TIPAL @TIPAL_trial
Treating Idiopathic Pulmonary fibrosis with the addition of Lansoprazole (TIPAL): a randomised placebo controlled multi-centre clinical trial in the UK. uea.ac.uk/web/groups-and… Norwich Joined September 2019-
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Followers170
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Following166
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us when they ask us how many participants we've randomised so far this month... #clinicaltrial #research #IPF #remotetrial #idiopathicpulmonaryfibrosis
We are pleased to share we have just randomised our 200th participant ! A big thank you and well done to all sites and participants involved ! :D #clinicaltrial #research #IPF #remotetrial #idiopathicpulmonaryfibrosis
We at #TeamTIPAL are very happy to announce a HUGE milestone... We have now opened 45 sites to recruitment! Welcome aboard Professor Joanna Porter and team from @uclh. Best of luck for recruitment 🥳👏🫁🤩 #clinicaltrial #research #IPF #remotetrial #idiopathicpulmonaryfibrosis
📢 #TIPAL in the news! Have a read of the @BBCNews article on the new #CTscan sub-study we're launching with @Brainomix! 🫁 uea.ac.uk/about/news/art…
“We are highly motivated by the potential to harness our technology in a way that helps to speed up clinical trials, identify more effective drugs, and improve the lives of IPF patients.” Find out more here: uea.ac.uk/about/news/art… #Health #Research
The UEA team will investigate whether lansoprazole – a commonly prescribed medication for indigestion, heartburn and acid reflux – could help. And they are looking for people with the condition to take part.
£2 million UEA project to help chronic lung condition is looking for participants 💨 Prof Andrew Wilson, who is leading the study on the condition called IPF said there is currently "no treatment" for the scarring it causes. He hopes to change this. @UeaMed @Brainomix
1/5: We are proud to be partnering with the TIPAL (Treating People with Idiopathic Pulmonary Fibrosis with the Addition of Lanzoprazole) trial group to run a sub-study to assess the efficacy of our groundbreaking e-Lung platform. Read our press release at prnewswire.co.uk/news-releases/…
And that's another huge #TIPAL milestone. 40 sites now open to recruitment, thanks to the addition @HHFTnhs! We look forward to working with Dr Nick Williams and team. Thank you to everyone on #teamtipal! 👏🥳🤩🫁 #IPF #IPFresearch #clinicaltrials #remotetrial
Latest progress on the #TIPAL recruitment spirometer! 146 participants randomised, with more to come! Huge well done to #teamTIPAL 🥳📷 #IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
A warm welcome to the newest member of the #TIPAL family, @STSFTrust. We're so glad to have Dr Andrew Macnair and team working with us. Best of luck for recruitment! 🥳🤩🫁#IPF #IPFresearch #IdiopathicPulmonaryFibrosis #clinicaltrials #remotetrial
Delighted to announce that #TIPAL has now reached 140 participants randomised! Massive well done to #teamTIPAL on reaching this milestone. The countdown to halfway is on! ⏱️#IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #virtualtrial
Latest progress on the #TIPAL recruitment spirometer! 135 participants randomised, with more to come! Huge well done to #teamTIPAL 🥳👏 #IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
Excited to be in Liverpool for the British Society of Gastroenterology meeting. Thanks for the invite to discuss all things fibrosis and reflux related! #bsglive23 #cureipf #collaboration @BritSocGastro @ImperialNHLI @asthmalunguk @ActionPFcharity @TIPAL_trial
A warm welcome to #TeamTIPAL @HywelDdaHB. We're glad to have Dr Mark Andrews and team on board and we wish you all the best for recruitment! 🥳🤩🫁👏 #IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
A huge welcome to #TeamTIPAL @nottmhospitals! We're looking forward to working with Dr Gauri Saini & team. Best of luck for recruitment! 🥳🤩🫁👏 #IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
A huge thank you to everyone who attended last week's #TIPAL investigator meeting - it was lovely to see so many of you! If you would like a copy of the slides, have any questions, or wish to get involved in the trial please email [email protected] #IPF #IPFresearch #clinicaltrials
Latest progress on the #TIPAL recruitment spirometer! 124 participants randomised and counting! Massive well done to #teamTIPAL 🥳📷#IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
Latest progress on the #TIPAL recruitment spirometer! 116 participants randomised and counting! Massive well done to #teamTIPAL 🥳🫁#IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
Welcome to #teamTIPAL @LG_NHS! Massive well done & thanks on opening to recruitment, good luck to Dr Tom Simpson & the Team! 🤩🥳🫁👏 #IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
Interstitial Lung Dis.. @ILDinfo
195 Followers 268 Following Videos, Podcast, Posts about Pulmonary Fibrosis (lung scarring) and related conditions in an easy-to-understand format. By @scstanel #InterstitialLungDisease
Graham Lough @GrahamLo_Resp
41 Followers 320 Following Research scientist at Respiratory Effectiveness Group. Interest in RWE / genomics / risk / epidemiology / ILD and that sort of thing.
Original_kennedy @Kenned1Original
70 Followers 179 Following Be fearlessly authentic. Resp Med-Sheffield👩🏽⚕️People won't always remember the things you say or do, but they'll always remember the way you made them feel
Aswathy K P @akp_Aswathy
3 Followers 37 Following
Estelle Payerne @EstellePay38000
0 Followers 12 Following
PROTECT study @PROTECT_Study
31 Followers 53 Following PRegnancy Outcomes using continuous glucose monitoring TEChnology in pregnant women with early-onset Type 2 diabetes
Geoff Kitching @GPKitching
28 Followers 836 Following
Calvin Apen @calvinapen
347 Followers 625 Following Clinical Respiratory Scientist based at York Teaching Hospital
Leda Nakhoul @LedaYazNakhoul
30 Followers 151 Following Clinical Research Fellow at the Royal Brompton Hospital PhD student in NHLI, Imperial College London ST7 Respiratory Medicine Trainee, North-West Thames
R&D UHMBT @ResearchUHMBT
698 Followers 491 Following Research and Development at University Hospitals of Morecambe Bay Trust.
Erin Anderson @ErinAnders46936
26 Followers 2K Following
SPH- Respiratory elec.. @RespEpi
684 Followers 273 Following Leveraging the strengths of "big data" to drive improvements in the treatment and management of chronic lung diseases
Lyndsey Langlands @LyndseyLanglan1
160 Followers 313 Following Wife,mother, and interstitial lung disease nurse specialist.
Dr. Dirk Schramm @Dr_PedPulm
149 Followers 787 Following medical specialist in pediatric pulmonology medical specialist in pediatric medical specialist in anaesthesiology University Children´s Hospital Düsseldorf
Laura Page @Lola13131
42 Followers 257 Following
Janine Hood @neen865
65 Followers 105 Following
Conal Hayton @ConalHayton
127 Followers 427 Following Consultant Respiratory Physician in Interstitial Lung Disease @MFTnhs. Academic interests in breath biomarkers in ILD and ILA
Emma Briggs @briggs_emma1
164 Followers 560 Following
Mustapha Jamil MD @MustaphaJamil6
49 Followers 207 Following
National Academy of C.. @NatAcadCoachPsy
303 Followers 543 Following The National Academy of Coaching Psychology (NACP) is a training, supervision & research institute. Directors include @stephenpalmer & @S_O_Riordan
⬣ Crypto Priestess .. @salrogersskyco1
2K Followers 1K Following From little acorns great Oaks grow.......🌳🌳🌳 From little Hex’s great ‘T’ Shares grow 💎💎💎 https://t.co/5w80D9OQex
Sunil Patel @dr_sunilpatel
75 Followers 255 Following Respiratory & Intensive Care Medicine @ImperialNHS | Research @APMIC_Imperial @imperialcollege
Paulo Cavalcante Neto @cavalcantenetop
210 Followers 431 Following ILD Respiratory and Critical Care Physician 🫁 | Lakers fan 🏀💜💛 | Love riding 🚴🏽♂️ | Opinions = mine only
Hospital Healthcare E.. @HHE_Digital
480 Followers 915 Following Hospital Healthcare Europe is the official publication of HOPE, and the most powerful information source for public #hospitals in the #UK and #EU
Sue Holland @suehfrim
92 Followers 481 Following Clinical Trials Pharmacist - made in Yorkshire - inexplicably living down south. #nhsresearch #whywedoresearch
Josie @jthecunningham
43 Followers 112 Following Pharmacy graduate from UoR, Lead for Quality Improvement in Cystic Fibrosis. Interests in Japanese, art and music 🇯🇵🎨🎻
Tameside Pulmonary Fi.. @TamesideGroup
613 Followers 1K Following The group aims to provide support and information for patients, their families and friends. Clive & Sue Green email: [email protected]
Yomna A.Moqidem @Yomna_Moqidem
665 Followers 2K Following Ph.D. student @SoCoBioDtp, @ the wang lab, @ the University of Southampton. Keen about alveolar epithelial cells in #IPF
Steven Shultz @StevenShultz18
3 Followers 60 Following Just an enthusiastic scientist trying to learn more!
Gill Kaczmarczyk @GillKaczmarczyk
52 Followers 100 Following
Isla M @IslaMaitland
17 Followers 219 Following
Muhunthan Thillai @mut75
985 Followers 1K Following Co-founder and CEO of Qureight. Consultant Thoracic Physician, Cambridge Interstitial Lung Disease Unit at Royal Papworth Hospital.
Peter George @DrPeter_George
1K Followers 527 Following Consultant in Respiratory Medicine at Royal Brompton Hospital @RBandH / Specialist in interstitial lung disease / Senior Medical Director @Brainomix
Dan Beever @Dan_Beever
276 Followers 349 Following Research Fellow @MedicineUoN & PhD student @magnifysrc • @sheffielduni🎓 & @ActionPFcharity💜 alumni • Passionate about public involvement • Living with CF🫁
Bradley Price @BradleyJPrice
954 Followers 3K Following Director of Policy & Public Affairs @ActionPFcharity. Fleeting between hobby obsessions, currently ☕️🥃🍸⛳️♟️🎷 Views my own. (he/him)
Joyce Evans @JoyceEv29290240
2 Followers 27 Following
Liam Galvin @IPFthurles
911 Followers 598 Following Patient Advocate, Director, Irish Lung Fibrosis Association (@ILFA_Ireland) CEO, European Pulmonary Fibrosis Federation (@EU_IPFF), Patient Co-Chair @ErnLung
paul @paul94959753
6 Followers 46 Following
Joanna Porter @DrJoPorter
1K Followers 1K Following Resiratory physician/researcher UCL/ UCLH London UK Loves lungs + myeloid cells Passionate about breathing + making life better for patients w lung fibrosis
Nicola Evans @Nicola__Evans
63 Followers 124 Following Specialist Rehabilitation Physiotherapist at Bradford Teaching Hospitals @BTHFT #hellomynameis
Amber @AmberHBraidley
9 Followers 53 Following
Hypersensitivity Pneu.. @HPRespiratory
98 Followers 231 Following Raising Awareness for ILD.Mum has fibrotic HP - purpose to empower those diagnosed with HypersensitivityPneumonitis. https://t.co/1cUPFVWoRb launching soon
C carr @Car53046549
103 Followers 1K Following
Alex horne @Alexhorne11
11 Followers 168 Following
Dr.Satya.R.Panigrahi,.. @DrSRPanigrahi
375 Followers 2K Following Works as Senior TB & Chest Consultant cum Additional Director,TB & Infectious Diseases Hospital,PURI,Govt of Odisha.India
Claire Byrne @byrnie1401
94 Followers 152 Following
Original_kennedy @Kenned1Original
70 Followers 179 Following Be fearlessly authentic. Resp Med-Sheffield👩🏽⚕️People won't always remember the things you say or do, but they'll always remember the way you made them feel
PROTECT study @PROTECT_Study
31 Followers 53 Following PRegnancy Outcomes using continuous glucose monitoring TEChnology in pregnant women with early-onset Type 2 diabetes
Peter George @DrPeter_George
1K Followers 527 Following Consultant in Respiratory Medicine at Royal Brompton Hospital @RBandH / Specialist in interstitial lung disease / Senior Medical Director @Brainomix
BRAINOMIX @Brainomix
1K Followers 1K Following Brainomix specializes in the creation of AI-powered software solutions to enable precision medicine for better treatment decisions in #stroke and #lung fibrosis
Giles Dixon @gdixon1
87 Followers 129 Following Wellcome Trust GW4 PhD Fellow. Respiratory Specialist Trainee. ILD & Imaging
Lewisham and Greenwic.. @LG_NHS
14K Followers 6K Following 🏥 University Hospital Lewisham | 🏥 Queen Elizabeth Hospital, Woolwich | 🚑 Lewisham Community services Supported by @LGTCharity. Monitored weekdays 9am-5pm
STHResearch&Innovatio.. @Shef_Research
967 Followers 826 Following
REMAP-ILD @REMAP_ILD
658 Followers 21 Following A global collaborative project bringing together researchers, clinicians, patients & industry. Finding treatments faster. NIHR funded #REMAPILD #curePF
IAPTTrialistsNetwork @IAPTTrialists
122 Followers 234 Following Connecting researchers and IAPT services in the UK to help run randomised controlled trials and studies in IAPT! Run from @NorwichCTU, grown from @TYPPEX_prog
Lisa Hudig @LiseHudig
24 Followers 56 Following Clinical Research Nurse - Respiratory, Norfolk & Norfolk University Foundation Trust 😊
NIHR PRC: Blackpool @PRCBlackpool
2K Followers 1K Following News & info from @NIHRresearch PRC: Blackpool, dedicated to setting up & delivering late phase commercial clinical trials at @BlackpoolHosp #whywedoresearch
ATS Blue Journal @ATSBlueEditor
19K Followers 329 Following Posting content from the American Journal of Respiratory and Critical Care Medicine; follows do not indicate endorsement. #pulmCC #sleepmed #AJRCCM #RespEd #ATS
UHNM Research @ResearchUhnm
611 Followers 591 Following The Research and Innovation department at UHNM. Supporting and enabling our staff and patients at UHNM. pursuing worldclass research based care
Newcastle Hospitals R.. @NuTHResearch
2K Followers 468 Following The latest news and updates on research at Newcastle Hospitals. Account monitored Mon - Friday, 9am-5pm
North Tees and Hartle.. @NTeesHpoolNHSFT
11K Followers 956 Following We provide hospital and community based health care. To comment on our services: https://t.co/spXWbmP5Ut…
Clare (Hodkinson) Bec.. @weeClareB
86 Followers 298 Following Research Manager @ActionPFcharity, wife, Mum, lover of Zombie shows, Sci-fi, knitting/crochet, living my best life with #pulmonaryfibrosis
Louise Crowley @Louisecrowley4
189 Followers 281 Following Clinical Research Fellow, PhD student, Respiratory Registrar. Cyclist 🚴🏻♀️
Di Griffiths @DiGriffiths1
54 Followers 173 Following
UHBRespResearch @RespResearchUHB
251 Followers 173 Following The Twitter account of the Respiratory Research Team at University Hospitals Birmingham NHS Foundation Trust
NorthumbriaNHS @NorthumbriaNHS
11K Followers 2K Following We manage hospitals and community health services in North Tyneside and Northumberland.
HUTH Research @HUTHResearch
377 Followers 314 Following The official twitter account for the Research & Development department at @HullHospitals. We operate from Hull Royal Infirmary and Castle HIll Hospital.
Laura McGenily @research_lauraa
85 Followers 162 Following Clinical Research Nurse, NHS Forth Valley | PGDip Health Research 2022 | 🐶👶
Pilar Rivera-Ortega @PilarRiveraOrt1
3K Followers 5K Following Respiratory Consultant, subspecialty in Interstitial Lung Diseases #ILD🫁🧬Manchester University NHS Foundation Trust. Tweets=my own🇵🇪🇪🇸🇬🇧 #DEI #RWE #RCTs
Leeds Hospitals Respi.. @LTHTRespiratory
682 Followers 166 Following Leeds Respiratory twitter account. We are a large tertiary and secondary referral centre for all respiratory conditions. Our opinions, not necessarily LTHT’s
Leeds Teaching Hospit.. @LeedsHospitals
24K Followers 1K Following The official X feed with news and updates for Leeds Teaching Hospitals NHS Trust, #TheLeedsWay. Supported by @LDShospcharity. Part of @WYAAT_Hospitals.
Leeds Research & Inno.. @LTHTResearch
3K Followers 973 Following Official twitter account for Leeds Teaching Hospitals NHS Trust (LTHT) Research & Innovation department. @LeedsHospitals
Gareth Davies @GazDavies91
345 Followers 300 Following Dad, Husband, and Senior Research Nurse/Team Lead in Respiratory, Hepatology & HPB Surgery (Views are my own)
Kim Holt @KimberleyJHolt
98 Followers 389 Following Research Associate, University of Manchester / MFT / NIHR Manchester BRC respiratory theme. Working Mum in Science 🧬 🗣
IPF Awareness @IPFawareness
923 Followers 442 Following Aiming to increase awareness of Pulmonary Fibrosis, support charities in helping improve the outcomes and quality of life for patients with this disease
Janet Fallon @Janet_Fallon
185 Followers 138 Following Respiratory Consultant in the South West. Interests in ILD, pleural disease and lung cancer. Proud to work in the NHS. All views are my own.
Tracy Wood @Tracy_Wood100
293 Followers 282 Following Clinical Research Nurse Manager at the amazing CHFT. Interim R&D Lead
Anne Todd @research_anne
277 Followers 315 Following Trials Practitioner and team lead at NHS Forth Valley ⭐️ views are mine 😊
FluCare: Care Home St.. @flu_care
45 Followers 44 Following The FluCare Study is now closed; thank you to all care homes and vaccination providers that took part!
Somerset NHS Foundati.. @SomersetFT
8K Followers 546 Following Somerset NHS Foundation Trust provides mental health, community and learning disability services across Somerset and runs Musgrove Park and Yeovil Hospitals.
Jess Hartley @Jesshartley77
41 Followers 39 Following Respiratory Physiologist, mum to 2 winkles. Home girl at heart but likes to party occasionally 😉! Thoughts my own.
Doria Barbonchielli @ILDNurse
750 Followers 1K Following ILD Specialist Nurse 🫁@CV_UHB |MSc-NMP |Research Lead |Ex ICU Nurse |♥️🏋🏻♀️🏃🏻♀️🧘🏻♀️| PADI scuba diver 🤿| Mum x 3 +🐶|🇮🇹🇮🇷|Opinions are mine
Research East Cheshir.. @ResearchEastCh1
189 Followers 441 Following At East Cheshire we deliver adult and paediatric research, improving the understanding of complex health conditions and bringing new treatments to the NHS
East Cheshire NHS @EastCheshireNHS
8K Followers 3K Following We provide safe, effective and personal care to people across East Cheshire.
Anneka Biswas @Annekabiswas
51 Followers 107 Following Consultant Respiratory Physician @CHFTNHS Interested in Interstitial lung disease, Tuberculosis and Medical Law. Wife and Mummy to my 3 girls 🩷
Kathryn Ferguson @kmcdferguson
88 Followers 122 Following Kathryn Ferguson, PhD. Research Physiotherapist Respiratory Health
C-TRIC @C_TRIC
2K Followers 2K Following Clinical Translational Research and Innovation Centre (C-TRIC) Clinical Research Facility - Partners: DCSDC, UU and WHSCT.
Southern Trust @SouthernHSCT
15K Followers 718 Following We provide health and social care services to around 365,712 people across the Southern Trust Area. Account not monitored 24/7. #teamSHSCT
Sarah Lines 💙 @ILD_Sarah
858 Followers 604 Following Wife, Mum of 4, Grandma, Interstitial Lung Disease (ILD) nurse & @NIHRSW Research Associate, @Exeter_ILD @RoyalDevon. Apiarist. Views my own
⭐️Research Star of the Month!⭐️ Also nominated for this month's Research Star of the Month was Ania, Harriet & Beth! These ladies work in our R&D team & have been nominated for exemplary commercial site set up and for their work on the upcoming R&D website! Amazing work!🙌
Great to see this qualitative paper from the @HipHelperTrial in @BMJ_Open: "Perspectives of informal caregivers who support people following hip fracture surgery: a qualitative study embedded within the HIP HELPER feasibility trial" bmjopen.bmj.com/content/13/11/…
£2 million UEA project to help chronic lung condition is looking for participants 💨 Prof Andrew Wilson, who is leading the study on the condition called IPF said there is currently "no treatment" for the scarring it causes. He hopes to change this. @UeaMed @Brainomix
Excited to be in Liverpool for the British Society of Gastroenterology meeting. Thanks for the invite to discuss all things fibrosis and reflux related! #bsglive23 #cureipf #collaboration @BritSocGastro @ImperialNHLI @asthmalunguk @ActionPFcharity @TIPAL_trial
Great to see @CAP_Ability findings published in @BMJ_Open, comparing outcomes between newer and more established total knee replacement designs bmjopen.bmj.com/content/13/1/e…
Ready to welcome our visitors from 10.30am @NorwichSciFest #amr #diagnostics #pneumonia #stewardship
We are delighted to be involved in this exciting study and hope that recruitment goes well!
a huge welcome @SheffieldHosp @Shef_Research to #teamTIPAL! Good luck for recruitment Dr Nick Weatherley & team! 🤩🥳🫁👏 #IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
✨Happy New Year✨ 2023 is a big year for Action for Pulmonary Fibrosis, as it marks our 10th anniversary. As we remain committed to creating a brighter future for those affected by PF, this is an opportunity to reflect on all that we have achieved so far together. 💜
Our Research Delivery Teams are looking tree-mendous in their Christmas Jumpers today!🎄🎅Amazing effort made by all!👏@NNHospCharity @NNUH
@ILDIPFDoc_NI Thank you @ILDIPFDoc_NI contact has bee made with IPF patients in Northern Ireland.
Let's get Northern Ireland 9n this league table. If you are an IPF patient in NI and would like to take part in this crucial trial please get in touch @pfsg_nireland
Latest progress on the #TIPAL recruitment spirometer! 92 participants randomised and counting! Massive well done to #teamTIPAL 🥳🫁#IPF #IPFresearch #pulmonaryfibrosis #clinicaltrials #pulmonaryfibrosisresearch #virtualtrial
Thank you Sarah for choosing us and in turn raising awareness of #pulmonaryfibrosis And the 70,000 living with #PF today 💜
Well what a lot of fun that was filming #celebritymastermind with this great bunch @knackeredmutha @MattRichardson3 and @Yfielding . My chosen charity is @ActionPFcharity. I’ll keep you posted with an on air date soon so you can see how we battled it out.
Meet our Imaging Research, Rheumatology and AiDAPT teams who are nominated for the Research Award in the NNUH Staff Awards 2022. Congratulations teams! #TeamNNUH
Full house at our RCT results reveal meeting today. We’re excited to share our results with staff from our clinical sites, our PPI panellists, our funders @NIHRresearch and members of our committees. They will go public later this week @IDWeek2022.
Plain speaking and straight talking about #pulmonaryfibrosis from experts across the UK #pfpatientday2022
Loving the poster 🫁💜👍🏻. 👇🏾👇🏿
We also have the #PURPOSE study on display at P-097 too! A #SWAT asking can pt support groups helps improve recruitment & retention? #ictmc2022 @ActionPFcharity @ActionPFwendy @ActionPFsteve @weeClareB 🤓
Our third poster describes an NIHR-funded package to build a data linkage and pseudonymisation tool for use at clinical sites. On display at P-142, come and see #ICTMC2022 3/3
Our second poster describes the @TIPAL_trial study and modifications to it in response to the pandemic - on display at P-50 #ICTMC2022 2/3
We are pleased to have three posters at #ICTMC2022. The first describes the PURPOSE study, and a study within a trial. Come and see at P-97 #swat 1/3
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