If you went to the gym regularly to improve your health, but you got punched in the stomach every time you walked through the door, you'd quickly not want to go anymore. This how the barrage of medical gaslighting experienced the last 3yrs + #chronicillness has made me feel🧵1/8
My regard for consultant Dr's, Gp's, registrar's, SHO's is waning with each hosp specialist clinic. There've been a few medical gems in the mix which give you hope but by & large Dr's I've seen have been dismissive, egotistical, rude, close minded, & disregarded my input. 🧵2/8
I've been diagnosed with #PostVac #Dysautonomia, #MECFS, #IST, myocarditis & cardiac fibrosis, #tinnitus #hyperacusis #tmj, bilateral sensioaural hearing loss, & am awaiting investigation for multiple neurological issues: This is how my last three medical appointments went: 🧵3/8
Cardiology registrar: 'your new Echo is fine, so you are fine. Do you think this is stress or panic attacks? Stop imagining you have some multisysematic disorder, dig deep into your subconscious & you will be fine'. This was despite dx of ME, Dysautonomia & myocarditis🧵4/8
Resp locum: Advised to ask for private neuro & rheumatology referral as on public waiting list for 2.5yrs. 'You don't need me to do refer you, just refer yourself' 'This sounds like covid' 'nothing wrong here. you're grand' Dictates my report from 4yr pre #vaccineinjury 🧵5/8
ENT locum ✅ dx #PostVac tinnitus, hyperacusis, SNHL. ENT Dr this wk :'I don't think the vaccine caused your issues. It's prob wear & tear even though you're a bit too young' 'everyone has hyperacusis' 'if I had hearing loss like that, I'd get free hearing aids elsewhere'🧵6/8
All of these appts were much worse than I can articulate in a post, but I waited over 9 mths for each of these apps & with each I left feeling unheard, hurt, frustrated, not believed. Medical gaslighting is egotistical, unethical, lazy medicine. I believe they have harmed me🧵7/8
DR'S, PLEASE STOP GASLIGHTING YOUR PATIENTS & LISTEN! We're mostly rational folks. If you don't know what to do, say that! Do not do further harm. Work with us. We know our bodies & symptoms we experience aren't normal for us. #chronicillness is cruel. Be kind. Do better! 🙏🫂8/8
When you've had a series of gaslighty af Dr appts, 6 wk severe crash, & the 🌎 is looking dark, but are gifted a surprise blanket created esp for your requisite midday couch snoozy by a lady you've never met in person but have #chronicillness in common. #RAOK make the 🌎brighter