HDSA - RI Chapter @HDSARIChapter
The Huntington's Disease Society of America is a non-profit organization dedicated to improving the lives of people with Huntington's disease & their families hdsa.org/ri Rhode Island Joined August 2012-
Tweets417
-
Followers541
-
Following702
-
Likes44
Register for HDSA's upcoming #HuntingtonsDisease Research Webinar by visiting register.gotowebinar.com/register/67723… @WaveLifeSci: Developing Potential Treatments to Selectively Lower mHTT WEDNESDAY, FEBRUARY 7th, 2018 12PM EST #HDSAFamily #HDSA50
#HDSAGuthrieSessions Presents @carlyritter Princess of the Prairie #HDSAFamily #HuntingtonsDisease #MusicMonday youtube.com/watch?v=mTlw1g…
hdsa.org/thwri Join Us this Saturday!! 💙
Tune into @OTLonESPN this Sunday at 9am (EST). @JDowell18 & his family's fight vs. #HuntingtonsDisease #HDSAFamily vimeo.com/168998682
Cone join our Boardwalk Bash! #HDSABaltimore fb.me/2uI97ILRq
WE NEED YOUR HELP! If you or someone you know would like to get involved with the HDSA, please let us know!
@paraduxx09 ----Thanks for retweet!
UBC research aims to move closer to cure for#HuntingtonsDisease ow.ly/N4vDa
Healthy #TipTuesday time! Today: tips for finding caregiving help: bit.ly/1FropXc
Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease | fb.me/4YprrPpFX
Visit hdsa.org/ri for more information on support group times and locations!
RI support group meets Tuesday, October 6th with Dr. Frank as guest speaker!
Share your #TuesdayTips with the #HDSAFamily
Scientists adopt new strategy to find Huntington’s disease therapies nih.gov/news/health/au…
@HDSARIChapter many thanks for the follow please retweet cheers Hoops
HD Caregiver's Support Group is meeting on Tuesday, July 28...visit hdsa.org/ri for more information!
RT @LymanOrchards: What a terrific start to the weekend! #PickYourOwn #Peaches, #Blueberries more! @CTvisit @CTApples
HD Caregiver's Support Group is meeting on Tuesday, July 28...visit Hdsa.org/ri for more information!
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
HDYO @HDYOFeed
2K Followers 716 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
Huntington's Disease ... @HDA_tweeting
4K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
UCL Huntington’s Di... @UCLHD
2K Followers 136 Following Committed to training the next generation of scientists and clinicians to contribute to the fight against Huntington's disease 🧬 @UCLIoN
HuntingtonStudyGroup @HuntingtonSG
2K Followers 478 Following Accelerating treatments that make a difference for Huntington's disease.
Huntington's Disease ... @HDAI_ie
3K Followers 4K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/z0BAD0VUeS https://t.co/pPoXkLELx2
Therese Crutcher-Mari... @crutchertherese
624 Followers 393 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a retired healthcare professional & author of Watching Their Dance.
European Huntington A... @EuroHuntington
967 Followers 206 Following We represent Huntington's disease families and Organisations throughout Europe. Insta: @Theeurohuntington
HDBuzz @HDBuzzFeed
6K Followers 2K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @labscribbles @rungenado
HDSA South Carolina @HDSA_SCChapter
2 Followers 29 Following Huntington’s Disease Society of America South Carolina Chapter
GRACE💫 @UltrGraceee
104 Followers 3K Following Babysitter blonde in Rhode Island. Sprite in hand, thighs spread, good girl energy. FREE LINK here. ⬇️ @GraceLyft
Slarghi @Slarghi196710
10 Followers 674 Following
Bonny King @SergejI61118546
686 Followers 2K Following
HDAwareness2024 @HDAwareness2024
367 Followers 4K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #CureHD #CureJHD too.
Patients @Patient24353971
17 Followers 704 Following
myHDstory® @myHDstory
61 Followers 51 Following myHDstory® is an online research project sponsored by the Huntington Study Group® (HSG).
Huntington's Research... @HRGVic
9 Followers 71 Following Huntington’s Research Group Victoria (HRGV) is a collaborative interdisciplinary team of researchers from organisations across Victoria, Australia.
Asociación Corea de ... @HuntingtonCyL
266 Followers 393 Following La Asociación Corea de Huntington de Castilla y León es una entidad sin ánimo de lucro, constituida el 28 de Octubre del año 2000.
Carmelo A.Barga @MeloABarga
280 Followers 1K Following Restaurador de arte, Vicepresidente de la Asociación Enfermedad Corea de Huntington de Castilla y León, Concejal de Ibeas de Juarros.
Factor-H @FactorH_LatAm
338 Followers 208 Following A humanitarian nonprofit founded to diminish the suffering of families affected by Huntington's disease in Latin America
HDSA San Francisco Ba... @HDSA_SF
286 Followers 529 Following Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email [email protected]
VvHuntington (niet ac... @VvHuntington
251 Followers 49 Following De officiële X-pagina van de Vereniging van Huntington. Voor nu is deze pagina niet meer actief. We zien je graag op Facebook of Instagram!
Annelise Bowen @AnneliseBowen
0 Followers 242 Following
Wave Life Sciences @WaveLifeSci
2K Followers 434 Following We are a biotechnology company focused on unlocking the broad potential of RNA medicines to transform human health.
Vaccinex @Vaccinex
4K Followers 74 Following Vaccinex is pioneering a differentiated approach to treating cancer and progressive neurodegenerative diseases through the inhibition of SEMA4D. $VCNX
togetherforsharon @togetherforsha1
1K Followers 4K Following TogetherForSharon® in memory of my mom, Sharon Riff Ackerman for Parkinson’s disease awareness and hope for a cure. Author. Sharon’s son, George
Fondazione LIRH @LirhOnlus
274 Followers 1K Following Sosteniamo e conduciamo attività di ricerca scientifica, promuoviamo la conoscenza sulla Malattia di Huntington, forniamo assistenza gratuita ai pazienti
SA Moves Foundation @SAMovesFdn
2 Followers 19 Following Welcome to SA Moves (San Antonio Parkinson's disease and Movement Disorders Foundation) Enhancing quality of life... Improving quality of care... in Texas
BIOVIIIx @BIOVIIIx
2K Followers 5K Following BIOVIIIx è una biotech & pharmaceutical company operante nel campo delle Emocoagulopatie e delle malattie rare con particolare specializzazione nell'emofilia.
Fundación Huntington @HDPuertoRico
147 Followers 126 Following Brindamos apoyo a pacientes, familiares y cuidadores. Nuestra misión es concientizar y educar sobre la enfermedad de Huntington. ¡Únete hoy! #JuntosSomosMás
finallyfreeCBD @FinallyfreeC
15 Followers 508 Following NON GMO USA GROWN THC FREE LAB TESTED https://t.co/alDrsfcaLa
#JDCSTRONG @JDCSTRONG
140 Followers 605 Following #JDCRUNSTOFIGHTHD #HuntingtonsDisease #BeatHuntingtonsDisease #cureHD 💙#AutismAwareness #AutismAcceptance #AutismDad #AutismParent 🧩
J Dobbie @DobbieJoanne
125 Followers 209 Following Head of Fundraising at Huntington's Disease Association. Opinions are my own and not the views of my employer.
Rare Diseases Congres... @Rarediseasemeet
330 Followers 878 Following Rare Diseases Congress 2019 scheduled during June 17-18, 2019 at Berlin, Germany. #RareDiseases #OrphanDrugs
Kevin Jess @DJKevinJess
557 Followers 2K Following Writer, foodie and Port Pub marketing guy. Also raising awareness of Huntingtons Disease. Host of WeHaveAVoice Radio
me and my family 🤯... @LifeToShort2508
113 Followers 1K Following ACT♥️EET♥️DJW💒 just living each day as it comes
Bruce Salts❌an @Flukie1950
106 Followers 693 Following Christian,Married,my wife has Huntingtons Disease,2 sons,1 granddaughter. Retired U.M.W.A. 28 years underground coal miner,Pro Life supporter,Buckeye fan
Whitney Hill @whitini3
162 Followers 1K Following Vivacious. Loyal. Opinionated. Inquisitive. Tenacious. Empathetic. Northerner raised w/ Southern values. #RollTide #Ecofriendly #DogLover #Aquaphile
HDSA MA & RI Chapter @hdsa_mari
83 Followers 102 Following The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
Donna Chalmers @MdRiaz50897069
205 Followers 3K Following
Expanded Access Summi... @Expanded_Access
631 Followers 3K Following Ax-S Pharma, producer of the annual global conference on integrating pre-approval access into clinical drug development.
Sara Aswegan @AsweganSara
437 Followers 1K Following Passionate about patients. #raredisease My opinions.
Providence Mom @Providence_Mom
723 Followers 2K Following Passionate about our community and connecting the moms who live here! https://t.co/jPmM5Oss71
Rachel Malinak @RachelMalinak
58 Followers 416 Following
Journal of Huntington... @journal_hd
1K Followers 242 Following Journal of Huntington’s Disease | Dedicated to expediting our understanding & improving treatments of HD | Editors: Blair R. Leavitt & Leslie M. Thompson
Champions For HD @ChampionsForHD
312 Followers 245 Following Non-profit Fighting to aid families and cure Huntington’s & Juvenile Huntington's Disease one family and one voice at a time. #HDCantTameMe
HDYONZ @hdyonz
183 Followers 128 Following Huntington's Disease Youth Organisation of New Zealand || Support, Educate, and Advocate for young people impacted by Huntington's Disease in New Zealand
DemystifyingMedicineM... @McMasterDMS
520 Followers 2K Following Official Twitter of McMaster University's Demystifying Medicine Seminar Series and HTH SCI 4DM3 course in #KnowledgeTranslation #Science #Medicine & #Research
Jamison Skala @Jamison_Skala
566 Followers 1K Following Father, husband, son, brother, uncle, nephew, dog parent, @lupusorg SVP-Development, golfer, skiier, car enthusiast
Ingentium Huntington'... @ingentium_hd
382 Followers 184 Following Ingentium_HD is a direct feed from our Huntington's Disease Knowledgebase. Ingentium uses AI to curate recent news and science on Huntington's Disease, daily.
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
HDYO @HDYOFeed
2K Followers 716 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
Huntington's Disease ... @HDA_tweeting
4K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
Scottish Huntington's... @ScottishHD
2K Followers 415 Following The only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
UCL Huntington’s Di... @UCLHD
2K Followers 136 Following Committed to training the next generation of scientists and clinicians to contribute to the fight against Huntington's disease 🧬 @UCLIoN
HuntingtonStudyGroup @HuntingtonSG
2K Followers 478 Following Accelerating treatments that make a difference for Huntington's disease.
@huntingtonsc @HuntingtonSC
3K Followers 846 Following A national network of volunteers and professionals working together to find a meaningful treatment for Huntington disease.
Huntington's Disease ... @HDAI_ie
3K Followers 4K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/z0BAD0VUeS https://t.co/pPoXkLELx2
Therese Crutcher-Mari... @crutchertherese
624 Followers 393 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a retired healthcare professional & author of Watching Their Dance.
HDBuzz @HDBuzzFeed
6K Followers 2K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @labscribbles @rungenado
HDClarity @HDClarityStudy
569 Followers 92 Following We have now moved to BlueSky, follow us on https://t.co/GOagyeUxpS
Nancy @nancypbd
9 Followers 114 Following
UCSD HDCRC @ucsd_hdcrc
216 Followers 148 Following Mission: to provide quality Huntington's Disease care; to increase awareness of HD; and to conduct research contributing to future treatments or cures.
Jessica Tursi @jessicaturs
417 Followers 1K Following I live in South Philly, home of the Philadelphia Phillies and the best food ever! Love my Phillies, Flyers and Eagles! #curehd #hdsa #jhd #curejhd
HDSA Eastern PA @HDSAEPA
79 Followers 122 Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease
Jackson LeBeau @JacksonLeBEAU
5K Followers 315 Following
Tricia Wempe @TriciaWempe
28 Followers 153 Following Huntingtons Disease (HD) Advocate. Founding board member of The Shepherd's Gift: GM1 for HD. Pushing towards human clinical trials. https://t.co/RiJF9uyThv
stevan ramirez @sram98sr
58 Followers 66 Following Retired and Vice Chair of Catholic Charities Community Services, Rochester, NY
John Vasquez @vazyworld
762 Followers 891 Following #filmmaker / #appmaker. Currently writing @stompfilm feature film & @lightshighabove pilot. Love ☘️🏀 @Celtics . Coding #iOS / @Android versions of @filmllama
Fay Peatross @fay_peatross
904 Followers 4K Following
Stephen Leddy @stephenleddy1
37 Followers 47 Following
EUROPLAN project @EUROPLANproject
1K Followers 1K Following EU Project for Rare Diseases National Plans Development (#europlanproject) coordinated by @cnmr_ISS; @DTaruscio; Join: @RAREBestP @RARE_Journal
DFI @DisabilityFed
9K Followers 3K Following National support organisation for voluntary #disability groups. RT is not necessarily an endorsement. Also at https://t.co/iPZEFe7kHT and https://t.co/26aVnTTvCY
St. Michael's House @StMichaelsHouse
3K Followers 2K Following St. Michael's House Providing services for people with disabilities in Ireland
Mev Hocaoglu @MevHocaoglu
982 Followers 3K Following Person centered Health Outcomes Researcher in life-limiting illnesses at Cicely Saunders Institute of Palliative and End of Life Care. Views my own.
Please follow @Parkin... @PDFparkinson
9K Followers 7K Following We are now the Parkinson’s Foundation- please follow our new account at @ParkinsonDotOrg.
Mali & Joe @MaliAndJoe
82K Followers 20K Following Lovers, authors, relationship coaches ♥ Wild Monogamy free chapters: https://t.co/RuhmuP9JQw…
Sea Whale Motel @SeaWhaleMotel
721 Followers 906 Following Owner Occupied Motel and properties located just a few steps from First Beach and Downtown #NewportRI ⚓⛵
CAVII Studies @CAVIIStudies
42 Followers 286 Following
RichardHitt @retirementSRQ
411 Followers 1K Following Senior Paradise Placement offers FREE service assisting the elderly with senior housing placement.
Dingdingdong @dingdingdongddd
154 Followers 218 Following
Lebrun Yvenson @lebrun_yvenson
13 Followers 212 Following
HDSA - Tennessee @hdsa_tennessee
180 Followers 70 Following
Marianne Armit @ArmitMarianne
33 Followers 325 Following
Amanda Cunningham @amandaleigh719
188 Followers 379 Following Mom. Dream chaser. Passionate about helping others realize it’s ok to be less than perfect!
Ken Tyndall @KenTyndall_
40K Followers 34K Following Global Real Estate Adviser. Media Specialist. 🎺 Trumpet Player. Former TV and Radio News Anchor/Reporter. 5X Emmy Award winner. YouTube: Real Estate Pro.
Hoops4HD @Hoops4HD
482 Followers 801 Following Cornish, PE Teacher, Jungle Ultra 2016, Hadrian's Wall 2017, London Marathon 2018 to raise awareness of Huntington's Disease. any spare cash please donate
Susan Bennett @SiriouslySusan
1.6M Followers 1.3M Following Support me here: d4VnSVqaUBf3dTxUqdeD4L2ix3rvsEcis4kNv3npump
Retire in Sarasota @RetireSarasota
477 Followers 1K Following We work with families and individuals to find the most appropriate living community for seniors We take the stress out of finding a new home
Richard @retireinSRQ
484 Followers 2K Following We work with families and individuals to find the most appropriate living community for seniors We take the stress out of finding a new home
Lars Wojtecki, MD, Pr... @wojla
2K Followers 4K Following YOUR BRAIN STIMULATOR / Neurologist / Neuroscientist / Philosopher / https://t.co/CI1ybokUle @hhu_de https://t.co/UK6K0cW4vy
Courthouse Center for... @Courthousearts
3K Followers 3K Following The CCA has amazing intimate National Musicians Live Concerts benefitting Free Children's Inclusion Programs in Music and Arts, Growing Love thru the Arts
Jason M Thompson 🏴... @MrJasonThompson
554 Followers 3K Following Live in Drumchapel, Glasgow. work for @logicalis , I fundraise for @drumfoodbank, @ScottishHD & @G15YouthProject All views are my own!
Migraine Again @MigraineAgain00
8K Followers 2K Following We're moving! Continue to follow us @MigraineAgain #migraine #chronicmigraine
GSNV @gsnv_info
658 Followers 2K Following The GSNV is an active organisation committed to promoting the interests and well-being of people affected by genetic, undiagnosed and rare conditions.
RawhSounds Media @rawhsounds
2K Followers 906 Following Music Engineer - Helping Artists Express Life Through Music!
Migraine Again @MigraineAgain
17K Followers 4K Following Formerly The Daily Migraine, this Migraine Again account continues to provide help, hope, and humor for people with #migraine. #chronicmigraine
steven saunders @stevesaundersHD
38 Followers 53 Following
Timothy McHugh @timothymchughuk
14K Followers 717 Following Lead gaffer over at Sonniss - A comprehensive online resource centre for sound editors and the audio post-production community.
saint rumi @YoungPandas
5K Followers 740 Following producing music and playing everything that makes noise Upcoming releases with Jazzhop Cafe, freshgoodies, and Dreamhop Somewhere between D'Angelo and Bon Iver
Social Health Network @socialhealthnet
53K Followers 38K Following A community for patients, caregivers & healthcare professionals with the goal of bringing empathy & humanity to healthcare.
Phil Abatecola @theothercola_
2K Followers 1K Following Storyteller - Currently Creating the cosmic horror Short film and cinematic universe, The Tear at @thetearsees
















