Expanded Access Summit @Expanded_Access
Ax-S Pharma, producer of the annual global conference on integrating pre-approval access into clinical drug development. easummit.net Washington, DC Joined April 2018-
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Despite some criticism, business owners said the overwhelming majority of people applauded them for requiring vaccines upon entry. businessinsider.com/business-owner…
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Mandi @RunningMama0522
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ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Debroah Gushwa @DebroahGus16723
84 Followers 5K Following
Lyra Febus @lyr_feb
85 Followers 5K Following
Elsie-may Gorin @gor_elsie
60 Followers 5K Following
Marla Anauo @anauo63980
71 Followers 5K Following
Riya Edouard @EdouardRiy93907
81 Followers 5K Following
Leila Dalzell @LeDalzel
69 Followers 5K Following
Umaiza Stockwell @StockwellU44810
79 Followers 5K Following
Brittany Foxhoven @BFoxhov
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Catherine Pennacchio @CatherPennacchi
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Sasha Frontera @front_sas
59 Followers 5K Following
Tyisha Avita @av_tyis
54 Followers 5K Following
Niki Murrufo @ni_murr
36 Followers 5K Following
EnidStrong @NImnh5YNW4f00IP
45 Followers 2K Following 現在、アルバイトの募集をしています。一日の勤務時間は制限ありません。日給6,000円～30,000円！給与は日払いです。 副業の相談は、LINEに追加:【https://t.co/Mi4dOZtl4U】
5zfyrhaox84mek @nvfyzc6m7u2
1 Followers 266 Following If you want to make friends, you can contact me anytime TG：https://t.co/QzZ1ex0nfX WS：https://t.co/M5GDqJGewT
Alanna Pebley @AlannaPebl5374
96 Followers 5K Following
Madison Harfert @harfert35229
73 Followers 5K Following
Mindy Seyal @MindySeyal38250
37 Followers 4K Following
Shanita Edmerson @EdmersonSh87905
85 Followers 5K Following
Tamera Agrela @tame_agre
14 Followers 2K Following
Elene Kogan @EleneKogan51943
17 Followers 3K Following
Toccara Schrom @SchromTocc
37 Followers 5K Following
Landought @landought18006
9 Followers 1K Following
Izabella Brundage @BrundagIzabel
39 Followers 5K Following
Gedatason @gedatason10372
23 Followers 2K Following
Cordia @berge_cordia96
157 Followers 3K Following
Erskine @smeighphe78492
9 Followers 2K Following Among the easiest things in the world, procrastination is the least effortful.
McSathe @MSathe58247
115 Followers 1K Following
Esperanza @esperanzasola68
1K Followers 4K Following
Derrick @Derek_HSL1
18 Followers 237 Following
Precision Research @ResearchResea1
55 Followers 247 Following Precision Research offers online Clinical Research Courses.
P SHAHAZIA @PShahazia
86 Followers 1K Following Specializing in financial planning, auditing, and risk management. 💼📝
Lisa Stein @RhoneGallagher
686 Followers 2K Following Live near Philly, PA. Work in CNS clinical trials. Partner & I have a daughter. Started tweeting during 2008 presidential election & here ever since.
Dr. Rana Parkinson's .. @DrRanaParkinson
2K Followers 4K Following Continuing the work of Canadian Neurologist Dr. RANA who started World Parkinsons Program to provide FREE Medications to Patients Globally https://t.co/b4JYzXGAsw
CENTRICIA @CENTRICIA1
242 Followers 1K Following Full-Service Marketing & Consulting Firm. CentricGEO™ is a leading programmatic advertising platform with access to premium inventory across audio, CTV & mobile
MedaSystems @MedaSystems
27 Followers 134 Following Creating systems to enable communication between life sciences, doctors and patients. https://t.co/mnDokQIowo
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Mandi @RunningMama0522
2K Followers 1K Following
No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Enlightening Results .. @GraceCordovano
9K Followers 7K Following #Cancer #PatientAdvocate | Healthcare Navigating Solutionist | De-Frictionizer | ⬇️ Patient Administrative Burden | #Techquity | co-founder @UnblockHealth
Nicole McCabe @NicoleALSJurney
2K Followers 650 Following 35 year old PNW girl battling #ALS I'm here to fight with all my might. My babies need me! We deserve a right to live. 💙 join me in my battle
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Krishna Komanduri, MD.. @drkomanduri
13K Followers 5K Following Physician in Chief @UCSFCancer; Chief Hem/Onc @UCSFHealth; @ASTCT Past-President. Father of four, husband, shutterbug and aspiring pizzaiolo.
Stacey Tinianov (she/.. @coffeemommy
5K Followers 2K Following Patient Advocacy & Engagement. Co-Creation & Community Building. 💗 Coffee drinker. Gardener. Wife. Mom. Breast Cancer 🙃 @AdvocateCollab #MakeCancerLessShitty
Madhav Thambisetty @MadhavThambiset
1K Followers 982 Following Neurologist. Neuroscientist. Discovering cures for Alzheimer's disease. Tweets are my personal opinions.
Russ Bradford @PconciergeRuss
729 Followers 2K Following An experienced Parkinson’s Advocate Volunteer. Dedicated to improving the Lives of those living with Parkinson’s. Public Speaker, & Panelist.
DrMadelineChadehumbe @chadehum
403 Followers 278 Following Mama2boys, Child Neurologist, Headache medicine, Education obsessed, Advocate, DEI champion, autism, SIB, pipeline development, Innovative, integrative
Joseph Allen @j_g_allen
46K Followers 4K Following Assoc Prof @HarvardChanSPH; Lancet @CommissionCOVID (Chair Task Force on Safe Work/School/Travel); Coauthor of HEALTHY BUILDINGS @Harvard_Press; WaPo, NYT, HBR
Claudio Derada Trolet.. @CTroletti
7 Followers 34 Following
EnlivenHealth @EnlivenHealthCo
1K Followers 148 Following EnlivenHealth, an Omnicell innovation, is dedicated to transforming pharmacies through their state of the art comprehensive digital solutions.
Ken Ross @kenjross
419 Followers 468 Following Chairman, Medasystems - "A collaborative platform for global access to investigational medicines", https://t.co/TPUsRs7TdJ #digitalhealth
Kelly Owens @awanderingkelly
1K Followers 1K Following Writer of The Wandering Nerve on Substack/Singer-songwriter/Artist+builder at Wandering Roads Guitar Co/Equal parts sweet + salty, never bored, always dreaming.
Lisa Pecoraro Deegan @LMDeegan
806 Followers 731 Following Mom | ALS Advocate: Podcast Host, Co-Founder, Community Builder. Phase3
Life Science Consulti.. @LifeScienceCon1
124 Followers 555 Following Investment and R&D advisor on biotechnology and pharma, including prenatal genetic testing, CRISPR, GMOs, microbiome, mental health, immuno-oncology and more.
Spencer Gore @SJGore
3K Followers 1K Following Founder & CEO of European Medical Journal. LDC 50 most ambitious leaders Queens Award winner & Sunday Times 100 fastest growing companies.
ALS ONE @alsone_official
949 Followers 634 Following Our world leaders in ALS research & care have united 2 advance critical research towards a cure while improving the qual of life of individuals living w/ALS now
GRAIL @GrailBio
17K Followers 256 Following GRAIL's mission is to detect cancer early, when it can be cured. Community Guidelines: https://t.co/x8f9DBN6rT The Cancer SIGNAL Podcast: https://t.co/6M8RXSAz8X
Christina Bennett @Tinabenn12
391 Followers 780 Following Taking a break Contributing writer for @naturwomanhood [email protected]
Jennifer Smith @Jennife07819388
2K Followers 4K Following daughter to ALS fighter. mom/RN/sports fan/coach/beer drinker/nature/animal rights/human rights/equity not equally #EndALS #Tesla #DogeFather
NeuroSense Therapeuti.. @NeurosenseT
538 Followers 269 Following A Clinical stage Biotech company. Advancing novel therapy for ALS and neurodegenerative diseases. Nasdaq: NRSN $nrsn
Lindsay Deefholts @ldeefholts76
72 Followers 382 Following Healthcare comms and advocacy consultant. Humanitarian. Lover of all*things*food. Canadian New Yorker. Opinions are my own.
EverythingALS @everything_als
2K Followers 838 Following We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.
ScriptHero @ScriptHero
859 Followers 501 Following Discover your prescription affordability options, no matter your coverage. Likes & RTs do not equal endorsements.
Weight Lose @WeightL06873105
160 Followers 666 Following
Natural Pharmacy Ltd @NaturalPharmac3
508 Followers 2K Following Natural Pharmacy -Services ,consultancy & products in Pharmacy , Medicines & CBD Safety ,Toxicology , & In Vitro Toxicology. Instagram-‘naturalpharmacyservices’
Pulse Medical Demonst.. @pulsemdm
567 Followers 346 Following Custom medical demonstration models artfully engineered to accelerate business results #MedDevice #MedTech #MedicalTraining #MedicalMarketing
People with Empathy @missionempathy
173 Followers 88 Following People with Empathy is a platform to connect key stakeholders in health care in order to improve the quality of life of patients and care partners.
Michael Mittelman, MB.. @mike_mitt
3K Followers 5K Following #CyberSecurity Ex-Patient Editor BMJ #organdonation 3 #kidney #Transplant #IBD Lead @HelpOrganDonors #digitalhealth #raredisease @PCORI Amb. Board @BeLikeLight
Christine Von Raesfel.. @cvonraesfeld
2K Followers 2K Following Connector I Storyteller | PatientPerspective I Speaker I Mentor I Friend I Dedicated to #BreakingSilos in #Healthcare
Dr. Amy Abernethy @DrAbernethyFDA
7K Followers 73 Following Former Principal Deputy Commissioner and Acting CIO at @US_FDA. This account is now archived.
NCATS @ncats_nih_gov
16K Followers 702 Following Official account of @NIH's National Center for Advancing Translational Sciences. Privacy Policy: https://t.co/f5qzfKqqaR engagement ≠ endorsement
Sphere @SphereCommerce
352 Followers 271 Following Sphere is a cloud-based, vertically integrated software and payments technology company with an established presence in the healthcare and non-profit sectors.
Tanner Pharma Group @TannerPharma
209 Followers 284 Following Global #pharma-solutions provider. We believe that access to medicines should have no borders. #globalhealth #expandedaccess #clinicaltrials
Anna Luiza @sma_anna2019
442 Followers 3K Following Official intl profile of @ame_anna2019 👧🏻 SMA1 fighter 🎂2 years old 💉 My life DEPENDS on Zolgensma! 🧬 To help Anna ⬇️ https://t.co/Txwu5yVSfj
VJRegenMed @VJRegenMed
3K Followers 295 Following Video Journal of Regenerative Medicine strives to provide trusted information on advances in cellular & genomic therapy, tissue engineering and biomaterials.
Lauren Fisher @laurenFisherye
507 Followers 1K Following
CarthaGenetics® @carthagenetics
94 Followers 137 Following CarthaGenetics®: Your Orphan Drug Companion!
Exo @exoeffect
7K Followers 6K Following Ultrasound Unconstrained. Exo is taking medical imaging where you never thought it could go- everywhere. #POCUS
Jocelyne and Monique .. @LamoureuxTwins
57K Followers 879 Following Monique Lamoureux-Morando & Jocelyne Lamoureux-Davidson 👯♀️ 2018 OLYMPIC CHAMPIONS🥇✨Monique and Jocelyne Lamoureux Foundation✨ #Dare2MakeHistory
Warren Stacey @Warren_Stacey1
198 Followers 1K Following SVP @PRISYMID - label management solutions. Reads and tweets about all things #regtech & #labeling for #clinicaltrials and #medicaldevice operations. Own views
Richard Adams @rivadams
198 Followers 1K Following CEO @PRISYMID - #medicaldevice & #clinicaltrial labeling solutions. Reads and tweets about #regtech, #healthcare & #leadership. All opinions my own
Walt 🇺🇸 America @multiplewalt
6K Followers 6K Following Married to an angel,Father of two boys, #Mswarrior diag 2009 W/PPMS but had symptoms years before. sci-fi and horror fan with #MS #MAGA🇺🇸🇺🇸 #TrumpTrain NoDM
Patty Long @MSenIt4life
2K Followers 967 Following Diagnosed w/ #MS. Lost my legs, arms, core, ability to think & more. Now, I'm building a new life. I'm Retraining Connections...Successfully! I am a MS Warrior!
PharmaEducation 2021 @PharmaEducatio1
335 Followers 2K Following We are delighted to invite for the “13th International Conference on Pharmaceutical Education & Practice” scheduled during Oct 29-30, 2021 at Vancouver, Canada
Regulatory Affairs 20.. @affairs_2020
373 Followers 2K Following We welcome everyone to attend our forthcoming Webinar on 10th International Conference on Pharmaceutical GMP, GCP & Regulatory Affairs during March 22, 2021
Bluestream Health @bluestream
293 Followers 735 Following Complex clinical workflows made simple. #telemedicine #healthcare #telehealth
The American Journal .. @bioethics_net
13K Followers 554 Following Providing daily #bioethics news, webinars on trending topics, AJOB journal articles from leading scholars, and essays at Bioethics Today.
Jamie Webb @JamieDWebb
1K Followers 2K Following PhD @CentreTMFutures @EdinburghUni. Did bioethics at @PandemicEthics_ & @nyugrossman. @FulbrightPrgrm & @TeachFirst alum. Made @SusanMacbeth. Man Utd fan.
A program called @Expanded_Access allows patients with terminal diseases to try experimental drugs. @BrainandLifeMag bit.ly/3fDdK1m
Despite some criticism, business owners said the overwhelming majority of people applauded them for requiring vaccines upon entry. businessinsider.com/business-owner…
Business owners nationwide are beginning to require customers to show proof of vaccination. No, this isn’t a HIPAA violation. businessinsider.com/business-owner…
@Expanded_Access @SFGate exactly! I doubt anyone expected these ppl to follow the rules- but that was when we thought it wouldn’t matter, but then the Delta variant came along, and once again we have to cater to lowest common denominator.
@SFGate that’s not exactly true. MASKS ARE MANDATED in NEVADA… if you’re not vaccinated. the (stupid) mistake we made was that we expected unvaccinated ppl to honor the honor system.
My son's gonna be 7 next week, and I'm realizing that he probably has no memory of my real voice. All he knows is the slurring, garbled mess that ALS has left me with. Of all that the disease takes, the voice might be the cruelest.
I need hope today. I need to believe that I will be able to help ALS patients. I need help doing so. Day 32 asking @elonmusk for 200 million to ALS research. #ALS #MND #DrugsinBodies @DanRather @US_FDA @BillGates
Please help us help Lisa by signing and sharing petition. #tofersen4lisa bit.ly/3r7LaIe @FinishALS @alsassociation @shellymckenna @ALSMNDAlliance @ALS_MND_info @PainInTheALS @Expanded_Access @HopeLovesCo @everything_als @iamalsorg @TMchallengeALS @alsadvocacy
Please read my story of how I am trying to gain access to an investigational ALS treatment @biogen to help give me more time with my family. Thank you all for the outpouring of support and for sharing my story. #tofersen4lisa #fightingchance4lisa patch.com/new-jersey/sum…
@mlweldon5 Yup, we were all there for the @Expanded_Access. Do you realize that was one of the last times We heard Dr. Fauci speak about something other than #covid19?
All week long we work on more humane & efficient clinical trial design, which always includes EAPs. We work to advance ALS science with COVID speed so that we can soon celebrate the 1st ALS survivor. But some Sundays we stop & give this disease the middle finger. @iamalsorg
With @JamieDWebb + Lesha Shah, I have an article called "Ethically Allocating COVID-19 Drugs via Pre-Approval Access and Emergency Use Authorization" coming out in AJOB @bioethics_net. They're accepting peer commentary proposals till 6/19: editorial.bioethics.net. Take a look!
We are excited to announce that Anaqua has acquired O P Solutions @PATTSYwave. Read the press release here: bit.ly/3d5mMQz
We are excited to announce that Anaqua has acquired O P Solutions @PATTSYwave. Read the press release here: bit.ly/3d5mMQz
This is so crazy. DNA analysis is showing that 45% of people's genes need high carb intake, 47% need moderate and 8% are low. I wish I knew I was moderate sooner! Totally worth the $189 if you can afford it
In the rush to research potential COVID-19 treatments, clinical trial design is suffering. That will make it harder to learn from these trials. @dgingery has the story, including discussion with FDA's Bob Temple: pink.pharmaintelligence.informa.com/PS142222/US-FD…
Testing. Testing. Testing...
I'm really proud of this: theglobeandmail.com/opinion/articl…
Ding ding ding as @alsadvocacy would say. Say it with me...NO EAP has ever impeded the enrollment of research trials. Nobody can use this as an excuse to not consider an EAP. EAP cannot negatively impact clinical trial participation. Full stop. @iamalsorg
#COVIDTherapeutics #ExpandedAccess programs cannot enroll patients who are candidates for research trial of the drug. It's not only best practice, but law in most countries, including the U.S. No EAP has ever impeded the enrollment of research trials of the particular product.
@DrAbernethyFDA having a list of question matters. We need common data elements for both now and future use in RCT to compare against #RealWorldEvidence. We need common standards and common covariates. #CovidTherapeutics
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