ai + #agetech (a2) | #aging #adrd #caregivers #healthtech #medtech #biotech #nondilutivefunding AITCs: @JH_AITC @MassAITC @pennaitech
Shani Palmer @PrettygirlP07
9 Followers 55 Following
Steffi Boulding @SteffiBoulding
892 Followers 1K Following I am a mum and author. I write inspired by my beautiful mum, sadly lost to Alzheimer's. I hope to inspire/help others by sharing my own beliefs and feelings xx
Age USA @Age_USA
725 Followers 2K Following Too many older people feel they have no one to turn to for support. We exist to help older people when they need us the most.
World Woman Foundatio.. @worldwomanfund
51K Followers 53K Following We are investing in women to create one million female heroes by 2030. RSVP for World Woman Hour 2023 today: https://t.co/YAvL5g8u1S
Bright Brains Recruit.. @BrightBrainsRe1
771 Followers 5K Following Contact us for Health and Social Care provision, Care Business Start-up consultancy, Staff Recruitment and Training.
alz.pt ® - Revistas .. @alz_editora
5 Followers 80 Following Revistas de Passatempos com jogos que estimulam o cérebro e ajudam a melhorar a sua saúde mental. Recomendado pela Alzheimer Portugal.
Samantha Winemaker sh.. @SammyWinemaker
5K Followers 2K Following Palliative Care MD, Co-Host @waitingroomrev 🎧, Assoc Clin Prof @MacPalCare, Advocate +ve change in healthcare, own views, stories changed, IG sammy.winemaker
Darren Keith @DarrenKeith2022
87 Followers 261 Following Screenwriter, Musician, Songwriter, Doughnut God. Have a comedy series. Trying to make a difference in the lives of those affected by Alzheimer's disease.
Ian Kremer @LEAD_Coalition
67K Followers 47K Following Working to end #Alzheimers/#dementia. @WUSTL @UMichLaw https://t.co/GJkJVm4vF2 https://t.co/dd0eOpRj6V https://t.co/1ARWoHKsQu
Kate Swaffer she/her .. @KateSwaffer
9K Followers 1K Following PhD Candidate, UniSA. Campaigner for the Civil Rights of everyone. Optimist. Retweets are not endorsements. #IVotedYES 💚 #KaurnaCountry
Innovations in Dement.. @Innov_Dementia
15K Followers 6K Following Rachael, Steve & Damian tweeting about #DEEP #DementiaEnquirers #DementiaDiaries #GettingAlong #rights #accessibility #voices #belonging #recoverydiscovery
Jean Lee @JeanLee18
5K Followers 4K Following Author of Alzheimer's Daughter, memoir, loss of both parents. Cofounder https://t.co/4uFsgjE1Yv, a 501(c)3 nonprofit https://t.co/3liKwNYe8P Amazon Associate.
the DAWN Method @theDAWNmethod
7K Followers 6K Following Online #dementia care training for families and their caregivers as well as dementia certification for agencies, care facilities, and professionals.
Caroline @journeyofcareM
800 Followers 767 Following journeyofcareM: M is for mother, memory and moments. And me, her caregiving daughter.
ADI @AlzDisInt
18K Followers 952 Following Alzheimer's Disease International (ADI) is the global voice on dementia. We raise awareness by supporting Alzheimer associations and individuals worldwide.
radical optimism @dr_shibley
29K Followers 22K Following #dementia #delirium #disability #neurodiversity primrose hill hon visiting prof @LivUni hon res fellow @ucl #cats #books pro #EU #ageing persl views
Pippa Kelly @piponthecommons
8K Followers 6K Following Host of Well I Know Now dementia podcast #Well_IKnowNow, award-winning dementia campaigner, blogger & public speaker, author of Invisible Ink.
Daniel C. Potts, MD, .. @DanielCPotts
5K Followers 5K Following #AANFellow #Neurologist #ArchitectsofChange #AlzAuthors #Poet #Photographer #Speaker #Alzheimers #Dementia #Aging #Husband #Father #Founder @CogDynamics
tommy dunne BEM 💙 @TommyTommytee18
11K Followers 10K Following Living with dementia (Alzheimers) not suffering with it. I may not have enough time left to see a world without Dementia but I hope to see one that accepts it.
Dementia Who! @Dementiawho
4K Followers 3K Following 🔸 Alzheimer's caregiver 🔸 Unpaidcarer 🔸 Blogger: https://t.co/o4rT6NSQNb 🔸 Caring for mum with Alzheimer's 10yrs 💜
Young Dementia Networ.. @YoungDemNetwork
14K Followers 2K Following The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.
Kate Boor Ellis (she/.. @KateEllis_AE
3K Followers 4K Following Director for Communications & Policy @AlzheimerEurope; Mum to 1 human, 1 dog; Avid crime reader; Closet singer; Purveyor of fine soups; Truly terrible at yoga
Susan Landeis @SusanLandeis
2K Followers 3K Following Author, writer, advocate, manager at https://t.co/8WGTPgyUYx. https://t.co/Kh4XXjmlLa
Marianne Sciucco @MarianneSciucco
9K Followers 9K Following Registered Nurse. Writer. Co-founder, Manager and Podcaster at https://t.co/KCTEtwDBSm. Eclectic reader & book blogger. #AlzheimersAwareness
Ashley Fox RPN @AshleyFoxRPN
6K Followers 6K Following RPN CFN GPNC(C) | Nurse Case Manager | 2022 Provincial Liberal Candidate for Perth-Wellington she/her @ashleyfoxrpn.bsky.social
Tracey 🧜🏻♀.. @TraceyShorty28
5K Followers 3K Following I'm a retired NHS nurse.Had a stroke at 45, then dx with Alz/PCA, has anxiety. Love animals & life. Likes Walking,Gardening, Swimming, Royalist.
Sara Livadeas @saralivadeas
26K Followers 8K Following I believe social care changes people's lives for the better. Do you? CEO, trustee, consultant, advocate, adviser, friend.
Blaq'Dyiamond🖤💎.. @BlaqDyiamond
136 Followers 469 Following Only one word best describes me...........Grateful!#100PROOF💥
Nathan Stall @NathanStall
24K Followers 3K Following MD PhD | Husband + Dad of 3 | Geriatrician @SinaiHealth @UHN | Scientist #WomensAgeLab @UofT_DoM | Working to improve our health, LTC, and home care systems.
Laura Tamblyn Watts @ltamblynwatts
4K Followers 3K Following CEO of CanAge-Canada's National Seniors' Advocacy Org Author: Let's Talk About Aging Parents: https://t.co/iFq8KUJYlr
KT Canada @KTCanada
4K Followers 612 Following Cdn research network that supports development, implementation, & sustainability of a transformative research program in Knowledge Trans. @KTCanada.bsky.social
Knowledge Translation.. @kt_program
2K Followers 575 Following We support a range of knowledge users in their quest to create improved health outcomes. https://t.co/tTB33VaJzY
Dr. Andrea C. Tricco @ATricco
4K Followers 3K Following Canada Research Chair, Director @ Unity Health Toronto, Associate Professor @ University of Toronto, Co Editor in Chief @ Journal of Clinical Epidemiology
SPOR Evidence Allianc.. @SPORAlliance
2K Followers 2K Following Create a rapid-learning health system by supporting access to high-quality information that is timely and easy to use by decision-makers.
Sherrie Dornberger @Bzynurse1
260 Followers 1K Following Family, Friends, NADONA the elderly and assisting Nurse leaders are my passions!
mscraiglang #FBSI @JaniceChalmers
2K Followers 3K Following Founding ALBA member. Proud Scot. An independent Scotland is my goal. Let's work together to free Scotland.
Hannah 💎 @hannxhmoss
15K Followers 7K Following 23🎓 Psychology Grad, Mental Health Postgrad, Children’s Mental Health Practitioner at SLaM
Canadian Medical Asso.. @CMA_Docs
68K Followers 2K Following The CMA leads a national movement with physicians who believe in a better future of health. Français: @AMC_Sante
Duncan McCue @duncanmccue
20K Followers 2K Following Nd’Anishinaabe. Prof @JSchool_CU. Sometimes found @CBCRadio. Author #DecolonizingJournalism #TheShoeBoy. Fan of frybread & Leafs. Creator https://t.co/6WXVkszQFf
Lisa @llpoole
2K Followers 2K Following
Amy Little @amyjlittle
858 Followers 730 Following Head of Influencing @LeonardCheshire @LcImpact Former @alzheimerssoc. Also tweet about disarmament & other campaign passions. Tweets my own.
Jez Hughes CBE @JezHughesCBE
5K Followers 2K Following Senior Leader/CEO in health & care incl Alzheimer’s Society, Breakthrough Breast Cancer & Red Cross. Consultant . Trustee of RVS & Dorset CPRE. Views my own.
Centre for Dementia S.. @BSMS_CDS
861 Followers 597 Following Centre for Dementia Studies. Research to improve the quality of life, treatment and care of people with dementia. BSMS / Sussex Partnership NHS Foundation Trust
DementiaTrainers @buzloveday
567 Followers 152 Following DementiaTrainers provide specialist training to the health and social care sector.
Translating Research .. @TRECResearch
3K Followers 5K Following Research program focused on developing solutions for improving the quality of care provided to nursing home residents.
Carrie Jackson @IPDCarrie
6K Followers 6K Following Independent Consultant Health and Social Care Researcher. Honorary Senior Fellow, UEA.
Research at Exeter @UofE_Research
12K Followers 10K Following The latest research news and events from @UniofExeter’s Research and business comms team. To learn how we work with business follow @Exe_Innovation
The Lancet @TheLancet
747K Followers 471 Following Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.
Humber Teaching NHS F.. @HumberNHSFT
7K Followers 2K Following Providing mental health, primary care and community-based healthcare in Hull, East Riding and Whitby, and specialist services throughout the UK.
Beth Britton @bethyb1886
10K Followers 2K Following Passionate about #Ageing #Health #SocialCare #Dementia. Award-winning Content Creator; Author of D4Dementia; Consultant; Trainer & Mentor; Campaigner & Speaker.
Jason Bergen @mryahbut
3K Followers 5K Following Proud #migrant 🏳️🌈🇨🇦🇬🇧 Interests #AgeFriendly #AgeingWell #HealthyAgeing #Migration Trustee @MigrantVoiceUK @AWOCUK #ConnectedCareNetwork
Prof Clive Ballard @Clive_Ballard
3K Followers 2K Following Dean @UniofExeter Med School. Researching #dementia incl. prevention, care & treatment, Lewy bodies, Parkinson's. Ageing runner. #ExeterDementia #Alzheimers
Exeter Med School @ExeterMed
7K Followers 2K Following We’re the University of Exeter Medical School. Featuring our advances in research and sharing our news, opportunities, CPD and events.
Jules @Jules_Montague
2K Followers 555 Following Writer|Neurologist|Presenter @BBCRadio4 (Dementia: Unexpected Stories). The Imaginary Patient feat on R4, Royal Institution, Times. Telegraph Books of the Year
truffle 🐅🐈 @truffle_cat
2K Followers 1K Following Tabby cat. With a magnificent tail of fluffiness. Likes roast chicken, chin scratches, jumping over fences and treats. Dislikes closed doors and sleeping humans
Andrew Clegg @drandyclegg
2K Followers 786 Following geriatrician, eFI, CARE75+, HERO trial, PROSPER study
Robert Howard @ProfRobHoward
15K Followers 2K Following UCL old age psychiatrist | Improving dementia and mental health treatment | Independent trials | Layla | Talk to me about academic careers
Patient Advisors @PatientAdvisors
4K Followers 3K Following A national group of patient & family advisors engaged with healthcare.
Right Choice Adult Ca.. @rightadultcare
340 Followers 506 Following Offering adult day care and activities, focused on having each member Celebrate Life and feel like family. Meals and transportation provided.
Judy Berry @dementiaeducate
262 Followers 210 Following Founder- DEMENTIA Specialist Consulting & Lakeview Ranch Model of Specialized Dementia Care 2010 RWJF Community Health Leader & 2011 Purpose Prize Fellow
Peggy Bushy @peggybushy
1K Followers 1K Following My mother's voice. Strongly believes in the gift of family and faith. Here to raise awareness of #Lewybodydementia. Author of Lewy, Mom, and Me. https://t.co/wjrF1f3EDR
Irish Dementia Workin.. @IrishDementiaWG
4K Followers 2K Following Irish Dementia Working Group is a national campaigning group that gives voice to the lived experience of dementia. Supported by The Alzheimer Society of Ireland
LonKieffer, RetiredCo.. @CaregiversPOD
450 Followers 950 Following Advocate for PROfessional and PERsonal/Family Caregivers through "EnterTrainment" as an RN, Nurse, Speaker, Author, Coach, Humorist, Comedian and Dog Rescuer!
Cathy Conway @ASOCathy
532 Followers 591 Following Director, Education Programs with the Alzheimer Society of Ontario. Opinions are my own. RTs are not endorsements.
Alastair Cox @DementiaMap
3K Followers 2K Following Working alongside people living with #dementia on digital inclusion and accessible tech. Formerly Digital Lead for Our Connected Neighbourhoods @OCNStirling
BioSuperfood Bio-Alga.. @BioSuperfoodUS
681 Followers 737 Following A concentrated blend of nature's most nutrient-dense whole food micro algae formulated to help your body function at its maximum potential. 🇺🇸
Pedalling4ACure 🍊 @APedalling4
300 Followers 687 Following Care Partner,raising awareness 4 Alzheimer's disease,hoping to see increased funding/research & I am Pedallig4ACure #EndNeuroDegeneration #StopAlz #OpenScience
PsyTweeps @PsyTweeps
1K Followers 449 Following
Dementia Tas @DementiaTas
214 Followers 129 Following Providing dementia training and mentoring to aged care and disability workers, as well as family, friends and community organisations.
Stephanie @AgeingPsych
218 Followers 2K Following Interested in psychology, human ageing and cat behaviour.
Generations Now @Getgenerations
995 Followers 888 Following #enrollment #PACE #marketing in senior care and #caregiving by Lisa LaMagna
YouAreUNLTD @YOUAREUNLTD
1K Followers 2K Following YouAreUNLTD is a purpose driven publishing brand and network, designed to disrupt and redefine what it means to get older.
H&H Home Care @hh_home_care
155 Followers 403 Following H&H Home Care helps seniors in Fairfield, New Haven and Litchfield counties, Connecticut live in the comfort and security of their own homes.
Daphne Simpkins @DaphneSimpkins
571 Followers 2K Following At ease in a troubled world. Just finished 3rd book during lockdown: The Bride's Room.
@ProfRobHoward There was zero need to be negative about @GailGre59728262 's tweet. She is doing something practical to make a positive difference about one aspect of the dementia experience. That is a good thing. If we all did that, things would be better.
@ProfRobHoward It's a complex world & totally possible for all these things to matter. Maybe they're all connected? Ppl w #dementia like Gail + many others shd be congratulated for explaining to us how deeply the neg @alzheimerssoc narrative affects their hope, self-esteem + daily lives.
@ProfRobHoward IMO this carers v ppl w #dementia dichotomy is sooo unhelpful (btw many of the latter have been the former). The big discussion is if the 'social death' narrative is helpful to ANYone - a focus on personhood, hope, meaning, relationship, inclusion has to be the right way for ALL.
Scenario..95 yr old man, who had been living at home, falls last week and breaks his hip. Transferred to a regional hospital. Family told his 'Dementia' has worsened so we are transferring him to a mental health ward today. WTF. Surely delirium? And needs medical care or PC.
I wrote this in 2017 @alzheimerssoc We need to help people suffer less by shifting what is a devastating mindset, not re-enforcing it myalzheimersstory.com/2017/04/05/don… @phillyhare @KateSwaffer @WorldDementia @SteveMilton1 @neilmcrowther @Hazel__Haworth @diana4hereford
Life after death makingrightsmakesense.wordpress.com/2024/04/04/lif…. The best thing I’ve read about #dementia for many a long year Read, Reflect, Respond & Share @geoffreydcox @cchdevon @HomesQi @awad_gina @N_Wilson94 @ExeterDAA @Dementiawho @DementiaUK Thank you @neilmcrowther 👏👏👏👏
@neilmcrowther @alzheimerssoc Gosh thank you so much Neil, you say everything I've wanted to say, but so much better, And thank you for your honesty about your own experience. Sending all best
@neilmcrowther @alzheimerssoc @alzheimerssoc I hope you read this.
@neilmcrowther @alzheimerssoc @neilmcrowther this is beautiful and so thoughtful. I really resonated with how people changing affects our identity. Really important to compare living with dementia to living with other life altering situations.
@neilmcrowther @alzheimerssoc Great blog Neil 🙏. My experience with mum is of heartbreaking loss, & real difficulties, but also hope, possibility & humour. We need to do much more to develop better support for ppl to be as active loved and happy as poss & I agree the advert messaging doesn’t help this at all
Stop negative and inaccurate dementia publicity. Show the hopeful, creative possibilities. - Sign the Petition! chng.it/fDkdrK9j via @UKChange Now only NINE signatures to take this to 1000!!
@neilmcrowther @alzheimerssoc Excellent article. Thank you.
So, I've listened to lots of views and perspectives about *that* @alzheimerssoc ad. And FWIW they've made me believe even more deeply that it's huge mistake. I've set out why in this new blogpost 'Life after death' makingrightsmakesense.wordpress.com/2024/04/04/lif…
Adverts cost money but would have been better to see different perspectives under the long goodby umbrella @DiverseAlz what do others think? More than one story…
@DiverseAlz Given the @alzheimerssoc goal of raising awareness about the devastation of dementia, I'd love to know how many people who previously weren't aware (i.e., those living under a rock) became aware as a result of this ad. Was upsetting people who were already "aware" worth it?
@diana4hereford @alzheimerssoc @SteveMilton1 I cared for an elderly lady who had alzheimer's for 8 years before she went into a home. The first time I visited her, she looked at me and said, "I know you, I can't remember your name but I know that I love you." 🥺 She is still so alive.
@neilmcrowther @alzheimerssoc @JacquiBingham So many questions that need answering and real concerns that need addressing. But AS keeps digging its hole … again and again and again ( to coin a phrase)
@alzheimerssoc @SteveMilton1 Did you take into consideration the views of the 3NDWG and your ambassadors?
'Don’t mourn me long before i’m gone', a wonderful poem about dementia which is very apt given the current discussions around the @alzheimerssoc ad.
I wrote this in 2017 @alzheimerssoc We need to help people suffer less by shifting what is a devastating mindset, not re-enforcing it myalzheimersstory.com/2017/04/05/don… @phillyhare @KateSwaffer @WorldDementia @SteveMilton1 @neilmcrowther @Hazel__Haworth @diana4hereford
Trends for United States
You might like
