AFBuildStrength @AFBuildStrength
Nemaline myopathy (NM) is a group of congenital, hereditary neuromuscular disorders that cause severe muscle weakness. buildingstrength.org Palo Alto, CA Joined January 2013-
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Today is #rarediseaseday. Nemaline Myopathy is a rare muscle disorder - it affects 1 in 50 000 & severe forms of NM show up to 66% mortality rates before the age of two. Help is find a cure and raise awareness. bit.ly/2dbzQc0
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#strongwhereitmatters - Help us to continue our search for a cure, watch this special video from a few of our friends living with #NemalineMyopathy bit.ly/2Bpu9Al
This #GivingTuesday, please give to help us fund research for a cure for #NemalineMyopathy. Donations through our facebook page will be doubled up until midnight, tonight! Thank you! bit.ly/2niAk6T
#GivingTuesday 2017 is Nov 28th. We're proud to be part of the global celebration of giving. With your help, we can continue to fund research for treatments for #NemalineMyopathy!
AFBuildStrength retweeted
Meet Team Momentum runner Pat Sawhill and his son Finley, who lives with nemaline myopathy fan.is/a9iv
Shop @amazonsmile today, 5% will go to our foundation to fund research for Nemaline Myopathy treatments smile.amazon.com/ch/26-1761329
Informative webinar on nutrition issues for families with #nemalinemyopathy with Dietitian Patricia Novak youtu.be/D5C2NKeV6wM
We need you to #research #NemalineMyopathy. We encourage you to contact us with your grant applications. bit.ly/2mFSgHe
AFBuildStrength retweeted
New @AJHGNews paper: Biallelic mutatations in MYPN are assoc. with childhood-onset, slowly prog. Nemaline myopathy. tinyurl.com/hpkhk7t
AFBuildStrength retweeted
I'm donating to the LoveLiv event to support Nemaline Myopathy. Here's a vid about Liv, please support this cause! buildingstrength.networkforgood.com/projects/24640…
#RareDiseaseDay, share why NM research is important to you - use hashtags #isupportNMresearch, #AFbuildingstrength bit.ly/2dbzQc0
Watch @helploveliv story, living with #nemalinemyopathy bit.ly/2m0glHE & support her fundraiser for a #cure bit.ly/2lgEQfW
Incredibly grateful for your generous donation @Sia! Thanks for supporting #nemalinemyopathy research bit.ly/2lgEQfW @helploveliv
AFBuildStrength retweeted
WATCH: 8-year-old St. George girl, who lives with rare disease, receives a special gift #NemalineMyopathy kutv.com/news/local/8-y…
AFBuildStrength retweeted
#triathletes parents, with a son with a rare neuromuscular disease! Help, create awareness #nemalinemyopathy @Oprah
2 weeks until @helploveliv 's fundraiser @soulcycle event! Help us find a #cure for #NemalineMyopathy! bit.ly/2lgEQfW
Please support @helploveliv @soulcycle event, raise funds for promising #nemalinemyopathy #research for treatment! bit.ly/2lgEQfW
AFBuildStrength retweeted
can I ask all my #endurance friends help spread the word of #nemalinemyopathy cycling awareness day #goLukeWygand golukewygand.com/2017/01/20/nem…
#nemalinemyopathy awareness cycling day, with @RWygand on July 16. #golukewygand bit.ly/2jgIFkI
Check out the #LovLivYoga fundraiser. All profits go to research efforts to cure #NemalineMyopathy bit.ly/2j2Vwte
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