Florida Institute for Pediatric Rare Diseases @FSU @FSUIPRD
Our mission is to advance research, education, clinical care, and advocacy for pediatric rare diseases. iprd.med.fsu.edu Joined April 2024-
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Shah's new pilot study is expanding access to whole-genome sequencing for children with neurodevelopmental conditions in Tallahassee. Refer a family here: fsu.qualtrics.com/jfe/form/SV_9Y… @FSUCoM @FSUResearch @FSU_Health
🎉 Congratulations to Saanchi Shah on receiving a First Year Assistant Professor (FYAP) Grant from the FSU Council on Research and Creativity (CRC)!
As noted by Senior Associate Director David Ledbetter, “gNBS was the hot topic at this year’s ACMG! We must be on to something here at FSU’s IPRD and Sunshine Genetics!” 🌞 Learn more about Sunshine Genetics: iprd.med.fsu.edu/sunshine-genet…
Our team was proud to represent IPRD at the #ACMG2026 meeting. The meeting provided a valuable forum to engage with colleagues across clinical genetics, research and industry while sharing IPRD’s ongoing efforts to advance genomic medicine in pediatric populations.
Her award-winning research focuses on small extracellular vesicles; tiny packages cells use to send messages to one another. 🧬 👉 Learn more about Leanne’s achievement: asbmb.org/asbmb-today/pe… @FSUCoM @FSUResearch @FSU_Health
⭐ Congratulations to Postdoctoral Research Associate Leanne Duke on being named a 2026 winner of the prestigious Journal of Biological Chemistry/Herbert Tabor Early Career Investigator Award! 🏆
We Are @FSU_Health! @FSUCoM @FSUIPRD #FloridaMedicalPracticePlan
Healthcare shouldn't be inaccessible. We're working to change that. By connecting educators, researchers and clinical partners we’re helping reduce barriers to care and improve health outcomes across North Florida. Visit fsuhealth.fsu.edu for more information.
Explore our full Rare Disease Day 2026 coverage and highlights: iprd.med.fsu.edu/rare-disease-d… #RareDiseaseDay @FSUCoM @FSU_Health @FSUResearch
On Feb. 27, the Florida Institute for Pediatric Rare Diseases (IPRD) convened national leaders in genomics, diagnostics, and academic medicine to spotlight Florida’s growing leadership in precision public health.
As the @FSUCoM and the Florida Institute for Pediatric Rare Diseases (@FSUIPRD) recognized Rare Disease Day, reminders of the urgency of their mission were all around the College of Medicine rotunda — the patients and families whose lives can be changed thanks to improved screening and care. Rare Disease Day is a global movement raising awareness for the millions of people with one of more than an estimated 7,000 identified rare diseases. Its goal is to ensure equitable access to diagnosis, treatment, healthcare and social support for those affected. Read more at news.fsu.edu/news/health-me…
.@FSUIPRD and @illumina are helping end the diagnostic odyssey for Florida families, speeding up rare disease diagnosis so patients can get the right care sooner. #RareDiseaseDay
Whole-genome sequencing can help end the rare disease diagnostic odyssey for hundreds of millions worldwide. On #RareDiseaseDay, learn how @illumina's technology is helping families in Florida get answers faster. Illumina Laboratory Services (our CLIA-certified lab) is
Rare Disease Day – Feb. 27 marks the official launch of the FSU IPRD Diagnostic Lab, in partnership with @QuestDX, a global leader in diagnostic services. #RareDiseaseDay #RareDiseaseResearch #FSU #IPRD @FSUCoM @FSU_Health @FSUResearch
🎤 Join us on Feb. 27 for a conversation on how advances in genomics are transforming healthcare and redefining what’s possible for the rare disease community. 🧬 Learn more about Rare Disease Day: x.com/FSUIPRD/status… #RareDiseaseDay @FSUCoM @FSU_Health @FSUResearch https://t.co/fZXCEEbOZg
.@FSUIPRD will host the 2026 Rare Disease Day symposium this Friday at @FSUCoM to highlight advances in genomics, research and clinical care. With guest @AdamAndersonFL and keynote address by @illumina Chief Medical Officer Dr. Eric Green. news.fsu.edu/news/health-me…
🌍Rare Disease Day 2026 Join us on Friday, February 27 as we highlight how IPRD is advancing research to combat rare diseases impacting 30 million Americans through innovation and collaboration. 🅿️Complimentary parking available in Spirit Way Parking Garage
📅 Save the Date! 🧬 Join us Friday, Feb. 27 for Rare Disease Day 2026 to learn how IPRD is advancing research to combat rare diseases affecting 30 million Americans. 📣 Stay tuned for more details! Learn how IPRD’s Rare Disease Day 2025 brought hope to families. ⬇️
Medical breakthroughs begin with understanding. At the Florida Institute for Pediatric Rare Diseases, researchers are turning complex genetic data into answers, hope and better outcomes for children and families across Florida. 🧬 #FSUDay | #FSUImpact
Congrats to Leanne Duke, Ph.D.!⭐️ Her study was named one of the most impactful articles of 2025 by the @jbiolchem, revealing how cells fine-tune communication via small extracellular vesicles.🔍 @FSUCoM @FSUResearch Read Here: jbc.org/article/S0021-…
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