WMDW @MitoAware

World Mitochondrial Disease Week raises awareness of mitochondrial disease on a global scale through educational, fundraising and advocacy activities. mitochondrialdiseaseweek.org Joined May 2011

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WMDW @MitoAware

7 months ago

Historic news for the #mito community 💚 The FDA has approved the first-ever treatment for TK2d. This follows the recent approval of Forzinity for Barth syndrome — progress is happening. Full statement from IMP: mitopatients.org/new-drug-for-t… #RareDisease #TK2d #mitochondrialDisease

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WMDW @MitoAware

9 months ago

Thank you for making World Mitochondrial Diseases Week such a success. 🧩 Under the theme Decode the Mito Puzzle, we united to raise awareness and support the mito community. See you in 2026. mitopatients.org/mito-week #WorldMitoWeek2025 #DecodeTheMitoPuzzle #Mito

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WMDW @MitoAware

9 months ago

Featured experts: Dr. Isabel Lopez Sanchez (Australia) Prof. Filipe Chicani (Brazil) Dr. Marzia Camera (Italy) 🗓️Today – Friday, 19 September 2025 🕒 15:00–17:00 CEST 📍 Online – Register mitoaction-org.zoom.us/webinar/regist… 🔗 Raise awerness for LHON: mitopatients.org/lhon-awareness…

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WMDW @MitoAware

9 months ago

experts and patient perspectives to share insights, research, and practical strategies. 🟢 Highlights of the session: ✔ The latest updates on LHON research ✔ Practical guidance on nutrition and mito care ✔ Opportunities to connect with the global mito community 🎤

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WMDW @MitoAware

9 months ago

Don’t forget to join us this afternoon for a free online webinar on Exploring the Power of Nutrition in Mitochondrial Diseases to celebrate LHON Awerness Day! Nutrition plays a vital role in supporting mitochondrial health. This special session brings together international

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WMDW @MitoAware

9 months ago

LHON Awareness Day 19 September 2025 LHON is a rare mitochondrial disease that causes sudden vision loss, often affecting both eyes in weeks. There is no cure. Share to raise awareness. mitopatients.org/mito-week #LHONAwareness #DecodeTheMitoPuzzle #WorldMitoWeek2025

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WMDW @MitoAware

9 months ago

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WMDW @MitoAware

9 months ago

#MitochondrialDiseases can affect any organ, at any age, with no cure. Take action this #WorldMitoWeek2025! Raise awareness, support research, and help push for better care. Learn more: mitopatients.org/mito-week #Mito

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WMDW @MitoAware

9 months ago

Hope begins with research. Studies into mitochondrial function are opening doors to new treatments and a better future. To #DecodeTheMitoPuzzle is the key. mitopatients.org/mito-week #WorldMitoWeek2025 #MitochondrialDiseases #Mito

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WMDW @MitoAware

9 months ago

#WorldMitoWeek2025 is here! Let’s raise awareness of #MitochondrialDiseases, support the community, and share resources that make a difference. Learn more and get involved: mitopatients.org/mito-week #WorldMitoWeek2025 #DecodeTheMitoPuzzle #Mito

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WMDW @MitoAware

9 months ago

Explore the science and stories behind LHON this Awareness Day. Join our free webinar on 19 Sept, 15:00–17:00 CEST, with global experts on #LHON, vision loss, and advocacy. Register: mitoaction-org.zoom.us/webinar/regist… #LHON2025 #DecodeTheMitoPuzzle #MitochondrialDisease

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WMDW @MitoAware

9 months ago

This #TK2dAwarenessDay, hear from Lisa, Aneesa & Viviane as they share their journeys with #TK2d, a devastating type of #MitochondrialDisease. Their voices tell a story of loss, struggle, resilience & hope. Watch the full video at mitopatients.org/tk2d/ #TK2dTogether

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WMDW @MitoAware

9 months ago

Understanding the science behind mitochondrial diseases helps explain its complex symptoms. When researchers, clinicians, and patients work together, it leads to better care. mitopatients.org/mito-week #WorldMitoWeek2025 #MitochondrialDiseases #DecodeTheMitoPuzzle #Mito

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WMDW @MitoAware

10 months ago

Join us for the free #LHONAwarenessDay2025 Webinar: "Exploring the Power of Nutrition in Mitochondrial Diseases" Friday, 19 September, 15:00–17:00 CEST Experts will share insights on LHON, vision loss, and nutrition. mitopatients.org/lhon-awareness…

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WMDW @MitoAware

10 months ago

Awareness leads to action. Early diagnosis, better care, and more research funding all start with understanding mitochondrial diseases. mitopatients.org/mito-week #WorldMitoWeek2025 #MitochondrialDiseases #DecodeTheMitoPuzzle #Mito

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WMDW @MitoAware

10 months ago

Save the Date! #TK2dAwarenessDay - Tuesday, 9 September 2025 #TK2d is a rare and progressive mitochondrial disease with no known cure. Raising awareness can lead to earlier diagnosis. mitopatients.org/mito-week #TK2dAwareness #WorldMitoWeek2025

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WMDW @MitoAware

10 months ago

Advances in mitochondrial research are driving new possibilities for early diagnosis and treatment. Science is paving the way for better care. mitopatients.org/mito-week #WorldMitoWeek2025 #MitochondrialDiseases #DecodeTheMitoPuzzle #Mito

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WMDW @MitoAware

10 months ago

Mitochondria are our body's batteries. When they don’t work properly, it can disrupt energy production and lead to a wide range of symptoms. Understanding improves diagnosis and treatment. Learn more: mitopatients.org/mito-week #WorldMitoWeek2025 #DecodeTheMitoPuzzle #Mito

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WMDW @MitoAware

10 months ago

Save the Date! #LHONAwarenessDay - Thursday, 19 September 2025 #LHON is a rare mitochondrial disease causing sudden, permanent vision loss. Awareness drives early diagnosis, support, and research. mitopatients.org/mito-week #LHONAwareness #DecodeTheMitoPuzzle #WorldMitoWeek2025

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WMDW @MitoAware

10 months ago

#MitochondrialDiseases (#Mito) are a complex set of conditions with symptoms that vary from person to person. Muscle weakness, fatigue, vision or hearing loss, and more . mitopatients.org/mito-week #WorldMitoWeek2025 #DecodeTheMitoPuzzle