Laurie Eddy @LeddyVT
Cystic Fibrosis Advocate & Mom to Maureen & Kelly. Helping to build community support and CF Awareness. South Burlington, VT Joined February 2011-
Tweets435
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Followers126
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Following187
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Likes3K
.@RepBeccaB @PeterWelch, as your constituent and the mom of 2 daughters living with cystic fibrosis, I urge you to cosponsor the PASTEUR Act. People with #cysticfibrosis and all Americans need innovative antibiotics to fight infections. #CFAdvocacy
.@RepBeccaB @SenSanders @PeterWelch, as the mother of two daughters living with #cysticfibrosis, and a constituent, I’m calling on Congress to prioritize the needs of the CF community. I urge you to cosponsor and pass the HELP Copays Act and the PASTEUR Act. #CFadvocacy
.@SenSanders @PeterWelch, as a constituent and mother of two young adults living with #cysticfibrosis I urge you to oppose work requirement policies in the debt ceiling package, which threaten access to care. #CFadvocacy
.@RepBeccaB @SenSanders @PeterWelch, as your constituent I urge you to cosponsor the PASTEUR Act. People with #cysticfibrosis and all Americans need innovative antibiotics to fight infections. #CFadvocacy
.@RepBeccaB @SenSanders @PeterWelch as a constituent and mom of 2 daughters living with #cysticfibrosis, I’m calling on Congress to prioritize the needs of the CF community. I urge you to cosponsor and pass the HELP Copays Act and the PASTEUR Act. #CFadvocacy
Every day brings more confirmation that Republicans have promised to pass a national abortion ban if they win control of Congress. That’s what’s on the ballot in November.
Thank you to Republican House Leadership for your ‘Commitment to America’ plan that recognizes the role Congress has in protecting unborn children & their moms from abortion Our statement: sbaprolife.org/newsroom/press…
Elise Stefanik’s hand-picked candidiate, Carl Paladino, calls for AG Garland to be executed. Elise won’t condemn it. Can only conclude she agrees. Elise’s own rhetoric and her endorsed candidates have lit the fuse for more violence. #CommunityOverChaos
Perfectly normal, amirite? On radio show, Paladino said Merrick Garland 'probably should be executed' buffalonews.com/news/local/gov…
@smelis73 @miamiHerald @miamiMayor @miami @CF_Foundation @mrsRLP920 @CBSSunday @MarissaBenchea @RiedyCarl @eli3abeth12 @KSabadosa @NPLB_org @ananavarro @mrsRLP920 @jollyjohnson please retweet
After waiting 14 hrs in ER w/only 1 working bathroom @UMiamiHealth 4 a bed, unacceptable,put on imcu floor & nurses ask me after seeing chart CF cystic fibrosis if I have congestive heart failure,an awful experience ¬ the first time #care #medicine #hospitals #cf #disease #ER
Thank you @PeterWelch for standing with women and fighting for Health Protection
This decision is the most significant attack on women’s rights in a generation. It is a disgrace. My full statement is below.
Heartbroken and angry...
To my friends in Dallas who are asking: I do not know whether our @ABCNetwork affiliate @wfaa cut away from my monologue tonight intentionally or inadvertently but I will find out. In the meantime, here's what you didn't get to see youtube.com/watch?v=OF_Gof…
Last week, Congresswoman Elise Stefanik called Dems "pedo grifters" and railed that Dems didn't "...present ANY PLAN or urgency to address the nationwide baby formula crisis..." Last night she and a majority of the GOP voted against funding to address that crisis.
.@SenSanders @SenatorLeahy @PeterWelch, as your constituent I urge you to include the PASTEUR Act in the FDA User Fee agreement. People with #cysticfibrosis and all Americans need new and innovative antibiotics to fight difficult-to-treat infections. #CFadvocacy
Congrats to @UVMLarnerMed Prof of Pharmacology & #UVM Cancer Center member Fran Carr, PhD, who's been elected as a 2021 @aaas fellow for her contribs to thyroid hormone biology & pathology, science policy for US govt, & leadership positions at 2 universities.
We need Congress’s help to fix the broken market for antibiotic development so that people with #cysticfibrosis have effective treatments to fight infection. Take action today! act.cff.org/ORuYqyR #CFadvocacy
.@PeterWelch @SenSanders @SenatorLeahy , as your constituent, and the mother of two daughters living with cystic fibrosis, I urge you to cosponsor the PASTEUR Act. People with #cysticfibrosis and all Americans need innovative antibiotics to fight infections. #CFadvocacy
An inspiring advocate for the CF Community - Thank you Emily! ABC's Rebecca Jarvis Interviews Emily youtu.be/PQiJ1QzGt-E via @YouTube
Be part of new research to better understand your experiences while taking Trikafta. Indiana University has launched the app-based HERO-2 Study, powered by Folia and funded by the CF Foundation. Download the Folia app and enter code HERO-2 or visit hero2study.com.
If you have a fake vaccine card you’re a special kind of weasel.
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31 Followers 313 Following I'm Julie Leach the winner of of $310.500,000 in a while I'm giving out 100,000 to my 1k friend
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_laurenclayton_ @laurenclayton__
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CF Vests Worldwide @cfvww1
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Chris Nickerson @redtruckzoom
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deroylazer @deroylazer
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Jessica J @jessica45qt
154 Followers 1K Following (🏳️🌈SHE/HER Pronouns) ASL-BSL suffer from cystic fibrosis,cvEDS,Pots,Mcas,Cancer and other health issues as well. Lesbihonest !!
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CFF Northern New Engl... @CFFNNE
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Emily's Entourage @EmilysEntourage
2K Followers 2K Following Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
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