Kruzn For A Kure Foundation @Kruznforakure
Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD. kruznforakure.org Alabama, USA Joined August 2016-
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Today is #NationalNonprofitDay! Celebrate #NationalNonprofitDay with us by helping to spread awareness about our mission! Today we challenge you to reach out to your friends and share your reasons for supporting KFK! ❤️
DID YOU SEE THIS?? 👀👀👀 ❕SEPT 6TH, LABOR DAY❕ Mark your calendar 📆 and FOLLOW Handy on the H20 on FB and Instagram!!! Details to come! BENEFITING KFK!!! 😍
Someone's birthday is coming up next month....... Is it Paizlee or Kruz's?! ☀
Hope you're having a splashin' good Saturday! ☀ Don't forget about our mystery bags! They are almost S O L D O U T!
WOW! Thank you for shopping AmazonSmile and choosing KFK as your charity! 🧡
Truly a Night of Legends ❤️
Don't procrastinate! Get your Night of Legends - Featuring Nick Saban tickets!
Happy Monday!!! ***reminder*** Night of Legends - Featuring Nick Saban tickets can be purchased at both Muscle Shoals First Metro Bank locations!
Tickets are still available for Night of Legends - Featuring Nick Saban! They are stadium seats and $25!
It’s not every day you mail Coach Saban a package! Can you guess what we are sending him to sign for Night of Legends? ❤️🏈🤩
Samantha has been at KFK for ONE YEAR! ❤️ What a challenging year by starting during the middle of madness. She has done nothing but completely excel and bring such a light to KFK as our Fundraising Coordinator. Wish her a happy one year below!
We hope you're having as great of a week as Kruz is pet sitting a gecko!!! 😃 A few updates: 💛 Don't forget to grab a Forget the Frock tee ❤️ Snag your tickets for Night of Legends - Featuring Nick Saban
Does your family have your Forget the Frock tees ordered?
Don't forget to use AmazonSmile and choose KFK as your charity!
Have you gotten your Forge the Frock tee yet?
Take a look a Kruz & Paizlee’s smiles! 😃 Did you know because of SIOD research they have a better chance at a healthier life?! You can make an impact on SIOD research this Easter by purchasing a Forget the Frock tee! 💒🐰🐣 Tees can be purchased on our website.
We are changing the future of those with SIOD. #siod #raredisease #research #stanford
FORGET THE FROCK! A movement of people choosing compassion over fashion. Ditch the suit. Hang up the fancy dress and the desire to impress. This Easter, snag a t-shirt to support SIOD Research. Do you love our tee this year? Drop a 💙
Did you know KFK started by selling $5 bracelets? NOW we are able to keep SIOD research funded. We have an exciting announcement on Rare Disease Day... Can you guess what it is?? Rare Disease Day is this Sunday! February 28, 2021 #siod #raredisease #research #funding
Dr. Denise Woods @Dr_Denise_Woods
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1K Followers 2K Following Proud public school retiree!!! UA, UNA, & Samford alum. Blessed wife and mom. Phil. 4:19 (*Comments reflect my personal opinion.)
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Parents Raise $3 Million to Save Their Kids' Lives from Fatal Form of Dwarfism: 'We'd Do Anything' people.com/health/parents…
Of course, you can always start teaching English to Asian children, that's already a thing and now we know that they're home with even more time. You don't need to be a teacher to get involved in this. Google is your friend.
The institute's Matthew Porteus is featured in a film about CRISPR coming out next month. Porteus' work to cure #SickleCell uses the technology. It looks like the film captures the excitement of great science. See the trailer: humannaturefilm.com/videos/
Congrats to @DrPhil for getting his “Star” on Hollywood Blvd. Well deserved and honored to be a part of it! @ Hollywood Star Walk instagram.com/p/B82MOT3hwpY/…
Great work being done by CDCM's Co-Director, Matt Porteus and his lab! #cdcm #curingtheincurable #KSgenome #Stanford
Matt Porteus is such a dynamic speaker! He’s discussing his lab’s work on correcting B-thalassemia by editing a-globin into b-globin. This approach will decrease a-globin levels and increase b-globin at the same time #KSgenome
Our Women’s Basketball team is Kruzn for a Kure on February 24th! @CoachTiber is donating $1 per person in attendance at the game. Who will support this great cause with her? #RoarLions
Great work being done by @AliceBertaina! #cdcm #curingtheincurable #stanforduniversity
Successful, safe stem cell transplants are now possible without a fully matched donor. Stanford’s @AliceBertaina presented data on early uses of alpha/beta T-cell depleted stem cell transplant during @MedlabSeries. Learn more: bit.ly/2v5w0Me.
Dr. Lewis and Dr. Alice, SIOD researchers, are wishing Paizlee a Happy Birthday today! 💗 👂Listen close... They share exciting news as to what projects will start when we hit her fundraising goal!
New Funding! Congratulations to Dr. Rosa Bacchetta for receiving Clinical-1 funding from CIRM for the LVFOXP3 IND-enabling studies! #cdcm #curingtheincurable #stanford CDCM News: med.stanford.edu/cdcm/news.html CIRM Press Release: cirm.ca.gov/about-cirm/new…
Did you know? 💚 #dwarfsimawareness
Please read this great paper "Human genome-edited hematopoietic stem cells phenotypically correct Mucopolysaccharidosis type I" recently published by Dr. Gomez-Ospina and Dr. Porteus, Co-Director of the CDCM! #curingtheincurable #cdcm #stanford nature.com/articles/s4146…
SIOD SUPERHERO SATURDAY! 🦸♂️ Meet Leart Dervishaj from Little Ferry, NJ! He was diagnosed with SIOD at 2 years old. He is now 7 and his favorite color changes from blue to green!
Register today for the 2nd Biennial 22q11 Deletion Syndrome Symposium! October 3, 2019. For more info: med.stanford.edu/content/dam/sm… To register visit: eventbrite.com/e/2nd-biennial… #22q11 #digeorge # curingtheincurable #cdcm
@Kruznforakure You guys are amazing. Let us know if you need anything while you're here.
@KylieJenner @TheEllenShow Check out @Kruznforakure to learn about their story and the amazing parents fighting for their amazing children❤️
Kicking off the Color Run @hpelem to benefit @Kruznforakure. $12,934 raised to support SIOD research!! Thank you to all the sponsors and parents who made this happen!
I pray also that the eyes of your heart may be enlightened in order that you may know the hope to which HE has called you, the riches of HIS glorious inheritance in the Saints. Ephesians 1:18
As a father has compassion on his children, so the LORD has compassion on those who worship Him; for He knows how we are formed, He remembers that we are dust. Psalm 103:13-14
(I pray that you) may have power.. To know this love that surpasses knowledge-that you may be filled to the measure of all the fullness of God . Ephesians 3:14
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