The Leukemia & Lymphoma Society - Policy Advocacy @LLSAdvocacy
@LLSAdvocacy works to drive policies that accelerate the development of new cancer treatments & break down the barriers to care that patients often encounter. lls.org/policy-advocacy Joined February 2010-
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“It’s heartbreaking to watch your child suffer or your family member, whoever it is, because you can’t get the right medicine at the right time until the insurance companies decided you need the next medicine,” says Marilyn. More about step therapy 👇🏾 wcia.com/illinois-capit…
Raise your voice! 📣🗣️ Join us TODAY at 12 PM ET to learn how YOU can make a difference as an advocate for blood cancer patients and families. Register now 👇🏾 tlls.zoom.us/webinar/regist…
This #NationalVolunteerWeek, we’re grateful for @LLSusa advocates like Ashley & Troy. They advocate for their daughter Aspen, a two-time blood cancer survivor--and for those who lost their lives to blood cancer. Thank you! 💗
At LLS, we're driving policies that break down patients’ financial barriers to care. But we can't do it alone. Join us April 25 and learn how YOU can be a powerful voice advocating for cancer patients There's still time to sign up! 👇🏾 tlls.zoom.us/webinar/regist…
"For patients with...cancer, prior authorization delays and denials are a common occurrence: A 2023 study found that 1 out of every 5 cancer patients did not receive the care recommended by their treatment team because of the prior authorization process." stateline.org/2024/04/08/sta…
#Grateful for Illinois advocates, who spent yesterday urging lawmakers in their state to protect patients from dangerous junk insurance plans. These plans often leave patients on the hook for thousands of dollars. Thanks for raising your voices! 📢
Thank you @GovPritzker for spending time today meeting with @LLSusa staff and volunteers! We're excited to work with you to protect cancer patients across Illinois from dangerous junk insurance plans that put too many people at risk.
Parents of children with complex medical needs have enough to worry about, and passing AKACA would allow them to better focus on their child instead of waiting for provider paperwork before traveling across state lines for specialized care. #AKAC
Parents of children with complex medical needs have enough to worry about, and passing AKACA would allow them to better focus on their child instead of waiting for provider paperwork before traveling across state lines for specialized care. #AKAC
Children who experience a recurrence of their blood cancer require immediate specialized care, usually at a large children's hospital, often located outside their home state. Some treatments, such as pediatric bone marrow transplants, are not available in every state. #AKAC
Children who experience a recurrence of their blood cancer require immediate specialized care, usually at a large children's hospital, often located outside their home state. Some treatments, such as pediatric bone marrow transplants, are not available in every state. #AKAC
Children cannot afford to wait for paperwork processes to receive potentially life-saving care. One advocate, J.J., took her son from CA to TX for a clinical trial. It was the only option left, but after the paperwork delays, it was too little, too late. #AKAC
Children cannot afford to wait for paperwork processes to receive potentially life-saving care. One advocate, J.J., took her son from CA to TX for a clinical trial. It was the only option left, but after the paperwork delays, it was too little, too late. #AKAC
🚀 Calling all advocates for children's healthcare! Do you believe every child deserves timely access to care, regardless of state borders? Join us and @hospitals4kids for a live Twitter/X chat TODAY from 12-1 EST to discuss how the #AKAC can make a difference.
Join us at our Advocacy Town Hall April 25! We'll discuss how we can work together in 2024 to break down financial barriers cancer patients face and ensure blood cancer patients can get the lifesaving treatment they need—without delay. Register today ⬇️ tlls.zoom.us/webinar/regist…
"We're supposed to have health insurance but really the insurance that saved us was our friends and family." Barb, an LLS advocate, shared her family's experience with medical debt with @FOX9 today at the #mnleg. Hear more at 5 & 6 tonight in the Twin Cities. #MNDebtFairness
Today, we're joined by Minnesota #AdvocatesinAction for Debt Fairness Day. They're urging state lawmakers to pass protections for Minnesotans so they can afford life-saving treatment. Thank you, advocates! #MNDebtFairness #mnleg
⏳ Only 2 days left until we join @hospitals4kids for a live chat about the Accelerating Kids' Access to Care Act! Don't our conversation about improving timely healthcare access across state lines for children on Medicaid. Mark your calendars for Apr. 17 at noon ET! #AKAC
"As prior authorization has spread, delays in care have become normalized. So have tragedies. One in three doctors say that it's caused a serious medical issue or even the death of one of their patients." Learn more via @nytimes ⬇️ nytimes.com/2024/03/14/opi…
At LLS, we're driving policies break down barriers and ensure that all patients can access quality, affordable care. But we can't do it alone. Join us April 25 and learn how YOU can help advocate for cancer patients 👇🏾 bit.ly/49v6Ggq
Wondering what "short-term health insurance plans" are, how they put patients at risk, and how the new short-term rule can help? Here's a great overview from @nytimes 👇🏾 nytimes.com/2024/03/28/us/…
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Leukemia & Lymphoma S.. @LLSResearch
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Leukemia & Lymphoma S.. @LLSResearch
2K Followers 346 Following @LLSusa Research team bringing you #bloodcancer news from our awardees
@MyelomaTeacher - Cin.. @MyelomaTeacher
10K Followers 2K Following Retired Teacher- Dx with Myeloma 2008- Patient Research Advocate-Curriculum Director @HealthTreeU- @ASH_Hematology & @TheEBMT Speaker-IRB Member, #MMSM
American Cancer Socie.. @ACSCAN
21K Followers 3K Following ACS CAN advocates for evidence-based public policies to reduce the cancer burden for everyone. Nonpartisan advocacy affiliate of @AmericanCancer.
International Myeloma.. @IMFmyeloma
16K Followers 5K Following First and largest org dedicated to #multiplemyeloma. Improving Lives, Finding the Cure.
John P. Leonard, MD @JohnPLeonardMD
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113K Followers 9K Following Dana-Farber Cancer Institute - a leading center for expert, compassionate cancer care and advanced research. Appts: 877-442-3324 | https://t.co/HvCwkLltic
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Krishna Komanduri, MD.. @drkomanduri
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Amanda Marie @amandavscancer
47 Followers 107 Following thirty | writer, lover of literature, seeker of knowledge & truth, bulldog butt scratcher, & cancer haver. | Welcome to my adventure. :)"For patients with...cancer, prior authorization delays and denials are a common occurrence: A 2023 study found that 1 out of every 5 cancer patients did not receive the care recommended by their treatment team because of the prior authorization process." stateline.org/2024/04/08/sta…
As doctors, CIR members know how things like prior authorization get in the way of the care we KNOW our patients need. Thank you to @LLSAdvocacy @mssociety @shrivercenter for your advocacy yesterday! Looking forward to supporting @RobertJPeters get this through the IL Senate!
As doctors, CIR members know how things like prior authorization get in the way of the care we KNOW our patients need. Thank you to @LLSAdvocacy @mssociety @shrivercenter for your advocacy yesterday! Looking forward to supporting @RobertJPeters get this through the IL Senate!
@LLSAdvocacy It was a fantastic day! Thanks for letting an @MSactivist or two tag along! 😄
#Grateful for Illinois advocates, who spent yesterday urging lawmakers in their state to protect patients from dangerous junk insurance plans. These plans often leave patients on the hook for thousands of dollars. Thanks for raising your voices! 📢
Join us at our Advocacy Town Hall April 25! We'll discuss how we can work together in 2024 to break down financial barriers cancer patients face and ensure blood cancer patients can get the lifesaving treatment they need—without delay. Register today ⬇️ tlls.zoom.us/webinar/regist…
Thank you, @GovTinaKotek, for protecting Oregonians': 🏠homes 👷🏿wages 💵and savings from medical debt. These protections are crucial for patients with cancer and other chronic diseases.
🚀 Calling all advocates for children's healthcare! Do you believe every child deserves timely access to care, regardless of state borders? Join us and @hospitals4kids for a live Twitter/X chat TODAY from 12-1 EST to discuss how the #AKAC can make a difference.
@hospitals4kids We're the arm of @LLSusa working to drive policies to accelerate the development of new cancer treatments & break down barriers to care that patients often encounter. One of our key priorities is ensuring access to treatments for pediatric & adolescent/young adult patients. #AKAC
@hospitals4kids Kids with blood cancer routinely rely on time-sensitive specialty care, especially if they have a recurrence. But children covered by Medicaid/CHIP– roughly half of children in the US –often face red tape when they need out-of-state care. #AKAC (1/2)
@hospitals4kids Families are extremely burdened by these delays, which sometimes cause children to miss out on the care they need. Children deserve to be able to access their specialized care no matter where they live. #AKAC (2/2)
Children who experience a recurrence of their blood cancer require immediate specialized care, usually at a large children's hospital, often located outside their home state. Some treatments, such as pediatric bone marrow transplants, are not available in every state. #AKAC
#AKAC Q8: For families: What types of care have you accessed across state lines?
Parents of children with complex medical needs have enough to worry about, and passing AKACA would allow them to better focus on their child instead of waiting for provider paperwork before traveling across state lines for specialized care. #AKAC
#AKAC Q10: If this bill became law, what would it mean for you as a family/provider?
AKACA would have made a world of difference for kids like Mason, who had to travel from CA to TX for a clinical trial. But due to red tape, he couldn't get his anti-nausea medications filed in TX. (1/2) #AKAC
#AKAC Q11: As Congress is considering this bill, what do you want them to know most about the difference it would make?
This red tape meant his family had to have friends fill the prescriptions in CA and ship them to TX. No family should have to deal with these red tape burdens. Learn more about Mason: youtube.com/watch?v=tUm3kN… (2/2) #AKAC
Thank you @LLSAdvocacy, @MDA_Advocacy, @RareDiseases, @NMDP_advocacy, @MMom64, and @ChrisRamir52149 for joining us today to talk about the importance of enacting Accelerating Kids Access to Care Act! #AKAC
This is 💔. Every child deserves timely and affordable access to care, when and where they need it.
Children cannot afford to wait for paperwork processes to receive potentially life-saving care. One advocate, J.J., took her son from CA to TX for a clinical trial. It was the only option left, but after the paperwork delays, it was too little, too late. #AKAC
Thank you @GovPritzker for spending time today meeting with @LLSusa staff and volunteers! We're excited to work with you to protect cancer patients across Illinois from dangerous junk insurance plans that put too many people at risk.
How we feel about hosting the #AKAC Twitter Chat to raise awareness to the importance of enacting Accelerating Kids Access to Act to ensure timely access to care for children with medical complexities:
⏳ Only 2 days left until we join @hospitals4kids for a live chat about the Accelerating Kids' Access to Care Act! Don't our conversation about improving timely healthcare access across state lines for children on Medicaid. Mark your calendars for Apr. 17 at noon ET! #AKAC
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