Muscular Dystrophy UK @MDUK_News
We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter. musculardystrophyuk.org UK Joined November 2008-
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📣 We're excited to announce Jon Richardson and Friends is returning to Aylesbury for a comedy night in support of our work! Inspired by his friend Martin, who lives with muscular dystrophy, Jon promises an unforgettable show. Get your ticket now: shorturl.at/cfhp6
"It’s been great to communicate with people who can relate to me and can understand what I’m going through." 😊 It was great to see so many people join our three information days in England, Scotland and Wales. Read the highlights: shorturl.at/puEGN
Colin's journey with limb girdle muscular dystrophy shows the power of #AssistiveTech. Now, he's advocating for a government scheme to help others access essential devices. Read more: rb.gy/bg7el0
"I wanted to create a [garden] based on people’s experiences of living with a muscle wasting condition." 🌲 Meet Ula, designer of our accessible #ForestBathing Garden at @The_RHS Chelsea Flower Show which is funded by @projgiveback. Read more: shorturl.at/mMU68
Happy birthday to our president, @GabbyLogan! 🥳 Thank you for all your hard work in changing the future of muscle wasting conditions.
Passover began this week. We want to wish all our Jewish followers a meaningful and joyous Passover celebration!
We’re delighted to announce, thanks to our partnership with LifeArc and @4Lilyfoundation, the establishment of a new research centre, giving hope to thousands of people living with rare mitochondrial diseases. Read the full story: shorturl.at/akH67
Our CEO Catherine Woodhead is leaving the charity this year. Under her leadership, we've made huge strides in research, treatments & support. Recruitment for our new CEO will begin shortly. Read more: tinyurl.com/4zwvpknb
We are now PIF TICK certified!✅The only independently-assessed quality mark for trusted health information. The PIF TICK shows that our information is reliable, trustworthy and produced to the highest standard. musculardystrophyuk.org/news-blogs-and…
What an incredible day. All 180 #TeamMDUK runners have taken on and completed the 2024 London Marathon. We can’t thank them enough. Together we are changing the future of muscle wasting conditions. Inspired? Apply now to join us in 2025 musculardystrophyuk.org/LM25
Tomorrow 180 #TeamMDUK runners will run the London Marathon. They have been training & fundraising for months to change the future of muscle wasting conditions. Good luck #TeamMDUK! Thank you for showing just how much our #MusclesMatter 🧡🏃♂️Read more: shorturl.at/jpBHY
Sheila's survey last August asked the muscle wasting community about fashion and accessibility, revealing design insights and barriers to shopping. Now, she's crafting workshops for designers: shorturl.at/aLMQR
We contributed to this report, highlighting inadequate NHS mental health support for people living with muscle wasting conditions. We back SHCA's call for better care. Need support now? 📞0800 652 6352 (Mon-Thur 10am-2pm). Browse our support groups: rb.gy/orkrej
We contributed to this report, highlighting inadequate NHS mental health support for people living with muscle wasting conditions. We back SHCA's call for better care. Need support now? 📞0800 652 6352 (Mon-Thur 10am-2pm). Browse our support groups: rb.gy/orkrej
Thank you for joining our Wales Information Day! 🙌 Our speakers shared knowledge & experiences which helped our community grow stronger! There were valuable insights on exercise, fatigue management, & research updates. What were your takeaways? #MusclesMatter
We’re at @goodenoughc until tomorrow for the 17th UK Neuromuscular Translational Research Conference. Let's hear what's on the horizon for muscle wasting research! #NMTRC #MuscleResearch #London #CureTheFuture
🌿Exploring nature shouldn't have limitations! Martin (diagnosed with LGMD) proves it with his adventures. Read his story: shorturl.at/bcuA0 ICYMI: We've got an accessible garden at @The_RHS Chelsea Flower Show designed by Ula Maria & funded by @projgiveback
The @LondonMarathon running show kicks off today and we’re delighted to be here! Really looking forward to meeting all of our wonderful runners over the next few days
.@NICEComms is currently consulting on the guidance and we have created a short survey to capture further insight from the Duchenne community about the impact of existing corticosteroid treatments. Take the survey: surveymonkey.com/r/corticostero… - open until Sunday 19 April.
.@NICEComms is currently consulting on the guidance and we have created a short survey to capture further insight from the Duchenne community about the impact of existing corticosteroid treatments. Take the survey: surveymonkey.com/r/corticostero… - open until Sunday 19 April.
Today is Pompe disease awareness day. John Foxwell, who lives in Wales, shines a light on the importance of education for better diagnosis and the huge strides he's made to raise awareness. Read more: shorturl.at/hmsBL
🎉We're thrilled to announce that we've been awarded part of the Medical Research Charities Early Career Researcher Fund. This will fund seven researchers in the early stages of their career studying muscle wasting and weakening conditions. Read more: shorturl.at/wCOWX
Matthew S. Alexander @Matt_Muscle_Guy
5K Followers 4K Following Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. All tweets are my own. Instagram @thealexanderlabDuchenne UK @DuchenneUK
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63K Followers 2K Following We are joining Jack in the fight to find a cure for duchenne muscular dystrophy. Will you?WMS @WorldMuscleSoc
2K Followers 663 Following We invite you to the 28th International Annual Congress of the World Muscle Society in 2023. This is the premier annual Congress on #neuromuscular disorders.FSHD Society @FSHDSociety
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3K Followers 1K Following Sunday 18th Aug 2024. Fast, flat & picturesque half marathon. Your next challenge awaits! #ScottishHalfHappy Birthday fabulous Gabby Logan MBE. Brilliant presenter and does so much for Muscular Dystrophy UK. Hope you’re having a great day. Fun memory at Menopause Monologues. @GabbyLogan @BBCSport @sportsagentspod #SportsPersonalityOfTheYear @BootsUK @MDUK_News #Wednesdayvibe
PLEASE SHARE with anyone you think can help. @MDUK_News need YOU! @thekiltwalk #Glasgow is upon us! Would you be free to help us cheer 2-5pm on Sunday to clap and cheer? Email [email protected] or call 07771 374839 if you can support #volunteers #volunteering
Excited news for people with rare diseases including #mitochondrial - #LifeArc launches research centres that will unlock new tests, treatments and cures for people living with these disorders. #LifeArc partnership with @4Lilyfoundation and @MDUK_News led by @ChinneryPatrick
Delighted to lead new centre for UCL- working in this national partnership -we are finally in a position to translate our science into trials and disease modifying therapies for mito patients! @uclh @RobPitceathly @uclnews @4Lilyfoundation @MDUK_News @LondonMito @UCLBrainScience
A new £7.5million research centre led by Professor @MikeHanna18 & co-led by Professor @RobPitceathly funded by @lifearc1 will help thousands of people living with mitochondrial diseases to get access to improved diagnostics, treatments & potentially cures. tinyurl.com/yvdn2dt8
We're thrilled to announce our pivotal role in the creation of a new cutting-edge, multi-site centre for #mitochondrialdisease research in partnership @lifearc1 & @MDUK_News Read more: bit.ly/44eekdP #mito #research #collaboration #raredisease #patients
We're launching 4 Translational Centres for Rare Diseases! 1️⃣ Centre for Rare Respiratory Diseases 2️⃣ LifeArc @Kidney_Research Centre for Rare Kidney Diseases 3️⃣ Centre for Rare Mitochondrial Diseases 4️⃣ Centre for Acceleration of Rare Disease Trials @MDUK_News @4Lilyfoundation
We're launching 4 Translational Centres for Rare Diseases! 1️⃣ Centre for Rare Respiratory Diseases 2️⃣ LifeArc @Kidney_Research Centre for Rare Kidney Diseases 3️⃣ Centre for Rare Mitochondrial Diseases 4️⃣ Centre for Acceleration of Rare Disease Trials @MDUK_News @4Lilyfoundation
@MDUK_News Cat’s passion will be a tough act to follow. Wishing her the best of luck on her new role
So proud of my dad running the London Marathon today for @MDUK_News 🧡 So happy to have been working it and to get to watch him cross the finish line 🥹 justgiving.com/fundraising/lm…
I did it! What an iconic event and a once in a lifetime experience. @LondonMarathon you were awesome! The atmosphere, the crowds, the support and @MDUK_News were the best cheer squads. I’ll be back - but as a volunteer next year! 🤣🏃🏼♀️🏅#anythingispossible #running #Wellbeing
🖤🤍 CONGRATULATIONS 🤍🖤 The biggest congratulations go to @Pro__Bean on completing his first @LondonMarathon today, in an incredible time of 4:03:29 and raising over £2000 for @MDUK_News There is still time to donate for his epic achievement ⬇️ justgiving.com/page/london-ma…
An amazing day. Just loved running with my 179 other @MDUK_News runners and being part of this outstanding charity. Thank you @LondonMarathon and for all the incredible crowd support out on the streets and from back home #MusclesMatter
📣Come and hear from @BritishArmy #Veteran @sidkeyte who is running the @LondonMarathon as a Red Phone Box for @MDUK_News ❤️❤️ @BFBSRadioHQ #TotallyConnected
@Francis_Xaviers @Stfrancisxavie8 #GoBright for @MDUK_News today! Thank you to everyone taking part MDUK’s support is our lifeline and days like today allow their support to be available to families like ours across the UK living with muscle wasting and weakening conditions 🧡
Our very own @OTRobW is running the #LondonMarathon this Sunday! 👏 Rob is raising money for @MDUK_News - a cause very close to his heart. Head here to sponsor Rob or to read his story - tinyurl.com/4tskc8p4 Good luck Rob - you've got this! 💪🏃♂️
🏃LONDON MARATHON🏃 On Sunday @Pro__Bean will be running his first ever marathon 🥇 Charlie is running the @LondonMarathon in support of @MDUK_News If you are able to, please consider donating via Charlie’s just giving page ⬇️ justgiving.com/page/london-ma… Good Luck Charlie 🖤🤍
Amazing progress developing disease modifying therapies in neuromuscular diseases since we started our national conference now in its 17th year! latest translational science over next 2 days! @uclh @UCLBrainScience @MDUK_News @The_MRC @UCLIoN
It has been our pleasure to support @rersteam to install a new #ChangingPlaces toilet, helping improve accessibility for people with complex needs. The new toilets were supported by grant funding provided by @luhc through @CumberlandCoun, in association with @MDUK_News.
Introducing your Aberdeen Kiltwalk Charity Pit Stop Partners 👀⬇️ Pit Stop 1 - @SAMHtweets Pit Stop 2 - @ScotAirAmb Pit Stop 3 - @MDUK_News Pit Stop 4 - @MarieCurieSCO #KiltwalkAberdeen
In 5 weeks time I’m running the Oxford @TownandGown10k race as part of the #BrasenoseCollege Team. There are about 40 of us running (a mix of students, staff, & fellows) and we are raising funds for the official race charity - @MDUK_News. If you would like to donate then please…
Thank you to @SFSOxford for having us🧡 There is still time to sign up for @TownandGown10k. Sign up here: townandgown10k.com/oxford/
Ben smashed it for Joe & @MDUK_News what a hero! Ben Davies smashed it for Joe!! Absolute superstar! 😍 justgiving.com/page/benjamin-…