Adrian Gropper @agropper
Patient-centered health information evangelist and medical device developer. Volunteer CTO at Patient Privacy Rights Foundation. healthurl.com Watertown, MA Joined May 2007-
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@JoshCMandel These non-commercial tools put a lot of responsibility on the patient to do the prompt engineering around SMART on FHIR exports. This risks aggravating disparities for populations already struggling with access to primary care x.com/zakkohane/stat… This needs community input.
If you have to wait 4 months for a primary care visit or 2 months for mental healthcare, what are we comparing AI performance to? @NEJM nejm.org/doi/full/10.10…
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@BrianRoemmele How close are we to being able to add training with your own private health and social data and share only the insights to the global open source medicine commons? trustee.substack.com/p/medical-ai-w… @PatientPrivacy @TrusteeHIE
Do we really want to privatize and make secret medical science in this way? mobihealthnews.com/news/artera-la…
Trustee Community Newsletter: Medical AI Will Not Be Like ChatGPT trustee.substack.com/p/medical-ai-w…
@bewestisdoing @TrusteeHIE @PatientPrivacy @FlemingProtocol Longitudinal patient-centered health records are essential for clinical, research, and public health. Patients get to set priority across the three use-cases and exercise control via trustees and communities they choose. Premature optimization for one use-case is unnecessary.
Introducing a new patient community paradigm trustee.substack.com/p/introducing-… @TrusteeHIE @PatientPrivacy
What do healthcare consumers want? on Trustee Community Newsletter trustee.substack.com/p/what-do-heal…
Adrian Gropper retweeted
Interesting strategic perspective on #privacy and #blockchain regulations to promote #decentralization. mitre.brandlive.com/grand-challeng… @TrusteeHIE
Adrian Gropper retweeted
Why a decentralized health records approach is the way out of today’s byzantine healthcare system open.substack.com/pub/trustee/p/…
@bewestisdoing @sendgoodcheers There’s network amplification that drives platform formation and their monetization of inferences.
Excellent update by @caseymross statnews.com/2022/10/06/hea… It's 18 years since NHIN. Now we have TEFCA to wait for. Our sick care system focuses on business over patients. @PatientPrivacy @TrusteeHIE
We're launching the Trustee Community Newsletter with a post by our own @EdiePargh to set the stage. Please subscribe and share. trustee.substack.com/p/why-a-patien… @PatientPrivacy @TrusteeHIE
Adrian Gropper retweeted
After self-hosting my email for twenty-three years I have thrown in the towel 😩 Email is now an oligopoly, a service gatekept by a few big companies which does not follow the principles of net neutrality.
@Sheldrake @csageland @hiproj Forced association with and surveillance by powerful global platforms for a large part of what we do every day is a human rights violation. Here's one current effort to improve Internet standards from the perspective of human rights …re-protocol-editors-draft.netlify.app/draft-ietf-gna…
Matthew Holt @boltyboy
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Olivia @oliv35602
280 Followers 3K Following New Age Women. farmer. Mom of a daughter. Raccoons and foxes, and my dogs are elves. Kansas grows corn, soybeans. Rural Untouchable. lovely mom 🌽🌽🌿🌾🌻🐝🐛
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24 Followers 2K Following Make new friends, solve more problems and learn more knowledge and experience😳 Twitter is my own 🧐I hate fake people on twitter😡😡
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Kohei Kurihara - Priv... @kuriharan
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li Anna @WickerMaxBu
121 Followers 2K Following I am a perfect woman in all aspects, and I want to find someone who matches me. I am from Shanghai, and I am an elegant, cheerful, mature and gentle woman.
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Aram Zucker-Scharff |... @Chronotope
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IARM Information Secu... @iarminfo
112 Followers 581 Following full-stack cybersecurity | consulting. professional services. managed security. industrial ot security. | phishprep | siemmax | sbomapp | https://t.co/QqbYI6l1qn
WEALTHCARE - book by ... @WealthcareWeb3
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j u d i t h @juditherzog
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16 Followers 145 Following second-year at @Harvard_Law · student fellow at @PetrieFlom · editorial board at @HarvardJOLT / formerly, @genentech · @stanford
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Office of the Nationa... @ONC_HealthIT
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bumblefudge dot com i... @by_caballero
1K Followers 4K Following try me on masto for a long time or bsky for a bad time or warpcast for a maxi-deranged time; learningproof . x y z to buy hours ;🌹🏳️🌈🤘he/him
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