Kyra @StepWithKyra
10yo from #Brighton with #PFFD. Fundraising to have leg operations by @Dr_Paley from the @PaleyInstitute. #stepwithkyra #stepbystep justgiving.com/campaign/stepw… England, United Kingdom Joined December 2017-
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Stay safe friends 💖 @PaleyInstitute @quantumhouse
There's an increasing chance for #Dorian to bring a triple-threat of dangers to the Florida east coast... 🌊life-threatening storm surge 🌬️devastating hurricane-force winds 🌧️heavy rains The onset of tropical storm force winds could be as soon as Saturday evening. Prepare NOW.
🎉 Big announcement 🎉 Kyra has finish leg lengthening at @PaleyInstitute and we are on our way home! She is one very happy girl and we are incredibly proud of her. #PaleyCare #StepWithKyra #ProudParents #HardWorkPaysOff #MakingImpossiblePossible
Sending love to Dan one of Kyra's supporters, whose cafe was broken into. It's his livelihood & horrible to have to deal with. A #StepWithKyra charity box was stolen which is sickening when we're with Kyra doing daily intensive physio and still have bills to pay. @just4_children
Be safe and be ready for any storm with The City of West Palm Beach Hurricane Preparation Info Sheet. What you need to know now before a possible storm. Download PDF here: bit.ly/2Xxkrqx
Happy #FathersDay to Kyra's dad. Neil is a brilliant, fun, loving & kind dad to all his daughters. He's hands on with Kyra treatment, has climbed mountains (literally) to fund raise and his physical strength to lift and carry Kyra when she's been immobile or in pain is a godsend.
This Father’s Day, #WCATDads decided to show #50Mums how it’s done! They wanted to show that, just like the mums, they #WouldntChangeAThing about their children. Have a look to see the adventure that they went on in their quest to "one-up" the mums! youtu.be/0GP8GOvkJLc
Had a great fun at Golden Cub Mini Golf playing with Chris Sharpe and @Cody_Bolton8 from Pittsburgh @Pirates. Kyra's dad is not a tall boastful that he beat them! 🤣🤣🤣 Thanks to @LittleSmiles_FL for organising. A lovely treat and good exercise for Kyra's leg too. #StepWithKyra
@GoPBCardinals @LittleSmiles_FL @POST_FL @quantumhouse @PerryDellaValle We had a fabulous day. Great way for Kyra to out the sun and get some exercise 😊
Palm beach pitchers Alex Fagalde and Perry DellaValle had some fun this morning playing mini-golf at Golden Cub with the South Division All-Star team and kids from @LittleSmiles_FL, @POST_FL and @quantumhouse! Check out that putt from @PerryDellaValle!
Kyra's has grown 1 cm since her operation 3 1/2 weeks ago. #StepWithKyra @PaleyInstitute
Kyra has had her hair dye blue (the picture doesn't do it justice) as a reward for sleeping in her brace every night. As part of the lengthening she has to wear a hip to ankle brace to keep her leg locked in place all night, every night, for 10 weeks. #StepWithKyra
@DevAngel22 @BBCOne Have you heard of @ZebedeeManagemt? They are a model and talent agency people with disabilities and difference. Check this out. boredpanda.com/limb-differenc…
Great to see Devon on #21Again being out and proud about living with #PFFD. #OneInAMillion 💖@BBCOne bbc.co.uk/programmes/m00…
Happy Sunday from Palm Beach! It's too hot here to be out in the sun for long but it's nice to get out away from waiting rooms and give Kyra a beak from physio. #StepWithKyra 🌈
Kyra loved joining in with Nuturing Notes yesterday! 🎼🎻🎻🎻🥁 #CATPB @pbsymphony @PBMTI #StepWithKyra
Kyra has bounced out of surgery and discharged from hopsital. Little Miss Independent has been getting about on her walker. Here's a message from her just before her first physio session at the @PaleyInstitute. #StepWithKyra facebook.com/ntwarrell/vide…
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