Maryse Hendi (she/her) @MaryseHendi
#Lupus / Chronic illness patient advocate | Pediatric Lupus Foundation project manager | @CAFsociety youth ambassador - personal account @maryses_pieces linktr.ee/pediatriclupus… Joined January 2023-
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Maryse Hendi (she/her) retweeted
I saw someone with frostbitten toes in the ER recently. He had slept in a stairwell when temperatures were under -30C. He in fact did have a home, but didn’t have the money he needed to get there. Lack of housing. Poverty. Canadian society should be warmer than this. #SDOH
I saw someone with frostbitten toes in the ER recently. He had slept in a stairwell when temperatures were under -30C. He in fact did have a home, but didn’t have the money he needed to get there. Lack of housing. Poverty. Canadian society should be warmer than this. #SDOH
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Maryse Hendi (she/her) retweeted
17 years through a leaky pipeline… only 14% of Pediatric pain research makes it into practice and it takes almost 2 decades. 💔#ispp2023 @KidsInPain and @TREKKca work to close that gap.
Maryse Hendi (she/her) retweeted
Thank you @seastarbatita & @MaryseHendi 🧡
Maryse Hendi (she/her) retweeted
Ok 2023 - let's do this! New year, new goals to crush for kids, teens and families affected by #Juvenile Arthritis! and other rheumatic diseases! Read about our upcoming Virtual Education Sessions, meet our Youth Ambassadors, get active with us and more - mailchi.mp/cassieandfrien…
ChronicIllnessHumor @HumorChronic
985 Followers 3K Following Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for a while. #chronicillness #autoimmune #funny
Joseph Ward @JosephWard6954
84 Followers 3K Following
Justina Marianayagam,.. @_justinam
2K Followers 1K Following PGY2 Pediatrics Resident @UBCPediatrics | @loranscholar | interests in policy & rural health | 2nd gen immigrant et #bilingue 🇨🇦
Lauren @lauren_roby43
196 Followers 3K Following
Cari Ortiz @CariOrtiz475399
109 Followers 3K Following
Prachi Khanna @khanna_prachi_
226 Followers 453 Following 🔬grad student @LSHTM #CriticalCare #ChronicPain #HealthSystems #PatientCenteredCare #HAPC #Epidemiology #AgingInPlace Contemplating, views expressed are my own
Noah Ulicki @yoahitsnoah
41 Followers 114 Following (he/him) CRDS student @UCalgary. Passionate about intersectional pain research, accessible queer spaces, and disability justice
Dr. Christine Chamber.. @DrCChambers
17K Followers 9K Following Busy mom of 4, PhD Psychologist, Scientific Director @CIHR_IHDCYH, Scientific Director @KidsInPain, Professor & Tier 1 @CRC_CRC in Children's Pain @DalhousieU.
Isabel Jordan (She/He.. @seastarbatita
6K Followers 2K Following Parent. Patient Partner. Feminist. Nerd. I am congruent. #PatientsIncluded #ItDoesntHaveToHurt (Avatar from @blackmudpuppy) [email protected]
Autoimmune Chat @AutoimmuneChat
690 Followers 1K Following A patient led initiative bringing autoimmune patients together to share experiences, support and raise disease awareness. Join our #autoimmunechat community
Amanda G @LAlupusLady
12K Followers 10K Following #Lupus advocate raising #LupusAwareness sharing joy and information to empower people on their journey.
Carly by Nature @SynceNerd_Carli
2K Followers 2K Following Virgo|Made in BKLYN|Science Nerd|she/they| #BLACKAndSTEM | #Lupus & #Raynauds Patient Advocate |Co-host of #LupusChat - Sun.3pm ET https://t.co/r0ds5XezyS
time for my second na.. @hyggeandpuppies
1K Followers 3K Following 🌈 🩷💜💙She/her ♓☀️♏🌖♋⬆️ exvangelical & exmormon, MSW, 💊Lupus Scleroderma overlap, Pemphigoid 😷ADHD, cats, ☕️, and smashing the patriarchy, BLM
Lupus Association @LADAOrg
6K Followers 5K Following Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.
Kathleen Arntsen @KathleenArntsen
5K Followers 5K Following President & CEO of Lupus and Allied Diseases Association. Passionate advocate, collaborator, strategist, communicator. Empowered lupus & autoimmune warrior.
My Story Living With .. @story_lupus
398 Followers 579 Following Lupus Advocate. Podcaster. Owner of a non-profit. I believe in giving back and extending a helping hand.
ChildKind @ChildKindIntl
814 Followers 610 Following ChildKind International is dedicated to improving the quality of pediatric pain care around the world. #ChildrensPainMatters
Justina Marianayagam,.. @_justinam
2K Followers 1K Following PGY2 Pediatrics Resident @UBCPediatrics | @loranscholar | interests in policy & rural health | 2nd gen immigrant et #bilingue 🇨🇦
Pain Research Forum @PainResForum
15K Followers 2K Following @IASPPAIN’s news resource #PainResearchForum is dedicated to accelerating the discovery of treatments & research for various types of #chronicpain. @reliefnews
TREKK @TREKKca
3K Followers 1K Following Canadian network of pediatric and emergency specialists: finding faster ways to share pediatric emergency evidence with general EDs
Prachi Khanna @khanna_prachi_
226 Followers 453 Following 🔬grad student @LSHTM #CriticalCare #ChronicPain #HealthSystems #PatientCenteredCare #HAPC #Epidemiology #AgingInPlace Contemplating, views expressed are my own
BCCHR ResDev @grantsfacilitat
2K Followers 1K Following Research & Technology Development (est 2003), BCCH Research Institute | UBC | PHSA. We focus on science. tweeter DM | she/her/dr.
Noah Ulicki @yoahitsnoah
41 Followers 114 Following (he/him) CRDS student @UCalgary. Passionate about intersectional pain research, accessible queer spaces, and disability justice
Dr. Samina Ali @drsaminaali
7K Followers 1K Following Pediatric Emergency Physician, Children's Pain Researcher, Champion for Professionalism and Wellness in Medicine, Anti-Racist, Ally, views are my own. (she/her)
Health Standards Org @HSO_world
3K Followers 3K Following Empowering and enabling people around the world to continuously improve quality of care #SaferCare #HealthierWorld
IASP @IASPpain
22K Followers 2K Following The International Association for the Study of Pain is a multidisciplinary member-based professional community dedicated to improving pain relief worldwide.
Jaris Swidrovich @JarisSwidrovich
5K Followers 2K Following Assistant Professor, Teaching Stream @UofTPharmacy @uoft Saulteaux/Ukrainian BSP PharmD PhD(c) AAHIVP RPh 2S🏳️🌈he/they #IndigenousHealth #Pain #HIV #LandBack
Dr. Katie Birnie @katebirnie
3K Followers 2K Following PhD Clinical Psychologist & Assistant Prof; lead #PartneringForPain @UCalgaryMed @UofCr4kids; Associate Scientific Director @KidsinPain; Tweets mine; She/Her 🌈
Dr. Christine Chamber.. @DrCChambers
17K Followers 9K Following Busy mom of 4, PhD Psychologist, Scientific Director @CIHR_IHDCYH, Scientific Director @KidsInPain, Professor & Tier 1 @CRC_CRC in Children's Pain @DalhousieU.
Solutions for Kids in.. @KidsInPain
3K Followers 816 Following Improving children's pain management by mobilizing evidence-based solutions through coordination & collaboration @NCE_RCE #ItDoesntHaveToHurt
Isabel Jordan (She/He.. @seastarbatita
6K Followers 2K Following Parent. Patient Partner. Feminist. Nerd. I am congruent. #PatientsIncluded #ItDoesntHaveToHurt (Avatar from @blackmudpuppy) [email protected]
UMass Lupus @UMassLupus
535 Followers 558 Following Our research @UMassChan focuses on studying Lupus in hopes of providing patients with this devastating disease new treatment options.
Autoinflammatory All @AAlliance_SAID
2K Followers 836 Following The Autoinflammatory Alliance (formerly NOMID Alliance) is a 501(c)(3) non-profit improving awareness, care & treatment for autoinflammatory diseases.
SLEuro @SLEuroSociety
2K Followers 392 Following SLEuro is a voluntary and non-political association with social and philanthropic purposes concerning SLE and related syndromes.
Laurent ARNAUD @Lupusreference
17K Followers 596 Following MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | President of @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & RP 🇪🇺
Autoimmune Associatio.. @AutoimmuneAssoc
6K Followers 2K Following Leading the fight against autoimmune disease by collaborating to improve healthcare, advance research, and support the community.
Monique C Gore-Massy .. @GoldenMoe
1K Followers 2K Following Awarded Global & Natl #Lupus Advocate/ #DEI #PatientLeader/#Motivational Spkr/#Activist #ButGod 🙌🏽 #Plantbased
The Lupus Initiative @LupusInitiative
10K Followers 2K Following The American College of Rheumatology Lupus educational initiative focuses on improving the recognition and management of lupus in disparate communities
American College of R.. @ACRheum
34K Followers 4K Following Global medical society providing education, research, advocacy, and practice management support to over 9,100 rheumatology professionals since 1934.
CreakyJoints.org @CreakyJoints
19K Followers 2K Following CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide. | Part of @GHLForg | [email protected]
Pediatric Chairs of C.. @PedChairsCan
2K Followers 2K Following PCC represents the Departments of Pediatrics within the seventeen Canadian Medical Schools. Dedicated to leadership in pediatric research and education.
Canadian Paediatric S.. @CanPaedSociety
15K Followers 1K Following Paediatricians, advocates for child/youth health and well-being. Journal: @CanPaedsJournal En français : @SocCanPediatrie Parent info: @CaringforKids
Lupus Europe @LupusEurope
4K Followers 351 Following Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
Kaleidoscope Fighting.. @Kaleidoscope_FL
4K Followers 3K Following We educate the public and the medical community about lupus, to push for earlier, life-saving diagnoses for those afflicted, and to spur funding for a cure.
Lupus News @lupus_news
12K Followers 158 Following Living Under Pain Under Stress #autoimmune #lupus Unverified science & contentious ppl blocked. No fund request RBs.
Kathleen Arntsen @KathleenArntsen
5K Followers 5K Following President & CEO of Lupus and Allied Diseases Association. Passionate advocate, collaborator, strategist, communicator. Empowered lupus & autoimmune warrior.
Amanda G @LAlupusLady
12K Followers 10K Following #Lupus advocate raising #LupusAwareness sharing joy and information to empower people on their journey.
LUPUSUK 💙 @LUPUSUK
11K Followers 673 Following LUPUS UK is the only national registered charity supporting people affected by #lupus and assisting those approaching diagnosis. Reg Charity: 1200671
Friends AgainstLupus @AgainstLupus
9K Followers 2K Following Health community for #Lupus patients, caregivers, healthcare professionals, etc. #AgainstLupus #LupusChat | Tweets curated by @TiffanyandLupus.
Lupus In Color @lupusincolor
8K Followers 113 Following The Lupus In Color mission is to Educate• Inspire • Encourage • Empower Lupus Warriors and their support system worldwide! FB & IG: @LupusInColor #LupusInColor
Caring For Lupus @CaringForLupus
4K Followers 798 Following Passionate about improving Lupus Awareness; Co-host of #LupusChat (Sun. 3pm EST) - #Lupus #LupusWarrior #LupusAwareness #KearnyCares #BerkeleyAlumni #PinkSocks
NIH @NIH
1.7M Followers 323 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3huRk Engagement ≠ endorsement
More Than Lupus @LupusMore
2K Followers 836 Following More Than Lupus is a patient focused nonprofit run by Kelli Roseta aimed to amplify the patient voice through lupus advocacy, support, and patient education
MyLupusTeam @MyLupusTeam
4K Followers 1K Following The social network JUST for people living with #lupus. We now have over 150,000 members! 💜 Connect, share resources, and get support! It's FREE & private too!
Donald Thomas, MD @lupuscyclopedia
5K Followers 4K Following https://t.co/6sLXcfYinf Advocate for #lupus, #Sjogrens, #MCTD, #UCTD patients, sharing empowering, educational information. Tweets are my own 🏳️🌈💜
Lupus Canada @LupusCanada
2K Followers 185 Following Working to improve lives of Canadians living with lupus through advocacy, education, public awareness support & research | 1-800-661-1468 | [email protected]
NIAMS @NIH_NIAMS
14K Followers 222 Following Official account of the National Institute of Arthritis and Musculoskeletal and Skin Diseases, @NIH. Privacy: https://t.co/eMXWoHwCJc Engagement ≠ endorsement
Carly by Nature @SynceNerd_Carli
2K Followers 2K Following Virgo|Made in BKLYN|Science Nerd|she/they| #BLACKAndSTEM | #Lupus & #Raynauds Patient Advocate |Co-host of #LupusChat - Sun.3pm ET https://t.co/r0ds5XezyS
NASN, Inc. @schoolnurses
10K Followers 1K Following The mission of the National Association of School Nurses (NASN) is to optimize student health and learning by advancing the practice of school nursing.
RAiISE @raiiseuk
1K Followers 1K Following Improving school life and education for young people with invisible illnesses.
Lupus Trust @lupustrust
4K Followers 182 Following The Lupus Trust was set up as a registered charity in 1991. Its aim is to support lupus research at Guys Hospital & raise lupus awareness.
𝐴𝑓𝑟𝑜 𝒜.. @GlamUpWithKamie
427 Followers 1K Following wife. mom. girlboss. your next favorite. follow all my socials GlamUpWithKamie. I’ll be there blending like my life depended on it. [email protected]
Lupus LA @LupusLA
8K Followers 846 Following Serving the needs of people with #lupus & their families in the LA area and across southern California. #YourStoryOurFight Learn More: https://t.co/UV15ZcfWzk
time for my second na.. @hyggeandpuppies
1K Followers 3K Following 🌈 🩷💜💙She/her ♓☀️♏🌖♋⬆️ exvangelical & exmormon, MSW, 💊Lupus Scleroderma overlap, Pemphigoid 😷ADHD, cats, ☕️, and smashing the patriarchy, BLM-45°C in Yellowknife… this is what we call “Arctic mascara”. #LifeUpNorth
May our houseless citizens of #YEG find shelter and warmth this week, more than ever. May we all pause to be thankful for those things that we often take for granted.
It takes 17 years for 14% of research to find its way into practice, that’s far too long… #ItDoesntHaveToHurt
🎉 It's finally here!🎉 Pain Education Day has officially started, and we couldn't be more excited! Join us for a day filled with insightful conversations, learning, and unforgettable experiences. Don't miss out - follow along with #ItDoesntHaveToHurt and #ISPP2023. @IASPpain
Honoured to kick off Pain Education Day discussing the importance of #PatientPartners
Thank you @seastarbatita & @MaryseHendi 🧡
Honoured to kick off Pain Education Day discussing the importance of #PatientPartners
Ok 2023 - let's do this! New year, new goals to crush for kids, teens and families affected by #Juvenile Arthritis! and other rheumatic diseases! Read about our upcoming Virtual Education Sessions, meet our Youth Ambassadors, get active with us and more - mailchi.mp/cassieandfrien…
Lupus: A frustrating diagnosis journey you don’t need to embark alone healthblog.uofmhealth.org/health-managem…
Helpful Tips and Tricks to help dry, itchy skin due to lupus and Sjogren's: lupusencyclopedia.com/dry-skin-in-lu… RETWEET for others who may have dry itchy skin (this works for anyone)
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