Montalcino Aortic Consortium @MACAorta
Montalcino Aortic Consortium (MAC) - clinical international investigators committed to diagnosing & managing aortic disorders and their genetic causes. montalcinoaorticconsortium.org Joined September 2020-
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Following50
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Great to see @MACAorta mentioned at the 2024 @AATSHQ Aortic Symposium in New York. GADA Canada represented MAC at THINK AORTA Canada's launch at the 104th #AATS2024 Annual meeting in Toronto. Such a pleasure to have @OuzounianMD & @scottlemaire come by our booth. @AorticDisorders
Join us at Booth #322 at the AATS ANNUAL MEETING to learn more about the life-saving #THINKAORTA campaign and its launch in Canada! More information here: gadacanada.ca/news/2024/4/27… @MACAorta @AATSHQ #AATS2024 #aortaed
The aorta, previously categorized as a vessel, is now recognized as an independent human organ! Read more on GADA Canada's website about what this groundbreaking news means for aortic medicine: gadacanada.ca/news/2024/3/12… #thinkaorta #aortaed #lds #marfan #acta2 @AorticDisorders
We are pleased to announce the recipient of the next GADA Canada Aortic Research grant award. The project, led by Professor Dieter Reinhardt, PhD, at @mcgillu aims to advance our understanding of pathological mechanisms in thoracic aortic aneurysms: gadacanada.ca/2023-2 #aorta
We are pleased to announce the recipient of the GADA Canada Aortic Research grant award. Dr. Pascal Bernatchez's project was selected for its potential for clinical application and effort to improve patient outcomes for #geneticaorticdisorders: gadacanada.ca/2023-1 @MACAorta
New Webinar! SMDS & Cardiology. March 29, 5 pm ET. Brought to you from GADA Canada & JRF. Hear from Dr. Angela Yetman about caring for this unique disorder. Register free here: bit.ly/3ZdHrd9 #ACTA2 #SMDS @AorticDisorders @MACAorta @JohnRitterFdn
A special message from Terri Lohnes, GADA's newest Board member as to why she support GADA's essential aortic research programs like @MACAorta and believes patient advocacy is vital. Read Terri's message: bit.ly/3jHVqJq Donate Here: bit.ly/3WWMCxq #aortaED
Recently Morgan Story shared why she fundraises for GADA. She has some great tips that we know will inspire you. Read Morgan’s story: bit.ly/3HRWaWn Donate here: bit.ly/3HVtDPQ #aortaED #research #genetic #marfansyndrome #ACTA2 #SMAD3 #loeysdietzsyndrome
Tomorrow! Join us Nov 23, 2pm ET. A great opportunity to learn about new aortic guidelines and ask questions. Event is free, registration is required. Register Here! bit.ly/3EpMFuf @DiannaMilewicz @jenn_cy_chung #aortaED #aorticdisorders #marfan #ACTA2 #vEDS #LDS #SMAD3
Important NEW AORTIC GUIDELINES Join our webinar Nov 23 for a special presentation at 2pm ET. @DiannaMilewicz & @jenn_cy_chung . Learn about the new guidelines and ask questions. Event is free, Register Here! bit.ly/3EpMFuf #aorta #aortaed #marfansyndrome #ACTA2
Important NEW AORTIC GUIDELINESJoin our webinar Nov 23 for a special presentation at 2pm ET. Dr. Dianna Milewicz & Dr. Jennifer Chung. Learn about the new guidelines and ask questions. Event is free, Register Here! bit.ly/3EpMFuf #aorta #aortaed #marfansyndrome #ACTA2
@WomenAs1 If a woman achieves a prestigious position/award, don’t ever think - let alone say in her face - “it is BECAUSE she is a woman”
So proud of my friend - outstanding clinician + scientist @ShaineMorris1 for being recognized by @MarfanFdn. Your patients and fellow aortic nerds are grateful for your work and advocacy! @TexasChildrens @MACAorta @ThinkAorta @VEDSMovement @AorticDisorders
So proud of my friend - outstanding clinician + scientist @ShaineMorris1 for being recognized by @MarfanFdn. Your patients and fellow aortic nerds are grateful for your work and advocacy! @TexasChildrens @MACAorta @ThinkAorta @VEDSMovement @AorticDisorders
There is still time to REGISTER for our Aortic Dissection Awareness Virtual Event on tmrw, September 26, 3–5pm ET/2–4pm CT! Hear from @OuzounianMD, @DiannaMilewicz, Dr. Sara Thorne, & Dr. Michelle Keir about all things Aortic bit.ly/3RYlImI #aortaed #aorticdissection
To honour Aortic Dissection Awareness Day today, join us for our Virtual Event on September 26, 3-5 pm ET. Hear from 4 aortic experts who will discuss aortic dissection & awareness topics. Register is Free bit.ly/3RYlImI #aorticdissection #GAD #aorta
@OuzounianMD presenting @MACAorta data on TGFB variants @MarfanFdn international symposium. Lifelong surveillance is warranted in this population @DiannaMilewicz @ShaineMorris1 @scottlemaire @judbacke
Laura Muiño presenting results on #Mitralvalve disease in #HTAD 📍MV disease varies by gene (TGFB>>SMC) 📍Pts with MV disease present less freq with #aorticdissection& undergo more preventive Ao surgery Data from the @MACAorta consortium led by @DiannaMilewicz @GenTACAlliance
Amazing time in Paris having fun too! Thank you @MarfanFdn, @DEFY_Foundation, and @GenTACAlliance! @SaraStephens29 @ShereneShalhub @OuzounianMD
Great aortic abstracts from the TCH team! #scienceinparis @MarfanFdn @SaraStephens29 @DiannaMilewicz @MACAorta @AorticDisorders
Day 2 at #scienceinparis all about Genetic Aortic Disorders - the latest research and ideas. So much knowledge and expertise in this room! @AorticDisorders @MACAorta #patientsupport #advocacy #marfan #LDS #SMAD3 #ACTA2 #TGFB
Dr. Michelle Bendeck�.. @BendeckBendeck
563 Followers 513 Following Mad Scientist @trogersresearch and @LMP_UOFT, Vascular Cell Biology, Mad Skier⛷ , Bike Riding Pinko 🚲, “over-educated woman”
Tiffany Dages @TiffanyDages
975 Followers 4K Following Lifelong vEDS warrior🦓 7th gen Floridian 🍊mom 💐hospice volunteer🤗 Dem💙
ACTA2 Alliance @Acta2Alliance
45 Followers 519 Following Supporting families living with Multisystemic Smooth Muscle Dysfunction Syndrome #MSMDS #UltraRare #ACTA2 mutation https://t.co/z2DSxXACs3
Pedro J. Furtado Neve.. @Pedro_FNeves_MD
959 Followers 3K Following Current Postdoctoral Vascular Surgery Research Fellow University of Colorado AMC ⛰️ Proud '22 grad from @UFPR Medical School 🏛️ Opinions my own. 🇧🇷🇦🇷🇺🇸
kiki @KikiWang94
95 Followers 242 Following software engineer currently working on health care industry and I'm also a copycat
Lindsey Lab @lab_lindsey
786 Followers 542 Following Elucidating estrogen receptor pharmacology to improve quality of life and reduce disease in aging women.
د. سالم آل ع�.. @Salems_01
534 Followers 750 Following طبيب سعودي مبتعث للزمالة الألمانية في جراحة الأوعية الدموية والقسطرة التداخلية 🇩🇪 | شغوف بالبحث العلمي | عضو الجمعية الأوروبية لجراحة الأوعية الدموية🩸
Allawy @Allawy_egibra
55 Followers 770 Following
Hernando Thorne Velez.. @NandoEnriqueTV
880 Followers 3K Following General Surgery Chief Resident, Researcher & Sportsman |@StopTheBleed Instructor |@Ascolcirugia @RASACS @AmCollSurgeons Member |@Grincircar
Kim de la Cruz, MD FA.. @AortaSurg
7K Followers 4K Following Cardiothoracic Surgeon| Section Chief of Aortic Surgery| Div of Cardiac Surgery| Dept of Surgery| Brigham & Women’s Hospital| Opinions are my own
Kyleigh Sibel @KyleighSib19377
44 Followers 5K Following
Polona @PolonaLeQS
114 Followers 647 Following genomics, variant analysis, rare diseases, inherited cardiac diseases
Loeys-Dietz Canada @LDSFCanada
108 Followers 97 Following Encouraging education and research, and supporting the LDS community. Favoriser l’éducation et la recherche, et fournir un soutien à la communauté LDS.
CLARITY-Collab for Lo.. @CLARITY_aorta
8 Followers 33 Following collaborative research study to better understand hereditary aortic and arterial disease in the young
Guan Pujun @guanpujun
85 Followers 311 Following PhD student @ GSBS, MDACC & UTHealth Views are my own he/him/his
Grace K @girl_turners
8 Followers 162 Following woman living with Turner Syndrome and Aortic Dilation . Charity fundraiser & volunteer. Tweeting a lot about genetics & Aortic Dissection to raise awareness.
sarah dukellis @Sweny04
3 Followers 44 Following
Carlota Fernandez Pre.. @CarlotaFPrendes
397 Followers 659 Following Vasc Surgeon @LMU_Uniklinikum, #FEBVS, Assoc Editor @EJVES_ESVS, PhD @UppsalaC and @LMU_Uniklinikum. #aorta #aortaed #dissections #carotid #CLI #MedEd
Marie Billaud, PhD @MarieBillaud
833 Followers 1K Following Pronounce Bee-Yo | Interested in all things vascular | @BrighamThoracic by way of @UVACVRC and @UPMC_CTSurgery | 🇫🇷 Expat | Mental health advocate
Meg Ryan @megryan84
172 Followers 624 Following Some combination of bats, Halloween, activism, and more bats... "Life's no piece of cake, mind you, but the recipe's my own to fool with."
Sachiko Kanki @SachiSachi55611
144 Followers 179 Following I work at Dept. of Thoracic and CV Surgery in Osaka Medical and Pharmaceutical University and see patients with the clinical genetics knowledge and Kampo.
Afsheen Nasir, MD @AfsheenNasirG
136 Followers 566 Following Postdoctoral Research Scholar at the Aortic Institute, Yale New Haven Hospital. Aspiring surgeon scientist. Human before all else. she/her
OHSU Vascular @OHSUvascular
1K Followers 1K Following The division of Vascular Surgery @OHSUsurgery, Portland, Oregon. @leodaabmd @robmclafferty @amanipmd @JungEnjae @RhusheetPMD @khanh_Nguyen_md @ShereneShalhub
Puja Kachroo @PujaKachroo
797 Followers 713 Following Cardiac Surgeon, Co-Director of WashU Aortic Ctr, Co-director of Valve Ctr @WashU_CT @WashUSurgery. Travel & art enthusiast.
Ian Cook @IanCookVS
463 Followers 865 Following Vascular Surgery Resident @BCM_surgery | UVA MD | Yale BME | Puertorriqueño 🇵🇷 | ⚾️🎸
James Butler @Jimfred63
496 Followers 1K Following Conservative Roman Catholic husband, father and grandfather. Guitar aficionado, pizza connoisseur, Ohio State football.
Rocha Neves @RochaNeves2
712 Followers 2K Following Vascular Surgery MD, MPH; PhD, FEBVS; Invited assistant at FMUP; Secretary General SPCCTV; Invited Editor PJCTVS
Ryan Rodarmer, MS �.. @3rsCardioGC
838 Followers 942 Following Director @VEDSMovement, @MarfanFdn | Veteran Cardio GC | Type A #AorticDissection Survivor due to #HTAD | Opinions are my own. #AortaEd
Arthur Cortez Gonçal.. @GoncalvesCortez
270 Followers 588 Following
GroupLaakkonen @GroupLaakkonen
354 Followers 550 Following Researching the fascinating world of vascular biology. #DiseaseMechanisms #NewTherapies Check out our group's webpage! Tweets by Johanna Laakkonen and group.
Leema_Robert @robert_leema
389 Followers 368 Following Cardiovascular Geneticist at Guys and St Thomas. Aortopathies/vEDS/Inherited Cardiac Conditions. #Marfan #vasculareds #cardiomyopathy
Alana Cecchi @AlanaCecchi
313 Followers 765 Following Assistant Professor at #UTHealth. Raising aortic dissection awareness 1 pedigree at a time. #CardioGen
Kair @AshimKair
16 Followers 218 Following
Dianna Milewicz @DiannaMilewicz
305 Followers 16 Following Physician-scientist @McGovernMed. Expertise in vascular genetics. Director @johnritterprgrm
Dr Andrew Choong PhD .. @DrAndrewChoong
3K Followers 4K Following Vascular, Endovascular and Aortic Surgeon @aavcsg | Aspiring jazz fusion guitarist @doclearnstorock | May be a BJJ black belt before 50? @berimbodohbjj
David Michaud @bulldawg_170
4K Followers 359 Following
Liz Chou @LizChou
729 Followers 848 Following Vascular surgeon @CedarsSinai @SmidtHeart Institute via @MGHVascular @MGHCVRC | wife & mom of boys | 🥖🍞🍻 lover | sometimes 🏃🏻♀️
Alex Maynez @AMAYNEZR
156 Followers 321 Following Consultant Cardiovascular surgeon, husband, father to four amazing kids, lifelong blues fan.
Jan Nijs @JanNijs7
134 Followers 340 Following Cardiac and Aortic Surgeon; Sportsmedicine - unique combo, isn’t it? ;)
Mittal Monica @MittalMonica1
118 Followers 406 Following Cardiovascular surgeon, completed EACTS Fellowship, PhD candidate, mom of 1🧚🏼♂️, tennis fan.
Marfan Trust @MarfanTrust
2K Followers 958 Following Founded in 1988, the Marfan Trust supports patients & funds research into the cause & prevention of Marfan syndrome, a connective tissue disorder.
GenTAC Alliance @GenTACAlliance
499 Followers 679 Following Committed to advancing the understanding of genetically triggered thoracic aortic diseases & their treatment. Powered by @MarfanFdn. #aortaed #aorticdissection
Sara Stephens-Novy, P.. @SaraStephens29
177 Followers 432 Following pediatric epidemiologist | interests include #geneticepi, health outcomes research, maternal & child health, SDoH, advocacy | opinions are my own
101 Genomes Foundatio.. @F101Genomes
249 Followers 560 Following F101G | Genomics for Rare Diseases #genomics4rarediseases #marfan
Dr Ari Horton @heartfulpaeds
1K Followers 814 Following Paediatric Cardiology. Genetics. Aid work & research. Medical ethics & education. Humanity & Compassion. Advocacy & Art in Medicine. All views are my own.
Adham Ahmed @Adham_Ahmed_64
571 Followers 487 Following MS3 Student @ CUNY School of Medicine TSMA Research Committee Chair
Alana Cecchi @AlanaCecchi
313 Followers 765 Following Assistant Professor at #UTHealth. Raising aortic dissection awareness 1 pedigree at a time. #CardioGen
European Society of C.. @escardio
145K Followers 2K Following European Society of Cardiology. Join us also on @ESC_Journals @ESCAdvocacy @ESCardioNews @ESC_President. #ESCCongress #ESCGuidelines #ESCTVToday #ESCDigital
GenTAC Alliance @GenTACAlliance
499 Followers 679 Following Committed to advancing the understanding of genetically triggered thoracic aortic diseases & their treatment. Powered by @MarfanFdn. #aortaed #aorticdissection
Nairy Khodabakhshian @_NairyKh
214 Followers 321 Following PhD Candidate at @UofTIMS @sickkids | Studying cardiovascular responses to exercise in pediatric Marfan and Loeys-Dietz Syndrome🫀 | Views are my own | 🇦🇲🇨🇦
Lindsey Rusche @duchesslinz
102 Followers 413 Following Canadian/Brit music lover, patient advocate, financial communications pro with feisty opinions and heart of gold
Babraksayedzada MD @Babraksayedzad2
308 Followers 914 Following Consultant Cardiothoracic surgeon and lecturer PGME director at FMIC Heart Valve,CABG, and congenital heart surgeries
Marfanov Sindrom 🇸.. @MarfansyndromeS
462 Followers 285 Following #Awareness #MarfanSyndrome #EhlersDanlosSyndrome #LoeytzSyndrome #BealsSyndrome #RareDissease 📩[email protected]
101 Genomes Foundatio.. @F101Genomes
249 Followers 560 Following F101G | Genomics for Rare Diseases #genomics4rarediseases #marfan
Sergi Bellmunt @sbellmunt
2K Followers 554 Following Head of Department of Vascular Surgery, Hospital Vall d’Hebron. Professor Agregat UAB. Hospital Quiron Dexeus @vascudex https://t.co/RGEVG1sk8h
Firas F Mussa (he/him.. @UnTBAD
746 Followers 70 Following Surgeon-Trialist, Fact-checker and cynic 🇮🇶🇺🇸🇬🇧
William Frankel @williamcfrankel
2K Followers 2K Following Integrated CT Surgery Resident @ClevelandClinic via @bcmhouston and @umich | Californian 🌴
Lacey Benoit @gene_lace
132 Followers 342 Following 🫀Genetic Counsellor🇨🇦.🧬Genetics nerd. Mom. Farm girl at heart. Tweets are my own.
Kim Eagle @keaglemd
12K Followers 10K Following Editor, https://t.co/M0zlA4o2GO; Director-University of Michigan Frankel Cardiovascular Center; 'All opinions are my own'
Grayson Wheatley @DrWheatley
3K Followers 5K Following Have you given up on staying current with the latest aortic-focused research?
Professor Lara Bloom @LaraBloom
8K Followers 1K Following President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
The Ehlers-Danlos Soc.. @TheEDSociety
24K Followers 6K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
CSCS @cscs_sccc
884 Followers 352 Following Official Twitter account for the Canadian Society of Cardiac Surgeons. Register for our Spring Meeting https://t.co/DtzcYmkcLB
Graham Cooper @GrahamTADCT
361 Followers 317 Following Trustee of The Aortic Dissection Charitable Trust @AorticDissectCT, the first #aorticdissection focussed UK charity.
Jondeau guillaume @JondeauG
121 Followers 20 Following Cardiologist Coordinator of @vascern and @favamulti and Centre de Référence pour le syndrome de #Marfan et apparentés, co-chair of team 2 LVTS U1148 @inserm
RCEM Events @RCEMevents
7K Followers 894 Following Find out all the latest information about The Royal College of Emergency Medicine's conferences, events and study days.
Scott LeMaire @scottlemaire
2K Followers 449 Following Cardiothoracic surgeon-scientist interested in aortic disease, scientific peer review, research training, and academic career mentorship
Matthew Solomon @MDSolomonMD
354 Followers 400 Following Cardiologist and Researcher at The Permanente Medical Group. Director, KPNC Center for Thoracic Aortic Disease. Views are mine.
Julie De Backer @judbacke
1K Followers 503 Following Genetic Cardiologist @uzgent @ugent | Interest in #ACHD and #Marfan | FESC @escardio
Dianna Milewicz @DiannaMilewicz
305 Followers 16 Following Physician-scientist @McGovernMed. Expertise in vascular genetics. Director @johnritterprgrm
Sacha Bhatia @sacha_bhatia
4K Followers 774 Following Population Health and Value Based Care Executive, @OntarioHealthOH @UofT_DoM. Cardiology University Health Network.
Joseph Coselli, MD @JCoselli_MD
7K Followers 1K Following Professor, Executive Vice-Chair Division of Cardiothoracic Surgery, Michael E. DeBakey Dept of Surgery, Director Thoracic Surgery Training Program @BCM_Surgery
Dr Andrew Choong PhD .. @DrAndrewChoong
3K Followers 4K Following Vascular, Endovascular and Aortic Surgeon @aavcsg | Aspiring jazz fusion guitarist @doclearnstorock | May be a BJJ black belt before 50? @berimbodohbjj
Vascupedia @Vascupedia_com
6K Followers 5K Following VASCUPEDIA is a unique e-learning platform for #Vascular #Medicine. It is free, international and combines all in one: Be a Vascupedian #vasculareducation
Gareth Owens @Icarus1054
1K Followers 1K Following #AorticDissection survivor thx to @NHSBartsHealth. Dacron inside by @TerumoAortic. #PatientLeader, Chair @AorticDissectUK & the global @THINK__AORTA campaign.
The VEDS Movement @VEDSMovement
666 Followers 573 Following Through research, education, and support, The VEDS Movement, a division of The @MarfanFdn, charges forward to improve the outcomes for those living with VEDS.
vEDS Collaborative @vEDSCollabo
656 Followers 543 Following #patientengagement to advance #VEDS patient-centered outcomes research and #VEDS Collaborative Natural History longitudinal study. #HTAD #dissection #aorta
Loeys-Dietz Syndrome @LDSFoundation
923 Followers 81 Following Encouraging education, fostering research, and providing support for the Loeys-Dietz community.
Loeys-Dietz Canada @LDSFCanada
108 Followers 97 Following Encouraging education and research, and supporting the LDS community. Favoriser l’éducation et la recherche, et fournir un soutien à la communauté LDS.
TheMarfanFoundation @MarfanFdn
5K Followers 2K Following The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.
Aortic Dissection Col.. @ADCollab
2K Followers 3K Following Funded by @PCORI to engage patients at risk for and with aortic dissection, and stakeholders in aortic research prioritization. #aorticdissection #aortaEd
Terumo Aortic @TerumoAortic
1K Followers 38 Following Committed to Aortic Care. Terumo Group Social Media Guidelines: https://t.co/3qEbhHwV1a
Timo T Soderlund @ADsept19
2K Followers 1K Following SWE/FI dad, dog lover, husband. AD type A / BAV survivor. Passionate on #aorticdisease #aortaEd #BAV #prevention #FTAD #FTAAD #HTAD and #cardioObstetrics
Terri Lohnes @Leslieville
70 Followers 534 Following
Josipa Paska @FociJo
4 Followers 9 Following
Sherene Shalhub MD MP.. @ShereneShalhub
4K Followers 3K Following Division Head @OHSUvascular, aortic surgeon @OHSUsurgery, researcher, educator, patient advocate. @ADCollab @VEDSCollabo. Opinions are mine
Shaine Morris MD MPH @ShaineMorris1
1K Followers 571 Following Pediatric and Fetal Cardiologist, Epidemiologist, Cardiovascular Genetics, Cardiovascular Imaging, Aortic and arterial nerd, Advocate (She/Her)
GADACanada @AorticDisorders
538 Followers 248 Following Embracing all Genetic Aortic Disorders - Awareness, Support, Education, Research & Resources for Patients, Families, & Health Care Professionals
Aortic Dissection Cha.. @AorticDissectCT
7K Followers 2K Following Saving lives by improving the diagnosis of #aorticdissection, bringing treatment consistency across the whole patient pathway #AortaEd, policy change & research
VASCERN @vascern
2K Followers 636 Following Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
Think Aorta US @ThinkAortaUS
1K Followers 328 Following Aortic Disease Awareness Campaign for early diagnosis of aortic dissection and aneurysm to improve outcomes from aortic disease
Think Aorta @ThinkAorta
3K Followers 1 Following The petition focused on saving lives by increasing the identification & early diagnosis of AD in Emergency Medicine. Help us to drive that change #thinkaorta
Aortic Dissection Awa.. @AorticDissectUK
3K Followers 2K Following The national patient charity for #AorticDissection. Raising awareness, providing support, improving care, enabling research. Registered charity number: 1198617Today, we announce the launch of THINK AORTA Canada! Join #GADACanada’s Patient Lead Lindsey Rusche and global THINK AORTA leader Gareth Owens in Booth #22 today at the 104th AATS ANNUAL MEETING to learn more. gadacanada.ca/news/2024/4/27… @MACAorta @AATSHQ #AATS2024 #thinkaorta
Join us at Booth #322 at the AATS ANNUAL MEETING to learn more about the life-saving #THINKAORTA campaign and its launch in Canada! More information here: gadacanada.ca/news/2024/4/27… @MACAorta @AATSHQ #AATS2024 #aortaed
Great to see @MACAorta mentioned at the 2024 @AATSHQ Aortic Symposium in New York. GADA Canada represented MAC at the launch of THINK AORTA Canada at the 104th #AATS2024 Annual meeting in Toronto. Such a pleasure to have @OuzounianMD & @scottlemaire come by our booth. #thinkaorta
Several great tables in the exhibit hall at #AATS2024 but this is be favorite by far 🫀Come visit @THINK__AORTA @AorticDisorders table now to learn more about the amazing initiative starting in Canada led by survivors with hearts of gold. Thank you for the work you do.
HAD 2023 brought together the people who live with and the people who work with Aortic Disorders. Thank you to the planning committee for bringing this inspiring event to our community! We are proud sponsors of this remarkable symposium. #HAD2023
@OuzounianMD discussing aortic root repair in #MFS & other #genetic aortopathies. @AorticDisorders @LDSFCanada
Wonderful learning among surgeons, geneticists, genetic counselors, cardiologists, psychologists, and mfms at the 3rd Heritable Aortic Symposium in Halifax! @OuzounianMD @ShereneShalhub @DiannaMilewicz @AorticDisorders @LDSFCanada #marfan @MarfanFdn #loeysdietz @TCHheartcenter
Great last session of the day on stent grafts in HTAD, management of arteriopathy, gene-informed decisions, and most importantly the patient voice. #HAD2023 @AorticDisorders @LDSCanada @ShereneShalhub
New Webinar! SMDS & Cardiology. March 29, 5 pm ET. Brought to you from GADA Canada & JRF. Hear from Dr. Angela Yetman about caring for this unique disorder. Register free here: bit.ly/3ZdHrd9 #ACTA2 #SMDS @AorticDisorders @MACAorta @JohnRitterFdn
Inspiring to listen to @magboo_rena from @NHSBartsHealth speaking at #SCTS2023 about her research into the psychosocial aspects of the #aortovascular manifestations of #Marfan syndrome, which will improve care for patients like me. @MarfanTrust @MarfanFdn @AorticDisorders
Happy 25th Anniversary of world leading cardiovascular care @PMunkCardiacCtr @UHN_Surgery @UHN Can’t wait to see what the next 25 years bring!
This #HeartMonth we’re celebrating 25 years of doing #WhateverItTakes for our patients. From surgeons to scientists, nurses to lab techs, fellows to med students, our teams are determined to improve the lives of individuals living with #HeartDisease in Canada & around the world.
A special message from Terri Lohnes, GADA's newest Board member as to why she support GADA's essential aortic research programs like @MACAorta and believes patient advocacy is vital. Read Terri's message: bit.ly/3jHVqJq Donate Here: bit.ly/3WWMCxq #aortaED
Recently Morgan Story shared why she fundraises for GADA. She has some great tips that we know will inspire you. Read Morgan’s story: bit.ly/3HRWaWn Donate here: bit.ly/3HVtDPQ #aortaED #research #genetic #marfansyndrome #ACTA2 #SMAD3 #loeysdietzsyndrome
Tomorrow! Join us Nov 23, 2pm ET. A great opportunity to learn about new aortic guidelines and ask questions. Event is free, registration is required. Register Here! bit.ly/3EpMFuf @DiannaMilewicz @jenn_cy_chung #aortaED #aorticdisorders #marfan #ACTA2 #vEDS #LDS #SMAD3
Important NEW AORTIC GUIDELINES Join our webinar Nov 23 for a special presentation at 2pm ET. @DiannaMilewicz & @jenn_cy_chung . Learn about the new guidelines and ask questions. Event is free, Register Here! bit.ly/3EpMFuf #aorta #aortaed #marfansyndrome #ACTA2
Important NEW AORTIC GUIDELINESJoin our webinar Nov 23 for a special presentation at 2pm ET. Dr. Dianna Milewicz & Dr. Jennifer Chung. Learn about the new guidelines and ask questions. Event is free, Register Here! bit.ly/3EpMFuf #aorta #aortaed #marfansyndrome #ACTA2
We hope you had an excellent meeting @Icarus1054 @vdiazucl . The Liverpool team were disappointed to miss it. Train travel from North-South is getting very challenging in the current climate 😔 we hope to watch a recording and participate in the future @jill_madine @LHCHFT
We started off the day hearing survivors Anne Cotton & Simon Jones tell their stories. Aortic Dissection patients are the inspiration & drive behind all the work that we do. Thank you for sharing your stories with us❤️ @cottonclan @Icarus1054 @AorticDissectUK #ADAUK2022
Tomorrow morning!! This will be a great webinar on gene-guided management of aortic disease with experts @scottlemaire @DiannaMilewicz @PujaKachroo @JElefteriades et al Join us! @AATSED @MarcMoonMD @BCM_Surgery @JohnRitterFdn @TSRA_official @AorticDisorders @MarfanFdn
Join us NEXT Wednesday, November 2, 8:00AM ET for a live Adult Cardiac Webinar: Gene-Guided Management of Aortic Disease. Learn more bit.ly/3FvBjH5 #AATSGlobalGrandRounds @OuzounianMD @PujaKachroo @JElefteriades @scottlemaire @BCM_Surgery @DiannaMilewicz @McGovernMed
@vascern days in #paris kicked off! Looking forward to 2 days of networking and exchanging #sharecarecure ideas! @JondeauG @MiikkaVikkula @MaryanneCaruana @CardioRoland @giselateixido @robert_leema @deMoya_Elena
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