Dr Sarah Russell RN @LearnPEOLC
Own Views Nurse Consultant Trust Lead Palliative & End of Life Care @PHU_NHS @PHU_PEOLC NED EOL Integrator @socfink #FNFAlumni Former Family Carer #dementia Hampshire,UK Joined May 2012-
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@PatientExpPHU @ALWainwright1 @anntham34 @Suemetcalfe12 @VoluntaryPHU @FLO_PHU @PHU_NHS @hcdocherty1 @LearnPEOLC @SheebaBabuPHU @A_HutchingsPHU @AshinMerlin Staff led patient experience improvements. Love it #alwaysimproving #whatmatterstome
@fjw2810 @PatientExpPHU @anntham34 @Suemetcalfe12 @VoluntaryPHU @FLO_PHU @PHU_NHS @hcdocherty1 @LearnPEOLC @SheebaBabuPHU @A_HutchingsPHU @AshinMerlin Sounds great Fiona. I am sure that can be arranged 🙂
@PatientExpPHU @anntham34 @Suemetcalfe12 @ALWainwright1 @VoluntaryPHU @FLO_PHU @PHU_NHS Would be great to see some of your ambassadors share their poster at either our support worker or Nurse conference later in the year @hcdocherty1 @LearnPEOLC @SheebaBabuPHU @A_HutchingsPHU @AshinMerlin
Advance care planning has become synonymous with end of life “ACP Medications” Future care planning should signal a rethink and reset including how medical professionals communicate these decisions to one another bmj.com/content/385/bm…
Working on a chapter on changing preferences around place of death. Any historic/ethnographic papers people would recommend? RT appreciated!
Fantastic opportunity to make a difference. If you are an experienced nurse leader who is energised by a fast paced environment and have a passion for emergency care please take a look.
Fantastic opportunity to make a difference. If you are an experienced nurse leader who is energised by a fast paced environment and have a passion for emergency care please take a look.
Latest UK Multidisciplinary Guidelines on the management of Head & Neck Cancer have just been published Fantastic resource with up to date knowledge Delighted to have contributed with @rabinpsingh on cancer treatment complications chapter Link 👇 bit.ly/4apTSsF
Let's reduce stigma, not promote it. People with dementia can still live full lives with lots of moments of joy. Please share for a little Friday positivity - youtu.be/4eK38A3SfRU?si… @bekbythesea @DrGrantGibson @katiedee1987 @JamesEmmett93 @JillianClaireQ2 #PositiveVibes #Alzchat
We cared for Mum for many years. I often describe watching her growing down as my children were growing up. I remember thinking (now and again) I’ve lost a bit more of you today but I never thought of her as dead or dying. Throughout she never stopped living or being my Mum.
@IAmJessPlant @alzheimerssoc Was a carer for my grandma with dementia for years and while we experienced grief bc of sone of her changes and losses, much that was her evolved and endured. The wording is really bad. There can be grief without death and that can actually make it more harrowing.
Do these messages help motivate public support to invest in social care? Do they encourage people to seek earlier diagnosis to avail themselves of new treatments? Do they challenge stigma, help people live as well as possible? Do they help us as families, or traumatise us?
And what is the point of a charity that spreads such ideas about its supposed beneficiaries? Who are its supposed beneficiaries? Who is it listening to and being guided by and to what ends?
What is this ad encouraging us to believe is possible, or morally right, or to do. What of the day we all made Sunday lunch together, with mum. What of the way we helped her dress in her favourite outfits. What of the way we helped her be and feel alive, not dead?
Instead, she's was just dead to them, because these emblems of her identity and theirs were dead & nothing could be done. Do we say this after someone has had a stroke? Or has cancer? Or MND? Or do we accept change, step up, be there for them, hold *their* identity?
It talks about her 'dying' at the point she could no longer remember how to make her 'legendary Sunday roast' or 'put on her colourful clothes', both things her family or professionals could support her to do to 'hold her' identity (and theirs).
And that's why I find the new @alzheimerssoc ad so objectionable. The mum is described as having died several times over, as though in sympathy with what she has endured. Yet it is actually centred entirely on the feelings of everyone else
And so, however hard it might feel and be (and it is), I think our moral obligation to people living with dementia is to do that 'holding' - to reaffirm the person's identity and humanness, even when that means putting aside our own needs for that same reaffirmation from them.
And as Hilde Lindeman said, it's not only relationships but also '‘Familiar places and things, beloved objects, pets, cherished rituals, one’s own bed or favourite shirt, (which) can and do help us to maintain our sense of self.’
Music doesn't 'bring back memories', it conjures and reaffirms and reminds us of who we are. That's the function of important relationships too. They 'hold' our identity.
But what of the direct experience of dementia itself. Most often its talked of as loss of memory. But I think it's really about loss of the identity we are able to construct through memory - the accumulation of all that we've been and are. That's why music is so powerful
Kathryn Mannix @drkathrynmannix
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683 Followers 773 Following Dad, Husband, Scientist, Clinician #cachexia #inflammation @edinunimedicine @Edinuni_igc @nhs_lothian @edicancercentre@PatientExpPHU @ALWainwright1 @anntham34 @Suemetcalfe12 @VoluntaryPHU @FLO_PHU @PHU_NHS @hcdocherty1 @LearnPEOLC @SheebaBabuPHU @A_HutchingsPHU @AshinMerlin Staff led patient experience improvements. Love it #alwaysimproving #whatmatterstome
@fjw2810 @PatientExpPHU @anntham34 @Suemetcalfe12 @VoluntaryPHU @FLO_PHU @PHU_NHS @hcdocherty1 @LearnPEOLC @SheebaBabuPHU @A_HutchingsPHU @AshinMerlin Sounds great Fiona. I am sure that can be arranged 🙂
@PatientExpPHU @anntham34 @Suemetcalfe12 @ALWainwright1 @VoluntaryPHU @FLO_PHU @PHU_NHS Would be great to see some of your ambassadors share their poster at either our support worker or Nurse conference later in the year @hcdocherty1 @LearnPEOLC @SheebaBabuPHU @A_HutchingsPHU @AshinMerlin
Annual team FLO fish’n’chips supper at the beach hut last week 🎉🎉 the chilly, damp weather didn’t deter us from enjoying a belated Easter Egg 🐣 hunt - a choc reward makes it worthwhile! @PHU_NHS ❤️ the beach hut ❤️#proudtobeaFLO #proudtobePHU @PatientExpPHU
@ProfBrendan @ChristineStirl2 @debraejackson @salamonson @KarenLeigh10 @syd_health @CDNMANZ @uniaus @nhmrc @TomBuckley6 @PCP_ICoP @GriffithNursing Thank you all, I’m embracing the PhD environment for nurses as multidisciplinary including working with industry. Nursing does need to cast its net wider!
I know Ive tweeted this a bit this week but its just the best news! The work over the last couple of years @theRCN has done makes it feel much more like a Royal College
NEW | Professor Jane Ball will lead the new RCN Institute of Nursing Excellence. Through the Institute, we’ll support members to be strong advocates for patients and colleagues, and brave leaders in innovation and research. Find out more ⬇️ rcn.org.uk/magazines/News…
Advance care planning has become synonymous with end of life “ACP Medications” Future care planning should signal a rethink and reset including how medical professionals communicate these decisions to one another bmj.com/content/385/bm…
I do hope the crucial conversations about Hospice funding include the importance of all Palliative Care provision. To ensure that anyone, wherever they are, whoever they are, has equitable access to high quality holistic care when they need it most
So delighted and proud - Congratulations Tina - you’re awesome 🎉🎉🙌🙌 #proudtobeaFLO #proudtobePHU
Congratulations to our fabulous Family Liaison Officer Tina 🥳 #ProudToBePHU
Agreed but also hospitals 🏥 because that’s where the end of life care and #palliativecare is a core business 👨🏼💼
Did you know that payroll costs for UK hospices have surged by 11%, equating to £130 million in additional spending? We’re joining @hospiceuk to call for a new model to fund end-of-life and palliative care
We are shocked and saddened by the terrible events in Sydney earlier today. Our thoughts are with all those affected, including the loved ones of those lost and the heroic emergency responders who risked their own lives to save others. W & C
I’m calling BS on this.
🛑 A conversation with Nurse Practitioner in ED: ⛔️N: I’ve got 20 years of experience and gonna go for PhD in Philosophy. ⛔️Me: Smashing, but why? ⛔️N: To get the “Dr” title on my badge. ANPs have same PAs logic, spending 4yrs on PhD (misleading pts) to avoid Med School !
This year it is sadly 10 years since Seth died since then I have been raising awareness of pancreatic cancer by using purple the colour assigned to pancreatic cancer people send me pictures of purple things and say it reminds me of you Seth and pancreatic cancer #sethslegacy
Easter plans: -Have a quick tidy -Mow lawn (unless it rains, which is likely) -Do big shop -Possible traffic jam -Shoddy DIY for 10 minutes -Hide some chocolate -Find the chocolate -Eat the chocolate -Feel a bit sick -Get stressed cooking a big thing for family -More…
Good Morning 😊 I had to end the Spring / Easter theme with a little chick. Happy Easter to those who celebrate. Hoping you all have a lovely day and a wonderful break 😊
This is a great video @alzheimerssoc but the other slow death video needs to be taken down as it undermines and contradicts the message in this one and will stop people from seeking a diagnosis. Please listen, the slow death video is harming people and damaging your reputation.
A dementia diagnosis can be daunting, but it’s better to know. If you see signs of dementia in a loved one, show them your support and encourage them to take the first steps in seeking a diagnosis. Download the symptoms checklist below. #SupportTheSupporters
What a boost when you see and hear your name mentioned on the ITV Granada Weather displaying the photo I took this morning at 6.42am Achieved while LIVING with dementia.