#CureforCluster VIRTUAL 5k for Cluster Headaches @TAC_Clusters
Raising Cluster Headache Awareness & Funding for Clusterbusters, Inc. runsignup.com/Race/CO/Centen… Denver, CO Joined March 2017-
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Ran the Clusterbusters Virtual 5K today in solidarity with my patients, who fight a beastly adversary in this disease. #CureforCluster @TAC_Clusters @Cluster_buster
Today is the 3rd Annual Virtual #CureforCluster 5k for cluster headache research by @clusterbusters! While the registration deadline has ended, you can still donate to a participant! runsignup.com/Race/Donate/CO… #mham #sowingtheseeds #chronicpain #invisibleillness #clusterheads
Annual #CureforCluster Virtual 5K. Supporting those who seek a clear path in search of relief from Cluster pain.
@Cluster_buster ‘s third annual #CureforCluster Virtual #5k is today! Raising awareness and Finding for #clusterheadaches and #clusterheadache research #clusterheads #MHAM
Our annual #CureforCluster Virtual #5k is today! We’ll be sharing photos throughout the day. The event helps raise awareness for #clusterheadaches and funding for #clusterheadache research. #MHAM
@SheilaBenny Thank you all for joining us! I hope the walk was fun and it looks like great weather. #CureforCluster #clusterheadache
I love seeing all of these posts!! It’s great to see so many people get involved and outdoors to help spread awareness for #ClusterHeadaches and raise funding for #ClusterHeadache research. #CureforCluster
Participating in CURE FOR CLUSTER VIRTUAL 5K June 22, 2019 in Wynnewood, PA #CureforCluster #MHAM Thank you Ashley for organizing this great event!!
CHAMP Announces RetreatMigraine-RetreatMigraineis a 3-day experiential and celebratory event led by and focused on people headachemigraine.org/retreatmigrain…
Help us fill the map! We need your voice (via your keyboard) to advocate for #migraine and #headache disease White districts=no emails submitted yet Just 1-2 minutes and a few clicks can drive change: bit.ly/2UKbmcG
We’re so excited for our 3RD #CureForCluster virtual #5K. Last year we had seven countries involved! Sign up today! #clusterheadaches #clusterheadache
2/2 Sign up today at bit.ly/2Oh3Of8 before June 1st and you’ll receive your race packet complete with swag and handouts before race day. Encourage your friends and family (even your pets) to run beside you! #clusterheadaches #CureforCluster
Sharing this thread again about #clusterheadache given recent public statement by @RepAndyHarrisMD about @CMSGov denial of #oxygen coverage which is in the face of: -data -logic -guidelines -quality measures -desire for #opioid sparing therapy -what our patients tell us
@CMSGov just formally reaffirmed their denial to cover #oxygen as a treatment for acute attacks of #clusterheadache. This decision is in the face of strong scientific evidence, clinical experience, and legitimate advocacy efforts. Here is some context. /1
Huge thanks to @RepAndyHarrisMD for advocating for oxygen for #cluster. We appreciate your continued support!
.@RepAndyHarrisMD just asked HHS @SecAzar "why @CMS drags its feet" to provide coverage for oxygen for #cluster #headache at House LHHS Appropriations hearing. TY!
Great point!
.@RepAndyHarrisMD just asked HHS @SecAzar "why @CMS drags its feet" to provide coverage for oxygen for #cluster #headache at House LHHS Appropriations hearing. TY!
Sign up for our 3rd annual #CureforCluster VIRTUAL #5k before March 30 and save $5. Last year we had people in seven countries participate to raise funding for @Cluster_buster! #suicideheadaches #clusterheadaches runsignup.com/Race/CO/Denver…
We had a very productive meeting with @virginiafoxx concerning NIH HEAL initiative and SSA evaluation of disability due to migraine and headache disorders. #HOH2019
To each and every staffer who has headaches/migraines. We luv u boo, pls stay hydrated. #HOH2019
Anita Mosquera @AnitaMos319
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MyClusters @myclusters
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Cardio, Cameras, and ... @cardiocameracof
39 Followers 112 Following A Brit #photographer in Oklahoma with a dodgy ticker, #RSD / #CRPS, #Clusterheadaches, and a love of caffeine.
Violeta Új @vio_uj
24 Followers 246 Following (ella/her) 𝐸𝓈𝒸𝓇𝒾𝒷𝒾𝒹𝑜𝓇𝒶 𝓂𝓊𝓁𝓉𝒾𝒹𝒾𝓂𝑒𝓃𝓈𝒾𝑜𝓃𝒶𝓁 𝓉𝓇𝒶𝓉𝒶𝓃𝒹𝑜 𝒹𝑒 𝑒𝓃𝒸𝑜𝓃𝓉𝓇𝒶𝓇 𝓈𝓊 𝓅𝓁𝒶𝓉𝒶𝒻𝑜𝓇𝓂𝒶 𝒹𝒾𝑔𝒾𝓉𝒶𝓁
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Michael Lester @Mlester716
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OUCH (UK) @OUCH_UK
1K Followers 33 Following OUCH (UK) is a UK based, non profit charity funded only by membership and fund raising. We are primarily focused on the condition known as Cluster Headaches.
Eileen Brewer @eileenbunny
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Reilly Capps @ReillyCapps
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145 Followers 332 Following
advoCat @catlind98
252 Followers 383 Following Chronic Cluster, Migraine, Post Traumatic HAs & TBI Survivor, Bereaved Parent, Evidential Medium, Life after Life Advocate. I am advoCat hear me roar.
not just a headache �... @notjustaheadach
773 Followers 650 Following I'm katie, sharing my #livedexperience of disability & multiple long term conditions. exploring a life full of labels to find the real me
Andygurl @Clustercalm
963 Followers 757 Following God loving 🇺🇸 Patriot- Digital Warrior- FAITH over fear is how I walk with the Lord- On a Great Awakening mission forward- Fighting for my loved ones o7
Denise Loveland Bowe @clustermother
175 Followers 191 Following
Bill Mingus @Racer1_NC
259 Followers 401 Following Husband, father and son. Cluster Headache research advocate and NASCAR Modified fan, semi-retired but open to offers. No, I'm not on FaceBook.
Mr Clusters @MrClusters
123 Followers 116 Following Sleep. Those little slices of death. How I loathe Them - Edgar Allen Poe
NIH @NIH
1.7M Followers 225 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3gX1M Engagement ≠ endorsement
HHS @HHSGov
1.7M Followers 38 Following Official account of the U.S. Department of Health & Human Services | Follow @SecKennedy | For latest news follow @HHSResponse | MAHA 🇺🇸
CMSGov @CMSGov
208K Followers 113 Following Official X account for the Centers for Medicare & Medicaid Services (CMS) | Follow @DrOzCMS
Dawn Buse, PhD @DawnBuse
4K Followers 3K Following Psychologist & Clin. Professor: #Migraine, #Pain #Stress #BMed #CBT #Biofeedback @einsteinmed. Free relaxation & pain management meditations at https://t.co/X2kItm1bQL.
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