Dystonia Medical Research Foundation @dmrf
Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals. dystonia-foundation.org Chicago Joined December 2008-
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Just a reminder that the first digital edition of Dystonia Dialogue (Spring 2024) is available online bit.ly/3QfzhzC . You can also sign up to receive future issues directly in your email inbox.
For medical researchers: the US Dept of Defense (DoD) Peer Reviewed Medical Research Program (PRMRP) submission process has started and many pre-proposals are due in early May. Go to the eBRAP portal: bit.ly/44fnkiT and start the process. #dystonia
Today is Earth Day and the DMRF encourages you to access and subscribe to our magazine, Dystonia Dialogue, electronically. It's a great way to honor the spirit of the day and save some trees. Follow this link: dystonia-foundation.org/dystonia-dialo… to read the latest issue and to subscribe.
We have a winner in the Zoo Days T-Shirt and this year's shirt will be Royal Blue! See the dates and cities where Zoo Days are happening here: dystonia-foundation.org/get-involved/e…. Thanks to everyone for helping get this year's Dystonia Zoo Days off to a great start!
Join us in welcoming Chris Von Der Ahe to the Board of Directors of the DMRF. Chris is a Managing Partner at Korn Ferry, a global talent consulting firm, and he has a passion for dystonia research, education and support. #dystonia
More images and news on Jon Davis' #Riding4Us campaign through Portugal. Jon is riding more than 4k miles this year to raise awareness and funding for dystonia medical research. Follow Jon on his journey and donate toward his cause. bit.ly/3YqyTRt #dystonia
DMRF Board Member Jon Davis raised >$22k for dystonia research in 2023. For 2024 he's riding 4k miles through Portugal to raise $20k. Support Jon on his #Ride4Us journey and donate to dystonia research. Learn more at: bit.ly/3YqyTRt. #riding4us #dystonia
The DMRF, a part of the Dystonia Advocacy Network, spent was on the Hill yesterday advocating for dystonia research and access to all treatments. We had 40+ meetings with Congressional offices – sharing their stories and raising awareness of dystonia. #dystonia #medicalresearch
Support Stefanie Barbieri's running in the United Airlines NYC Half Marathon with a donation to the Dystonia Medical Research Foundation. Stefanie has been outrunning #dystonia for 20 years and your donation can make a difference bit.ly/3wULcfn
We salute the tireless efforts and love poured into every act of care. Together, we nurture hope and healing. 💙 🩺 #caregiversday #dystoniawareness #dmrf
Check out the latest Q&A in @dmrf's Dystonia journal featuring Dr. Linda Kim from Baylor College of Medicine. She's a recipient of the Mahlon DeLong Young Investigator award for her groundbreaking work in dystonia research. Don't miss it! @FrontiersIn #dystonia @linda_h_kim
This holiday season, we extend our very best wishes to our incredible community for your continued support. Wishing you a Happy, Healthy Holiday Season from the DMRF. ❄️ #HappyHolidays #DystoniaAwareness #ResearchMatters #DMRF
We wanted to extend our thanks to you for your support of our mission and to share our gratitude for all that we were able to accomplish in 2023 - together. Here's a special video message from DMRF President Mark Rudolph, looking back at 2023. bit.ly/4a9N1UG #thankyou
Jon has conquered the roads, pedaling his way to an incredible 4,000 miles & raising over $20,000+ for dystonia research. Congrats Jon! Every turn of his pedals echoed the spirit of hope and progress in the fight against dystonia. 🚴♂️Read about Jon’s story, bit.ly/3YqyTRt
🧩 💡 The DMRF has had the big picture in mind: A vision to find a cure while addressing the needs of all those affected by dystonia. Your gift can lead us to the next BIG discovery, please donate bit.ly/40Hc0dP #thinkbig #dystonia #dystoniaresearch #DMRF
❤️ Giving Tuesday is here! Help us raise money and awareness $5 at a time. All funds raised today will be eligible to be matched by an anonymous donor. bit.ly/3Ra8YeZ Give DMRF🖐️on Giving Tuesday! #givingtuesday #5dollarcure4dystonia #dystonia #dystoniaawareness #DMRF
Thank you to our dystonia donors, support leaders, event organizers, awareness champions, researchers, physicians & nurses who work hard to make life better, & who have comforted another member, we thank you for your efforts. Happy Thanksgiving! #happythanksgiving #DMRF #dystonia
Give🖐️On Giving Tuesday. Help DMRF raise money and awareness $5 at a time. All funds raised today will be eligible to be matched by an anonymous donor. bit.ly/3Ra8YeZ Mike Delise (left) and Jason Dunn (right) launched $5DollarCure4Dystonia in 2017. #5dollarcure4dystonia
✨ Dystonia Tip✨ Keep your sense of humor. Laughter can be a powerful tool in coping with difficult situations. Find joy in everyday moments and embrace the lighter side of life. #TuesdayTip #DystoniaTip #Dystonia #DMRF
Jon Davis has two passions in life: riding his bicycle and driving dystonia awareness. 🚲 💙 Help him reach his goal of raising $20,000 for dystonia research! bit.ly/3R6HYwR Read all about him bit.ly/3SQHjkq #Riding4Us #Riding4Dystonia #dystonia #DMRF
Michael Okun @MichaelOkun
34K Followers 870 Following National Medical Advisor @parkinsondotorg Author 14 books https://t.co/EJCwDpEIw8 blog Professor @UF @fixelinstitute Associate Editor @JAMANeuro @DBSThinkTank
Alfonso Fasano @DrAlfonsoFasano
6K Followers 2K Following Co-director of the Surgical Program of Mov Disord Centre, Toronto Western Hospital | Krembil Brain Institute | Professor of Neurology, University of Toronto
Kailash Bhatia @kailashbhatia
6K Followers 2K Following Editor Movement Disorders Clinical Practise; Professor of Clinical Neurology, Queen Square, UCL; Chairman MSA Trust UK; Opinions my own
Alberto J Espay @AlbertoEspay
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ST Dystonia @ST_Dystonia
1K Followers 260 Following Our mission is to help the Dystonia community find a faster diagnosis and more effective treatment; thus empowering them to achieve a higher quality of life.
Movement Disorders Cl.. @MDCP_Journal
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Andreas Horn @andreashorn_
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Sanjay Pandey @SanjayP30043502
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Christos Ganos @ChristosGanos
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Beat Dystonia @beatdystonia
1K Followers 154 Following Spoke about Dystonia and adversity on Oprah, The Today Show, various magazines, TED, various network shows, etc. Rogers Hartmann, founder of Beat Dystonia.
Francesca Magrinelli @FraMagrinelli
704 Followers 497 Following MD, PhD, Graduated MJFF Edmond J. Safra Clinical Research Fellow in Movement Disorders. Researcher in Neurogenetics at @UCLIoN @IonSynapse. Duc in altum.
Brain & Life @BrainandLifeMag
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Marisela E. Dy-Hollin.. @DrMariselaDy
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Jessica Hebert @Jessica45503847
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Gina Kross McIver @Justbeachie59
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Katherine DuFrirsz, M.. @awakeningdrd
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Wandréa Marcinoni Wo.. @wandreamarci
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EPNS @EPNSnews
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TOoma Haron @QhfHWZLeeJsqMs7
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Michele @Michele29546210
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*** @nicho___o
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Michelle Roberts @gmejchevarie11
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Sara No H 63 @SaraNoH63
12 Followers 223 Following
Mats Sundberg @MatsSundberg63
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Victor Cruz @Victor_ECR
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Judith Woodbury @woodbury3388
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Michael Connor @midweekwarrior
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Lodge Books @LodgeBooks
295 Followers 130 Following Book lover, allotmenteer, Dystonia sufferer, ex book shop owner.
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Lucia Feldmann @FeldmannLucia
258 Followers 180 Following Medical doctor neuroscientist at @Charite - excited about movement disorders, neurophysiology and adaptive DBS, culture, music and ecology
Alissa Higinbotham, M.. @AlissaHigMD
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Johnna Fleak @FleakJohnna
273 Followers 633 Following Just a girl who loves Jesus and her S🅾️🅾️NERS! Navigating through life with hEDS, MCAS & Pots
Karel Mc Intosh @karelmcintosh
337 Followers 513 Following I teach communication - Certified Executive Coach - Director @LivewiredGroup - Founder @outlishmagazine - Semi-retired marketer - Best aunty ever!
🌻 ☮️ LuLu_Jado.. @CDior_4
2K Followers 2K Following 💋Spanish-American 🇺🇸 Love always help those in need open your minds🧠#USA🇱🇷#breakthestigma NAMI-Mental Health Advocacy #Dystonia#420friendly🌿#Periscope OG
Martin Mc NYC @Martinmc2023
1K Followers 880 Following 35 in Ireland. Business Studies Grad| World Economics| Global Politics | Sustainability | National Health Economics | SDGs interest. these views are my own.
Marina M @lepuma6
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AKMedicalUnicorn @medical_unicorn
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Michael Okun @MichaelOkun
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MDS @movedisorder
15K Followers 314 Following MDS is a professional society of clinicians and other healthcare professionals interested in movement disorders. #movedisorder @MDJ_Journal | @MDCP_Journal
Alfonso Fasano @DrAlfonsoFasano
6K Followers 2K Following Co-director of the Surgical Program of Mov Disord Centre, Toronto Western Hospital | Krembil Brain Institute | Professor of Neurology, University of Toronto
Kailash Bhatia @kailashbhatia
6K Followers 2K Following Editor Movement Disorders Clinical Practise; Professor of Clinical Neurology, Queen Square, UCL; Chairman MSA Trust UK; Opinions my own
Alberto J Espay @AlbertoEspay
8K Followers 630 Following #Neurology professor @uofcincy. Advocate of precision medicine in #Parkinsons & #Alzheimers. Cofounder of Regain to correct proteinopenia. Author #BrainFables.
ST Dystonia @ST_Dystonia
1K Followers 260 Following Our mission is to help the Dystonia community find a faster diagnosis and more effective treatment; thus empowering them to achieve a higher quality of life.
Movement Disorders Cl.. @MDCP_Journal
6K Followers 142 Following Movement Disorders Clinical Practice is the exclusively online Journal of the International Parkinson and Movement Disorder Society (MDS) @movedisorder.
Andreas Horn @andreashorn_
9K Followers 2K Following Neuroscientist @brain_circuits at @Harvardmed, @BWHNeurology, @MGHNeurosurg & @Chariteberlin into network neuromodulation. Author of @leaddbs and @stimbrains.
Abhimanyu Mahajan @AMahajanMD
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Neurology Journal @GreenJournal
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223 Followers 229 Following Movement disorders neurologist with special interest in Stiff Person Spectrum and other autoimmune disorders
American Academy of N.. @AANmember
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2K Followers 2K Following Dystonia news and updates (in plain English) curated by an expert patient. #dystonia #DystoniaAwareness
Neurology Today @NeurologyToday
64K Followers 3K Following The official news source of the American Academy of Neurology, published by Wolters Kluwer.
Claudia Trenkwalder @ctrenkwalder1
2K Followers 90 Following movement disorder clinician and researcher - still enthusiastic to see patients and study Parkinsonism and sleep
Indu Subramanian @DrISubramanian
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JAMA Neurology @JAMANeuro
60K Followers 250 Following JAMA Neurology is a member of the JAMA Network, a consortium of peer-reviewed, general medical and specialty publications.
Sanjay Pandey @SanjayP30043502
1K Followers 522 Following Professor and Head, Department of Neurology and Stroke Medicine, Chief, Parkinson's disease and movement disorders, Amrita Hospital, Faridabad, Delhi NCR India
Neuroscience News @NeuroscienceNew
451K Followers 6K Following Official Neuroscience News Twitter. Brain research news articles on neuroscience, psychology, AI, neurology, brain cancer, robotics, mental health & science.
Linda H. Kim @linda_h_kim
391 Followers 1K Following 🇰🇷🇨🇦 | Exploring cerebellum & therapeutic neuromodulation, one neuron at a time | @dmrf Mahlon DeLong Awardee | Postdoc @SillitoeLab | 🐱☕️🚵♀️🧗♀️⛳️
Mass General Brigham @MassGenBrigham
23K Followers 799 Following Mass General Brigham is an integrated health care system, uniting great minds to solve the hardest problems in medicine for our communities and the world.
Amanda Yarbro @elmo3907
788 Followers 3K Following Dystonia Advocate!! RENThead since 1996. AVI KAPLAN FOLLWED ON 9/23/18!!! THE HARDCORE LEGEND MICK FOLEY FOLLOWED 6/4/21!! THUNDER ROSA FOLLOWED 8/24/21
Mr Dystonia @Mr_Dystonia
193 Followers 2K Following I am the first person in Canada to have a amputation to correct my dystonia the operation was a huge failure.I now suffer constant dystonic storms chronic pain
Steven Zarren @dystoniadisease
1K Followers 2K Following We help people living with dystonia and blepharospasm improve the quality of their life. Read all of the inspiring success stories!
Gordon Research Confe.. @GordonConf
20K Followers 194 Following An international forum for the presentation and discussion of scientific research at the frontiers of science.
DBS Think Tank @DBSThinkTank
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Jens Volkmann @volkmann_jens
190 Followers 9 Following Neurologe, Direktor der Neurologischen Universitätsklinik Würzburg
Kevin Pho, M.D. @kevinmd
157K Followers 19K Following Physician | https://t.co/ymdHK4O5hQ | The Podcast by KevinMD
Bailey Bish @Bailey_Bish
125 Followers 112 Following “There is only one way to succeed in anything, and that is to give it everything” - Vince Lombardi
Priyansha Dubey @priyansha3007
4 Followers 59 Following PhD student; DYT1 dystonia; University of Wuerzburg; Retune – CRC TRR 295
Simon Little @littleneuro
467 Followers 192 Following
Brain Modulation Lab @brainmodlab
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Louisa Thomas @louisahthomas
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The New Yorker @NewYorker
8.8M Followers 404 Following Unparalleled reporting and commentary on politics and culture, plus humor and cartoons, fiction and poetry. Get our Daily newsletter: https://t.co/CW0Z2jHao9
Joe Jankovic @JoeJankovic
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UCL News @uclnews
63K Followers 2K Following News/media from UCL, updated by UCL Media Relations. Follow @ucl for highlights of UCL life & @uclevents
Krembil Brain Institu.. @KBI_UHN
6K Followers 2K Following Krembil Brain Institute is dedicated to advancing research and clinical care for those living with diseases and disorders of the brain and spine.
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320 Followers 10 Following Division of Neurology at University Health Network (UHN) and Sinai Health System (SHS)
Ashwani Jha @neuro_penguin
520 Followers 993 Following Neurologist interested in Epilepsy and Movement disorders; passionate about making AI and digital medtech useful...and making food spicy 🌶
Anna Sadnicka @AnnaSadnicka
282 Followers 248 Following Trying to understand human movement disorders. Consultant neurologist @ NHNN and early career researcher @wellcometrust @GatsbyUCL @MDC_IoN_UCL
Petra Fischer @PetraFischer1
211 Followers 193 Following Lecturer in Neuroscience studying movement disorders and cortico-basal ganglia network dynamics.
Panagiotis Kassavetis.. @PKassavetis
84 Followers 84 Following Assistant Professor of Neurology, Movement Disorders, University of Utah
Dan Piña-Fuentes @DanPinaFuentes
127 Followers 214 Following Postdoc researcher. Dept. of Neurology, Amsterdam UMC. De hier gepubliceerde uitingen vertegenwoordigen uitsluitend mijn persoonlijke meningen en opvattingen.
Parkinsonism & Relate.. @ParkinsonismD
3K Followers 129 Following
Movement Disorders Jo.. @MDJ_Journal
4K Followers 86 Following Movement Disorders, the official Journal of the International Parkinson and Movement Disorder Society. @movedisorder
Samantha Thompson @SThompson787
168 Followers 170 Following Neuroscience grad student at Baylor College of Medicine, Jeff Noebels lab. interested in calcium channel mutations in epilepsy and spatial transcriptomics🧬
Shaimaa El-Jaafary @ShaimaaJafary
560 Followers 631 Following Egyptian neurologist working hard searching for the best care of my patients with neurodegenerative diseases.
ong beng hooi @ongbenghooi1
381 Followers 230 Following Neurologist, Neurophysiologist & Neuromuscular
Alejandro Rey Hipolit.. @AlejandroReyHi1
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RareShare @RareShareOrg
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Fekrije Selimi @fekri.. @fekrijeselimi
602 Followers 534 Following Neuroscientist, studying synapses and development of the nervous system
Juho Joutsa @JJoutsa
671 Followers 527 Following Professor of Neurology @UniTurku , Chief neurologist @TyksAUCS, Chair @Tku_brain_mind; Lab: @turkubrainlab
Michael Fox @foxmdphd
6K Followers 438 Following Neurologist and Neuroscientist focused on brain imaging and brain stimulation @harvardmed @brighamWomens
Ellen M Walker 🧠�.. @NeuroEllen
762 Followers 592 Following #SpartansWill Neurobiologist 🧠 from @EastCarolina @UTEP @WakeForestMed @UCLA Working for data to buy dog treats 🦴Golden Goose👟@NPR 📻 junkie
Aurelio Galli @GallivantLab
1K Followers 1K Following Neuroscientist on the Nash-Bhamas I-65 Science is my Dream Director of UAB CINEMA
I-75 scientist 🐊�.. @jmcin9
5K Followers 3K Following Husband, dad of 4. traveled Universities on/near I-75, #MastersSwimming #ClydesdaleTri 🏊♂️ 🚴 🏃♂️ 🍺🥃 | Opinions are mine. RT are not endorsements
Francesca Magrinelli @FraMagrinelli
704 Followers 497 Following MD, PhD, Graduated MJFF Edmond J. Safra Clinical Research Fellow in Movement Disorders. Researcher in Neurogenetics at @UCLIoN @IonSynapse. Duc in altum.
UF Movement Fellowshi.. @UFMDFellowship
1K Followers 763 Following Official account of the University of Florida Movement Disorders Fellowship. 🌴• PD: @CWHESSMD • Guru : @MichaelOkun • Tweets by @AVCarpentier • Go 🐊!!!
D @DborahMarion1
321 Followers 1K Following
Emory School of Medic.. @EmoryMedicine
13K Followers 966 Following Located in Atlanta, Georgia, Emory University School of Medicine is a leading institution with the highest standards in education, research, and patient care.
Casey Albin, MD @caseyalbin
19K Followers 1K Following Neurointensivist @EmoryNeuroCrit | @ContinuumAAN media AE | Passionate about #FOAMncc & acute neurology
UCLA Neurology @UCLANeurology
4K Followers 945 Following Official Twitter for the @UCLA Department of Neurology 🧠 Follow Us: https://t.co/HoGmNuM5RE https://t.co/9Jfeh3ltXN
Mass General Brigham/.. @harvardneuromds
4K Followers 330 Following Harvard University Affiliated Resident Run Twitter Account
📢Reviewers needed!📢 The @dmrf's journal Dystonia are looking for reviewers to join their editorial board. Get in touch with [email protected] if you're interested!
Publishing the latest research on basic, clinical and translational aspects of the dystonias since its launch in 2021, @dmrf's official title, Dystonia, welcomes new submissions on emerging topics. 🚀 Find out how you can get involved here ➡ frontierspartnerships.org/journals/dysto…
We are proud to support the @dmrf & its important work for #Dystonia patients!
Thank you, Merz Therapeutics for bringing awareness to #Dystonia by wearing blue! 💙Together, we can make a difference in the lives of those affected by dystonia bit.ly/3R1IpJa #Dystoniaawareness #DMRF #DystoniaBlue #Dystonia @MerzTx_US
Meet us at the Franklin Park Zoo - Nature’s Pavilion Tent THIS Saturday 9/30 at 8:30AM for the second annual Boston #Dystonia Zoo Day organized by the Dystonia Medical Research Foundation. Check out our team page at bostondystoniazooday.swell.gives/teams/BIDMC #LetsZOOthis @dmrf
This September, team Ipsen got their steps in! We had fun participating in #DystoniaZooDays with the @dmrf and @SteptemberUS with @ResearchForCP to raise awareness and support two important causes! Thank you to all who participated.
This September @dmrf kicked off “Shine a Light on #Dystonia.” At #UBuffalo, we’re lighting the @Jacobs_Med_UB entryway with blue to show #DystoniaAwareness support. Our dean is an expert on #RDP, a form of dystonia. She’s principal investigator on @atp1a3Research. #DMRF #ATP1A3
1/2 “Dystonia Matters because it exists. We are dystonia. We’re here & we’re not going to go away.” Dylan, #DystoniaMattersPodcast S1E6. Share your story this #DystoniaAwarenessMonth to make #YourVoiceHeard & help others feel less alone! dystonia.org.uk/share-your-sto…
🦒The second annual Boston #dystonia Zoo Day organized by @dmrf is almost 2 weeks away! Join us Saturday 9/30 at @zoonewengland to promote dystonia awareness and help connect the community. @DystoniaNews @movedisorder Check out our @MassGenBrigham team page at…
Watch what happens to this dystonia when ULTRA-LOW FREQUENCY DBS is applied to the cerebellum. DBS contacts placed from the superior cerebellar peduncle to the dorsal dentate nucleus via a transcerebellar approach. Symptoms significantly improved with low-frequency stimulation (2…
Thank you, Merz Therapeutics for bringing awareness to #Dystonia by wearing blue! 💙Together, we can make a difference in the lives of those affected by dystonia bit.ly/3R1IpJa #Dystoniaawareness #DMRF #DystoniaBlue #Dystonia @MerzTx_US
Did you know that the recent Samuel Belzberg 6th International Dystonia Symposium had representation from 32 different countries? #didyouknow #dystoniaawareness #DMRF
Since its launch in Spring 2021 #Dystonia, the official journal of the @dmrf, has become an important resource for basic scientists and clinicians in the #movementdisorder field. Explore opportunities to get involved ⬇️ @SanjayP30043502 @SillitoeLab @Shaikh_Lab
🚨 New paper by graduate student Luis Salazar Leon shows that cerebellar dysfunction drives sleep disturbances independent of dystonic movements. @dmrf @BCMFromtheLabs doi.org/10.3389/dyst.2…
Dystonia Awareness Month taking off in the UK 🇬🇧 with an article about Meige syndrome in the @Telegraph, a prominent British newspaper. Meige syndrome combines blepharospasm with oromandibular dystonia. @rosaalarcon @DystoniaUK #DystoniaAwareness bit.ly/481Nw2d
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