Ines Hernando @inesernando
European Reference Networks and Healthcare Director @eurordis. Views expressed are my own | linkedin.com/in/ineshernand… Joined November 2009-
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Ines Hernando retweeted
“El urbanismo, cuando es feminista, pone a las personas en el centro. A todas las personas. Nada distinto de lo que dicta el ODS 11 de ciudades y comunidades sostenibles”, escribe @VLopezSabater en #IdeasPropias infolibre.es/opinion/ideas-…
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Ines Hernando retweeted
One week to go! ⏰ Make sure to register for our upcoming Patient Partnership webinar presenting the Go East! Project. Register now! ➡️ go.eurordis.org/p8lNPq This patient-led initiative aims to raise awareness about ERNs among health professionals in Eastern Europe.
Ines Hernando retweeted
To conclude, we invite you to review & share your feedback on our newly published document about the Rare Disease Lighthouses model - European Expert Centres delivering certain highly specialised services & complex surgeries. #ECRD2024 👉eurordis.org/publications/w…
Desinfodemia degenerativa infolibre.es/129_1a5bfd vía @_infolibre
The Curious Side Effects of Medical Transparency newyorker.com/news/essay/the…
Ines Hernando retweeted
anda esta pequeñísima, testimonial y simbólica diferencia de cobrar 35.000€ menos que mis dos compañeros presentadores del Benidorm fest fíjate qué risa y qué bien me sienta 🤡🤡🤡🤡🤡🤡🤡🤡🤡🤡🤡🤡
One of a Kind newyorker.com/magazine/2023/…
Whispers of A.I.’s Modular Future newyorker.com/tech/annals-of…
Ines Hernando retweeted
En mi canción favorita de @shakira, ella no entendía de fútbol y alguna vez había sido infiel 😅🙌 Con su #temazo abría yo mis primeros conciertos… #Shakira #Inevitable
A este cartel, colgado en las paredes del Hospital Ramon y Cajal, le falta una columna "Decálogo para la dirección del hospital". Sin una buena gestión, avanzamos hacia la deshumanizacion de la sanidad a marchas forzadas.@Sermas, @sanidadgob, @SanidadEnLucha @RyCEnLucha
Ines Hernando retweeted
Así están ahora mismo las urgencias del Gregorio Marañón de Madrid. Ayuso prometió cañas en terrazas, pero no dijo nada de que se iba a cargar la sanidad pública madrileña.
Ines Hernando retweeted
Se va a liar.
Ines Hernando retweeted
Hola, soy Álvaro, enfermero en el Hospital 12 de Octubre de Madrid. La sanidad pública madrileña se encuentra en una situación crítica y no puedo dejar pasar un día más sin denunciarlo. Este domingo a las 12h nos vemos en Cibeles. Os necesitamos a todos.
Ines Hernando retweeted
Atmospheric levels of the three main greenhouse gases - carbon dioxide, methane and nitrous oxide - reached new highs in 2021. We are headed for disaster. We need urgent, large-scale & systemic #ClimateAction now. news.un.org/en/story/2022/…
Ines Hernando retweeted
Ha fallecido Bruno Latour. 😭🖤 Nunca es tarde para escucharle en esta maravillosa entrevista. arte.tv/es/videos/RC-0…
This video by @rarediseasesint is brilliant 💜💜💜 rarediseasesinternational.org/living-with-a-…
Ines Hernando retweeted
Our new toolkit aims to empower patients to get involved in the evaluation process by breaking down the rationale, process and supporting methodology of the AMEQUIS1 Evaluation. Watch our webinar and read our patient guide to find out more: cutt.ly/qVCQdAO
Ines Hernando retweeted
The UK government's ruthless and reckless policies that "go for growth” require us all to ask the essential questions that Donella Meadows - mother of systems thinking - set out decades ago. So join me in answering these questions... 1/n
Ines Hernando retweeted
“I’m leading this movement,” the exiled journalist Masih Alinejad said. “The Iranian regime will be brought down by women. I believe this.” nyer.cm/jFAxw7U
EURORDIS-Rare Disease... @eurordis
31K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
ERDERA @ERDERA_org
4K Followers 2K Following The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
@ERN_RND 🧠 @ERN_RND
2K Followers 704 Following European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://t.co/nowjhyNigm
EpiCARE @EpiCARE_ERN
3K Followers 452 Following European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
ERN ReCONNET 🇪🇺 @ern_reconnet
3K Followers 864 Following 🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
VASCERN @vascern
2K Followers 607 Following Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
_ERNRITA @_ERNRITA
1K Followers 850 Following ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe
Solve-RD @Solve_RD
2K Followers 359 Following Solve-RD is a H2020 funded flagship EU project. We will solve large numbers of rare diseases, for which a molecular cause is not known yet.
IRDiRC @irdirc
3K Followers 2K Following #IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
ERN EuroBloodNet @ERNEuroBloodNet
2K Followers 406 Following ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases. Funded by the European Union.
ERN-ITHACA @ERNIthaca
1K Followers 367 Following European Reference Network on congenital malformations and rare intellectual disability (ERN-ITHACA).
Avril Daly 💚 @avrilbdaly
1K Followers 2K Following Health Equality Advocate, lover of art & anthropology, living in Dublin, working for Retina International - views are my own
Asociación de #Lupus... @LupusMadrid
6K Followers 5K Following La asociación AMELyA #Lupus Madrid tiene como objetivo mejorar la calidad de vida d toda persona afectada d lupus e informar a los afectados. Visita nuestra web
Joserra @jramonfernandez
51K Followers 5K Following Papá de Emma, neonatólogo en Hospital Santa Lucía y personaje en el libro de la cómica @raquelsastrecom https://t.co/b50uaEjyn4
ERN GUARD-Heart @ERNGuardHeart
573 Followers 204 Following ERN GUARD-Heart is part of the European Reference Networks for rare or low-prevalence disease and focuses on rare and complex diseases of the heart. @AMC_nl
FEDER | Enfermedades ... @FEDER_ONG
39K Followers 8K Following 👉🏻 Somos la esperanza de 3 millones de personas con #enfermedadesraras 🍀 Representamos a 442 organizaciones de pacientes y a 1.546 patologías poco frecuentes
Gemma M. Martínez So... @gemmartinezsol
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Raquel Castro @castrorakel
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Fernando de Castro S @FdeCastroS
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Inglés en Burgos @inglesenburgos
276 Followers 785 Following ¿Qué consiguen mis alumnos?: https://t.co/6xSK7afxXc
Francis tom @TomFrancis90921
4 Followers 95 Following Never stop learning because life never stop teaching
S. Kympouropoulos @Kympouropoulos
11K Followers 6K Following Ψυχίατρος - Σεξολόγος - π. Ευρωβουλευτής Ν.Δ @eppgroup
JARDIN Joint Action @jardin_EU_JA
218 Followers 341 Following JARDIN is created to improve the accessibility of the ERNs for people living with rare diseases or complex conditions in EU member states.
Loresar @LoresaruCz3Eel
20 Followers 839 Following
jose ballarin @joseballarin1
67 Followers 458 Following
ACTA2 Alliance @Acta2Alliance
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Edwina Wrenn O'Connel... @MsEdwina
516 Followers 1K Following Irish Exomphalos / Omphalocele Warrior. I set up and run the only Irish Omphalocele / Exomphalos support group Mom of three 💙💜💙 https://t.co/qDyE3ZKxo8
Ricardo Fernandes @DonDonRic
591 Followers 1K Following Pediatrics & Resp, Pharmacology & Epi, clinical research. Skeptical optimistic, nostalgic, and often (nothing but) a dreamer. https://t.co/BPGAp58YOI
ADEE - Acondroplasia @adee_esp
655 Followers 944 Following ADEE es la Asociación de Personas con Acondroplasia y otras Displasias Esqueléticas en España. Apoyo, visibilidad y defensa de derechos.
MTeresa Izquierdo @Tess_ais
745 Followers 2K Following Vivo en Madrid. Aficionada a pintar, jugar al golf... Me interesa la Política, la Moda y el Arte en general. Soy amante de la vida y si es buena, mejor...¡
CPMH 2023 | Amsterdam... @psychiatryforum
589 Followers 4K Following 3rd International Conference on Clinical Psychiatry and Mental Health Email: [email protected]
RareDiseasesGreece @RareDiseasesGr
136 Followers 172 Following "#RareDiseases Greece" is the Greek RD Federation dedicated to improving the quality of life of all those affected by rare disorders | #ΣπάνιεςΠαθήσεις #Υγεία
raising_rareness (Lyn... @raisingrareness
870 Followers 2K Following Mum of 3 Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter & Rare Community 💗 #AAC MA Archaeology UCC Opinions my own
Healthcare Management @HealthcareUCG
434 Followers 3K Following 19th Global Healthcare, Preventive Medicine & Public Health Summit and Exhibition December 08–09, 2026
Emily Clarke (she/her... @TalkingGenes
825 Followers 1K Following Registered Genetic Counsellor @GenePeopleUK. working in the voluntary sector to support the Genetic community. @theAGNC EDI Sub-committee member.
Tanja Zdolsek Draksle... @TanjaZdolsek
144 Followers 332 Following Researcher @JSI_SLO. Founder of NGO IDefineEurope. Research, knowledge transfer, advocacy for rare diseases. #tech #data #AI #datadrivenworld #digitalhealth
AllaboutAPDS @AllaboutAPDS
254 Followers 148 Following Focused on raising awareness of Activated PI3K Delta Syndrome (APDS) – a rare primary immunodeficiency. Brought to you by Pharming Group NV.
Alfonso Villegas Rey @avillegasrey
3K Followers 1K Following Médico,especialista en personas, familias y comunidades, activista de causas nobles, feminista en proceso, en constante aprendizaje.
carquir09 @carquir09
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ERN TransplantChild @TransplantChild
741 Followers 418 Following European Reference Network on transplantation in children
NORBS @retkebolesti
390 Followers 365 Following NORBS, Nacionalna organizacija za retke bolesti Srbije - savez udruženja obolelih od retkih bolesti. Osnovni cilj - poboljšanje položaja obolelih.
Rare Disease and Orph... @OAE_RDODJ
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Dr Carleen Walsh @CARLEENWALGAL
486 Followers 1K Following Wife & mum|👩👼👼🙎🏼👶|Donegal IRL|Rare Disease Caregiver|Teacher|SEN|Psych @RCSDungloe @UlsterUni @BamfordCentre @RAiNAllIreland @CSENID @atu_ie #raredisease
Together for Rare Dis... @Together4RD
173 Followers 65 Following Together for Rare Diseases is a multi-stakeholder alliance supporting ERNs and industry to collaborate for the benefit of the rare disease community
Mary Wang @marywangCM
499 Followers 698 Following #RareDiseases, global #access; care, diagnosis, medicines. My own tweets
@MedeferCare @medefercare
182 Followers 904 Following Fast access to excellent NHS healthcare is possible for every single one of us.
Nirmal Khadka @NirmalKhadka7
453 Followers 932 Following President at #MuscularDystrophyOrganizationNepal. #RareDiseasesSocietyNepal I am a #musculardystrophy suffering warrior.
NCL_RareDisease @NCL_RareDisease
599 Followers 817 Following @UniofNewcastle Centre of Excellence for Rare Disease works with @NewcastleHosps @NHIPartners & more, to constitute a 'Newcastle RD' community(Tweets V.Hedley)
Rosaria (Sara) Talari... @SaraTalarico2
521 Followers 657 Following MD, PhD. Rheumatologist at the Azienda Ospedaliero Universitaria Pisana. ERN ReCONNET Scientific Coordinator. Working on Rare and Complex Diseases, Behçet.
Vicente @VicenteVallies
644 Followers 2K Following Me voy para Bluesky, para seguirme: https://t.co/4ulBIcAFkI En 1 semana cerraré está cuenta
Stephen Cachia🇲�... @stecac
2K Followers 5K Following Todos somos viajeros.Escritor.M.A.Chinese.Translated the first Chinese novel from Mandarin to Maltese.Habla maltés,español,inglés,mandarín,italiano,francés.😎
admedicum @admedicum
191 Followers 897 Following We are specialists in patient engagement and patient access in research, development and access to treatment, medical devices and services.
ERICA @ERICA_RD_EU
512 Followers 150 Following The European Rare Disease Research Coordination and Support Action
Izzy @ELECTRA12299958
16 Followers 103 Following Amateur actress, history and museums lover, Food lover.
European Journal of H... @ejhg_journal
8K Followers 7K Following The official journal of the European Society of Human Genetics, providing insights into human genetics, genomics, molecular, clinical and cytogenetics research
GBS|CIDP España @gbscidpes
139 Followers 148 Following Reconquista tu cuerpo-Polineuropatías Inmunomediadas Síndrome de Guillain-Barré,CIDP,NMM
Adcum Perú @AdcumPeru
345 Followers 2K Following Somos una asociación sin fines de lucro, que busca apoyar a pacientes con enfermedades metabólicas, llamadas también Errores Innatos del Metabolismo (EIM)
@ERN_RND 🧠 @ERN_RND
2K Followers 704 Following European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://t.co/nowjhyNigm
EpiCARE @EpiCARE_ERN
3K Followers 452 Following European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
ERN ReCONNET 🇪🇺 @ern_reconnet
3K Followers 864 Following 🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
VASCERN @vascern
2K Followers 607 Following Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
_ERNRITA @_ERNRITA
1K Followers 850 Following ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe
ERN-EYE @ErnEyeEU
1K Followers 208 Following https://t.co/hGZjQCukos - ERN-EYE is a European Reference Network dedicated to Rare Eye Diseases.
MetabERN @Metab_ERN
2K Followers 371 Following The European Reference Network for Hereditary Metabolic Diseases. A better future for Rare Inherited Metabolic Disease patients. RT ≠ Endorsement. #Together
Solve-RD @Solve_RD
2K Followers 359 Following Solve-RD is a H2020 funded flagship EU project. We will solve large numbers of rare diseases, for which a molecular cause is not known yet.
IRDiRC @irdirc
3K Followers 2K Following #IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
ERN eUROGEN @ERN_eUROGEN
1K Followers 533 Following Improving diagnosis, treatment & care for rare uro-recto-genital diseases & complex conditions needing highly specialised surgery. Funded by the EU.
EU One Health @EU_Health
87K Followers 3K Following The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
ERN EuroBloodNet @ERNEuroBloodNet
2K Followers 406 Following ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases. Funded by the European Union.
ERN-ITHACA @ERNIthaca
1K Followers 367 Following European Reference Network on congenital malformations and rare intellectual disability (ERN-ITHACA).
Avril Daly 💚 @avrilbdaly
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EURACAN @ERN_EURACAN
900 Followers 346 Following #EURACAN is the #ERN for #rare adult solid #cancers: 1 of the 24 #EuropeanReferenceNetworks working on a range of thematic issues. 🔗 https://t.co/nYHhrtwCqg
WHO/Europe @WHO_Europe
222K Followers 997 Following The WHO Regional Office for Europe is one of 6 WHO regional offices around the world. It works with public health partners across the Region. Led by @hans_kluge
Lluis Montoliu @LluisMontoliu
39K Followers 1K Following Biotechnologist, interested in mammalian genomes and generation & use of genetically modified animals as models of human rare diseases, such as albinism #CRISPR
Joserra @jramonfernandez
51K Followers 5K Following Papá de Emma, neonatólogo en Hospital Santa Lucía y personaje en el libro de la cómica @raquelsastrecom https://t.co/b50uaEjyn4
ERN GUARD-Heart @ERNGuardHeart
573 Followers 204 Following ERN GUARD-Heart is part of the European Reference Networks for rare or low-prevalence disease and focuses on rare and complex diseases of the heart. @AMC_nl
FEDER | Enfermedades ... @FEDER_ONG
39K Followers 8K Following 👉🏻 Somos la esperanza de 3 millones de personas con #enfermedadesraras 🍀 Representamos a 442 organizaciones de pacientes y a 1.546 patologías poco frecuentes
Aena @aena
124K Followers 373 Following Gestionamos 46 aeropuertos y 2 helipuertos en España, 31 en América y tres en Reino Unido. Información de servicio aquí. 🅿️🛍️🍴 FB IG: EnjoyAena
Meteocat @meteocat
449K Followers 445 Following ☀️⛈️ Som el Servei Meteorològic de Catalunya. Generalitat de Catalunya 📌Normes de participació https://t.co/Sg6aYN9fza
JARDIN Joint Action @jardin_EU_JA
218 Followers 341 Following JARDIN is created to improve the accessibility of the ERNs for people living with rare diseases or complex conditions in EU member states.
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176K Followers 5K Following Escritor y profesor de filosofía. Escribo en @elcultural, @RocaEditorial, @ReligionDigit y @Cuerpomente.
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Artur Furtado @ArturFurtadoEU
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5K Followers 565 Following Art helping us look at the world through other people’s eyes | Director @ClarePatey | 📍 Next stop: Brighton, @brightdome More info ↴ ↴ ↴
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16K Followers 4K Following Social philosopher and author, currently transitioning to https://t.co/OO3iHFtCNN
Rare Disease and Orph... @OAE_RDODJ
513 Followers 2K Following International peer-reviewed, open access journal on rare diseases and orphan drugs. First Impact Factor (~2.0) expected June 2026.
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8K Followers 773 Following Ambientólogo especializado en biodiversidad terrestre y conservación en islas.🌋 Hablo sobre fauna y conservación insular, especialmente canaria🇮🇨🦎🦇🐦🦉🦅
Jennifer Senior @JenSeniorNY
42K Followers 2K Following Currently: Staff writer @theatlantic. Formerly: Columnist @nytopinion; daily book critic @nytimes. Author of All Joy and No Fun and On Grief. Wife, mom, etc.
Andrés Gil @andresgil
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61K Followers 1K Following EU Bureau Chief for @el_pais Unión Europea, Rusia, Ucrania, Geopolítica, Defensa Ex corresponsal en Moscú
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Dina D. Pomeranz 🟣 @DinaPomeranz
68K Followers 11K Following Econ prof @econ_uzh, formerly @HarvardHBS. Affiliate prof @JPAL, @cepr_org. Member BK-IZA, EKM. Co-founder @gain_network_. Board member @HelvetasCH, PxD, IIPF.
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David Evans @DaveEvansPhD
51K Followers 735 Following Economist at @CGDev. Formerly @the_IDB, @WorldBank, @RANDCorporation, and an usher at my neighborhood movie theater. My views, not my employer's.
Claudio Ferraz @claudferraz
44K Followers 2K Following Professor of Economics @ubcVSE & Professor de Economia @PUCRioEconomia | Sometimes free surfer 🇧🇷 🇨🇦
Ivan Werning @IvanWerning
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Shengwu Li @ShengwuLi
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110K Followers 6K Following Servicio Andaluz de Empleo (SAE). Consejería de Empleo, Empresa y Trabajo Autónomo de la Junta de Andalucía. ¡Aporta incluyendo @SAEmpleo en tus tuiteos!
Alberto Rodríguez @Alber_Canarias
79K Followers 564 Following Currando en la fábrica pa darle de comer a los pollitos.👷🏾♀️ Orgulloso concejal en Aguere.💪🏾 Construyendo el futuro del país en @Drago_Canarias.🇮🇨🌱
RTVC @RTVCes
119K Followers 767 Following Canal oficial de RTVC ▪️ YouTube https://t.co/L75PlwEnw9 ▪️IG https://t.co/htKAIpMQI3 ▪️FB https://t.co/WdqDvd3fi5
Daniel Castro @Dcastro1972
6K Followers 909 Following Guionista. En Chamberí. Cuenta oficial. Official account. Conto ufficiale. También aquí https://t.co/WeijJHu1rv
Jon Baldwin (Abstract... @jonbaldw
6K Followers 1K Following Política, sociología, música, cine, arte y demás vicios | Hedonista a tiempo parcial, elegante pero informal | Diseñando futuros en @ieccs_ | Ex @ElOrdenMundial
Alexis Ravelo @AlexisRavelo1
9K Followers 6K Following Escribidor calvo y ateo que sobrevive escribiendo cualquier cosa que le permita mantener su dieta de bocadillos de chopped y cerveza.
DandocholA @dandochola
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Alexis Gay @yayalexisgay
121K Followers 1K Following type A comedian 😎 | @krazamtv presents: Paradise is out NOW! 🌴 | show tix + email list at the link! ⬇️
Meghan O'Rourke megha... @meghanor
21K Followers 2K Following Author of NY Times Bestseller THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, a finalist for the National Book Awards. Editor, The Yale Review.
Caminando Fronteras @walkingborders
22K Followers 66 Following Colectivo. Construyendo comunidad migrante desde 2002. Frente a la necrofrontera, el #DerechoAlaVida de quienes se mueven. 🌍
Isabel Calderón @IsaCalderonPB
41K Followers 1K Following Deforme Semanal Ideal TOTAL. Tengo dos premios ONDAS, así que si vienes a jorobar, llámame DOÑA ISABEL.
lucia lijtmaer @lalitx
42K Followers 974 Following Deletreando 'Ele i jota té eme a e erre' desde finales de los 70. Escribo libros, hablo en la radio. #DeformeSemanalTrends for United States
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