APS Support UK @APSsupportUK
APS Support UK is dedicated to raising awareness of antiphospholipid syndrome (APS), supporting anyone affected by the condition and furthering research. aps-support.org.uk Basingstoke, England Joined February 2012-
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Study finds NETosis markers, MPO and Histones, predict pathophysiology in #AntiphospholipidSyndrome. Elevated levels associated with #thrombosis, higher PT/INR, and lower Hb. Potential for targeted therapy: cutt.ly/weqmdfbH
🎞️🆕@ern_reconnet #webinar available on our YouTube channel with Prof. @szuily updating us on the #APS @ACRheum/@eular_org Classification Criteria👉bit.ly/3JD83ir ⚙️Resources on APS bit.ly/3xy9Pi3 ✍️Registration to other webinars bit.ly/3DxXDhi
Reserve your place at the accredited, FREE, #NTW24 vc Join 7-9 May for live sessions followed by access to catch up recordings until 31 May. Outstanding faculty delivering hot topics, news on Spontaneous VITT, implementing practice, case studies +++ . tuk-edu.vfairs.com
Study compared 167 #APS patients. 32% had arterial events. Factors like reduced creatinine clearance & hyperlipidemia linked to arterial APS. No significant antibody profile differences. Arterial group had higher aGAPSS, indicating higher recurrence risk: cutt.ly/ceqa1UNS
Congratulations @ProfMakris on your life time achievement award - so well deserved 🎉🎉
Tomorrow's the big day! Sending all the best to Josh as he gears up for his skydive adventure to raise funds for APS! You've already soared past your fundraising goal, Josh, & now it's time to soar through the sky! Wishing you a thrilling & safe jump! 🪂💙 cutt.ly/Rw7BaFJ4
Researchers explore systemic inflammation index's diagnostic role in #AutoimmuneDisease. Routine blood test shows promise in early detection & management, potentially enhancing patient care: cutt.ly/hw6KW2sg @Flinders
It’s 10 years since we launched the BUMPs (Best Use of Medicines in Pregnancy🤰) website to host our patient information leaflets. We are now delighted to announce that the website has a fresh new look and improved functionality. 🎉 medicinesinpregnancy.org
Thanks to the global #RheumaPreg community for sharing insights, growing together over years, working hard to improve the #reproductivejourney of patients ❤️ @KarenS_LDN @nelson_piercy @bethangoulden @MariaMouyis @annamolto @isabell_haase @LatikaGupta_ @ori_114 @cristianasieiro
Buying your food shop from Tesco, Morrisons, ASDA, Sainsbury's, Waitrose, Iceland, or Ocado? #Win the cost of it back this April! Sign up to @easyuk to support us for free and shop at your favourite supermarket for a chance to win: easyfundraising.org.uk/causes/apssupp…
Study: #AntiphospholipidSyndrome diagnosis gaps found. Only 51% of positive tests repeated, inconclusive results rising. Full APS profile given to 43% in 2020 from 8% in 2010. Collaboration between labs and clinicians urged for better diagnosis: cutt.ly/Pw6UW7sM
We're thrilled that #APSWarrior Colin Morrison is back for APS! After last year's £1,482 success, he's gearing up for the Aberdeen #Kiltwalk. Let's support him again! Every donation counts: cutt.ly/colins-page. Join us for KiltWalk 2024: cutt.ly/kiltwalk2024 @thekiltwalk
Considering PIP? Article reveals success rates for different conditions! #AntiphospholipidSyndrome: 61.70%: cutt.ly/fw6lJ08r For guidance, visit benefitsandwork.co.uk or disabilityrightsuk.org #PIP #DisabilityRights @benefitsandwork @DisRightsUK
The sun is shining in Liverpool for #BSR24. Join me and @LucyCarter6 at 9am for: 📌 @zoemclarenrheum on rheumatic disease & menopause 📌 @VikramSinai on menopause & HRT 📌 Sharon Petford sharing the patient voice from @NRAS_UK patient survey on menopause in RA
🤩 Are you ready for our upcoming @ern_reconnet #webinar on #AntiPhospholipidSyndrome with as special guest Prof. @szuily? ✍️ Registration is still open, don't miss this opportunity: bit.ly/3xtFpNV 💫 We look forward to welcoming you all this afternoon...🕓at 4pm!
🤩 Are you ready for our upcoming @ern_reconnet #webinar on #AntiPhospholipidSyndrome with as special guest Prof. @szuily? ✍️ Registration is still open, don't miss this opportunity: bit.ly/3xtFpNV 💫 We look forward to welcoming you all this afternoon...🕓at 4pm!
Congrats Pete & Katy for smashing your marathon/fundraising goals! Katy raised £1795 & finished the @LondonMarathon in 3:53:06! Pete covered nearly 28 miles, raising £755! An incredible achievement! #APSWarrior #Donate cutt.ly/katys-page cutt.ly/petes-page
At 17, Marvin faced redness, pain, & heaviness in his leg. Prompt medical intervention diagnosed #DVT & #AntiphospholipidSyndrome. His story underscores a crucial lesson: seek help immediately. Shoutout to @StopTheClot for sharing: stoptheclot.org/patient-storie… #BloodClot #Thrombosis
🏃♂️🌟 This Sunday, Pete runs the virtual #LondonMarathon in memory of Clive Boddy, sadly lost to catastrophic APS. He's flipping the script, starting from the finish line at midnight! Pete's raised £650 so far, smashing his target! Support him here: cutt.ly/2w5wZqTv 🙌
Study reviewed thromboembolic events in children/adolescents with #APS. Pooled data from 5 studies showed high rates of arterial/venous #thrombosis and stroke in seropositive APS. Secondary APS also had significant thromboses. More diverse studies needed: cutt.ly/pw59fNOS
It's Glasgow Kiltwalk week! Our Biggest EVER Kiltwalk is now just 6 days away. Didn't manage to get signed up? Join us in Aberdeen, Dundee or Edinburgh and raise money for a Charity you care about. They need our help! 👉 bit.ly/46LG7D3 #MondayMotivation
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Reserve your place at the accredited, FREE, #NTW24 vc Join 7-9 May for live sessions followed by access to catch up recordings until 31 May. Outstanding faculty delivering hot topics, news on Spontaneous VITT, implementing practice, case studies +++ . tuk-edu.vfairs.com
Congratulations @ProfMakris on your life time achievement award - so well deserved 🎉🎉
It’s 10 years since we launched the BUMPs (Best Use of Medicines in Pregnancy🤰) website to host our patient information leaflets. We are now delighted to announce that the website has a fresh new look and improved functionality. 🎉 medicinesinpregnancy.org
Thanks to the global #RheumaPreg community for sharing insights, growing together over years, working hard to improve the #reproductivejourney of patients ❤️ @KarenS_LDN @nelson_piercy @bethangoulden @MariaMouyis @annamolto @isabell_haase @LatikaGupta_ @ori_114 @cristianasieiro
The sun is shining in Liverpool for #BSR24. Join me and @LucyCarter6 at 9am for: 📌 @zoemclarenrheum on rheumatic disease & menopause 📌 @VikramSinai on menopause & HRT 📌 Sharon Petford sharing the patient voice from @NRAS_UK patient survey on menopause in RA
An absolutely wonderful session at #BSR24 which I felt honoured to chair on menopause this morning. Thank you @zoemclarenrheum @VikramSinai @LucyCarter6. So looking forward to hearing from colleagues @MariaMouyis & @obstetricmedic this pm in the pregnancy session. #womenshealth
🤩 Are you ready for our upcoming @ern_reconnet #webinar on #AntiPhospholipidSyndrome with as special guest Prof. @szuily? ✍️ Registration is still open, don't miss this opportunity: bit.ly/3xtFpNV 💫 We look forward to welcoming you all this afternoon...🕓at 4pm!
📢 #DYK the @ern_reconnet #webinar on 2⃣0⃣2⃣3⃣ @ACRheum/@eular_org #AntiPhospholipidSyndrome (APS) classification criteria w Prof @szuily? 🩸Disease specific 🎯Targeting healthcare professionals (HCPs) ✍️Register at bit.ly/3xtFpNV ⚙️APS resources bit.ly/3xy9Pi3
It's Glasgow Kiltwalk week! Our Biggest EVER Kiltwalk is now just 6 days away. Didn't manage to get signed up? Join us in Aberdeen, Dundee or Edinburgh and raise money for a Charity you care about. They need our help! 👉 bit.ly/46LG7D3 #MondayMotivation
Came in to #londonmarathon2024 @LondonMarathon to improve my performance from 2022. Glad I smashed the London course PB by 1hr 12mins🤩💪🏼. Finished (4hr 13 mins). Enjoyed the race. The crowds were spectacular 🧡. Thanks for your donations to @GetKidsGoing bit.ly/4a2hKlD
I’d been having baby strokes for quite some time before the larger one. I’d spoke to the optician about the sight loss I kept having, and he shrugged his shoulders. Never think you are too young for it to happen to you!
Meet Amy, a young civil engineer whose life took a turn at 23. 'Dizzy spells' in college were signs of a #stroke due to #AntiphospholipidSyndrome. Stroke isn't just for older adults; 1 in 6 young strokes are caused by #APS: cutt.ly/rw5Q6J5C #strokeAwareness #Thrombosis
Thank you very much to Lupus UK for helping us to promete this survey. It is not just about lupus. We are interested to hear from people with all autoimmune rheumatic diseases who fast during Ramadan. It's completely anonymous. Patients from any country welcome to respond.
Are you a Muslim with an autoimmune disease who fasts during Ramadan? Researchers at UCL want to find out how you manage your medications while fasting. You can answer their survey here: qualtrics.ucl.ac.uk/jfe/form/SV_23…
📺 Prof. Alice Roberts visits the Rayne Institute for a captivating discussion with Prof. @AnisurRahman60 and McDonnell @McDonnellLab about Antiphospholipid Syndrome (APS). Watch them on Sky History 📆23rd April ⏲️9pm! @uclmedsci @domearlycareers ucl.ac.uk/medicine/news/…
Hope this is as good as last night's episode in which @theAliceRoberts discussed Henry IV. Though given that she called a urologist a piss prophet during that episode (he agreed) I think I got off lightly.
📺 Prof. Alice Roberts visits the Rayne Institute for a captivating discussion with Prof. @AnisurRahman60 and McDonnell @McDonnellLab about Antiphospholipid Syndrome (APS). Watch them on Sky History 📆23rd April ⏲️9pm! @uclmedsci @domearlycareers ucl.ac.uk/medicine/news/…
🚨 Calling all lupologists! ✅ Kindly share our Living With Lupus survey and help us get as many responses as possible. 🇪🇺 Available in 21 languages! buff.ly/3VZLsEc
Support your Charity and change lives with every step... together. Be the Difference in 2024 ❤️ Sign up for the Kiltwalk now 👉 bit.ly/46LG7D3
A potential association was found between #methotrexate exposure and decreased sexual function among men with inflammatory #arthritis, particularly among those with prolonged treatment duration. brnw.ch/21wIUuu
📢 #DYK the @ern_reconnet #webinar on 2⃣0⃣2⃣3⃣ @ACRheum/@eular_org #AntiPhospholipidSyndrome (APS) classification criteria w Prof @szuily? 🩸Disease specific 🎯Targeting healthcare professionals (HCPs) ✍️Register at bit.ly/3xtFpNV ⚙️APS resources bit.ly/3xy9Pi3
🕸️👀 "...with SLE-APS strongly linked to upregulation of the ‘neutrophilic/myeloid’ module..." 🧐 ard.bmj.com/content/early/…
@APSsupportUK No, thank you for supporting me and my family. Your website has been invaluable as we navigate our new life 🫶🏻
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