Kisstopher #BlackLivesMatter @JustKisstopher
Black, Indigenous, Jewish, PhD Psychology themusicksinjapan.com Aichi-ken, Japan Joined July 2017-
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Hi @usporphyria I have Hereditary coproporphyria and would like to help spread awareness I'm so happy you're here and doing this work
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Kisstopher #BlackLivesMatter retweeted
The countdown is on! Global Porphyria Day 2024 is only a month away. Check out gpac-porphyria.org to find out how you can help spread porphyria awareness! #Porphyria #PurpleforPorphyria #MyPorphyria #GPD2024
Today was a good day despite the vertigo and allergies The Promethazine feels like a miracle even though it does not take away all of my symptoms
Today my allergies are starting to let up a bit but my insomnia is not so still feeling a little wobbly.
More info on what's going on with me. It is my allergies causing the vertigo, nausea, and migraine. The doctors are giving me promethazine tablets to mange the symptoms and my allergies. My sinuses, ears, and eyes are inflamed. It's going to be a rough week. 🥺😷🤕
The promethazine seems to be working a bit better for vertigo and nausea
Wish me luck I am going to trust Dr. Google and take benadryl and advised for my vertigo I will let you know how it goes 😷🤕😱🥺😬
Dr Google says to take an antihistamine but I am worried it will make my symptoms worse Has anyone tried it?
Ok Dr Google says it is more likely my allergies than my lupus causing the vertigo
Do any of my fellow #Lupus folks get vertigo? I know it is rare for us lupus folks but my inner ear and sinuses and inflamed this flare egged on by allergies Any help would be much appreciated
Ok the dry heaves can really stop now
#Disabled folks do you have any tricks for coping with vertigo?
Today the vertigo and nausea continue when they strike due to lupus inflammation in my ears it feels like dying they are so bad and yet I am still able to work I feel very privileged to have a job where I can pick a position and stay there to limit the spins
Heath wise the past 24 hours have been the worst in a long time SHESH
I've started a new venture and am over the moon with my progress today is going to be an amazing day!
It;s weird to me when people decide to be trolls that are so many happier options
What is with this persistent heart burn I dolt have an ulcer just an angry belly
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@JustKisstopher I hd a horrible flare last year that started with vertigo& escalated into me actually losing my hearing on the right ear .My 1st rheum didnt bo WhT was goin on/how to treat me.Thankfully I found a better doctor who explained that the lupus was active and affecting my soft organs
@Defundmedianow @lindeman126 @libsoftiktok How old? I run @usporphyria. Porphyria is a group of 8 diseases not typically picked up on standard testing. I'm happy to help.
The countdown is on! Global Porphyria Day 2024 is only a month away. Check out gpac-porphyria.org to find out how you can help spread porphyria awareness! #Porphyria #PurpleforPorphyria #MyPorphyria #GPD2024
@JustKisstopher You’re definitely right about home cooking helping recovery.
@JustKisstopher Holding you in my heart. ❤️💛💙❤️💛
@JustKisstopher Can’t you eat different things but eat them together?
@JustKisstopher I'm just seeing this and hope you're feeling better. Meclizine is usually the antihistamine of choice for vertigo (and it knocks me on my ass, but I'll take it over being so dizzy I 🤮). Mine was initially caused by a sinus infection that got into my inner ears - labyrinthitis.
@JustKisstopher Wish I could do more to help. I RT so hopefully someone else can help. Best of luck!
@JustKisstopher Nowhere to dislike the post... Im very sorry to hear that
@JustKisstopher @JoannaNoBanana It makes such a big difference!
@JustKisstopher @JoannaNoBanana Me too...if I have the energy!
@JustKisstopher @JoannaNoBanana Last night I was struggling to even watch tv lol
@JustKisstopher @JoannaNoBanana I used to cook all the time before MS, and I miss it. So the fact that I can do it sometimes now (thanks to meds and treatments and physical therapy) is amazing, even if it's now like once a month. Which is so much better than maybe once a year
@JustKisstopher @JoannaNoBanana @carlyfindlay Simple buzz cut because it’s easy with a chronic disease ♿️
@JustKisstopher @JoannaNoBanana It seriously is, very physical! Thank you so much 🥹🥹🥹
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