Natasha @curemetogether
30 & sick with Mild M.E. from a Covid Infection. Part of the biggest mass disabling event in modern world history. #Millionsmissing Los Angeles, CA Joined September 2023-
Tweets9K
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An antiviral pill has, for the first time, been shown to prevent COVID-19 in people exposed to the SARS-CoV-2 virus go.nature.com/4nAMi6g
Recovery from Long COVID isn’t one big moment. It’s hundreds of tiny impossible things becoming possible again. The science is coming. The hope is real.
I can’t stop crying about the loss of James Strazza. James was was a rare sensitive soul who felt this world deeply. He felt it and then, with rare talent, created poems and words and music that communicated profound meaning about what it is to be human. Humanity needed James.
Sorry to report that musician and poet James Strazza passed away this week. He had been suffering from severe ME since 2019. Condolences to family and friends.🕯️🕊️💙 (There's a link to his website in his Twitter bio.) #MyalgicEncephalomyelitis #MECFS
@TheeJeffC Hello, I’m about 75% recovered. I get the brain inflammation sometimes, it comes and goes. Can’t push through that so I usually sleep it off. Would say I’m very mild.
No I’m not AI. I’m a real person and my photos are real too.
@Davemconte @rhirhiarhii Pretty inappropriate to be contacting my “ex friends” after I did send you the photos.
@elysekiera Hi just seeing this. I’m sorry you felt this way, truly. I really was severe, very severe the first 6 months. I literally had brain inflammation every day upon waking up. The brain on fire feeling. Abilify really helps with that. I’m not fully recovered, I’d say 75%
When I got better some people blocked and unfollowed me on instagram. I wouldn’t do that to anyone who improved, even if I was severe, I’d be happy for them. :/
@squeezittt Hi I just did one day at Coachella
Hi just a quick update. I’ve stopped taking half of my medications and I’m still very mild. Very mild is still sick, but, I can live about 75% normally. Please don’t ask what medications, I don’t want my experience to harm someone else’s. Just know, it’s possible to live again.
@rhirhiarhii @Davemconte Hi, really don’t want to be involved in all the drama but since I really appreciate your support I want to respond. Basically 3 months ago he sent me $150 and in exchange I sent him 3 photos. He would harass me daily and I didn’t block him because I was worried he would do this
@christina4hope @Davemconte He asked me to pay him back in nudes.
@christina4hope @Davemconte I’ve sent him nudes in replace of the money so I can expose him too. He’s dumb.
@Opinions_Survey No, I wasn’t very mild then. I’m now on Abilify and more.
@rachioella @jaymie_hu Oh yes, I couldn’t walk for the first year.
@livewithmecfs I’m getting a root canal have u have this ?
I have to get a root canal. Has the numbing for this crashed anyone? Any advice?
SARS-CoV-2 proteins may act as “molecular wrecking balls,” mimicking HIV mechanisms to evade immunity, persist, and damage neurons. This hypothesis links spike persistence to long COVID, accelerated aging, and suggests HIV-inspired therapies for chronic effects. 1/2
Does anyone use Xclear to prevent covid?
Felt good enough to fly, so I’m off to Rio for two weeks !! I’m so excited but also nervous. Dear body, please work 🙏🏻🙏🏻
Aaron (Long Covid + M... @Aaronca11
803 Followers 1K Following @lcmebillboards with @alexsprackland suffering from severe nervous breakdown since Oct 2024. Advocacy on hold.
Lucrezia @lucreziatrzl
2K Followers 224 Following former translator, equestrian and hiker | now #pwME runnning on pacing & wishful thinking #MECFS #endometriosis & co. | it de en fr
Dramata @dramata_tloa
5 Followers 144 Following
maya 🐾 @mayadkai
18 Followers 379 Following 18 🍯 need a content partner this week 🌶 only responding here 👇🏼
Martin @MartinMoltke
172 Followers 583 Following Severe ME/CFS sufferer - acquired mitochondrial disease
LUCIΞN | DARKTIMES @LucienDorman
4K Followers 843 Following Founder @PlayDarktimes & @MedSensitivity 💀 Download and play DARKTIMES for free at: https://t.co/BFoeabZr3V Views are my own ⚔️ V severe ME/CFS ⚔️
ChapiChapoPatapo 🧠 @PayeTonPseudo1
332 Followers 2K Following 🧠 Fuite de LCR et 12 ans d’âge mental. CSF leak / CSF loss syndrome / venous fistula
The Tribe of Redempti... @MirzSyd
54 Followers 748 Following
MiKare Health @MiKareHealth
17 Followers 312 Following Whole Body, Whole Life, One App. Your digital health record to share with GPs, hospitals & family; you own it, you choose who sees it. Connecting the dots.
BRL @RuthBL28
28 Followers 1K Following
The Sick Dick @thesickdick
31 Followers 230 Following MEDICAL SHITSHOW #sarcasm #chronicillness #MECFS
Ben Stadler @TheBenStadler
1K Followers 731 Following Lawyering. Birding. Writing. Black Lives Matter.
assiads @assiads281691
0 Followers 3 Following
adic @adic_9
3K Followers 3K Following meta-optimizer, consciousness experimentalist / hates on viruses / i am not a doctor and this is not medical advice
† Long Covid TᖇI�... @LCovidTrisha3
13 Followers 228 Following Infected by Pfizer's vax on June 15, 2020~"God Bless Those Who Are Suffering In Any Way" 🙏🏽 CHRIST IS 👑 #MECFS #AutoImmuneCompromised #DyingFromLongCovid
Slash Long Covid 35 @LongCovidss2022
52 Followers 152 Following Long Covid 2022/ ME CFS / MODERATE Fatigue / PEM /SOB / Brain fog / ANXIETY / 35 years old.
yonathan @isoyonwall
33 Followers 110 Following
Brazil beach life @brazilbeachlife
19 Followers 90 Following
RustlinJimmies @jimmies_rustlin
58 Followers 368 Following
Froglet 🐸 @froglet80
6K Followers 5K Following #LongCovid #ImmuneDeficiency Disabled demi gal in TX writing about science, politics, doomsday prepping, mutual aid & more. NO MAGA, MINORS, OR AI!
ℓauren @CozyPhoenixx
1K Followers 2K Following ♿️🏳️🌈♥️sports🎮nerd & ex🥊just struggling to survive #YNWA #LakerNation #MECFS #Fibromyalgia #PCOS #POTS #Mentalillness & many more
Dine-saw @BingXBT
47 Followers 903 Following
Alex Hess @ajhesstx
177 Followers 412 Following I find in myself a desire which no experience in this world can satisfy. The most probable explanation is that I was made for another world.-C.S. Lewis
LEOCK @leock224
225 Followers 1K Following
Danny @romanod194
9 Followers 281 Following
Calie @BoyerCaroline12
351 Followers 2K Following « Pour abattre un arbre maléfique pas besoin de 1000 épées II faut couper les racines » Initialement chef sommelier patiente expérimentée en Lyme Em/sfc
Chris Werge @chriswerge
1K Followers 1K Following 34. Creating content to encourage others and bring hope. Long Covid advocate
GettingThickWithBlick... @gymrat_bookworm
1K Followers 1K Following Healthcare administrator and bodybuilder recovering from hEDS-related complications. Often yelling and yapping.
Kenzo @CarmenSD2023
246 Followers 155 Following ME/CFS and PFS/PSSD/PAS Researcher and Treatment Advocate.
Robert 😷 Long COVI... @Rob_DeRosa
2K Followers 2K Following 🇨🇦🇺🇸 Long COVID advocate | Former 🇯🇵🇸🇬 int’l educator | MPP | Disabled by #LongCOVID since 02/2020 | Fighting for treatment & recognition. Views my own.
Dominican Republic @MichaelOgu92301
9 Followers 88 Following Thank you for being here to support Matthew and the Polaski family— a family that has always shown up for others. Now they need our help.
alexxander robbert @alexxander41588
235 Followers 2K Following
Natural Meds 🍊 @Bioindividual
567 Followers 262 Following Root causes. Natural medicine deep dives. Answering questions conventional medicine won't. Cannabinoids & Psychedelics.
Philip Barber @philipb61443132
114 Followers 209 Following I’m just a man who is sowing hope and praying for rain. (ME/CFS, Long Covid, Fibromyalgia)
Frank.Riot 🍉 @RiotFrank
6K Followers 509 Following I know it's inconvenient, but I think we should probably do something about the impending ecological collapse.. Artist. She/Her
P S W @Petershearer89
4 Followers 97 Following been called lazy so many times for having CFS/ME that i guess I must be lazy
ME_CFS_patient @arami1997
36 Followers 237 Following 🎗️ ME/CFS 🧬 Triggered by SARS-CoV-2 #mecfs #longcovid #dysautonomia #pots #neuroinflammation
LouisaLongCovid @LouisaLongCovid
128 Followers 202 Following #MECFS #LongCovid #POTS #MCAS #Hausstaubmilbenallergie #Rheuma seit 2022/08. Psychologin. #dieMaskebleibtauf #hermitdenLuftfiltern #gemeinsamsindwirstark
Webb Powell @DoubleYouPowell
295 Followers 6K Following Disabled by Long Covid w/ ME + POTS, Jan 2020. Crohn’s. AuDHD.
Paul Gads @PaulGadsden82
1K Followers 1K Following I moan endlessly about having M.E and MCAS. Genuinely negative and a misanthrope.
Birmingham Biotech LT... @birminghambio
551 Followers 71 Following Birmingham Biotech pioneers drug-free barrier sprays, applying dual-polymer and mucosal health science to strengthen everyday protection worldwide.
Robert 😷 Long COVI... @Rob_DeRosa
2K Followers 2K Following 🇨🇦🇺🇸 Long COVID advocate | Former 🇯🇵🇸🇬 int’l educator | MPP | Disabled by #LongCOVID since 02/2020 | Fighting for treatment & recognition. Views my own.
PolyBio @polybioRF
14K Followers 2K Following 501(c)3 transforming how LongCovid, ME/CFS, Lyme+ and Alzheimer’s are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Thailand Medical News @ThailandMedicaX
7K Followers 80 Following Latest Medical, Health, Research, Outbreak, COVID-19, Long COVID & H5N1, Monkeypox, Dengue, Measles, STIs, TB, HIV, Cancer, Glucoma, Diabetes and Herbal News.
Peter Hope @IPeterHope
503 Followers 1K Following Saving people with ME/CFS time, money, and sanity on the cure-chasing treadmill. Helping them improve QoL and survive the ride.
Matt @MGTmecfs
562 Followers 46 Following
Denis - The COVID inf... @BigBadDenis
18K Followers 3K Following Sharing info on COVID since the start of the pandemic
Rachel @rachioella
225 Followers 566 Following Severe LC/ME ie Hell since 2023 . interested in research and awareness to help improve QOL Irish 🇮🇪 34 former travel , outdoor and adventure addict 🌳🌊🌅🌍
Flavio Adamo @flavioAd
10K Followers 511 Following I’m just a human approval layer for Codex • Building https://t.co/myy6vStpTu
Evanrosen @evanrosentennis
252 Followers 2K Following Owner of the Knoll Tennis Club in Lake Hiawatha NJ, tennis and pickleball instructor.
lindagdetroit @lindagdetroit
247 Followers 668 Following Dealing with Longhaul Covid/MECFS since the first wave. 4 year anniversary 3/24/2024 'I Create The Space For Good Things To Happen'
Tracy Schuler 💕 @morgan108381
71 Followers 656 Following Wife, Mum , M.E. Long covid, Want my life back !!!!
Kyle @klmatter
696 Followers 616 Following Engineer, father, and avid outdoor enthusiast. Current dealing with post viral illness/long COVID. Trying to fix that last one.
Favian Fernandez @FavianFernandez
220 Followers 527 Following
60 Minutes @60Minutes
1.7M Followers 508 Following The most successful news magazine in TV history. Send us a news tip at https://t.co/HA3SozEs8h ⏱️
Severe ME @Severe_ME
1K Followers 530 Following Former Severe ME Patient. Now just a writer living with ME - grateful for every minute not bed bound, living in darkness or 24/7 pain.
Canary @TheCanaryUK
115K Followers 671 Following The Canary. Disrupting power since 2015. We lasted longer than Morgan McSweeney did.
Tara F, PhD MPH @TaraFotiPhD
2K Followers 1K Following Health researcher, Healthcare admin, Functional health coach trainee, Patient and Caregiver #Neurodiversity #LongCovid #MECFS #Lyme #POTS
YellowSubmarineEscapi... @vintageGardnGrl
1K Followers 2K Following Science believer, do no harm to our children with covid/long covid. Read a damn science paper .
Robin McNelis Physiot... @robinthephysio
396 Followers 206 Following Cardiorespiratory Physiotherapist working in private practice with a special interest in Breathing Pattern Disorders and Long Covid Recovery
Litsa Dremousis On Bl... @LitsaDremousis
6K Followers 4K Following ALTITUDE SICKNESS (Future Tense Books). Upcoming: FIRE IN THE HOLE: A EULOGY FOR THE LIVING. Left WaPo. Longtime essayist. Now co-host of PEM Pod. #pwME #MCAS
Renegade Research @RenegadeRes
3K Followers 3K Following Patient-led 501(c)(3) nonprofit working on #MECFS & #LongCovid💙 Runs project @remissionbiome • https://t.co/W0iQqqSYY2
Jamie @mixtapehero
1K Followers 799 Following Recovered from Long Covid '24. Never give up – recovery is possible ✨
tasha bloom 🍉 @tashabloombaby
3K Followers 1K Following songwriter, disabled popstar, session flautist + vocalist. 50% @wearecowz
E ❀ @farbeyondtired
438 Followers 249 Following Severe ME for 15 years, hEDS and co• 28y/o • somewhere to share my thoughts when I have enough energy/brain power to do so.
Eliza Charley | Actre... @ElizaCharley
5K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Adam 🇬🇧 ME/LC @AdamB92_
620 Followers 450 Following 34 👮♂️&🏋️ turned very severe progressive LC ME/CFS from Covid in 2022 - 100% bedbound unable to sit, stand or walk. Bell score 0. *Rarely can reply*
Scott Daniska @scott_scientist
3K Followers 574 Following Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
dianna haze @diannahaze
16K Followers 251 Following Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
Jeff Wood @jeff_says_that
3K Followers 413 Following I solved my own case of post-viral ME/CFS. Then built a new model of ME/CFS that may also apply to Long COVID: The Mechanical Basis model.
Sara @SaraAna66550269
2K Followers 81 Following Mom, Wife, School Counselor, Christian. Previously fit and healthy 43 year old until I contracted “mild” Covid on August 2021. #longcovid
Kamala Harris @KamalaHarris
21.0M Followers 701 Following Always fighting for the people. Wife, Momala, Auntie. She/her. 107 Days available now.
Justin Lee @DailyJLee
14K Followers 6K Following Scientist, Atheist, Poet, Philosopher, Creative, Skeptic, Mortal, Genius, Multicultural, Bicoastal, Superstar, Altruist, Vampire, DragonTrends for United States
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