CEEHealth @ceehealthorg
Connecting empowered patients with health focused businesses and organisations to foster the next step in patient involvement. Founder and director @emmajdoble linktr.ee/ceehealthorg Joined January 2024-
Tweets9
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Followers26
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Following30
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Likes8
At #ATTD2024, I gave a talk about the importance of including lived experience when advocating for policy change. If you have a spare 7 minutes, you can watch my talk here. Thanks to Adrian Sanders from the @PDGN_Diabetes for his very kind introduction. linkedin.com/posts/renza-sc…
I am in my final year of my Health Psychology MSc, and i'm looking for individuals living with cancer in the UK who would be interested in taking part in a short anonymous survey on mental health support. Thank you - please share. Link to survey: derby.qualtrics.com/jfe/form/SV_6R…
It's great to see more and more patient and public involvement in methodological research. Take a look at this report on involvement in the development of a reporting guideline: link.springer.com/article/10.118… @Maureenchats @NancyJButcher @PRISMAStatement
Have you ever thought about becoming involved in research? It doesn't have to be taking part in a trial, there are lots of ways you can #BePartOfResearch! Check out our Starting Out Guide to learn more: nihr.ac.uk/documents/Star… #PublicInvolvement
📢 Members of the Cochrane Consumer Network - your views are needed on the draft Cochrane Scientific Strategy that sets out how we will produce evidence over the next 5 years. Meeting 18th April 2024 14.00 - 15.00 UK time. Register ➡️ cochrane-org.zoom.us/meeting/regist… 👀 Survey to follow!
Welcome to CEEHealth, a platform to foster patient and public involvement and partnership. You can find out more on our website ceehealth.org
The Research for Patient Benefit Programme are looking for members to join their Regional Advisory Committees. Find out more about the expertise required and apply today 👉nihr.ac.uk/committees/pro…
‘When people do research and it’s not about them, it’s just guessing’ Learn about the findings from a project evaluating the impact of public and community involvement in research. Felicity Shenton from @NIHR_ARC_NENC discusses their innovative approach: arc-nenc.nihr.ac.uk/news/when-peop…
It is important to account for the costs of involvement in a research study at the earliest stage possible. Find out more about how to do this in our payment guidance for researchers and professionals: nihr.ac.uk/documents/paym… #TuesdayTips
Dan Farrow @danfarrow9
2K Followers 2K Following 💉 T1D d/x 2005 💼 @JDRFUK Head of Community Engagement. Views my own. “One day your life will flash before your eyes, it's on you to make it worth watching.”
Lieslsamjo @LieslRichardson
51 Followers 110 Following National DAFNE trainer, passionate about the provision of high quality support and care for those living with type 1 diabetes. All views are my own.
🦚 𝓜𝓪𝓻𝔂.. @marylouisehayes
436 Followers 639 Following Type 1 53 + years! Pumper. Retired and returned as a Diabetes Nurse in General Practice. Supporter of The Pendsey and DREAM Trust.
Dawnie @Moodwife
2K Followers 1K Following Still don’t know what to be when I grow up... 🧚🏼♀️ #FeralT1D #AndroidAPS #HybridHuman, #midwife, mother of boys
Henry Scowcroft @oh_henry
3K Followers 3K Following Head of Comms and Engagement @AlzResearchUK | Guitars @ThisIsDogUnit | Author 'Cross Everything'. Views own (obvs).
The_dia_being_mindset @DiaBeingMindset
532 Followers 805 Following Diabetes Advocate Midwest Diabetes Diabetes Edinburgh MDiet QMU, Edinburgh
🐝Sahara Fleetwood-.. @Sahara88uk
9K Followers 8K Following #HealthAdvocacy; #IBD #Ostomy #MentalHealth #ChronicPain #Fibro. Healthcare Pt. Consultant. @IBDSuperHeroes 🐝Pursuing calm ~ #Nature #Gardening #Plants #Yoga🧘
Davida Milani @DavidaMila82496
17 Followers 3K Following
Meaghan Knight @megsy_lou
46 Followers 348 Following
Prof. Karen Woolley @KWProScribe
1K Followers 140 Following Dedicated to involving patients as partners in healthcare. Views are my own.
Claire Snyman @clairehsnyman
3K Followers 3K Following #Braintumor | Healthcare advocate | Patient partner | Pnt Engagement/Pnt Experience are essential | Author & #TEDx speaker | Two Steps Forward | Tweets are mine
Cathryn Pinto 💙 @CathrynPinto
951 Followers 1K Following Researcher in emotional wellbeing for people with neurological diseases Mental health | Digital health| Health Psychology trainee | Views are my own.
Katie Lamb💙 @katielambartist
1K Followers 494 Following T1D for 20 years | Artist and advocate for CYP with T1D | DRSG 7, NDA, Diabetes Uk Young Leader, Dedoc Voices | Personal Views
Marilyn Mann @MarilynMann
3K Followers 5K Following Patient advisor @CircOutcomes. Interested in lipids, FH, CVD prevention, microvascular dysfunction, INOCA. Alum @UMichLaw. Disclosures: https://t.co/ubBmfWYGpC
Heather Still @HeatherStill9
154 Followers 226 Following Health Improvement in 🏴. Compassion in Public Health. Qual Research. Lived Experience.
DigiBete @DigiBeteUK
4K Followers 3K Following DigiBete: Award winning self-management T1D Platform & App in partnership with LTHT, supported by NHS E. Creating digital tools for our diabetes community.
Amy Adams @amybetic
5K Followers 3K Following T1 diabetic, passionate about eating disorders & mental health care | Travels & Adventures | Taylor Swift | Environmental Science | #insulin4all
Olivia Fulton @just_TUX
1K Followers 1K Following Severe asthma patient advocate, Severe Asthma Support Network, Patient Co-Chair of SHARP (ERS CRC), ELF PAG, A+LUK volunteer
Melissa Chieza @mel_chieza
634 Followers 2K Following Passionate OT with diabetes and lupus. Dedicated to diabetes, OT, and MSK. Committed to embracing life fully. Views are my own. OTnews (Dec23)
Mary Murphy @loopingntheloup
2K Followers 2K Following Data@JDRFUK - personal views here. #WeAreNotWaiting|#dedoc° Voice| #DiabetesChat Co-Host|Living with and parenting #T1D|#DiabetesHobbit|IG: @loopingntheloup
Emma Doble @emmajdoble
1K Followers 1K Following Living with type 1 diabetes | Freelance patient editor @bmj_latest | All views are my own
Cory Maffitt @CoryMaffi
71 Followers 5K Following
Niki @WhatNikiDidNext
2K Followers 1K Following Many Hats: #T1D 20yrs & counting #Pregnancy #Hashimotos #Mumma #Advocate #Writer #Speaker #tealover #LanguageMatters #dedoc°voice #RCOGWVIP *views my own*
Dawna Delorge @DaDelorg
51 Followers 5K Following
Amee Klemp @AmeeKlem
84 Followers 5K Following
Dan Farrow @danfarrow9
2K Followers 2K Following 💉 T1D d/x 2005 💼 @JDRFUK Head of Community Engagement. Views my own. “One day your life will flash before your eyes, it's on you to make it worth watching.”
Prof. Karen Woolley @KWProScribe
1K Followers 140 Following Dedicated to involving patients as partners in healthcare. Views are my own.
Claire Snyman @clairehsnyman
3K Followers 3K Following #Braintumor | Healthcare advocate | Patient partner | Pnt Engagement/Pnt Experience are essential | Author & #TEDx speaker | Two Steps Forward | Tweets are mine
Cathryn Pinto 💙 @CathrynPinto
951 Followers 1K Following Researcher in emotional wellbeing for people with neurological diseases Mental health | Digital health| Health Psychology trainee | Views are my own.
Katie Lamb💙 @katielambartist
1K Followers 494 Following T1D for 20 years | Artist and advocate for CYP with T1D | DRSG 7, NDA, Diabetes Uk Young Leader, Dedoc Voices | Personal Views
Marilyn Mann @MarilynMann
3K Followers 5K Following Patient advisor @CircOutcomes. Interested in lipids, FH, CVD prevention, microvascular dysfunction, INOCA. Alum @UMichLaw. Disclosures: https://t.co/ubBmfWYGpC
Heather Still @HeatherStill9
154 Followers 226 Following Health Improvement in 🏴. Compassion in Public Health. Qual Research. Lived Experience.
Amy Adams @amybetic
5K Followers 3K Following T1 diabetic, passionate about eating disorders & mental health care | Travels & Adventures | Taylor Swift | Environmental Science | #insulin4all
DigiBete @DigiBeteUK
4K Followers 3K Following DigiBete: Award winning self-management T1D Platform & App in partnership with LTHT, supported by NHS E. Creating digital tools for our diabetes community.
Mary Murphy @loopingntheloup
2K Followers 2K Following Data@JDRFUK - personal views here. #WeAreNotWaiting|#dedoc° Voice| #DiabetesChat Co-Host|Living with and parenting #T1D|#DiabetesHobbit|IG: @loopingntheloup
Melissa Chieza @mel_chieza
634 Followers 2K Following Passionate OT with diabetes and lupus. Dedicated to diabetes, OT, and MSK. Committed to embracing life fully. Views are my own. OTnews (Dec23)
Olivia Fulton @just_TUX
1K Followers 1K Following Severe asthma patient advocate, Severe Asthma Support Network, Patient Co-Chair of SHARP (ERS CRC), ELF PAG, A+LUK volunteer
Niki @WhatNikiDidNext
2K Followers 1K Following Many Hats: #T1D 20yrs & counting #Pregnancy #Hashimotos #Mumma #Advocate #Writer #Speaker #tealover #LanguageMatters #dedoc°voice #RCOGWVIP *views my own*
Shaun Lintern @ShaunLintern
89K Followers 6K Following Health Editor at The Sunday Times. National Press Awards Health Journalist of the Year 2023. Chair of @mjauk. Public interest journalism matters #E17
Medical Research Coun.. @The_MRC
89K Followers 2K Following Dedicated to improving human health since 1913. Part of UK Research and Innovation @UKRI_News.
NICE @NICEComms
254K Followers 1K Following Official feed of NICE - National Institute for Health and Care Excellence. We produce evidence-based health and social care guidance. Tweets by the comms team.
CochranePublicHlth @CochranePH
4K Followers 529 Following Cochrane Public Health facilitates production of reviews on interventions to improve health and other outcomes at the population level @CochraneLibrary
Cochrane Consumers @CochraneConsumr
6K Followers 565 Following Posting health evidence & news for patients, carer-givers & co-production of research. Tweets by Richard Morley, Cochrane Consumer Engagement Officer
Cochrane Canada @CochraneCanada
6K Followers 1K Following Promoting the use of evidence-informed decision-making & Cochrane Reviews. All Canadians deserve the best information to make decisions about their health care.
Cochrane Training @cochranetrain
8K Followers 133 Following Cochrane Training provides learning for anyone who wants to contribute to systematic reviews and evidence-informed health care.
Cochrane Crowd @cochrane_crowd
3K Followers 179 Following Cochrane Crowd is Cochrane's exciting new citizen science platform. It enables anyone with an interest in healthcare to help Cochrane identify the evidence!
The Cochrane Library @CochraneLibrary
81K Followers 139 Following The Cochrane Library is THE place to find the most up-to-date evidence-based systematic reviews.
Cochrane @cochranecollab
127K Followers 141 Following Cochrane systematic reviews are recognized globally as the gold standard in health evidence. Trusted evidence. Informed decisions. Better health.
Be Part of Research @NIHRtakepart
29K Followers 2K Following Information about how you can be part of health and social care research and the difference research can make, helping future generations live well for longer.
NIHR Involvement @NIHRinvolvement
19K Followers 659 Following We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research
We are NIHR @NIHRcommunity
27K Followers 6K Following Sharing @NIHRResearch funding and support opportunities with the research community to enable and deliver world-class health and social care research.
NIHR Research @NIHRresearch
99K Followers 4K Following Sharing news and information from the National Institute for Health and Care Research (NIHR). We fund, enable and deliver world-class health and care research.
BMJ Patient Editor @BMJPatientEd
5K Followers 726 Following Trying to get patients' voices to doctors' ears. Part of the BMJ patient partnership initiative.
Emma Doble @emmajdoble
1K Followers 1K Following Living with type 1 diabetes | Freelance patient editor @bmj_latest | All views are my own
The BMJ @bmj_latest
505K Followers 7K Following The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and commentAt #ATTD2024, I gave a talk about the importance of including lived experience when advocating for policy change. If you have a spare 7 minutes, you can watch my talk here. Thanks to Adrian Sanders from the @PDGN_Diabetes for his very kind introduction. linkedin.com/posts/renza-sc…
I am in my final year of my Health Psychology MSc, and i'm looking for individuals living with cancer in the UK who would be interested in taking part in a short anonymous survey on mental health support. Thank you - please share. Link to survey: derby.qualtrics.com/jfe/form/SV_6R…
It's great to see more and more patient and public involvement in methodological research. Take a look at this report on involvement in the development of a reporting guideline: link.springer.com/article/10.118… @Maureenchats @NancyJButcher @PRISMAStatement
Have you ever thought about becoming involved in research? It doesn't have to be taking part in a trial, there are lots of ways you can #BePartOfResearch! Check out our Starting Out Guide to learn more: nihr.ac.uk/documents/Star… #PublicInvolvement
📢 Members of the Cochrane Consumer Network - your views are needed on the draft Cochrane Scientific Strategy that sets out how we will produce evidence over the next 5 years. Meeting 18th April 2024 14.00 - 15.00 UK time. Register ➡️ cochrane-org.zoom.us/meeting/regist… 👀 Survey to follow!
The Research for Patient Benefit Programme are looking for members to join their Regional Advisory Committees. Find out more about the expertise required and apply today 👉nihr.ac.uk/committees/pro…
‘When people do research and it’s not about them, it’s just guessing’ Learn about the findings from a project evaluating the impact of public and community involvement in research. Felicity Shenton from @NIHR_ARC_NENC discusses their innovative approach: arc-nenc.nihr.ac.uk/news/when-peop…
It is important to account for the costs of involvement in a research study at the earliest stage possible. Find out more about how to do this in our payment guidance for researchers and professionals: nihr.ac.uk/documents/paym… #TuesdayTips
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