Megan @MegJC28
Post Covid vaccine long hauler, now a chronic illness warrior💪 Joined May 2011-
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How nice is it to sit in the garden,with a little bit of warmth, listening to the birds
Having to take amoxicillin (very reluctantly) and the side effects are horrible. I feel so depressed. I suspect mcas has something to do with it too
When you’re unwell and all you want to do is eat tasty soup and crusty bread with butter, but, you can’t because you have MCAS
Does anyone else have painful itchy ears?!! This on top of the tinnitus is bloody annoying
'Left me to rot!' Furious Briton demands Sunak 'look him in the eye' and give him straight answer on Covid vaccine harm #GBNPeoplesForum gbnews.com/politics/rishi…
Lurgy on top of chronic illness is the worst. My POTS be flaring
I had an appointment with my dietitian the other day and was just ranting away and she said 'none of this is your fault you know'. I felt like I really needed to hear that and she's right it isn't my fault it's the government and @ASTRAZENECAUK 's fault!! #vaccineinjuries
Wow😲 1k views in 2 days! I hope that means folk found the paper interesting & more importantly that its an much needed piece of work! Thanks again to all involved in making it happen, participants & collaborators alike💛 #postvac #vaccineinjuries @Charletukcvfam @dylanarmbruste3
Wow😲 1k views in 2 days! I hope that means folk found the paper interesting & more importantly that its an much needed piece of work! Thanks again to all involved in making it happen, participants & collaborators alike💛 #postvac #vaccineinjuries @Charletukcvfam @dylanarmbruste3 https://t.co/n3tff4xO8O
What I would give just to eat and drink whatever the fuck I wanted again!!!
Wish I never took the @AstraZeneca vaccine. I’m almost 3 years on and one minute I think I’m just around the corner of getting back to some form of normality then BOOM I am in the worst flare up ever and I don’t know fucking why!!! @AstraZeneca I hate you for what you have done
MCAS activated by Long COVID or MIS-C & MCAS activated by V-x or Post-V-x: CRITERIA FOR CLINICAL DIAGNOSIS researchgate.net/publication/37… Also for ME/CFS, Fibromyalgia, MCS POTS, Dysautonomia, Ehlers-Danlos Small Fiber Neuropathy(SNF) Anxiety, Depression, Panic Arthritis, Autoimmune Dis
A morning with mcas feels like waking up from 9 hours broken sleep due to vivid dreams, feeling like you basically haven’t slept at all. Palpitations,headache, stuffy nose, joint and muscle aches, tinnitus. List is endless to be honest, but it isn’t fun.
Ehlers-Danlos News: "Long COVID symptoms lead to hEDS diagnosis in small study" 'Virus may trigger immune response in patients with preexisting hypermobility' ehlersdanlosnews.com/news/long-covi…
'Vaccine victims' left with life-changing injuries from the Oxford-AstraZeneca Covid jab say they've been censored online when speaking out trib.al/htScy0z
The Blue Room @BlueSlots
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26K Followers 3K Following Physio/S & C Trainer- 16yrs Pro sport; Ballet ,Rugby, Military, PGA tour, severely injured due to AZ 💉 vaccineDr David Cartland @CartlandDavid
219K Followers 10K Following BMedSci Published scientist MBChB MRCGP promoter of safe evidence based medicine, good medical ethics. Father ✝️🦁❤️Pronouns: told/you/so!! https://t.co/C4uZAiVvsbAlex Mitchell @ake2306
34K Followers 16K Following VITT (VACCINE INDUCED THROMBOTIC THROMBOCYTOPENIA). There are 445 VITT's and tragically 81 fatal cases. https://t.co/6TIq6Fe5l9Anette Lindberg Fried.. @anettefri
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5K Followers 3K Following v, injured, raising awareness for the injured,💜Anne W. 💜💜 @AnnieWBelle
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1 Followers 154 FollowingPrayingNews @Praying_News
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16 Followers 119 FollowingMy Long Covid Advocac.. @myLCadvocacy
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4.6M Followers 37 FollowingMy Long Covid Advocac.. @myLCadvocacy
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158K Followers 636 Following Gastroenterologist, Researcher, Consultant, Speaker. CEO #progenabiome CEO #author LetsTalkSht #microbiome expert. https://t.co/s9PHV6OtbXFoo Fighters UK @FooFightersUK
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510 Followers 439 Following Suffering from POTS and ME/CFS triggered by the Moderna vaccine (4/24/21). Would like to rejoin the living.George Parker @a_george_parker
1K Followers 4K Following Writer | Poet | Dragon | Rebel Riot Poetry Host | Cabinet of Curiosities Podcast | Disabled & Queer Artist of the Year (they/them)new UK Tour jerseys!? shopuk.foofighters.com
I’ve done a thread like this before but it’s been a while. Does anyone want me to post links to the products I use that are safe-for-me with my MCAS/allergies? I can’t use much, so if you’re super sensitive too it might be a good place to start. I will just post them here if so
My LFT is negative 🤞🏻🤞🏻🤞🏻
Im getting discharged today!! I think i will write a blog about the full experience but for those interested this is the gist of what happened and the diagnoses... I have lost track of days too so excuse timelines 😆
Im out of surgery, had a snooze, & feel not too bad Speaking to the surgeon tomorrow for full details, but from a quick debrief i had...i feel very validated after 20 odd years of gaslighting - i cried 🥹 Overwhelmed with the love & support from EVERYONE 🙏🏻 thank you so much!💛
In hospital with ✨mystery pain✨ / possible appendicitis Staff are actually being great and even gave me IV saline for POTS Fingers crossed antibiotics clears it up and i dont need surgery (and catch covid) Im wrecked, all kindness gratefully received but i may not reply 💛
In hospital with ✨mystery pain✨ / possible appendicitis Staff are actually being great and even gave me IV saline for POTS Fingers crossed antibiotics clears it up and i dont need surgery (and catch covid) Im wrecked, all kindness gratefully received but i may not reply 💛
Good doctors: ✅Listen ✅Believe ✅Don't judge ✅Understand doing nothing =/= no harm ✅Make accommodations (eg. lights off, mask, let you lie down) Great doctors *also*: ✅Research ✅Seek expert advice ✅Push for further tests they think are important ✅Advocate for the patient
Since all of us have pretty good experience with doctors, I’m wondering? What are some qualities that separate a great doctor from a bad doctor
Anyone making Kate’s cancer a vaccine injury, with her unknown vaccination/booster status, is hurting the confirmed vaccine-injured. We need to be taken seriously. We are real people, in need of real help. Drawing far premature conclusions like this only hurts the rest of us.
@glastonbury This may be the worst line up the festival has ever had!
We're thrilled to announce that music legend @StevieNicks is headlining American Express presents BST Hyde Park on Friday 12 July 2024, with a full lineup to be announced 🌙 🎟 BST Hyde Park presale goes live at 10am GMT Monday 4 March. Get access to the Stevie Nicks presale…
FT. 💪 Absolutely massive shift. #Harriers 🦅
@oflynnsocial @StephenGBNews Could you be any less caring about a man having his life ruined?
@GBNEWS It’s NOT a compensation scheme !!! @RishiSunak what are you on about !!!!!!
Not a fan of GB News but John makes valid points. @RishiSunak FYI the VDPS is not a compensation scheme. Its meant to be a safety net yet fails most of us and is inadequate for loss of (quality of) life nhsbsa.nhs.uk/vaccine-damage…
'I want you to look into my eyes Rishi Sunak and I want you to look at the pain, the trauma and the regret I have in my eyes.' An audience member asks the Prime Minister why he and others affected by the covid vaccine 'have been left to rot'. #GBNPeoplesForum
My brother's in arms "Bringing The Noise" 👏👏👏
'Left me to rot!' Furious Briton demands Sunak 'look him in the eye' and give him straight answer on Covid vaccine harm #GBNPeoplesForum gbnews.com/politics/rishi…
Why did they not take notice when Stephen died. A healthy, fit, 32 yr old with a sudden unexplained condition we now know to be VITT. We tried to draw attention to the cause being the AZ jab straight away. Further lives could have been saved. @RishiSunak @MHRAgovuk
IT IS three years since Dr Stephen Wright died from vaccine-induced thrombosis, caused by the AstraZeneca covid vaccine. Other European regulators suspended it after the 1st death, it is still approved in the UK to this day by @MHRAgovuk conservativewoman.co.uk/three-years-on… via @TheConWom
Wow😲 1k views in 2 days! I hope that means folk found the paper interesting & more importantly that its an much needed piece of work! Thanks again to all involved in making it happen, participants & collaborators alike💛 #postvac #vaccineinjuries @Charletukcvfam @dylanarmbruste3
I'm very excited to announce that our survey data have now been published on a preprint: Characterising long COVID-like COVID-19 vaccine reactions zenodo.org/records/105820… I've already summarised key findings in the thread below 👇🏻 #postvac #vaccineinjuries #medtwitter
FT. BOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOM #Harriers 🦅
[58] HARRIERS 1-2 Oxford City One back! Good ball in from Lambert allows AMS to turn inside the area before rifling one home, in off the bar! #Harriers 🦅