Better value for Taxpayer would be if Pharmaceutical Industry contributed to cost of services required by people inevitably harmed by their products My Son has #Valproate syndrome His lifetime education, healthcare & welfare costs will exceed £10million. Day care=£24k per year

Mel Stride @MelJStride

2 days ago

Better value for Taxpayer would be if Pharmaceutical Industry contributed to cost of services required by people inevitably harmed by their products My Son has #Valproate syndrome His lifetime education, healthcare & welfare costs will exceed £10million. Day care=£24k per year https://t.co/2bLonc6MhV

812 35 94 101K 17

Il est important de continuer le travail d'information sur les dangers de #Dépakine #Valproate chez les femmes enceintes. A lire @HealthsanseUK Drug harms in pregnancy there are none so deaf as those who do not want to hear HealthSense healthsense-uk.org/publications/n… via @HealthSenseUK

@SusanMorgan19 @LooyahHallie @mariacaulfield Same here regarding #valproate. No response from @mariacaulfield @DHSCgovuk to Legal letter from our Lawyers @DIBBody following @PSCommissioner #RedressNow proposal. Why do Carers & Disabled people constantly have to chase up & appeal? #PrescribedHarm #AvoidableInjury

keyboard_arrow_left Previous keyboard_arrow_right Next

More disrespect from Politicians pretending to care about our health & our suggestions to improve #PatientSafety & #RedressNow. Two months I've been waiting for a reply from @mariacaulfield. They don't even listen or respond to our Lawyers! #Valproate #Mesh #Primodos #SSRI #ECT

Maria Caulfield MP @mariacaulfield

a year ago

More disrespect from Politicians pretending to care about our health & our suggestions to improve #PatientSafety & #RedressNow. Two months I've been waiting for a reply from @mariacaulfield. They don't even listen or respond to our Lawyers! #Valproate #Mesh #Primodos #SSRI #ECT

20 22 32 5K 1

@BehcetsBeauty My Son has severe lifelong disability that was caused by epilepsy medication #valproate that I was prescribed during pregnancy. We, as a Cohort affected by adverse drug reactions have had to give our personal experience and opinions to get better regulations and services.

Another large national charity pretending to care about people with disabilities. They lobbied hard to resist and delay warnings being issued regarding birth defects caused by epilepsy drug #valproate Check out a charity's donors and board before you donate.

Epilepsy Society @epilepsysociety

7 days ago

Another large national charity pretending to care about people with disabilities. They lobbied hard to resist and delay warnings being issued regarding birth defects caused by epilepsy drug #valproate Check out a charity's donors and board before you donate.

10 6 28 3K 0

Download Image

@WrittenMedicine @msonetwork @PharmacySafety @ptsafetylearn @MHRAgovuk @MHRAmedicines @PSCommissioner Can anyone point me in the direction of patient information leaflets for #Valproate in different languages/formats, please? #PatientSafety #MedicationSafety

Women prescribed #semaglutide, brand names #ozempic & #wegovy for weight loss, #infertility #PCOS or type 2 #diabetes. Animal studies reveal increase miscarriage & birth #abnormalities. Need for #contraception throughout treatment. Avoid another #valproate #thalidomide tragedy.

Morbidity and mortality risks associated with #valproate withdrawal in young men and women with #epilepsy @LHCHFT @LivHPartners @LJMU_Health academic.oup.com/brain/article/…

#ValproateCrisis Our children are harmed by #Valproate and will live with this for the rest of their lives…meanwhile government ‘consider all options’ from the #HughesReport Let’s hope they make the right decision by our children and that they are not left waiting any longer

janet williams MBE INFACT/FACSA @JanetWilliams99

a week ago

#ValproateCrisis Our children are harmed by #Valproate and will live with this for the rest of their lives…meanwhile government ‘consider all options’ from the #HughesReport Let’s hope they make the right decision by our children and that they are not left waiting any longer

keyboard_arrow_left Previous keyboard_arrow_right Next

0 7 8 3K 0

Download Image

@DonnellyStephen @roinnslainte @SimonHarrisTD Sadly, today, we have been informed that another child has received a diagnosis of Fetal Valproate Spectrum Disorder (#FVSD) which could have been avoided. #Valproate #Inquiry

#valproate. Big H turns 37 shortly. I can only imagine what his life would have been like if I did not digest Epilim (sodium #valproate) and/or I was given any warning on him. @roinnslainte, are you hiding something ? Open up the #Lenus full #transparency is now required. ⬇️⬇️

@22Q11_Ireland @SBH_PAG @SMAIrelandCom @AtaxiaFI Also, Fetal #Valproate Spectrum Disorder.

@scolionetwork @ShaunLintern @OACSCharity UK. In October of 71, there was a meeting with Labaz now, Sanofi, re the licensing of #valproate. UK then used valproate in hospitals in 72/73. Valproate went on to be officially licenced 1974. I have the minutes of the Oct 71 meeting & I will be using them re -Irish #inquiry

@scolionetwork @ShaunLintern @OACSCharity Families in Ireland have been waiting 49 years now. It's a national scandal. #Valproate

@SimonHarrisTD @DonnellyStephen @roinnslainte Information for the up and coming Chairperson for the Sodium #Valproate #Inquiry (when he/she is in place I & others like me will accept nothing but #apology, #redress for harm caused to my children. We all know who is #accountable

Received today. @EMA_News @PSIRegulator @SimonHarrisTD @DonnellyStephen @roinnslainte #Valproate #Pharmacy

RIP Jake 🙏 #valproate #PrescribedHarm

JamoJr🙈☕🎧 @JamoJr2

2 weeks ago

RIP Jake 🙏 #valproate #PrescribedHarm

1 1 5 220 0

Download Image