Search results for #FightLafora
🆕 research simplification: Early Treatment With #Metformin Improves Neurological Outcomes in #LaforaDisease Read the one-page summary for families: chelseashope.org/wp-content/upl… #FightLafora #LaforaDiseaseResearch #MedicalResearch
🆕 1pg research simplification on the effect of Myozyme therapy in #LaforaDisease: chelseashope.org/wp-content/upl… #FightLafora
📢 Save the date for the 9th Annual #LaforaDisease Science Symposium! It will be September 23-25 in San Diego. We hope to open registration for #LaforaSymposium24 next month. More details coming soon! #FightLafora #LDSymposium24
🆕 We’ve added a new webpage, answering FAQs! ION283 Safety Study: ASO therapy for Lafora disease Check it out now: chelseashope.org/safety-study/ #FightLafora
📰 New post! The Latest Research in Lafora Disease – Summarized for Easy Reading Read now on our news & blog page: chelseashope.org/research-simpl… #FightLafora
🎯 Read the April 2024 #ResearchRoundtable Summary: chelseashope.org/wp-content/upl… 🙏 Special thanks to Luis Zafra-Puerta, Dr. Serratosa, Dr. Gentry, and Dr. Minassian for speaking! 💬 Please contact Dr. Donohue with any questions or suggestions after reading it. #FightLafora
Have you read our Annual Report? ➡️ Don't miss reading it: chelseashope.org/wp-content/upl… #ChelseasHopeAnnualReport #ChelseasHopeLaforaCure #LaforaDisease #ChelseasHope #FightLafora
This #GoodDeedsDay, sign up to volunteer with us! 🤝 📧 Email [email protected] or sign up here: chelseashope.org/volunteer-inte… #Volunteer #GoodDeedsDay2024 #ChelseasHopeLaforaCure #LaforaDisease #RareDiseaseAwareness #FightLafora
Happy #NationalSiblingsDay! We honor all siblings who #FightLafora. Your support and love for your sibling with #LaforaDisease is truly inspiring. 💜
Happening in two days! Are you joining the next #LaforaDisease research roundtable? ⬇️ link below #FightLafora
Happening in two days! Are you joining the next #LaforaDisease research roundtable? ⬇️ link below #FightLafora
👋 Meet Emilie, the #Research Network Development Intern! Emilie Heller is majoring in Chemistry at the University of Washington. In her free time, Emilie likes crocheting and cooking. #MeetTheTeam #FightLafora
📢 SPEAKER ANNOUNCEMENT Thanks to Luis Zafra Puerta, Dr. Matt Gentry & Dr. Berge Minassian for speaking at our next #LaforaDiseaseResearchRoundtable. Research Roundtable Details 🗓 11 April 2024 ⏰ 10:30 am - 12 pm ET 📍Zoom REGISTER HERE: us06web.zoom.us/meeting/regist… #FightLafora
This #WarriorWednesday, we're featuring Tracy, who lives in Spain. 🇪🇸 Tracy has a heart of gold and is always ready to help others. Her mother, Giovanna, shared that Tracy was cheery and loved her life before her Lafora symptoms started. gofund.me/348ad4ac #FightLafora
📰 New post! Reflecting on Progress: Explore Our Impact in the Chelsea’s Hope 2023 Annual Report Read now on our news & blog page: chelseashope.org/chelseas-hope-… #FightLafora
Happy #DoctorsDay2024 to all the amazing clinicians who care for Lafora patients. Thank you for everything you do to #FightLafora.
🎥 Have you seen any of our YouTube videos? Primarily a way we seek to raise awareness about #LaforaDisease, our YouTube videos are longer than anything we share here. There are family stories, webinars, and more to come! SUBSCRIBE HERE: youtube.com/channel/UChAcC… #FightLafora
This #WarriorWednesday, we're featuring Carmen, who lives in Spain. She is a smart and beautiful teen who dreams of being a model and a surgeon. Want to support Carmen? Her family has a GoFundMe and appreciates any awareness you can spread: gofund.me/348ad4ac #FightLafora
📰 New post! Chelsea’s Hope supports Purple Day 2024 chelseashope.org/?p=8952 #FightLafora
🎉 Happy Holi! May the festival of colors bring joy, laughter, and love to all! 💜 the team at Chelsea’s Hope Lafora Children Research Fund #HappyHoli #Holi2024 #FightLafora
👋 Meet Maysoon, a Science Communications Intern! Maysoon Hussain recently graduated from Ross University School of Medicine and is applying for her residency in Obstetrics and Gynecology. Read more here: chelseashope.org/portfolio-item… #MeetTheTeam #ChelseasHope #FightLafora
