CURE Ocular Melanoma @MRFCureOM
CURE Ocular Melanoma (#CUREOM) is the MRF's initiative to advance research & provide educational resources & support for people affected by #ocularmelanoma. cureom.org Joined October 2011-
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Last year, we launched the fully integrated VISION Platform which includes a Patient and Caregiver Discussion Forum and a new Clinical Trial Finder tool and more. During #MAM24, learn more about this patient driven platform and how you can participate - buff.ly/2RBLXpg
Are you ready to Rock & Roll Cleveland!? Our 2024 Cleveland Miles for Melanoma registration page is now OPEN! Join us on Sunday, August 4th at Edgewater Park. Click the link below to take advantage of our limited time early bird registration rates - join.melanoma.org/site/TR?fr_id=…
Happy Cinco de Mayo! #cincodemayo
For #ScienceSunday, Dr. Haq from @DanaFarber & one of the recipients of our inaugural Options Bring Hope Team award, speaks with our attendees about his award winning research titled “Identification of Molecular pathways that drive uveal melanoma Metastasis.” #EyeGetDilated #OM
#ScienceSunday continues as Dr. Ryan Sullivan from Mass General Cancer Center discusses potential in circulating biomarkers in uveal melanoma. #EyeGetDilated #OM
Today is #ScienceSunday, with our final sessions on the latest OM research. Currently, the attendees are hearing from CURE OM initiative Director, Dr. Sara Selig and OM survivor and planning committee member Neil Corman on the VISION Platform. #EyeGetDilated #OM
Wishing our New England ocular melanoma community including team CURE OM, the best of luck tomorrow! Thank you for all you have done to support our New England ocular melanoma community! Leave a comment and wish them the best of luck
In August 2023, the @US_FDA approved HEPZATO KIT, as a liver-directed treatment for adult patients with metastatic uveal melanoma During #MAM24, view this webinar featuring Dr. Marlana Orloff & Dr. Jonathan Zager to learn more about this amazing approval -buff.ly/3UIOn2Z
"it is so important to find your voice and be your own advocate"- Molly Vocino, MSW, LCSW Track 2: Patient Quality of Life Sessions, where attendees hear from Molly Vocino, MSW, LCSW from @KimmelCancerCtr on self-advocacy and resource navigation. #eyegetdilated #OM
Track 1: Medical and Research Sessions, attendees are hearing from Dr. Kamaneh montazeri from @MassGeneralNews as she discusses metastatic treatment approaches including the FDA approved drug Kimmtrak (tebentafusp)! #EyeGetDilated #OM
For Track 2: Mind and Body Sessions, attendees are hearing from Molly Vocino, MSW, LCSW @KimmelCancerCtr on talking with Loved ones about your diagnosis and Dr. Cristina Pozo-Kaderman from @DanaFarber on Sexual health and Melanoma #EyeGetDilated #OM
For Track 1: Medical and Research sessions, the attendees are hearing from different physicians about primary #OM diagnosis and more including post primary treatment from Dr. Kim @MassEyeAndEar #eyegetdilated
Today is the first day of the Eyes on a Cure Ocular Melanoma Patient and Caregiver Symposium with amazing sessions already underway including our patient and caregiver panel! #EyeGetDilated #OM
With over 2,000 people diagnosed w/ #OcularMelanoma each year, it is important for the #OM community to have the resources to help navigate talks w/ your doctor & your loved ones. During #MAM4, check out our Ocular Melanoma Patient Guide on ways to help - buff.ly/3y2lMNq
Memphis, our regular rate registration closes TOMORROW at 11:59 pm CT. Our Memphis community is 57% to goal! Register your OM team today to join us on event day! We can't wait to see you all this weekend! Click here to register now: buff.ly/3vnFS3D
New England, our regular rate registration closes TOMORROW at 11:59pm ET. Register today to join us this Saturday, May 4th at the Franklin Park Zoo! Click here to register your OM team today: buff.ly/4arqVfX Watch the full PSA from @WCVB: buff.ly/3JFeCkz
Did you know that Denver has 3 CURE OM teams you can join or support this year! Thank you to team CURE OM, team Jo’s Warriors and team Love You Carla for supporting this year’s event. Click the link to register today and join a team or make a donation: buff.ly/4cdrxao
Windy City...are you ready!? Our 2024 Chicago Miles for Melanoma 5K event registration page is now OPEN! Join us on Sunday, July 21 at Montrose Beach for an incredible day and help us raise funds for the OM community. Click the link to register: buff.ly/4b39uCD
Melanoma Research @MelanomaReAlli
14K Followers 4K Following The Melanoma Research Alliance works to accelerate the pace of scientific discovery & translation. 100% of your donation goes to world-class melanoma research.
OcuMelUK @OcuMelUK
744 Followers 489 Following We are a charity aiming to raise awareness and help support those affected by ocular melanoma.💙 Contact our helpline on 📞 0300 790 0512
Jonas Nilsson @DrJonasANilsson
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Keiran Smalley @LabSmalley
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Australasian Ocular M.. @AOMA_MASC
369 Followers 323 Following AOMA is a research group that aims to further care and treatment of patients with ocular melanoma across Australia and the world. Coordinated by @MASC_Trials
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OcuMelUK @OcuMelUK
744 Followers 489 Following We are a charity aiming to raise awareness and help support those affected by ocular melanoma.💙 Contact our helpline on 📞 0300 790 0512
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885 Followers 1K Following A Cure In Sight is a non-profit organization founded to raise Ocular Melanoma awareness and to help OM patients find/pay for the treatments that they need.
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Erica Bryant @EricaWSOC9
4K Followers 527 Following Queen City. Mom. Wife. News Anchor. #9Moms Send news tips, pics, video to: [email protected]As patients and their loved ones are those most affected by research advances and the development of new therapies, the MRF believes their input to be incredibly valuable to the grant review process. Beginning in 2019, melanoma patient advocates (both patients and family…
On #WorldCancerDay we @angelesclinic reaffirm our dedication to health #equity and #equality in our drive to find answers to combat the rising incidence of cancers world wide. #clinicaltrialssavelives @jtmoyers @MarkFariesMD @KrisWentzelMD @NavidHafez @CSCancerCenter…
Learn more about this amazing team of researchers and how their research impacts the #OM community during our upcoming Eyes on a Cure: Patient and Caregiver Symposium. Details coming soon!
We are excited to announce & congratulate the winners of the inaugural CURE OM Options Bring Hope Team Award: Bruce Ksander, PhD from The Schepens Eye Research Institute , Rizwan Haq MD, PhD from @DanaFarber and Margarete Karg, PhD from @MassEyeAndEar for their research project…
Join melanoma patients, caregivers, supporters and advocates from across the country on March 3-5 in Washington, DC to learn about issues facing the melanoma community, our community’s key legislative priorities and then share your story with lawmakers on Capitol Hill.…
The MRF's 2024 Research Grant opportunities are currently accepting applications! This year, we are offering: - Resident/Fellows Research Award (Due 1/31 5pm ET) - The MRF Breakthrough Consortium Pilot Translational Award (Due 2/20 5pm ET) - The MRF Breakthrough Consortium…
This September, we celebrated our #MRFDenverGala23 Honorees, Zeina Dajani, MD, Stacey Sepp, Crystal Crowley & Mary Harty-Prather. Thank you all for proving that PROGRESS IS POWER in #melanoma research. Continue the progress by donating this #GivingTuesday: buff.ly/3sTn9eX
This October, we celebrated our #MRFNYCGala23 Honorees, Udai S. Kammula, MD, FACS, Samer Jaber, MD, @TeddiMellencamp and @MucosalMelanoma. Thank you all for proving that PROGRESS IS POWER in #melanoma research. Continue the progress by donating this #GivingTuesday:…
This #GivingTuesday, you have the chance to double your donation! Our incredible National Prevention Partner, @Neutrogena, will be matching the first $20,000 donated! That’s not all – in memory of Aaron Landenberger, the first $25,000 donated in stock will also be matched! Help…
Day 2 of @SocietyMelanoma annual meeting in Philadelphia. First session is focused on plasticity and therapy escape.
Looking forward to an interesting @SocietyMelanoma meeting in PA, and the @MRFCureOM side meet! Step by the poster of my graduate student Gulum on our screening efforts to find new treatment angles for UM! Poster number 119!
Dr Butler presenting “Tebe in Practice. A Canadian summary” at the @MRFCureOM meeting in Philadelphia. @CureMelanoma
Excited to be at the CureOM scientific meeting @CureMelanoma @MRFCureOM @MoffittNews. Amazing turn out! Lots of great progress is being made in uveal melanoma research and treatment.
We are thrilled to announce the launch of a transformative initiative that marks a significant milestone in our fight against melanoma – the Legacy of Progress Endowment Fund. This pioneering endeavor embodies our unwavering commitment to advancing melanoma research, treatment…
#ICYMI, check out our most recent webinar about the latest FDA-approved drug for metastatic uveal melanoma: melphalan delivered directly to the liver featuring Dr. Marlana Orloff at @TJUHospital and Jonathan S. Zager, MD, FACS, FSSO at @USouthFlorida . Watch the full video here -…
@MRFCureOM The Nourani family is wonderful. They are so supportive of the Ocular Melanoma patients and their families. God bless them.
Grateful for this opportunity and looking forward to seeing everyone Monday evening!
Join us July 24 at 7:00pm ET for an informative discussion featuring @MPostow from @MSKCancerCenter and patient advocate Bennie Lunsford. Thank you @Replimune for sponsoring this important educational opportunity. Register today and join the conversation - buff.ly/3PIXcry
Thanks @CureMelanoma for the opportunity to share our fucosylation work at the annual MRF Breakthrough Consortium meeting at #ASCO2023! Important translational discussions among friends & colleagues new and old! #MRFresearch @MoffittNews
Congratulations to @post_reddy on his great talk on the uveal melanoma liver environment today @MoffittNews
Sara Selig MD MPH is the Co-Founder and Director of @MRFCureOM. As an OM advocate, she works to accelerate research, collaboration and support. Hear her talk 'Uniting the OM community: Keeping our eyes on a cure' free at the AOMA Virtual Summit, 24 June: masc.org.au/aoma-summit/
Sara Selig MD MPH is the Co-Founder and Director of @MRFCureOM. As an OM advocate, she works to accelerate research, collaboration and support. Hear her talk 'Uniting the OM community: Keeping our eyes on a cure' free at the AOMA Virtual Summit, 24 June: masc.org.au/aoma-summit/
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